Palliative Care and Resilience Research Program (PCAR)

Selected Publications

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Selected Publications

  1. Rosenberg AR, Baker KS, Syrjala KL, Back AL, Wolfe J. Promoting resilience among parents and caregivers of children with cancer. Journal of Palliative Medicine; 16 (6) 645-652; 2013. PMID 23646887.
  2. Rosenberg AR, Dussel V, Kang T, Geyer JR, Gerhardt C, Feudtner C, Wolfe J. Psychological Distress in Parents of Children with Advanced Cancer. JAMA Pediatrics; 167 (6): 537-543; 2013. PMID 23545569.
  3. Yi-Frazier JP, Yaptangco M, Semana S, Buscaino E, Thompson V, Cochrane K, Tabile M, Alving E, Rosenberg AR. A Pilot Study of the Association of Personal Resilience with Stress, Coping and Diabetes Outcomes in Adolescents with Type 1 Diabetes: Variable and Person-Focused Approaches. Journal of Health Psychology, 2013 Nov 21. [Epub ahead of print] PMID 24271691.
  4. Rosenberg AR, Wolfe J, Bradford M, Shaffer M, Yi-Frazier J, Curtis JR, Syrjala KL, Baker KS. Resilience and psychosocial outcomes of caregivers of children with cancer; Pediatric Blood and Cancer; 61(3): 552-557; 2014. PMID 2424926.
  5. Rosenberg AR, Starks, H, Jones B. I know it when I see it: the complexities of measuring resilience in pediatric cancer. Supp Care Cancer, Apr 23, 2014. [Epub ahead of print] PMID 4756554.
  6. Rosenberg AR, Orellana L, Kang T, Geyer JR, Feudtner C, Dussel V, Wolfe J. Differences in parent-provider concordance regarding prognosis and goals of care among children with advanced cancer. J Clin Oncol, July 14, 2014 [Epub ahead of print] PMID 25024073.
  7. Rosenberg AR, Yi-Frazier JP, Wharton C, Gordon K, Jones B. Contributors and Inhibitors of Resilience among Adolescents and Young Adults with Cancer. J Adolescent and Young Adult Oncology; 3(4): 185-193, 2014. PMID 25969794.
  8. Rosenberg AR*, Yi-Frazier JP*, Eaton L, Wharton C, Cochrane K, Pihoker C, Baker KS, McCauley E. Promoting Resilience in Stress Management (PRISM) – a pilot study of a novel resilience-promoting intervention for adolescents and young adults with serious illness (*Co–first authors). J Pediatric Psychology, Feb 15, 2015 [Epub ahead of print] PMID 25678533.
  9. Rosenberg AR, Syrjala KL, Martin P, Flowers M, Carpenter P, Salit R, Baker KS, Lee SJ. Resilience, Health, and Quality of Life among Long-Term Survivors of Hematopoietic Cell Transplant. Cancer, Aug 19, 2015 [Epub ahead of print] PMID 26288023
  10. Rosenberg AR, Bona K, Wharton C, Bradford M, Shaffer M, Wolfe J, Baker KS. Adolescent and Young Adult Patient Engagement and Participation in Survey-Based Research: a report from the "Resilience in Adolescents and Young Adults with Cancer" study. Pediatric Blood and Cancer, Dec 18, 2015 [Epub ahead of print] PMID 26681427.
  11. Rosenberg AR and Yi-Frazier J. Commentary: Resilience defined: An alternative perspective. J Pediatric Psychology. March 24, 2016 [Epub ahead of print]. PMID 27013701.  
  12. Rosenberg AR, Orellana L, Ullrich C, Kang T, Geyer JR, Feudtner C, Dussel V, Wolfe J. Quality of Life in Children with Advanced Cancer: A report from the PediQUEST study. J Pain Symptom Management. May 21, 2016 [Epub ahead of print]. PMID 27220948.
  13. Rosenberg AR, Wolfe J, Wiener K, Lyon M, Feudtner C. Ethics, Emotions, and the Skills of Talking about Progressing Disease with Terminally Ill Adolescents. JAMA Pediatrics. Oct 17, 2016 [Epub ahead of print]: doi: 10.1001/jamapediatrics.2016.2142.
  14. Straehla JP, Barton K, Yi-Frazier JP, Wharton C, Baker KS, Bona K, Wolfe J, Rosenberg AR. Benefits and Burdens of Cancer: a prospective longitudinal cohort study of adolescents and young adults. J Pall Med. In Press.
  15. Rosenberg AR, Bona K, Ketterl T, Wharton C, Wolfe J, Baker KS. Intimacy, Substance Use, and Communication Needs During Cancer Therapy: a report from the “Resilience in Adolescents and Young Adults with Cancer” study. J Adol Health. Oct 18, 2016 [Epub ahead of print]. doi: 10.1016/j.jadohealth.2016.08.017