2016 Pediatric Bioethics Conference

Our 12th Annual Pediatric Bioethics Conference, “Autism Re-Examined: Ethical Challenges in Care, Support, Research and Inclusion,” took place on July 22 and 23, 2016.

Videos of presentations and PDFs of speaker biographies are posted below.

Friday, July 22, 2016

Disparities in Early Identification and Treatment of Autism Spectrum Disorder (ASD)
Katharine Zuckerman, MD, MPH (bio)

Falling Through the Cracks: Delayed ASD Diagnosis and Intervention for Children Living as Wards of the State
Maureen Kelley, PhD (bio)

The Frontline of ASD Disparities: Experience at Hope Central in Seattle
Patricia Scott, MD (bio)

Interacting and Supporting Children with ASD in the Healthcare Setting
Felice Orlich, PhD (bio)

Parent-Reported Healthcare Quality Among Children with ASD
Katharine Zuckerman, MD, MPH (bio)

Navigating Complexity in a Challenging Environment: ASD in the Emergency Department
Eileen Klein, MD, MPH (bio)

Parents and Providers United: Barriers to Providing Sexual Healthcare for Youth with ASD
Laura Holmes, MS (bio)

Parent/Adult/Teen Panel Discussion
Katrina Davis (bio)
Rebecca Klein (bio)
Ben Moore (bio)
Ivanova Smith (bio)
Lynn Vigo (bio)

Ethical Dimensions of Transition Research
Paul Shattuck, PhD (bio)

Inclusive Disability Hiring: Autism Program
Neil Barnett, PhD (bio)

Understanding the Challenges Faced by Neurodiverse Software Engineering Employees
Meredith Ringel Morris, PhD (bio)

The Tavon Center: One Solution to the Transition Dilemma
Therese Vafaeezadeh, MSN, ARNP (bio)

Saturday, July 23, 2016

Cannabis for Behavior Control – What’s a Clinician to Do?
Melissa Weddle, MD, MPH (bio)

Case Studies of Genetic Testing for ASD: Variability in Access
Krysta Shutske, PhD, MPH (bio)

Surgery to Stop an Autistic Boy’s Screams: Innovative Solution or Ethically Troubling?
Ryan Antiel, MD, MSME (bio)

Towards a New Science of Autism: Building a Participatory Framework
Liz Pellicano, PhD, MPsych (bio)

Historical and Contemporary Lessons About Risk, Ethics and Autism
Michael Yudell, PhD, MPH (bio)

Prodromal Detection and Early Intervention Research
Celine Saulnier, PhD (bio)

Finding a “Cause”: ASD Genetic Research and Translation
Holly Tabor, PhD (bio)

The Emerging Ethics of Autism Environmental Risk Research
Martine Lappé, PhD (bio)