Note: The schedule is subject to change.  Please check back regularly for updates.

Day 1: Friday, July 19, 2019

8 a.m.

and Continental Breakfast

8:30 a.m.

Welcome and Introduction

Benjamin Wilfond, MD

8:45 a.m.

The Hopkins Down Syndrome Case: The Dawn of the Bioethics Movement

Norman Fost, MD, MPH 

9:30 a.m.

Who Is the Next Baby Doe?: From Trisomy 21 to Trisomy 18 and Beyond

Jennifer Kett, MD, MA

10 a.m.


10:15 a.m.

Adolescent Refusals of Life-Saving Treatment: Dennis L

Douglas Diekema, MD, MPH 

10:45 a.m.

Reflections on Adolescent Decision-Making

Lois Weithorn, PhD, JD 

11:15 a.m.

Conflicts Between Parents and Doctors Over “Potentially Inappropriate” Treatment: Charlie Gard

Dominic Wilkinson, MB BS, DPhil

11:45 a.m.

Reflections on Charlie Gard From Both Sides of the Atlantic Ocean

Lainie Friedman Ross, MD, PhD 

12:15 p.m.

Lunch (provided) 

1:15 p.m.

An Organ for My Child: Public Appeals for an Identified Child

Aaron Wightman, MD, MA

1:45 p.m.

Transplant by Twitter: Challenging Inclusion and Exclusion Criteria

Aviva Goldberg, MD, MA 

2:15 p.m.

Risky Business:  The Adolescent Transplant Candidate

Lainie Friedman Ross, MD, PhD 

2:45 p.m.


3 p.m.

A Conversation About Defining Moments in Pediatric Bioethics

Douglas Diekema, MD, MPH, moderator
Conference Speakers

4 p.m.

Questions From the Audience 

4:30 p.m.


Day 2: Saturday, July 20, 2019

7:45 a.m.

and Continental Breakfast 

8:15 a.m.

Welcome and Introduction

Douglas Diekema, MD, MPH  

8:30 a.m.

Determining Death in Pediatrics: Jahi McMath

Robert Truog, MD 

9:15 a.m.

Jahi McMath: Lessons Learned

Maya Scott, MSW, LSWAIC 

9:45 a.m.

Panel and Questions From the Audience

Robert Truog, MD
Maya Scott, MSW
Mary Faith Marshall, PhD

10:15 a.m.


10:30 a.m.

Breakout Sessions:  Abstract Presentations and Discussion

11:30 a.m.


11:45 a.m.

Ferguson v. City of Charleston Redux: Motivated Reasoning and Coercive Interventions in Pregnancy

Mary Faith Marshall, PhD

12:30 p.m.

Concluding Comments and Adjourn