Note: The schedule is subject to change.  Please check back regularly for updates.

Day 1: Friday, July 19, 2019

8 a.m.

Sign-In and Continental Breakfast

8:30 a.m.

Welcome and Introduction
Benjamin Wilfond, MD

8:45 a.m.

The Hopkins Down Syndrome Case: The Dawn of the Bioethics Movement
Norman Fost, MD, MPH (bio)

9:30 a.m.

Who Is the Next Baby Doe?: From Trisomy 21 to Trisomy 18 and Beyond
Jennifer Kett, MD, MA (bio)

10 a.m.

Break

10:15 a.m.

Adolescent Refusals of Life-Saving Treatment: Dennis L
Douglas Diekema, MD, MPH (bio)

10:45 a.m.

Reflections on Adolescent Decision-Making
Lois Weithorn, PhD, JD (bio)

11:15 a.m.

Conflicts Between Parents and Doctors Over “Potentially Inappropriate” Treatment: Charlie Gard
Dominic Wilkinson, MB BS, DPhil (bio)

11:45 a.m.

Reflections on Charlie Gard From Both Sides of the Atlantic Ocean
Lainie Friedman Ross, MD, PhD (bio)

12:15 p.m.

Lunch (provided) 

1:15 p.m.

An Organ for My Child: Public Appeals for an Identified Child
Aaron Wightman, MD, MA (bio)

1:45 p.m.

Transplant by Twitter: Challenging Inclusion and Exclusion Criteria
Aviva Goldberg, MD, MA (bio)

2:15 p.m.

Risky Business:  The Adolescent Transplant Candidate
Lainie Friedman Ross, MD, PhD 

2:45 p.m.

Break 

3 p.m.

A Conversation About Defining Moments in Pediatric Bioethics
Douglas Diekema, MD, MPH, moderator
Conference Speakers

4 p.m.

Questions From the Audience 

4:30 p.m.

Adjourn 

Day 2: Saturday, July 20, 2019

7:45 a.m.

Sign-In and Continental Breakfast 

8:15 a.m.

Welcome and Introduction
Douglas Diekema, MD, MPH  

8:30 a.m.

Determining Death in Pediatrics: Jahi McMath
Robert Truog, MD (bio)

9:15 a.m.

Jahi McMath: Lessons Learned
Maya Scott, MSW, LSWAIC (bio)

9:45 a.m.

Panel and Questions From the Audience
Robert Truog, MD
Maya Scott, MSW
Mary Faith Marshall, PhD

10:15 a.m.

Break 

10:30 a.m.

Breakout Sessions:  Abstract Presentations and Discussion

11:30 a.m.

Break 

11:45 a.m.

Ferguson v. City of Charleston Redux: Motivated Reasoning and Coercive Interventions in Pregnancy
Mary Faith Marshall, PhD (bio)

12:30 p.m.

Concluding Comments and Adjourn

Breakout Sessions

Saturday, July 20, 2019 10:30 – 11:30 AM
(listed in presentation order - select one session)

Session One: Suffering in Medicine 

Moderator: Aaron Wightman, MD, MA

  • The Suffering Child: Claims of Suffering in Seminal Cases and What To Do About Them
    Annie Friedrich, MA
  • Parental Requests to Forgo Medically Administered Nutrition and Hydration in a Child Perceived to be Suffering
    Sara Taub, MD, MBe
  • Suffering and the Mysterious Case of the Disappearing Child
    Tyler Tate, MD, MA

Location: Bay Auditorium

Session Two: Emerging Technologies 

Moderator: Krysta Barton, PhD, MPH

  • Adolescent and Family Perspectives on Genome-Informed Pediatric Cancer Therapy
    Esther Knapp, MD
  • Overcoming the Legacy of Thalidomide in the Age of Cannabis: An Ethical Dilemma for Women with Pregnancy-Induced Nausea
    Kate MacDuffie, PhD
  • The Burden of Saving Your Co-Twin
    David Mann, MD, DBe

Location: CoveConference Room

Session Three: Uncertainty in the ICU

Moderator: Emily Berkman, MD, MA

  • When a Drop of Blood Won’t Do: Ethical Issues in Screening for Congenital CMV
    Ladawna Gievers, MD
  • Rethinking Cases Involving Intractable Conflict in the PICU
    Ian Wolfe, MA, PhD, RN, CCRN
  • Uncertainty: A Frequent Companion in Decision-Making for Children
    Jeanne Krick, MD, MA

Location:.Marina Conference Room