Digestive and Gastrointestinal Conditions

Congenital Diaphragmatic Hernia (CDH) Treatment

Treatment for congenital diaphragmatic hernia (CDH) is surgery to gently move your child’s abdominal organs down from the chest and close the hole in the diaphragm. Once this is done, your child’s lung size should slowly increase over time.

Your baby may have the surgery very soon after birth, or doctors may wait days or weeks to do the surgery. The timing often depends on the baby’s condition and the degree of high blood pressure in the lungs.

Before Surgery for CDH

Most babies with CDH will be on a breathing machine (ventilator) before surgery. After surgery, they remain on a ventilator until their lungs are ready to take over on their own. Depending on the severity of the CDH, the time on the ventilator may be very short (hours), or it may be weeks.

Some infants need extracorporeal membrane oxygenation (ECMO) treatment, a form of life support that does the work of the lungs and heart for patients during or after surgery. Some infants may also need a tube that passes through the nose into the stomach (nasogastric or NG tube). This tube can keep air out of the intestines so they don’t press on the lungs.

CDH Surgery Options

There are several ways to perform the surgery to move organs back into the belly and close the hole in the diaphragm. The choice will depend on your child’s condition. Your baby’s surgeon will talk with you about the options and make a recommendation for your child. No matter which technique your baby’s surgeon uses, we will give your child medicine to make them sleep without pain during the surgery (general anesthesia).

Some children can have the surgery performed using a thin, lighted tube with a camera attached, called a thoracoscope. This means surgeons can make a few small cuts (incisions) to insert the tube and their surgical tools.

For other children, it is best to make a small incision either in the chest or abdomen to perform the surgery. No thoracoscope is used.

After moving the organs, the surgeon will sew closed the hole in the diaphragm. If the hole is too large to sew up, the surgeon will use a patch to close the hole. This patch will stay inside your child’s body. We use a patch invented at Seattle Children’s that has the highest success rate reported in the medical literature.

How long surgery for CDH takes depends on the size of the hole, how many organs the surgeon needs to move and how healthy your baby is overall. Before surgery, the surgeon can give you an estimate of how long it will take.

At the time of surgery, many children need a chest tube. This allows any fluid that collects in the chest to drain out. The tube usually needs to stay in place for a few days.

After CDH Surgery

After surgery, your child may be in the recovery room for an hour or so or return right away to our Level IV Neonatal Intensive Care Unit (NICU), where newborns receive the highest level of care. When they’re ready, babies move to a regular hospital room. Seattle Children’s is the first hospital in Washington to have a Level IV NICU.

The length of hospital stay for babies with CDH may be as short as a few days to as long as many months. This depends on factors like the extent of the surgery and how long it takes for your child to breathe well on their own.

After your child goes home, keep the incision clean and dry until it heals. The surgery team will teach you how to care for the incision and what kinds of food or medicine to give your child. Your follow-up visits will be coordinated by the Surgery Pulmonary Follow-Up Clinic team.

Contact Us

If you have questions about congenital diaphragmatic hernia treatment, call our General and Thoracic Surgery Department at 206-987-2794, extension 4.