Chromosomal and Genetic Conditions
During hemophilia treatment, doctors give your child more of the protein, Factor VIII or Factor IX, that he is missing. We usually use factor that is made in a lab, called recombinant. In rare cases, we use factor purified from the blood of a donor, called plasma-derived.
Your child gets the factor mixed with fluid through a tube in a vein (intravenously, or by IV).
In severe cases, a child may need to get treatment for hemophilia on a regular schedule. In less severe cases, a child may need to get factors only when he has a bleeding problem.
Your child's doctor and nurse may teach you how to give this treatment at home.
In general, we encourage children with hemophilia to be active, have a normal life and take part in many sports. But there are a few sports, such as tackle football, boxing and hockey, that we do not recommend because of the risk for bleeding.
Seattle Children's has a physical therapist who works with our patients to help them strengthen their joints or recover from a bad muscle or joint bleed.
To prevent problems, it is a good idea to take extra good care of your child's teeth so he doesn't need dental work that might cause bleeding.
When a child does need dental work, we often work closely with Children's Dental Medicine to give him factor treatment right before a visit to the dentist.
Some medicines, such as aspirin, can promote bleeding, so your child will need to avoid them. Your child's doctor can give you details about which medicines to stay away from.