Stephanie Kraft, JD

Stephanie Kraft, JD

Bioethics Consultation Service

Children's Title: Director of Research, Treuman Katz Center for Pediatric Bioethics and Palliative Care

Research Center: Center for Clinical and Translational Research, Treuman Katz Center for Pediatric Bioethics and Palliative Care

  • Biography

    • Related Pages

    • Kraft Lab

      Kraft Lab

      The Kraft Lab aims to improve equitable and respectful research for all patients and families.

  • Publications

    Manuscripts in Refereed Journals

    • Lee SS, Cho MK, Kraft SA, Varsava N, Gillespie K, Ormond KE, Wilfond BS, Magnus D
      "I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research.
      29887604 Genetics in medicine : official journal of the American College of Medical Genetics, 2018 Jun 11
    • Wilfond BS, Kauffman TL, Jarvik GP, Reiss JA, Richards CS, McMullen C, Gilmore M, Himes P, Kraft SA, Porter KM, Schneider JL, Punj S, Leo MC, Dickerson JF, Lynch FL, Clarke E, Rope AF, Lutz K, Goddard KAB
      Lessons Learned From A Study Of Genomics-Based Carrier Screening For Reproductive Decision Making.
      29733724 Health affairs (Project Hope), 2018 May : 37(5)809-816
    • Kraft SA, Cho MK, Gillespie K, Halley M, Varsava N, Ormond KE, Luft HS, Wilfond BS, Soo-Jin Lee S
      Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.
      29621457 The American journal of bioethics : AJOB, 2018 April : 18(4)3-20
    • Kraft SA, McMullen CK, Porter KM, Kauffman TL, Davis JV, Schneider JL, Goddard KAB, Wilfond BS
      Patient perspectives on the use of categories of conditions for decision making about genomic carrier screening results.
      29250907 American journal of medical genetics. Part A, 2018 Feb. : 176(2)376-385
    • Cho MK, Varsava N, Kraft SA, Ashwal G, Gillespie K, Magnus D, Ormond KE, Thomas A, Wilfond BS, Lee SS
      Metaphors matter: from biobank to a library of medical information.
      29267267 Genetics in medicine : official journal of the American College of Medical Genetics, 2017 Dec 21
    • Kraft SA, Constantine M, Magnus D, Porter KM, Lee SS, Green M, Kass NE, Wilfond BS, Cho MK
      A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent.
      27625314 Clinical trials (London, England), 2017 Feb. : 14(1)94-102 PMCID:PMC5300898
    • Kraft SA, Cho MK, Constantine M, Lee SS, Kelley M, Korngiebel D, James C, Kuwana E, Meyer A, Porter K, Diekema D, Capron AM, Alicic R, Wilfond BS, Magnus D
      A comparison of institutional review board professionals' and patients' views on consent for research on medical practices.
      27257125 Clinical trials (London, England), 2016 Oct. : 13(5)555-65 PMCID:PMC5025342
    • Michie M, Kraft SA, Minear MA, Ryan RR, Allyse MA
      Informed decision-making about prenatal cfDNA screening: An assessment of written materials.
      27699200 Ethics, medicine, and public health, 2016 July : 2(3)362-371 PMCID:PMC5044756
    • Lee SS, Kelley M, Cho MK, Kraft SA, James C, Constantine M, Meyer AN, Diekema D, Capron AM, Wilfond BS, Magnus D
      Adrift in the Gray Zone: IRB Perspectives on Research in the Learning Health System.
      27917391 AJOB empirical bioethics, 2016 : 7(2)125-134 PMCID:PMC5130156

    Other Publications

    • Kraft SA, Cho MK, Gillespie K, Varsava N, Ormond KE, Wilfond BS, Lee SS
      Trustworthiness in Untrustworthy Times: Response to Open Peer Commentaries on Beyond Consent.
      29697352 The American journal of bioethics : AJOB, 2018 May : 18(5)W6-W8
    • Kraft SA, Doerr M
      Engaging populations underrepresented in research through novel approaches to consent.
      29512940 American journal of medical genetics. Part C, Seminars in medical genetics, 2018 March : 178(1)75-80 PMCID:PMC5910200
    • Wilfond BS, Kraft SA
      Attending to the Interrelatedness of the Functions of Consent.
      29148942 The American journal of bioethics : AJOB, 2017 Dec. : 17(12)12-13
    • Kraft SA, Porter KM, Shah SK, Wilfond BS
      Comprehension and Choice Under the Revised Common Rule: Improving Informed Consent by Offering Reasons Why Some Enroll in Research and Others Do Not.
      28661747 The American journal of bioethics : AJOB, 2017 July : 17(7)53-55
    • Kraft SA
      Modern Pregnancies and (Im)Perfect Babies.
      27996908 The American journal of bioethics : AJOB, 2017 Jan. : 17(1)1-2
    • Kraft SA, Porter K, Wilfond BS
      Research on Medical Practices and the Patient-Physician Relationship: What Can Regulators Learn from Patients?
      26698590 AMA journal of ethics, 2015 Dec 1 : 17(12)1160-5

  • Research Funding

    Grant Title Grantor Amount Award Date
    Demonstrating respect for persons in research recruitment, informed consent, and enrollment Center for Clinical and Translational Research, Clinical Research Scholars Program Oct 1, 2018 - Sep 30, 2020