Abby R. Rosenberg, MD, MS, MA

Cancer and Blood Disorders Center, Palliative Care Program

On staff since July 2012

Children's Title: Director, Palliative Care and Resilience Research; Seattle Children's Research Institute

Academic Title: Associate Professor Division of Hematology-Oncology; Associate Professor, Division of Bioethics and Palliative Care; Department of Pediatrics, University of Washington School of Medicine

Research Center: Center for Clinical and Translational Research

"I believe helping patients and families build resilience can transform their experiences and promote well-being. "

  • Biography

    Dr. Rosenberg is an Associate Professor of Pediatric Hematology/Oncology at the University of Washington (UW).  She is the director of the Palliative Care and Resilience (PCAR) Lab at the Seattle Children’s Research Institute (SCRI), the Director of Pediatrics at the UW Cambia Palliative Care Center of Excellence, and the Director of Survivorship and Outcomes Research in Pediatric Oncology at the UW.  She holds multiple national leadership positions, including the Chair of the Ethics Committee within the American Society of Clinical Oncology, the Co-Chair of the Scientific Program for the American Association of Hospice and Palliative Medicine, and the Associate Editor-in-Chief of "Palliative Care Fast Article Summaries for Clinicians."  Through her work as program co-director for the University of Washington T32 program in Palliative Care Research and lead mentor in the PCAR lab, Dr. Rosenberg is active in training the next generation of palliative care and supportive oncoloy clinician–scientists at the postdoctoral and junior faculty level. 

     

    Dr. Rosenberg's research focuses on developing programs to help patients and families with serious ilness build resilience, thus alleviating suffering and improving quality of life.  She has been continuously funded by the National Institutes of Health since joining the faculty.  Current projects include nationwide studies testing her novel resilience coaching progam among youth with serious illness.  

     

    • Related Resources

    • Related Pages

    • Promoting Resilience; Reducing Stress

      A promising intervention arms teens and young adults with coping skills to manage stress after a cancer diagnosis and boost quality of life beyond treatment.

    • This Week in Pediatric Oncology PodCast

      TWIPO Host Tim Cripe, alongside co-hosts Ryan Roberts and Lisa Humphrey, engage in an insightful conversation with guest Abby Rosenberg, Director, Palliative Care and Resilience Research at Seattle Children’s Research Institute. Rosenberg, with Seattle Children’s colleague, Yi-Frazier, developed a promising systematic intervention program called PRISM (Promoting Resilience in Stress Management) for teens and young adults to better equip them with skills to manage their stress after a cancer diagnosis. PRISM has undergone pilot/feasibility studies and has received NIH funding for further study. Listen in to learn more.

  • Patient Testimonials

    • Tracey Seattle, WA 10.03.14

      Dr. Rosenberg, I greatly appreciate your honesty in "What would you do if it were your child". You see, I trust you and your expertise because I feel that you genuinely want the best for the children/families whom are battling their way through the storm. Thank you for helping us fight the good fight, as our weapons are love, kindness, strength, courage and hope. My daughter, Angel, is blessed to have you on her team. Thank you, and thank you again for all you do.

    Recommend Dr. Abby R. Rosenberg

  • Awards and Honors

    Award Name Award Description Awarded By Award Date
    2018 Early Career Investigator Award American Academy of Hospice and Palliative Medicine peer-nominated award for emerging scientist with most ground-breaking and impactful scientific program
    2019 “State of the Science” top 8 papers of the year in palliative care research Awarded by American Academy of Hospice and Palliative Medicine for Rosenberg, et. al. Cancer 2018
    2020 "State of the Science" top 10 paper in pediatric palliative care research American Academy of Hospice and Palliative Medicine recognition for Rosenberg, et. al. JAMA Open Netw 2020
    2015 Arnold Smith Endowed Junior Faculty 3-year endowed support for promising early career faculty at Seattle Children’s Research Institute and the University of WA
    2014 “State of the Science” award for top 8 palliative care research papers of the year American Academy of Hospice and Palliative Medicine recognition for Rosenberg, et. al. JAMA Pediatrics 2013
    2020 Fast Company Innovation by Design Award in Health The Promoting Resilience in Stress Management (PRISM) mobile health app Fast Company

  • Publications

    Other Publications

    • Weaver MS, Rosenberg AR, Fry A, Shostrom V, Wiener L
      The Impact of the Coronavirus Pandemic on Pediatric Palliative Care Team Structures, Services, and Care Delivery.
      33350874 Journal of palliative medicine, 2020 Dec. 21
    • Pennell NA, Dillmon M, Levit LA, Moushey EA, Alva AS, Blau S, Cannon TL, Dickson NR, Diehn M, Gonen M, Gonzalez MM, Hensold JO, Hinyard LJ, King T, Lindsey SC, Magnuson A, Marron J, McAneny BL, McDonnell TM, Mileham KF, Nasso SF, Nowakowski GS, Oettel KR, Patel MI, Patt DA, Perlmutter J, Pickard TA, Rodriguez G, Rosenberg AR, Russo B, Szczepanek C, Smith CB, Srivastava P, Teplinsky E, Thota R, Traina TA, Zon R, Bourbeau B, Bruinooge SS, Foster S, Grubbs S, Hagerty K, Hurley P, Kamin D, Phillips J, Schenkel C, Schilsky RL, Burris HA 3rd
      American Society of Clinical Oncology Road to Recovery Report: Learning From the COVID-19 Experience to Improve Clinical Research and Cancer Care.
      33290128 Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 2020 Dec. 8 : JCO2002953
    • Bogetz JF, Trowbridge A, Kingsley J, Taylor M, Rosenberg AR, Barton KS
      "It's My Job to Love Him": Parenting Adolescents and Young Adults With Advanced Cancer.
      33234665 Pediatrics, 2020 Dec. : 146(6)
    • Johnston EE, Currie ER, Chen Y, Kent EE, Ornstein KA, Bhatia S, Dionne-Odom JN, Rosenberg AR
      Palliative Care Knowledge and Characteristics in Caregivers of Chronically Ill Children.
      32947391 Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, 2020 Dec. : 22(6)456-464
    • Wells RD, Guastaferro K, Azuero A, Rini C, Hendricks BA, Dosse C, Taylor R, Williams GR, Engler S, Smith C, Sudore R, Rosenberg AR, Bakitas MA, Dionne-Odom JN
      Applying the Multiphase Optimization Strategy for the Development of Optimized Interventions in Palliative Care.
      33253787 Journal of pain and symptom management, 2020 Nov. 28
    • Scott SR, O'Daffer AG, Bradford MC, Fladeboe K, Lau N, Steineck A, Taylor M, Yi-Frazier JP, Rosenberg AR
      Adverse childhood experiences (ACEs) and medically traumatic events (TEs) in adolescents and young adults (AYAs) with cancer: a report from the Promoting Resilience in Stress Management (PRISM) randomized controlled trial.
      33219407 Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2020 Nov. 20
    • Lau N, Waldbaum S, Parigoris R, O'Daffer A, Walsh C, Colt SF, Yi-Frazier JP, Palermo TM, McCauley E, Rosenberg AR
      eHealth and mHealth Psychosocial Interventions for Youths With Chronic Illnesses: Systematic Review.
      33075743 JMIR pediatrics and parenting, 2020 Nov. 10 : 3(2)e22329 PMCID:PMC7685926
    • Fladeboe KM, Walker AJ, Rosenberg AR, Katz LF
      Relationships Between Adolescents with Cancer and Healthy Peers: A Qualitative Study.
      33164615 Journal of adolescent and young adult oncology, 2020 Nov. 6
    • Junkins CC, Kent E, Litzelman K, Bevans M, Cannady RS, Rosenberg AR
      Cancer across the ages: a narrative review of caregiver burden for patients of all ages.
      32781919 Journal of psychosocial oncology, 2020 Nov. : 38(6)782-798
    • Walsh CA, Yi JC, Rosenberg AR, Crouch MV, Leisenring WM, Syrjala KL
      Factors associated with social functioning among long-term cancer survivors treated with hematopoietic stem cell transplantation as adolescents or young adults.
      32628342 Psycho-oncology, 2020 Oct. : 29(10)1579-1586 PMCID:PMC7721997
    • Feraco AM, Ananth P, Dussel V, Al-Sayegh H, Ma C, Rosenberg AR, Feudtner C, Wolfe J
      Parent Perceptions of Team-Delivered Care for Children With Advanced Cancer: A Report From the PediQUEST Study.
      32450115 Journal of pain and symptom management, 2020 Oct. : 60(4)811-817 PMCID:PMC7508972
    • Marron JM, Dizon DS, Symington B, Thompson MA, Rosenberg AR
      Waging War on War Metaphors in Cancer and COVID-19.
      32735509 JCO oncology practice, 2020 Oct. : 16(10)624-627
    • Mack JW, Uno H, Twist CJ, Bagatell R, Rosenberg AR, Marachelian A, Granger MM, Glade Bender J, Baker JN, Park JR, Cohn SL, Fernandez JH, Diller LR, Shusterman S
      Racial and Ethnic Differences in Communication and Care for Children With Advanced Cancer.
      32360991 Journal of pain and symptom management, 2020 Oct. : 60(4)782-789 PMCID:PMC7523916
    • Fladeboe KM, Scott S, Bradford MC, Ketterl TG, Yi-Frazier JP, Rosenberg AR
      Sexual Activity and Substance Use Among Adolescents and Young Adults Receiving Cancer Treatment: A Report from the PRISM Randomized Controlled Trial.
      32316824 Journal of adolescent and young adult oncology, 2020 Oct. : 9(5)594-600 PMCID:PMC7578176
    • Rosenberg AR, Barton K, Junkins C, Scott S, Bradford MC, Steineck A, Lau N, Comiskey L, Yi-Frazier JP
      Creating a Resilient Research Program-Lessons Learned From a Palliative Care Research Laboratory.
      32621950 Journal of pain and symptom management, 2020 Oct. : 60(4)857-865 PMCID:PMC7328580
    • Feraco AM, Ananth P, Dussel V, Al-Sayegh H, Ma C, Rosenberg AR, Feudtner C, Wolfe J
      Parent Perceptions of Team-Delivered Care for Children With Advanced Cancer: A Report From the PediQUEST Study.
      32450115 Journal of pain and symptom management, 2020 Oct. : 60(4)811-817 PMCID:PMC7508972
    • Walsh CA, Yi JC, Rosenberg AR, Crouch MV, Leisenring WM, Syrjala KL
      Factors associated with social functioning among long-term cancer survivors treated with hematopoietic stem cell transplantation as adolescents or young adults.
      32628342 Psycho-oncology, 2020 Oct. : 29(10)1579-1586 PMCID:PMC7721997
    • Rosenberg AR, Weaver MS, Fry A, Wiener L
      Exploring the Impact of the Coronavirus Pandemic on Pediatric Palliative Care Clinician Personal and Professional Well-Being: a qualitative analysis of U.S. Survey Data.
      33010337 Journal of pain and symptom management, 2020 Sept. 30 : PMCID:PMC7525352
    • O'Donnell MB, Adhikari EA, Rosenberg AR, Yi-Frazier JP
      Promoting Resilience for Pediatric Health Care Workers in the Era of COVID-19: The PRISM at Work Program.
      32996820 Journal of palliative medicine, 2020 Sept. 30
    • Lau N, Parsa AG, Walsh C, Yi-Frazier JP, Weiner BJ, Curtis JR, McCauley E, Rosenberg AR, Barton K
      Facilitators and Barriers to Utilization of Psychosocial Care in Adolescents and Young Adults with Advanced Cancer: Integrating Mobile Health Perspectives.
      32985937 Journal of adolescent and young adult oncology, 2020 Sept. 24
    • Schenker Y, Ellington L, Bell L, Kross EK, Rosenberg AR, Kutner JS, Bickel KE, Ritchie C, Kavalieratos D, Bekelman DB, Mooney KB, Fischer SM
      The National Postdoctoral Palliative Care Research Training Collaborative: History, Activities, Challenges, and Future Goals.
      32955969 Journal of palliative medicine, 2020 Sept. 21
    • Rosenberg AR, Popp B, Dizon DS, El-Jawahri A, Spence R
      Now, More Than Ever, Is the Time for Early and Frequent Advance Care Planning.
      32614700 Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 2020 Sept. 10 : 38(26)2956-2959 PMCID:PMC7479757
    • Rosenberg AR
      Cultivating Deliberate Resilience During the Coronavirus Disease 2019 Pandemic.
      32286616 JAMA pediatrics, 2020 Sept. 1 : 174(9)817-818
    • Snaman J, Morris SE, Rosenberg AR, Holder R, Baker J, Wolfe J
      Reconsidering early parental grief following the death of a child from cancer: a new framework for future research and bereavement support.
      31872296 Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2020 Sept. : 28(9)4131-4139
    • Taylor MR, Barton KS, Kingsley JM, Heunis J, Rosenberg AR
      Defining a "Good Death" in Pediatric Oncology: A Mixed Methods Study of Healthcare Providers.
      32751891 Children (Basel, Switzerland), 2020 July 31 : 7(8) PMCID:PMC7465817
    • Johnston EE, Molina J, Martinez I, Dionne-Odom JN, Currie ER, Crowl T, Butterworth L, Chamberlain LJ, Bhatia S, Rosenberg AR
      Bereaved parents' views on end-of-life care for children with cancer: Quality marker implications.
      32383817 Cancer, 2020 July 15 : 126(14)3352-3359
    • Walker AJ, Lewis FM, Rosenberg AR
      Walking on Eggshells: Parents' First Year After Their Adolescent Completes Their Cancer Treatment [Formula: see text].
      32141370 Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses, 2020 July : 37(4)233-243 PMCID:PMC7312346
    • Johnston EE, Rosenberg AR
      Better Understanding the Importance of Palliative Care for Pediatric Patients.
      32239199 JAMA oncology, 2020 June 1 : 6(6)817-818
    • Lau N, O'Daffer A, Colt S, Yi-Frazier JP, Palermo TM, McCauley E, Rosenberg AR
      Android and iPhone Mobile Apps for Psychosocial Wellness and Stress Management: Systematic Search in App Stores and Literature Review.
      32357125 JMIR mHealth and uHealth, 2020 May 22 : 8(5)e17798 PMCID:PMC7275252
    • Sawyer K, Rosenberg AR
      How Should Adolescent Health Decision-Making Authority Be Shared?
      32449652 AMA journal of ethics, 2020 May 1 : 22(5)E372-379
    • Steineck A, Wiener L, Mack JW, Shah NN, Summers C, Rosenberg AR
      Psychosocial care for children receiving chimeric antigen receptor (CAR) T-cell therapy.
      32159278 Pediatric blood & cancer, 2020 May : 67(5)e28249
    • Sansom-Daly UM, Wakefield CE, Patterson P, Cohn RJ, Rosenberg AR, Wiener L, Fardell JE
      End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice.
      31660768 Journal of adolescent and young adult oncology, 2020 April : 9(2)157-165 PMCID:PMC7360106
    • Hlubocky FJ, Taylor LP, Marron JM, Spence RA, McGinnis MM, Brown RF, McFarland DC, Tetzlaff ED, Gallagher CM, Rosenberg AR, Popp B, Dragnev K, Bosserman LD, Dudzinski DM, Smith S, Chatwal M, Patel MI, Markham MJ, Levit K, Bruera E, Epstein RM, Brown M, Back AL, Shanafelt TD, Kamal AH
      A Call to Action: Ethics Committee Roundtable Recommendations for Addressing Burnout and Moral Distress in Oncology.
      32223701 JCO oncology practice, 2020 April : 16(4)191-199 PMCID:PMC7351333
    • Toprak D, Nay L, McNamara S, Rosenberg AR, Rosenfeld M, Yi-Frazier JP
      Resilience in adolescents and young adults with cystic fibrosis: A pilot feasibility study of the promoting resilience in stress management intervention.
      31794160 Pediatric pulmonology, 2020 March : 55(3)638-645
    • Lau N, Bradford MC, Steineck A, Scott S, Bona K, Yi-Frazier JP, McCauley E, Rosenberg AR
      Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial.
      31680625 Palliative medicine, 2020 March : 34(3)336-348 PMCID:PMC7289194
    • Kross EK, Rosenberg AR, Engelberg RA, Curtis JR
      Postdoctoral Research Training in Palliative Care: Lessons Learned From a T32 Program.
      31775020 Journal of pain and symptom management, 2020 March : 59(3)750-760.e8 PMCID:PMC7029795
    • Perez GK, Salsman JM, Fladeboe K, Kirchhoff AC, Park ER, Rosenberg AR
      Taboo Topics in Adolescent and Young Adult Oncology: Strategies for Managing Challenging but Important Conversations Central to Adolescent and Young Adult Cancer Survivorship.
      32324424 American Society of Clinical Oncology educational book. American Society of Clinical Oncology. Annual Meeting, 2020 March : 401-15 PMCID:PMC7328818
    • Mack JW, Cronin AM, Uno H, Shusterman S, Twist CJ, Bagatell R, Rosenberg A, Marachelian A, Granger MM, Glade Bender J, Baker JN, Park J, Cohn SL, Levine A, Taddei S, Diller LR
      Unrealistic parental expectations for cure in poor-prognosis childhood cancer.
      31584705 Cancer, 2020 Jan. 15 : 126(2)416-424 PMCID:PMC7523918
    • Walsh CA, Rosenberg AR, Lau N, Syrjala KL
      Key considerations for advancing the development and testing of mHealth interventions in adolescent and young adult oncology.
      31475768 Psycho-oncology, 2020 Jan. : 29(1)220-223 PMCID:PMC6980895
    • Bogetz J, Rosenberg A, Curtis JR, Creutzfeldt CJ
      Applying an Adaptive Communication Approach to Medical Decision Making.
      31586581 Journal of pain and symptom management, 2020 Jan. : 59(1)e4-e7
    • Lau N, Yi-Frazier JP, Bona K, Baker KS, McCauley E, Rosenberg AR
      Distress and resilience among adolescents and young adults with cancer and their mothers: An exploratory analysis.
      31456508 Journal of psychosocial oncology, 2020 Jan. : 38(1)118-124 PMCID:PMC6994369
    • Dionne-Odom JN, Currie ER, Johnston EE, Rosenberg AR
      Supporting Family Caregivers of Adult and Pediatric Persons with Leukemia.
      31753704 Seminars in oncology nursing, 2019 Dec. : 35(6)150954
    • Steineck A, Bradford MC, Lau N, Scott S, Yi-Frazier JP, Rosenberg AR
      A Psychosocial Intervention's Impact on Quality of Life in AYAs with Cancer: A Post Hoc Analysis from the Promoting Resilience in Stress Management (PRISM) Randomized Controlled Trial.
      31684055 Children (Basel, Switzerland), 2019 Nov. 2 : 6(11) PMCID:PMC6915541
    • Feudtner C, Rosenberg AR, Boss RD, Wiener L, Lyon ME, Hinds PS, Bluebond-Langner M, Wolfe J
      Challenges and Priorities for Pediatric Palliative Care Research in the U.S. and Similar Practice Settings: Report From a Pediatric Palliative Care Research Network Workshop.
      31445136 Journal of pain and symptom management, 2019 Nov. : 58(5)909-917.e3
    • Rosenberg AR, Junkins CC, Sherr N, Scott S, Klein V, Barton KS, Yi-Frazier JP
      Conducting Psychosocial Intervention Research among Adolescents and Young Adults with Cancer: Lessons from the PRISM Randomized Clinical Trial.
      31652895 Children (Basel, Switzerland), 2019 Oct. 24 : 6(11) PMCID:PMC6915330
    • Rosenberg AR, Yi-Frazier JP
      How to Balance "Scalable" with "Individualized" Palliative Care Interventions: The Story of the Promoting Resilience in Stress Management Intervention.
      31584329 Journal of palliative medicine, 2019 Oct. : 22(10)1178-1179
    • Rosenberg AR, Bradford MC, Junkins CC, Taylor M, Zhou C, Sherr N, Kross E, Curtis JR, Yi-Frazier JP
      Effect of the Promoting Resilience in Stress Management Intervention for Parents of Children With Cancer (PRISM-P): A Randomized Clinical Trial.
      31532518 JAMA network open, 2019 Sept. 4 : 2(9)e1911578 PMCID:PMC6751761
    • Lau N, Bradford MC, Steineck A, Junkins CC, Yi-Frazier JP, McCauley E, Rosenberg AR
      Exploratory analysis of treatment response trajectories in the PRISM trial: Models of psychosocial care.
      31037789 Psycho-oncology, 2019 July : 28(7)1470-1476 PMCID:PMC7307312
    • Walker AJ, Lewis FM, Lin Y, Zahlis E, Rosenberg AR
      Trying to Feel Normal Again: Early Survivorship for Adolescent Cancer Survivors.
      30024440 Cancer nursing, 2019 July : 42(4)E11-E21 PMCID:PMC6336529
    • Ketterl TG, Syrjala KL, Casillas J, Jacobs LA, Palmer SC, McCabe MS, Ganz PA, Overholser L, Partridge A, Rajotte EJ, Rosenberg AR, Risendal B, Rosenstein DL, Baker KS
      Lasting effects of cancer and its treatment on employment and finances in adolescent and young adult cancer survivors.
      30707763 Cancer, 2019 June 1 : 125(11)1908-1917 PMCID:PMC6508988
    • Rosenberg AR, Bona K, Coker T, Feudtner C, Houston K, Ibrahim A, Macauley R, Wolfe J, Hays R
      Pediatric Palliative Care in the Multicultural Context: Findings From a Workshop Conference.
      30685496 Journal of pain and symptom management, 2019 April : 57(4)846-855.e2
    • Weiss EM, Clark JD, Heike CL, Rosenberg AR, Shah SK, Wilfond BS, Opel DJ
      Gaps in the Implementation of Shared Decision-making: Illustrative Cases.
      30824603 Pediatrics, 2019 March : 143(3)
    • Rosenberg AR, Bradford MC, Barton KS, Etsekson N, McCauley E, Curtis JR, Wolfe J, Baker KS, Yi-Frazier JP
      Hope and benefit finding: Results from the PRISM randomized controlled trial.
      30270489 Pediatric blood & cancer, 2019 Jan. : 66(1)e27485 PMCID:PMC6249081
    • Dobrozsi S, Trowbridge A, Mack JW, Rosenberg AR
      Effective Communication for Newly Diagnosed Pediatric Patients With Cancer: Considerations for the Patients, Family Members, Providers, and Multidisciplinary Team.
      31099665 American Society of Clinical Oncology educational book. American Society of Clinical Oncology. Annual Meeting, 2019 Jan. : 39573-581
    • Jordan M, Keefer PM, Lee YA, Meade K, Snaman JM, Wolfe J, Kamal A, Rosenberg A
      Top Ten Tips Palliative Care Clinicians Should Know About Caring for Children.
      30289325 Journal of palliative medicine, 2018 Dec. : 21(12)1783-1789
    • Wiener L, Rosenberg AR, Lichtenthal WG, Tager J, Weaver MS
      Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings.
      29386073 Palliative & supportive care, 2018 Dec. : 16(6)706-711 PMCID:PMC6070438
    • Figueroa Gray M, Ludman EJ, Beatty T, Rosenberg AR, Wernli KJ
      Balancing Hope and Risk Among Adolescent and Young Adult Cancer Patients with Late-Stage Cancer: A Qualitative Interview Study.
      30096254 Journal of adolescent and young adult oncology, 2018 Dec. : 7(6)673-680 PMCID:PMC6909757
    • Chi JJ, Rosenberg A, Hahn S, Piccirillo JF, Politi M, Kallogjeri D, Kukuljan S
      Patient Concerns About Nasal Reconstruction After Mohs Surgery and Implications for Shared Decision Making.
      30267057 JAMA otolaryngology-- head & neck surgery, 2018 Dec. 1 : 144(12)1180-1181 PMCID:PMC6583704
    • Lau N, Bona K, Steineck A, Rosenberg AR
      What we did not learn from an exploratory analysis of economic hardship in newly diagnosed adolescents and young adults with cancer.
      30155981 Pediatric blood & cancer, 2018 Dec. : 65(12)e27411 PMCID:PMC6193842
    • Wo SR, Largent EA, Brosco J, Rosenberg AR, Goodman KW, Lantos JD
      Should Foreigners Get Costly Lifesaving Treatments in the United States?
      30279236 Pediatrics, 2018 Nov. : 142(5)
    • Ilowite MF, Al-Sayegh H, Ma C, Dussel V, Rosenberg AR, Feudtner C, Kang TI, Wolfe J, Bona K
      The relationship between household income and patient-reported symptom distress and quality of life in children with advanced cancer: A report from the PediQUEST study.
      30216416 Cancer, 2018 Oct. 1 : 124(19)3934-3941 PMCID:PMC6561342
    • Rosenberg AR, Bradford MC, McCauley E, Curtis JR, Wolfe J, Baker KS, Yi-Frazier JP
      Promoting resilience in adolescents and young adults with cancer: Results from the PRISM randomized controlled trial.
      30230531 Cancer, 2018 Oct. 1 : 124(19)3909-3917
    • Ullrich CK, Dussel V, Orellana L, Kang TI, Rosenberg AR, Feudtner C, Wolfe J
      Self-reported fatigue in children with advanced cancer: Results of the PediQUEST study.
      30291811 Cancer, 2018 Sept. 15 : 124(18)3776-3783 PMCID:PMC6214736
    • Rosenberg AR
      Escaping Sonder.
      29940210 Journal of pain and symptom management, 2018 Sept. : 56(3)e1-e2
    • October TW, Dizon ZB, Arnold RM, Rosenberg AR
      Characteristics of Physician Empathetic Statements During Pediatric Intensive Care Conferences With Family Members: A Qualitative Study.
      30646015 JAMA network open, 2018 July 6 : 1(3)e180351 PMCID:PMC6324292
    • Yi-Frazier JP, Cochrane K, Whitlock K, Rosenberg AR, Pascual M, Beauregard N, Mitrovich C, Panlasigui N, Pihoker C
      Trajectories of Acute Diabetes-Specific Stress in Adolescents With Type 1 Diabetes and Their Caregivers Within the First Year of Diagnosis.
      29373703 Journal of pediatric psychology, 2018 July 1 : 43(6)645-653 PMCID:PMC6005102
    • Rosenberg AR, Weston SJ, Deshields T, Fields RC, Linette GP, Cornelius LA, Semenov YR
      Health-related quality of life in patients with malignant melanoma by stage and treatment status.
      29906543 Journal of the American Academy of Dermatology, 2018 June 12
    • Barton KS, Tate T, Lau N, Taliesin KB, Waldman ED, Rosenberg AR
      "I'm Not a Spiritual Person." How Hope Might Facilitate Conversations About Spirituality Among Teens and Young Adults With Cancer.
      29428188 Journal of pain and symptom management, 2018 June : 55(6)1599-1608 PMCID:PMC5951752
    • Jecker NS, Wightman AG, Rosenberg AR, Diekema DS
      Fairly Allocating Space in an Immunotherapy Production Facility: Reply to Critics.
      29697346 The American journal of bioethics : AJOB, 2018 May : 18(5)W9-W12
    • Stone AL, Karlson CW, Heathcote LC, Rosenberg AR, Palermo TM
      Topical Review: Pain in Survivors of Pediatric Cancer: Applying a Prevention Framework.
      29048571 Journal of pediatric psychology, 2018 April 1 : 43(3)237-242 PMCID:PMC6454449
    • Jecker NS, Wightman AG, Rosenberg AR, Diekema DS
      Ethical Guidance for Selecting Clinical Trials to Receive Limited Space in an Immunotherapy Production Facility.
      29621473 The American journal of bioethics : AJOB, 2018 April : 18(4)58-67
    • Weaver MS, Rosenberg AR, Tager J, Wichman CS, Wiener L
      A Summary of Pediatric Palliative Care Team Structure and Services as Reported by Centers Caring for Children with Cancer.
      29173030 Journal of palliative medicine, 2018 April : 21(4)452-462 PMCID:PMC5915222
    • Shah SK, Rosenberg AR, Diekema DS
      Charlie Gard and the Limits of the Harm Principle-Reply.
      29309494 JAMA pediatrics, 2018 March 1 : 172(3)301
    • Rosenberg AR, Weaver MS, Wiener L
      Who is responsible for delivering palliative care to children with cancer?
      29134758 Pediatric blood & cancer, 2018 March : 65(3) PMCID:PMC6711366
    • Rosenberg AR, Bradford MC, Bona K, Shaffer ML, Wolfe J, Baker KS, Lau N, Yi-Frazier J
      Hope, distress, and later quality of life among adolescent and young adults with cancer.
      28934026 Journal of psychosocial oncology, 2018 March : 36(2)137-144 PMCID:PMC5801075
    • Rosenberg AR, Orellana L, Wolfe J, Dussel V
      The Limitations of "How Are You Feeling?"
      29169994 Journal of pain and symptom management, 2018 March : 55(3)e6-e8 PMCID:PMC6817576
    • Nelson KE, Feinstein JA, Gerhardt CA, Rosenberg AR, Widger K, Faerber JA, Feudtner C
      Emerging Methodologies in Pediatric Palliative Care Research: Six Case Studies.
      29495384 Children (Basel, Switzerland), 2018 Feb. 26 : 5(3) PMCID:PMC5867491
    • Rosenberg AR
      Seeking Professional Resilience.
      29437139 Pediatrics, 2018 Feb. 1 : PMCID:PMC5847090
    • Wiener L, Rosenberg AR, Lichtenthal WG, Tager J, Weaver MS
      Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings.
      29386073 Palliative and supportive care, 2018 Feb. 1 : 1-6
    • Ananth P, Ma C, Al-Sayegh H, Kroon L, Klein V, Wharton C, Hallez E, Braun I, Michelson K, Rosenberg AR, London W, Wolfe J
      Provider Perspectives on Use of Medical Marijuana in Children With Cancer.
      29233937 Pediatrics, 2018 Jan. : 141(1) PMCID:PMC5744275
    • Coccia PF, Pappo AS, Beaupin L, Borges VF, Borinstein SC, Chugh R, Dinner S, Folbrecht J, Frazier AL, Goldsby R, Gubin A, Hayashi R, Huang MS, Link MP, Livingston JA, Matloub Y, Millard F, Oeffinger KC, Puccetti D, Reed D, Robinson S, Rosenberg AR, Sanft T, Spraker-Perlman HL, von Mehren M, Wechsler DS, Whelan KF, Yeager N, Gurski LA, Shead DA
      Adolescent and Young Adult Oncology, Version 2.2018, NCCN Clinical Practice Guidelines in Oncology.
      29295883 Journal of the National Comprehensive Cancer Network : JNCCN, 2018 Jan. : 16(1)66-97
    • Rosenberg AR, Starks H, Unguru Y, Feudtner C, Diekema D
      Truth Telling in the Setting of Cultural Differences and Incurable Pediatric Illness: A Review.
      28873121 JAMA pediatrics, 2017 Nov. 1 : 171(11)1113-1119 PMCID:PMC5675758
    • Lee BM, Rosenberg AR
      Don't let perfect be the enemy of good: How to improve prognostic communication in pediatric oncology.
      28873214 Cancer, 2017 Oct. 15 : 123(20)3879-3881 PMCID:PMC5626639
    • Shah SK, Rosenberg AR, Diekema DS
      Charlie Gard and the Limits of Best Interests.
      28800374 JAMA pediatrics, 2017 Oct. 1 : 171(10)937-938
    • Johnston EE, Rosenberg AR, Kamal AH
      Pediatric-Specific End-of-Life Care Quality Measures: An Unmet Need of a Vulnerable Population.
      28915078 Journal of oncology practice, 2017 Oct. : 13(10)e874-e880
    • Rosenberg AR, Wolfe J
      Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions.
      29333484 The Lancet. Child & adolescent health, 2017 Sept. : 1(1)56-67 PMCID:PMC5764167
    • Yi-Frazier JP, Fladeboe K, Klein V, Eaton L, Wharton C, McCauley E, Rosenberg AR
      Promoting Resilience in Stress Management for Parents (PRISM-P): An intervention for caregivers of youth with serious illness.
      28541057 Families, systems & health : the journal of collaborative family healthcare, 2017 Sept. : 35(3)341-351 PMCID:PMC5612837
    • Gupta AA, Chi YY, Anderson JR, Lyden E, Weigel B, Arndt C, Meyer WH, Rosenberg A, Hawkins DS
      Patterns of chemotherapy-induced toxicities and outcome in children and adolescents with metastatic rhabdomyosarcoma: A report from the Children's Oncology Group.
      28333415 Pediatric blood & cancer, 2017 Sept. : 64(9) PMCID:PMC5567865
    • Rosenberg AR, Wolfe J
      Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions.
      29333484 The lancet child and adolescent health, 2017 Sept. : 1(1)56-67 PMCID:PMC5764167
    • Schulte F, Russell KB, Cullen P, Embry L, Fay-McClymont T, Johnston D, Rosenberg AR, Sung L
      Systematic review and meta-analysis of health-related quality of life in pediatric CNS tumor survivors.
      28266804 Pediatric blood & cancer, 2017 Aug. : 64(8)
    • Wiener L, Rosenberg AR
      Family-centred advanced care planning with adolescents living with HIV is perceived as important, helpful and meaningful.
      28611176 Evidence-based nursing, 2017 July : 20(3)85
    • Jecker NS, Wightman AG, Rosenberg AR, Diekema DS
      From protection to entitlement: selecting research subjects for early phase clinical trials involving breakthrough therapies.
      28408724 Journal of medical ethics, 2017 June : 43(6)391-400
    • Straehla JP, Barton KS, Yi-Frazier JP, Wharton C, Baker KS, Bona K, Wolfe J, Rosenberg AR
      The Benefits and Burdens of Cancer: A Prospective Longitudinal Cohort Study of Adolescents and Young Adults.
      28051888 Journal of palliative medicine, 2017 May : 20(5)494-501 PMCID:PMC5421607
    • Feraco AM, Dussel V, Orellana L, Kang TI, Geyer JR, Rosenberg AR, Feudtner C, Wolfe J
      Tumor Talk and Child Well-Being: Perceptions of "Good" and "Bad" News Among Parents of Children With Advanced Cancer.
      28062345 Journal of pain and symptom management, 2017 May : 53(5)833-841 PMCID:PMC5410177
    • Rosenberg AR, Bona K, Ketterl T, Wharton CM, Wolfe J, Baker KS
      Intimacy, Substance Use, and Communication Needs During Cancer Therapy: A Report From the "Resilience in Adolescents and Young Adults" Study.
      27769762 The Journal of adolescent health : official publication of the Society for Adolescent Medicine, 2017 Jan. : 60(1)93-99 PMCID:PMC5228591
    • Rosenberg AR
      "Get the Consent"-Nonfinancial Conflict of Interest in Academic Clinical Research.
      28034061 Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 2017 Jan. : 35(1)11-13 PMCID:PMC5455692
    • Rosenberg AR, Wolfe J, Wiener L, Lyon M, Feudtner C
      Ethics, Emotions, and the Skills of Talking About Progressing Disease With Terminally Ill Adolescents: A Review.
      27749945 JAMA pediatrics, 2016 Dec. 1 : 170(12)1216-1223 PMCID:PMC5636611
    • Rosenberg AR
      "Teacher".
      27286052 Journal of palliative medicine, 2016 Nov. : 19(11)1231
    • Stark D, Rosenberg AR, Johnston D, Knight K, Caperon L, Uleryk E, Frazier AL, Sung L
      Patient-Reported Measures of Hearing Loss and Tinnitus in Pediatric Cancer and Hematopoietic Stem Cell Transplantation: A Systematic Review.
      27603148 Journal of speech, language, and hearing research : JSLHR, 2016 Oct. 1 : 59(5)1247-1252 PMCID:PMC5962920
    • Rosenberg AR, Feudtner C
      What else are you hoping for? Fostering hope in paediatric serious illness.
      27514005 Acta paediatrica (Oslo, Norway : 1992), 2016 Sept. : 105(9)1004-5
    • Johnston DL, Sung L, Stark D, Frazier AL, Rosenberg AR
      A systematic review of patient-reported outcome measures of neuropathy in children, adolescents and young adults.
      27037813 Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2016 Sept. : 24(9)3723-8 PMCID:PMC5241023
    • Rosenberg AR, Orellana L, Ullrich C, Kang T, Geyer JR, Feudtner C, Dussel V, Wolfe J
      Quality of Life in Children With Advanced Cancer: A Report From the PediQUEST Study.
      27220948 Journal of pain and symptom management, 2016 Aug. : 52(2)243-53 PMCID:PMC4996729
    • Rosenberg AR, Bona K
      The Power of Personal Narrative: A Reply to "The Reality of Relapse: Impact of Cancer Relapse on Survivorship Interventions and Patient-Reported Outcomes Data".
      27082716 Pediatric blood and cancer, 2016 Aug. : 63(8)1494 PMCID:PMC5242328
    • Force LM, Rosenberg AR
      A Call for Psychosocial and Palliative Care Training Standards for Pediatric Hematology-Oncology Physicians, A Reply to: Communication, Documentation, and Training Standards in Pediatric Psychosocial Oncology.
      27015275 Pediatric blood and cancer, 2016 July : 63(7)1314 PMCID:PMC4877199
    • Rosenberg AR, Yi-Frazier JP
      Commentary: Resilience Defined: An Alternative Perspective.
      27013701 Journal of pediatric psychology, 2016 June : 41(5)506-9 PMCID:PMC4888119
    • Rosenberg AR, Bona K, Wharton CM, Bradford M, Shaffer ML, Wolfe J, Baker KS
      Adolescent and Young Adult Patient Engagement and Participation in Survey-Based Research: A Report From the "Resilience in Adolescents and Young Adults With Cancer" Study.
      26681427 Pediatric blood and cancer, 2015 Dec. 18
    • Rosenberg AR, Syrjala KL, Martin PJ, Flowers ME, Carpenter PA, Salit RB, Baker KS, Lee SJ
      Resilience, health, and quality of life among long-term survivors of hematopoietic cell transplantation.
      26288023 Cancer, 2015 Dec. 1 : 121(23)4250-7 PMCID:PMC4666727
    • Lown EA, Phillips F, Schwartz LA, Rosenberg AR, Jones B
      Psychosocial Follow-Up in Survivorship as a Standard of Care in Pediatric Oncology.
      26700918 Pediatric blood and cancer, 2015 Dec. : 62 Suppl 5S514-84 PMCID:PMC5242467
    • Rosenberg AR, Yi-Frazier JP, Eaton L, Wharton C, Cochrane K, Pihoker C, Baker KS, McCauley E
      Promoting Resilience in Stress Management: A Pilot Study of a Novel Resilience-Promoting Intervention for Adolescents and Young Adults With Serious Illness.
      25678533 Journal of pediatric psychology, 2015 Oct. : 40(9)992-9 PMCID:PMC4580756
    • Stokke J, Sung L, Gupta A, Lindberg A, Rosenberg AR
      Systematic review and meta-analysis of objective and subjective quality of life among pediatric, adolescent, and young adult bone tumor survivors.
      25820683 Pediatric blood and cancer, 2015 Sept. : 62(9)1616-29 PMCID:PMC4515170
    • Rosenberg AR, Syrjala KL, Martin PJ, Flowers ME, Carpenter PA, Salit RB, Baker KS, Lee SJ
      Resilience, health, and quality of life among long-term survivors of hematopoietic cell transplantation.
      26288023 Cancer, 2015 Aug. 19
    • Rosenberg AR
      Poison.
      25847927 Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 2015 June 10 : 33(17)1983-4
    • Wolfe J, Orellana L, Ullrich C, Cook EF, Kang TI, Rosenberg A, Geyer R, Feudtner C, Dussel V
      Symptoms and Distress in Children With Advanced Cancer: Prospective Patient-Reported Outcomes From the PediQUEST Study.
      25918277 Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 2015 June 10 : 33(17)1928-35 PMCID:PMC4451175
    • Rosenberg AR, Wolfe J
      Authors' response to van der Geest et al.
      25757836 Journal of pain and symptom management, 2015 May : 49(5)e7-9
    • Rosenberg AR, Kroon L, Chen L, Li CI, Jones B
      Insurance status and risk of cancer mortality among adolescents and young adults.
      25492559 Cancer, 2015 April 15 : 121(8)1279-86 PMCID:PMC5231922
    • Rosenberg AR
      Close to home.
      25621786 JAMA pediatrics, 2015 March : 169(3)206
    • Rosenberg AR, Postier A, Osenga K, Kreicbergs U, Neville B, Dussel V, Wolfe J
      Long-term psychosocial outcomes among bereaved siblings of children with cancer.
      24880001 Journal of pain and symptom management, 2015 Jan. : 49(1)55-65 PMCID:PMC4280260
    • Rosenberg AR, Yi-Frazier JP, Wharton C, Gordon K, Jones B
      Contributors and Inhibitors of Resilience Among Adolescents and Young Adults with Cancer.
      25969794 Journal of adolescent and young adult oncology, 2014 Dec. 1 : 3(4)185-193 PMCID:PMC4418509
    • Rosenberg AR, Orellana L, Kang TI, Geyer JR, Feudtner C, Dussel V, Wolfe J
      Differences in parent-provider concordance regarding prognosis and goals of care among children with advanced cancer.
      25024073 Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 2014 Sept. 20 : 32(27)3005-11 PMCID:PMC4162496
    • Rosenberg AR | Dussel V | Orellana L | Kang T | Geyer JR | Feudtner C | Wolfe J
      What's missing in missing data? Omissions in survey responses among parents of children with advanced cancer.
      PMC4118710 Journal of palliative medicine, 2014 Aug. : 17(8)953-6
    • Molina Y, Yi JC, Martinez-Gutierrez J, Reding KW, Yi-Frazier JP, Rosenberg AR
      Resilience among patients across the cancer continuum: diverse perspectives.
      24476731 Clinical journal of oncology nursing, 2014 Feb. : 18(1)93-101 PMCID:PMC4002224
    • Rosenberg AR | Dussel V | Kang T | Geyer JR | Gerhardt CA | Feudtner C | Wolfe J
      Psychological distress in parents of children with advanced cancer.
      PMC4263253 JAMA pediatrics, 2013 June : 167(6)537-43

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  • Research Funding

    Grant Title Grantor Amount Award Date
    NIH R01 CA222486-03S1 (Diversity Supplement): “Developing PRISM-Spanish: A psychosocial skills-based intervention for Spanish-speaking adolescents and young adults with cancer” $39,166 Sept. 1, 2020 - Aug. 31, 2021
    Cystic Fibrosis Foundation Planning Grant Proposal: “Promoting Resilience in Adolescents and Young Adults with CF $122,000 Sept. 1, 2020 - Aug. 31, 2021
    Cambia Health Foundations: “Implementing and Disseminating Quality Metrics and Educational Programs for Primary and Specialty Pediatric Palliative Care” $1,200,000 Sept. 1, 2020 - Aug. 31, 2021
    Seattle Children’s Research Integration Hub COVID-19 Research Award: “Supporting mental health for healthcare workers in the era of COVID-19: The Promoting Resilience in Stress Management (PRISM) at Work Program.” $35,000 June 1, 2020 - May 31, 2021
    Arthur Vining Davis Foundations: “Building Resilience among Children with Serious Illness and their Families” $362,422 April 4, 2020 - March 31, 2022
    NIH R01 CA242849: “Using MOST to EMPOWER: Optimizing and emotion regulation intervention to enhance well-being among young adult cancer survivors.” Undisclosed June 5, 2019 - June 30, 2023
    NIH R01 DK121224: “The Promoting Resilience in Stress Management (PRISM) intervention: a multi-site randomized controlled trial for Adolescents and Young Adults with Type I Diabetes Mellitus.” Undisclosed April 1, 2019 - 2024
    Cambia Sojourns Scholar Leadership Program: “Promoting Resilience in Adolescents and Young Adults with Serious Illness.” $180,000 Jan. 1, 2019 - Dec. 31, 2020
    NIH R01 CA222486: “The Promoting Resilience in Stress Management (PRISM) Intervention: A multi-site randomized controlled trial for Adolescents and Young Adults with advanced cancer” $3,055,171 Aug. 1, 2018 - July 31, 2024
    NIH R01 CA225629: “The Promoting Resilience in Stress Management (PRISM) Intervention: A multi-site randomized controlled trial for Adolescents and Young Adults receiving Hematopoietic Cell Transplantation.” $2,949,378 April 1, 2018 - March 31, 2023
    RSG-17-194-01 – PCSM (American Cancer Society): “Resilience Outcomes Among Adolescents and Young Adults with Advanced Cancer” $790,000 Jan. 1, 2018 - Dec. 31, 2021
    NIH R01 NR016720: “PediQUEST: Improving Children's Quality of Life through e-PROMS and Palliative Care” Undisclosed June 8, 2017 - March 22, 2021
    National Palliative Care Research Center Pilot Program: “Promoting Resilience in Parents of Children with Cancer: a pilot randomized controlled trial.” $360,000 July 1, 2016 - June 30, 2019
    Seattle Children’s Research Institute Arnold Smith Junior Faculty Endowment (nominated award): Palliative Care and Resilience Research Program $360,000 July 1, 2016 - June 30, 2019
    National Palliative Care Research Center Pilot Program: “Promoting Resilience in Parents of Children with Cancer: a pilot randomized controlled trial.” $140,000 July 1, 2016 - June 30, 2018
    CureSearch for Children’s Cancer Pathway to Independence Award: “Promoting Resilience in Stress Management (PRISM): a novel intervention” $225,000 Jan. 1, 2015 - Dec. 31, 2017
    NIH KL2TR000421: “Resilience Outcomes among Adolescents and Young Adults with Cancer” $460,000 July 1, 2014 - Feb. 28, 2018
    Seattle Children’s Hospital Center for Clinical and Translational Research Pediatric Pilot Fund: “Development of the Promoting Resilience in Stress Management in Parents/Caregivers Intervention (PRISM-P).” $20,000 Sept. 1, 2013 - Aug. 31, 2014
    CureSearch for Children’s Cancer Young Investigator Award: “Resilience in Adolescents and Young Adults with Cancer” $100,000 April 1, 2013 - March 31, 2015
    NIH Loan-Repayment Program, National Cancer Institute (L40 CA170049) Undisclosed July 1, 2012 - June 30, 2016
    Clinical Research Scholars Program, Seattle Children’s Research Institute: “Promoting Resilience During and After Childhood Cancer” $125,000 July 1, 2012 - June 30, 2013
    Conquer Cancer Foundation of ASCO Young Investigator Award: “Understanding Resilience among Parents of Children with Cancer” $50,000 July 1, 2012 - June 30, 2013
    St. Baldrick’s Foundation Fellow Award: “Promoting Resilience in Parents of Children with Cancer” $205,000 July 1, 2012 - June 30, 2014
    NIH T32CA009351T32: “Research Training in Pediatric Oncology” Undisclosed July 1, 2009 - June 30, 2012

Overview

Medical/Professional School

Bioethics, University of Washington , Seattle
Stanford University, Stanford
Epidemiology, University of Washington, Seattle

Residency

Pediatrics, University of Washington, Seattle

Fellowship

Pediatric Hematology Oncology, Seattle Children's Hospital, Seattle

Clinical Interests

Pediatric and Adolescent/Young Adult Oncology, Palliative Care

Research Description

Improving patient and family well-being during and after serious illness, including ways to promote resilience, quality care, and communication.

About My Work

https://www.seattlechildrens.org/pcar/