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Vascular Anomalies

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Vascular anomalies occur when the tubes that carry blood or clear body fluid, called lymph, around the body do not develop properly. Birthmarks are the most familiar vascular anomalies, but the term refers to several different conditions. Many are either present at birth or develop soon after.

Seattle Children’s Hospital's vascular anomalies experts come from many specialties, including OtolaryngologyDermatology, Radiology and Plastic Surgery. Together, our team can provide your child with the best care, tailored to your child's unique needs. Whenever possible, we treat vascular anomalies by entering your child's body as little as possible during procedures (minimally invasive treatment). We also help you and your child manage long-lasting (chronic) conditions, and work with experts in counseling, Social Work, Physical Therapy, Pain Medicine and Occupational Therapy to make sure that your child's medical, social and emotional needs are met.

Conditions We Treat


In our Vascular Anomalies program, we see children with many conditions, including:


Arteriovenous malformation (AVM)

Arteriovenous malformations (AVMs) are tangles of arteries and veins. Their exact cause is unknown, but they seem to develop during the first part of pregnancy. They can be seen when your baby is born, and look like a swollen, dark-red spot. AVMs change slowly over time. As your child grows, AVMs can cause pain, swelling or bleeding. They can limit your child's ability to move and cause other serious health problems. Read more.

Birthmarks

Birthmarks are also called macular stains, stork bites, salmon patches or angel kisses. They are flat, pink or red marks with irregular borders. Most birthmarks slowly clear up by themselves and are gone by the time your child is 18 months of age. Those on the back of the neck may stay for years. Your child should see a healthcare provider who is familiar with birthmarks to make sure the mark is not a port wine stain or hemangioma. Those are two similar-looking conditions that need more care. Read more.

Hemangioma

A hemangioma is a skin abnormality. There are different kinds - some look red and are in the top skin layers. Some look blue and are deeper in the skin. A combination of these abnormalities is called "mixed." Hemangiomas may fade over the years. While some hemangiomas require no treatment, others can cause problems with vision, breathing or feeding. Read more.

Hereditary hemorrhagic telangiectasia (HHT)

Children with HHT have blood vessels that lack the very small tubes (capillaries) that go between an artery and a vein. Usually, arteries drop blood carrying oxygen into the capillaries. The oxygen is left behind, and the blood then flows into the veins. Without capillaries, blood in an artery flows under high pressure directly into a vein. This can cause the vein to burst and bleed. Read more.

Klippel-Trénaunay syndrome (KTS)

KTS is a rare disorder that children are born with (congenital). Children with KTS often have three signs of the condition: a port wine stain covering one or more of their arms or legs, swelling or malformation in veins and one arm or leg that is either larger or smaller than the other. Children with KTS can have one or all of these signs, as well as a wide range of other bone and skin problems. Read more.

Lymphatic malformation

Unlike many other vascular anomalies, lymphatic malformations don't involve blood vessels. Instead, they affect the lymphatic, or body fluid, system. They happen when there is a problem in the formation of the tubes that carry body fluids (lymphatic vessels). As a result, fluids build up in the body's tissues and lymphatic vessels. When the buildup is close to the skin, you can easily see a lump. These malformations may be anywhere, but often they are in the head or neck. Read more.

Lymphedema

Lymphedema occurs when the lymphatic vessels that drain fluid from the body’s tissues are blocked. This causes swelling, usually in your child’s arm or leg. Lymphedema may be a side effect of amniotic band syndrome, KTS, chemotherapy or trauma.

Port wine stains (PWS)

Port wine stains are flat, pink to dark red patches on your child's skin. They look like a splash of purple or red port wine. Port wine stains develop because the blood vessels in the patch of skin do not have small nerve fibers that narrow the blood vessels. Because these blood vessels are wide open, there is an increase in the flow of blood through the skin in the area. The increased blood flow shows up as red or purple patches. Read more.

Sturge-Weber syndrome (SWS)

Sturge-Weber syndrome involves problems with blood vessels in the face, the brain or both. SWS has many health disorders that often happen with it, including problems with vision, seizures and developmental delays. Babies are born with these malformations in the blood vessels, but SWS does not run in families. Read more.

Venous malformations (VM)

Venous malformations are collections of veins that are full of blood but that are not used by the body. When your child is born, venous malformations usually are a painless, purple mass. They grow slowly as your child grows. As your child gets closer to the pre-teen years, a VM may begin to cause pain and swell. Read more.

Rare conditions

Our team treats a number of rare conditions. One of these is called Cutis marmorata telangiectatica congenita, which mainly affects the blood vessels of the skin. Another is called Kasabach-Merritt phenomenon, a serious condition in which a vascular tumor traps and destroys blood platelets. We also diagnose and treat PHACE Syndrome, a group of problems related to large hemagiomas and birth defects of the brain, heart, eyes, head or neck, as well as lymphedema, a buildup of lymphatic fluid that causes swelling, most often in the arms or legs. Read more.

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