Drs. Fleishman and Melvin discuss how providers should respond to parents who do not want to tell their child that he/she as HIV. They also explore whether the issues change if the parents wish to enroll their child in a research study and the child is expected to assent.
Broad Consent for Research with Biospecimens and Data: Ethical and Practical Considerations
Ethical and Policy Issues in Newborn Screening for Lysosomal Storage Diseases
Treuman Katz Bioethics LectureLainie Friedman Ross, MD, PhD
Challenging Decision-Making in High-Risk Surgical Infants: A Tool to Help Families and Providers
Do Physicians Exert Undue Influence When Recruiting for Clinical Trials in the NICU?
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