Drs. Wendler and King discuss a case of a child with autism enrolled in a research study that involved videotaping, and how to respond to a videotaped request by the child to stop. Dr Wendler explores the general issue of whether children should be allowed to be in research for the benefit of others, when they will not benefit directly.
Broad Consent for Research with Biospecimens and Data: Ethical and Practical Considerations
Ethical and Policy Issues in Newborn Screening for Lysosomal Storage Diseases
Treuman Katz Bioethics LectureLainie Friedman Ross, MD, PhD
Challenging Decision-Making in High-Risk Surgical Infants: A Tool to Help Families and Providers
Do Physicians Exert Undue Influence When Recruiting for Clinical Trials in the NICU?
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