Drs. Brosco, Hieke, and Hopper discuss a case concerning a parent's request for surgery to repair a skull defect in child with profound disabilities. The providers were concerned that the primary purpose of the surgery was to improve appearance, and they were not sure that this reason justified the risk.
Broad Consent for Research with Biospecimens and Data: Ethical and Practical Considerations
Ethical and Policy Issues in Newborn Screening for Lysosomal Storage Diseases
Treuman Katz Bioethics LectureLainie Friedman Ross, MD, PhD
Challenging Decision-Making in High-Risk Surgical Infants: A Tool to Help Families and Providers
Do Physicians Exert Undue Influence When Recruiting for Clinical Trials in the NICU?
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