Dr Churchill discusses the challenges of fetal surgery for meningomylocele. He discusses the challenges of parental motives and expectations, and the challenges providers face in communicating about informed consent when researchers may have beliefs about the value of interventions.For more information, visit: www.seattlechildrens.org/bioethics/
Broad Consent for Research with Biospecimens and Data: Ethical and Practical Considerations
Ethical and Policy Issues in Newborn Screening for Lysosomal Storage Diseases
Treuman Katz Bioethics LectureLainie Friedman Ross, MD, PhD
Challenging Decision-Making in High-Risk Surgical Infants: A Tool to Help Families and Providers
Do Physicians Exert Undue Influence When Recruiting for Clinical Trials in the NICU?
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