Story Project
The Child Inside
The Child Inside
Dr. Michael Cunningham

In the summer of 1989, I was a second year pediatric resident at
Children’s. I was doing my first Infant Intensive Care Unit (IICU)
rotation. On evenings and weekends, senior resident physicians would
come in and help with the workload of admitting and caring for
critically ill infants. I loved the IICU — I liked the challenge of
caring for such critically ill children and I enjoyed the type of care
that they required. I had recently decided that I would go into
cardiology for much the same reasons. I liked the intensity of care and
the technology used to diagnose and treat children with cardiac
malformations.
It was a Saturday afternoon and the IICU
was very busy, the census was high and there were several very sick
children. We had a system of alternating admissions between the junior
and senior residents so as to even the workload. I had just admitted a
patient and gotten them stabilized when another expected admission
rolled in the door. Not being my admit, I did not pay too much
attention and let the senior resident do her work. A few minutes later
she came over to the desk and said, “Why don’t you take this
admission?” I looked at her incredulously and said, “I just had an
admit; it’s your turn.”
Her reply was the beginning of
what has become a remarkable career for me. She simply said, “You do so
well with cases and families like these.” I walked to the bedside and
saw an infant with multiple malformations of the face and body and
realized she was right. It was at that moment that she helped me
realize that I enjoyed helping families that had been dealt this
horrible blow. I could see beyond the clefts, missing ears and
misshapen heads and see the child inside. I could help families
understand what it all meant and how we could help. I never take away a
family’s hope but at the same time I am honest about the challenges
that they and their child will face.
Every mother worries
that something is wrong with her unborn child, and yet we all expect to
get the perfect infant, the “Gerber baby.” None of my families get the
Gerber baby; they have each lost the infant that they expected. I get a
great deal of satisfaction helping families deal with this loss and
helping them move on to what is necessary to help their child lead the
best life possible. It is ironic how it turned out for me. I was headed
toward a career of treating critically ill children with
technologically advanced tools. Now my tools are my eyes, my hands and
my time.
Now as the medical director of Children’s
Craniofacial Center, I can not only help my patients, but all those
treated in our center through the advancement of superb
interdisciplinary care. Through this clinical care and our research
vision, we reach many more families than would otherwise be possible.
We have been given a pretty hefty charge — we treat the faces of
children. Consider what your face is to you. If I were to hand you
three photos, one of your hand, one of your shoulder and one of your
face, and I asked you to describe what the pictures were, you would
reply “My hand,” “My shoulder,” “Me.” You would not call a picture of
your face “My face”— it is not anatomy, it is you. We treat what people
know as themselves — an awesome responsibility.
I am
thankful for the tremendous support Children’s Hospital has given me
during my training and career development. Over the past seven years as
director of the Craniofacial Center, Children’s Hospital has given me
and my staff the ability to create what most in the country feel is the
model for craniofacial care. We now have over 40 faculty and staff
dedicated to the care of children with facial differences and their
families. Speaking for all the members of the Craniofacial Center, we
are grateful for the support that Children’s has provided and look
forward to the realization of our current clinical and research
initiatives.