Condition or Therapy: Lymphatic malformations
Category: Vascular Anomalies

What is the goal of this study?

Researchers at Seattle Children's and the University of Washington are gathering responses to a survey on head and neck lymphatic malformations. We are testing a set of questions that we hope can be used to help children with lymphatic malformations. To do that, we need volunteers to complete a survey.

Who can join the study?

This study might be a good fit for you if: 

  • You have a child of any age with a head and neck lymphatic malformation
  • Your child is not a patient at Seattle Children’s Hospital

Or if:

  • You are between 11 and 21 years old and have a head and neck lymphatic malformation
  • You are not a patient at Seattle Children's Hospital

What happens in the study?

If you decide to take part in the study, you would:

  • Answer multiple-choice questions on paper or online
  • Two weeks later, you would take the survey again
  • One year later, you may be asked to take the same survey again

The survey will take 10-15 minutes to complete each time.

You may receive an Amazon gift card for completing the survey. You can receive up to $30 for your participation: $10 for answering the questions the first time, and $20 for answering them again. No payment is offered for filling out the survey 1 year later.

The study will not benefit you directly, but will help us better understand lymphatic malformation treatment and may benefit other children across the country with lymphatic malformations.

What kinds of questions will I have to answer?

  • Parents: Click here to look at the questions.  
  • Children with lymphatic malformations of the head and neck: Click here to look at the questions.

Who can I contact for information or to enroll?

Contact the Vascular Anomalies Research Team for more information about this study: 206-987-1927 or email. Please include your phone number and the best time to reach you. You must speak with the research coordinator before enrolling in this study.

The principal researcher for this study is Dr. Jonathan Perkins at Seattle Children’s Vascular Anomalies Program.


Study Location(s): Seattle Children's Hospital main campus
Principal Investigator: Dr. Jonathan Perkins