Condition or Therapy:
Juvenile idiopathic arthritis (JIA)
What is the goal of this study?
We want to compare the clinical effectiveness and impact on patient reported outcomes of four different treatment strategies (biologic vs. non-biologic consensus treatment plans) in new onset systemic juvenile idiopathic arthritis (JIA) patients. This information will help new patients with systemic JIA, and their doctors decide which medications to use.
Who can join the study?
This might be a good fit if your child:
- Is between 6 months and 18 years old
- Has new-onset, untreated systemic JIA
What happens in the study?
If you choose to take party in the registry, we would collect medical information from your child’s medical record.
You and/or your child would also be asked complete questionnaires about how their disease might be affecting their daily life and how they feel. This information will be collected and stored securely in the CARRA Registry. It will be kept private, meaning no one will know it is you who answered those questions.
Who can I contact for information or to enroll?
Email the research coordinator.
Seattle Children's Hospital main campus
Dr. Sarah Ringold