Condition or Therapy: Cleft lip and cleft palate
Category: Craniofacial; Center for Child Health, Behavior and Development

What is the goal of this study?

The goal of the study is to better understand the early feeding experiences of babies with orofacial clefts, including cleft lip, cleft palate, and cleft lip and palate. We will also examine differences in feeding for babies that are diagnosed before birth and after birth.

Who can join the study?

Mothers 18 years and older with a baby that:

  • Has been diagnosed with an orofacial cleft
  • Is patient at Seattle Children’s Hospital Craniofacial Center
  • Was born between January 1, 2013 and December 31, 2016

What happens in the study?

If you choose to take part in the study, you would complete a web-based survey about your babies feeding experiences. Our research staff would also take information about your baby's cleft type and other clinical care information from their medical chart.

Who can I contact for information or to enroll?

Contact our research coordinator, Betsy Rathwell, by email or call her at 206-414-9113.


Study Location(s): This is an online survey only. You can complete the survey at a time and location of your choosing.
Principal Investigator: Dr. Christy McKinney