Bioethics Faculty and Staff Publications
The Treuman Katz Center for Pediatric Bioethics is dedicated to publishing scholarly work and research in peer-reviewed journals. This list contains the most recent work of our faculty and staff.
2012
Opel DJ. Physician, Patient, Parent: Where Exactly Is the Line? The Hastings Center Report. 2012; 4 (6): 14-18.
Kelley M, Edwards K, Starks H, Fullerton S, James R, Goering S, Holland S, Disis M, Burke W. Values in Translation: How Asking the Right Questions Can Move Translational Science Toward Greater Health Impact. Clin Trans Sci 2012; 5(6): 445–451.
Kelley MC, Trinidad SB. Silent loss and the clinical encounter: Parents' and physicians' experiences of stillbirth – a qualitative analysis. BMC Pregnancy and Childbirth 2012, 12:137.
Kelley M, Unguru Y, Myers GD, Lantos JD. An 8-year-old foster child with behavioral problems who needs a bone marrow transplant. Pediatrics. 2012 Nov;130(5):936-40.
The Committee for Pediatric Research, and the Committee on Bioethics (Diekema DS, et al). Policy Statement: Human Embryonic Stem Cell (hESC) and Human Embryo Research. Pediatrics. 2012; 130(5): 972-977.
Tabor HK, Murray JC, Gammill HS, Kitzman JO, Snyder MW, Ventura M, Lewis AP, Qiu R, Simmons LE, Rubens CE, Santillan MK, Eichler EE, Cheng EY, Bamshad MJ, Shendure J. Non-invasive fetal genome sequencing: opportunities and challenges. Am J Med Genet A. 2012 Oct;158A(10):2382-4.
Rosenberg A. How They Do This. Journal of Clinical Oncology. Epub 2012 Sept 24.
Opel DJ, Banerjee A, King P, Paul C, Glassy D, Yasuda K. Washington State Licensed Child Care Facility Directors' Perspectives on Childhood Immunization. Journal of the Pediatric Infectious Disease Society. 2012 Sept 19.
Kelley M. The Invisible Children. Narrative Inquiry in Bioethics. 2012 Fall; 2(2): E4-E6.
Dudzinski DM, Hébert PC, Foglia MB, and Gallagher TH. The Disclosure Dilemma – Large-Scale Adverse Events. N Engl J Med 2012; 363:978-986.
Blank S, Brady M, Buerk E, Carlo W, Diekema DS, MD, Freedman A, Maxwell L, Wegner S. American Academy of Pediatrics. Circumcision Policy Statement. Pediatrics. 2012; 130(3): 585-586.
Blank S, Brady M, Buerk E, Carlo W, Diekema DS, MD, Freedman A, Maxwell L, Wegner S. Male Circumcision. Pediatrics. 2012; 130(3): e756-e785.
Yudell M, Tabor HK, Dawson G, Rossi J, Newschaffer C. Priorities for autism spectrum disorders risk communication and ethics. Autism. 2012 Aug 23.
Janvier A, Farlow B, Wilfond B. The Experience of Families with Children with Trisomy 13 and 18 in Social Networks. Pediatrics 2012 Aug: 130(2)
Opel DJ, Olson ME. Ethics for the Pediatrician: Bioethics Education and Resources. Pediatrics in Review 2012 Aug: 33(8).
Taylor JA, Opel DJ. Choriophobia: A One-Act Play. Pediatrics 2012 Aug: 130(2).
Wilfond B. Predicting Our Future: Lessons from Winnie-the-Pooh. Hastings Cent Rep. 2012 Jul-Aug;42(4):3.
Shear SB, Hart L, Diekema DS. Female Genital Cutting: The Misnomer of Female Circumcision. In The Surgical Guide to Circumcision, Eds. DA Bolnik, M Koyle, and A Yosha. New York: Springer-Verlag, 2012, pp. 281-290.
Emond MJ, Louie T, Emerson J, Zhao W, Mathias RA, Knowles MR, Wright F, Rieder MJ, Tabor HK, Nickerson DA, Barnes KC, NHLBI GO Exome Sequencing Project, ESP-Lung GO Project Group, Gibson RL, Bamshad MJ. Exome sequencing of extreme phenotypes identified DCTN4 as a modifier of chronic pseudomonas aeruginosa infection in cystic fibrosis. Nature Genetics 2012 July 8.
Clark J. Balancing the Tension: Parental Authority and the Perception of Physician Paternalism in End of Life Care. Arch Pediatr Adolesc Med. 2012;166(7):594.
Kitzman JO, Snyder MW, Ventura M, Lewis AP, Qui R, Simmons LE, Gammill HS, Ruben CE, Santillan DA, Murray JC, Tabor HK, Bamshad MJ, Eichler EE, Shendure J. Non-invasive whole genome sequencing of a human fetus. Science Transl Med 2012 Jun: 4 (137).
Wilfond BS, Diekema DS. Engaging Children in Genomics Research: Decoding the Meaning of Assent in Research. Genetics in medicine 2012;14(4):437-43.
Wolf SM, Beskow LM, Cho MK, Christman MF, Crock BN, Green RC, Hall R, Illes J, Kahn JP, Keane M, Knoppers BM, Koenig BA, Kohane IS, Lawrenz F, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Van Ness B, Wilfond BS, Wolf WA. Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks and Archived Data Sets. Genetics in medicine 2012;14(4):361-84.
Beskow LM, Fullerton SM, Namey EE, Nelson DK, Davis AM, Wilfond BS. Recommendations for ethical approaches to genotype-driven research recruitment. Hum Genet. 2012 May 24.
Buchanan A, Kelley M. Biodefense and the Production of Knowledge: Rethinking the Problem. Journal of Medical Ethics 2012 May 21.
Tabor HK, Stock J, Brazg T, McMillin MJ, Dent KM, Yu JH, Shendure J, Bamshad MJ. Informed Consent for Whole Genome Sequencing: A Qualitative Analysis of Participant Expectations and Perceptions of Risks, Benefits, and Harms. Am J Med Genet A 2012 158A(6):1310-9.
Diekema DS. Improving Childhood Vaccination Rates. N Engl J Med 2012; 366:391-393
Opel DJ, Robinson JD, Heritage J, Korfiatis C, Taylor JA, Mangione-Smith R. Characterizing providers’ immunization communication practices during health supervision visits with vaccine-hesitant parents: a pilot study. Vaccine. 2012 Feb 8;30 (7):1269-75. Epub 2012 Jan 9.
Opel DJ, Diekema DS. Why We Should Not Eliminate Personal Belief Exemptions to Vaccine Mandates. Journal of Health Policy, Politics, and Law. 2012; 37(1): 111-117.