Bioethics Faculty and Staff Publications
The Treuman Katz Center for Pediatric Bioethics is dedicated to publishing scholarly work and research in peer-reviewed journals. This list contains the most recent work of our faculty and staff.
2009
Diekema, DS. Commentary: Choices Should Have Consequences: Failure to Vaccinate, Harm to Others, and Civil Liability, Michigan Law Review First Impressions. 2009; 107(3): 90-94.
Opel DJ, Wilfond BS. Cosmetic Surgery in Children with Cognitive Disabilites: Who Benefits? Who Decides? The Hastings Center Report. 2009; 39(1): 19-21.
2008
Denny CC, Wilfond BS, Peters JA, Giri N, Alter BP. All in the family: disclosure of "unwanted" information to an adolescent to benefit a relative. American Journal of Medical Genetics Part A. Oct 1, 2008 Epub ahead of print.
Opel DJ, Diekema DS, Marcuse EM. A Critique of Criteria for Evaluating Vaccines for Inclusion in Mandatory School Immunization Programs. Pediatrics. 2008 Aug; 122(2): e504-10.
Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, McFarland EG, Paradise J, Parker LS, Terry SF, Van Ness B, Wilfond BS. Managing incidental findings in human subjects research: analysis and recommendations. J Law Med Ethics. 2008; 36(2): 219-48.
Wilfond BS, Carpenter KJ. Incidental findings in pediatric research. J Law Med Ethics. (Summer 2008) 36(2): 332-40.
Wilfond B, Ross LF. From genetics to genomics: ethics, policy and parental decision-making. Journal of Pediatric Psychology. July 22 2008 Epub ahead of print.
Diekema DS. Public health, ethics, and state compulsion. J Pub Health Management Practice. 2008; 14(4): pp332-34.
Salas H, Aziz Z, Villareale N, Diekema DS. The research and family liaison: enhancing informed consent. IRB. 2008; 30(4): 1-8
Ross LF, Thistlethwaite JR, and the Committee on Bioethics (Diekema). Policy statement: Minors as living solid-organ donors. Pediatrics. 2008 Aug; 122(2): 454-61
Showalter H, Aziz Z, Diekema DS. The role of family liaisons in research ethics consultations. American Journal of Bioethics. 2008 Mar; 8(3): 27-8.
Fallat ME, Hutter J and the Committee on Bioethics (Diekema), Section on Hematology/Oncology and Section on Surgery, American Academy of Pediatrics. Technical report: Preservation of fertility in children and adolescents with cancer. Pediatrics. 2008 May; 121(5): e1461-9.
Levetown M and the Committee on Bioethics (Diekema), American Academy of Pediatrics. Technical Report: Communicating with children and families: from everyday interactions to skill on conveying distressing information. Pediatrics. 2008; May; 121(5): e1441-60.
Lanken PN, Terry PB, Delisser HM, Fahy BF, Hansen-Flaschen J, Heffner JE, Levy M, Mularski RA, Osborne ML, Prendergast TJ, Rocker G, Sibbald WJ, Wilfond B, Yankaskas JR; ATS End-of-Life Care Task Force. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. American Journal of Respiratory and Critical Care Medicine. 2008 Apr 15; 177(8): 912-27.
Kelley, M, Fryer-Edwards K, Fullerton SM, Gallagher T, Wilfond B, Sharing data and experience: using the Clinical and Translational Science Award (CTSA) “moral community” to improve research ethics consultation, American Journal of Bioethics, 2008.
Tarini BA, Burke W, Scott CR, Wilfond BS. Waiving informed consent in newborn screening research: balancing social value and respect. Am J Med Genet C Semin Med Genet. 2008 Feb 15; 148(1):23-30.
2007
Comeau AM, Accurso FJ, White TB, Campbell PW 3rd, Hoffman G, Parad RB, Wilfond BS, Rosenfeld M, Sontag MK, Massie J, Farrell PM, O'Sullivan BP. Guidelines for implementation of cystic fibrosis newborn screening programs: Cystic Fibrosis Foundation workshop report. Pediatrics. 2007 Feb; 119: e495-518
Committee on Bioethics, American Academy of Pediatrics. Policy Statement. Professionalism in pediatrics: statement of principles. Pediatrics. 2007; 120(4): 895-897.
Committee on Ethics (Diekema primary author), American College of Obstetrics and Gynecology. ACOG Committee Opinion No. 362: Medical Futility. Obstet Gynecol. 2007; 109: 791-794
Diekema DS. "Ethical Considerations" in American Academy of Pediatrics, Guidelines for Air and Ground Transport of Neonatal and Pediatric Patients, 3rd Edition. Edited by GA Woodward, RM Insoft, and ME Kleinman. Elk Grove Village, IL: American Academy of Pediatrics, 2007: 291-302
Diekema DS. The armchair ethicist: it's all about location. J Clin Ethics. 2007 Fall; 18(3): 227-32, discussion 233-4.
Kelley M and Tilden SJ, Ethical Oversight of Human Subjects Research in Emerging Infections and Biodefense Research. Houston Journal of Health Law and Policy, Fall 2007; 8: 1-33.
Fallat ME, Glover J and the Committee on Bioethics (Diekema), American Academy of Pediatrics. Professionalism in Pediatrics. Pediatrics 2007; 120: e1123-e1133 (Electronic pages).
Gunther DF and Diekema DS. Disabling children with disabilities: reply to three letters to the editor. Arch of Pediatr and Adolesc Med. 2007; 161: 419-420
Gunther DF and Diekema DS. Reply to letter to the editor: Growth attenuation: unjustifiable non-therapy. Arch of Pediatr and Adolesc Med. 2007; 161: 521-522
Gunther DF and Diekema DS. Reply to letter to the editor: Only half the story. Arch of Pediatr and Adolesc Med. 2007; 161: 616
Henderson GE, Churchill LR, Davis AM, Easter MM, Grady C, Joffe S, Kass N, King NM, Lidz CW, Miller FG, Nelson DK, Peppercorn J, Rothschild BB, Sankar P, Wilfond BS, Zimmer CR. Clinical trials and medical care: defining the therapeutic misconception. PLoS Med. 2007 Nov 27; 4(11): e324.
Kelley M. "Casuistry Naturalized." In Cherry, Iltis, eds., Pluralistic Casuistry: Moral Arguments, Economic Realities, and Political Theory (Dordrecht, Netherlands: Springer, 2007).
Kelley M and Miller S. Clinical Ethics, Lange Q&A: USMLE Step 3, Fifth Edition by Donald A. Briscoe, 2007.
Myers RE, Weinberg DS, Manne SL, Sifri R, Cocroft J, Kash K, Wilfond B. Genetic and environmental risk assessment for colorectal cancer risk in primary care practice settings: a pilot study. Genet Med. 2007 Jun; 9(6): 378-384.
Opel D, Shugerman R, McPhillips H, Swanson WS, Archibald S, Diekema D. Professionalism and the match: a pediatric residency program's postinterview no-call policy and its impact on applicants. Pediatrics. 2007; 120 (4): e826-e831 (electronic Pages).
Wilfond BS. Ethical considerations about observational research in children. J of Trauma. 2007; 63(6 Suppl): S146-51.
Wilfond BS. The Ashley case: the public response and policy implications Hastings Cent Rep. 2007 Sept-Oct 37 (5): 20-23.
2006
Bookman EB, Langehorne AA, Eckfeldt JH, Glass KC, Jarvik GP, Klag M, Koski G, Motulsky A, Wilfond B, Manolio TA, Fabsitz RR, Luepker RV. Reporting genetic results in research studies: summary and recommendations of an NHLBI working group. Am J Med Genet. 2006; 140A: 1033-1040.
Botkin JR, Clayton EW, Fost NC, Burke W, Murray TH, Baily MA, Wilfond BS, Al Berg A, Ross L. Newborn screening technology: proceed with caution. Pediatrics. 2006; 17: 1793-1799.
Burke W, Diekema DS. Ethical issues arising from the participation of children in genetic research. J Pediatr (Supplement). 2006; 149(1): S34-S38.
Diekema DS. Conducting ethical research in pediatrics: a brief historical overview and review of pediatric regulations. J Pediatr (Supplement). 2006; 149(1): S3-S11.
Grosse SD, Boyle CA, Kenneson A, Khoury MJ, Wilfond BS. From public health emergency to public health service: the implications of evolving criteria for newborn screening panels. Pediatrics. 2006; 117: 923-929.
Gunther DF and Diekema DS. Attenuating growth in children with profound developmental disability: a new approach to an old dilemma. Arch of Pediatr Adolesct Med. 2006; 160(10): 1013-1017.
Henderson GE, Easter MM, Zimmer C, King NMP, Davis AM, Rothschild BB, Churchill LR, Wilfond BS, Nelson DK. Therapeutic misconception in early phase gene transfer trials. Soc Sci Med. 2006: 62: 239-253.
Loud JT, Weissman N, Giusti R, Wilfond BS, Burke W, Greene MH. Deliberate deceit of family members: A challenge to providers of clinical genetics services. J Clin Oncol. 2006; 24: 1643-1646.
Opel DJ and Diekema DS. The case of A.R.: the ethics of sibling donor bone marrow transplantation revisited. J Clin Ethics. 2006: 17(3): 207-219.
Ravitsky V and Wilfond BS. Disclosing individual genetic results to research participants. Am J Bioethics. 2006; 6(6): 8-17.
Wade CH and Wilfond BS. Ethical and clinical practice dilemmas for genetic counselors associated with direct-to-consumer marketing of genetic tests. Am J Med Gen. 2006; 142(4): 284-292.