Videos of presentations, as well as PowerPoint slides, will be posted by late August.

All presenter bios are PDFs.

Friday, July 22, 2016

8 a.m.

Sign-in and continental breakfast

8:30 a.m.

Welcome: Benjamin Wilfond, MD

Introduction: Holly Tabor, PhD

8:45 a.m.

The Hidden History of Autism: Steve Silberman

9:45 a.m.

Break

10 a.m.

Disparities and Access to Diagnosis and Care

Katharine Zuckerman, MD, MPH

Disparities in Early Identification and Treatment of Autism Spectrum Disorder (ASD)

Maureen Kelley, PhD

Falling Through the Cracks: Delayed Diagnosis and Intervention for Children Living as Wards of the State

Patricia Scott, MD

The Frontline of ASD Disparities: Experience at HopeCentral in Seattle

12 p.m.

Lunch

1 p.m.

Ethical Issues in Healthcare for Children and Adolescents

Alison Golombek, MD

Interacting and Supporting Children With ASD in the Healthcare Setting

Katharine Zuckerman, MD, MPH

Parent-Reported Healthcare Quality Among Children With ASD

Eileen Klein, MD

Navigating Complexity in a Challenging Environment: ASD in the Emergency Department

Laura Holmes, MS

Parents and Providers United: Barriers to Providing Sexual Health Care for Youth With ASD

Katrina Davis
Rebecca Klein
Ben Moore
Ivanova Smith
Lynn Vigo

Parent/Adult/Teen Panel Discussion

3 p.m.

Break

3:45 p.m.

Transition to Adulthood

Paul Shattuck, PhD

Ethical Dimensions of Transition Research

Neil Barnett, PhD
Meredith Ringel Morris, PhD
Therese Vafaeezadeh, MSN, ARNP

Stories of Transition, Employment and Support: The Microsoft Experience and the Tavon Center

5:30 p.m.

Closing comments and adjourn

 

Saturday, July 23, 2016

7:45 a.m.

Sign-in and continental breakfast

8:15 a.m.

Welcome and Introduction: Holly Tabor, PhD

8:20 a.m.

Clinical Ethics and Autism: Submitted Presentations and Discussion

9:35 a.m.

Autism Research Ethics

Liz Pellicano, PhD, MPsych

Towards a New Science of Autism: Building a Participatory Framework

Michael Yudell, PhD, MPH

Historical and Contemporary Lessons About Risk, Ethics and Autism

10:50 a.m.

Break

11 a.m.

Autism Research Ethics (continued)

Celine Saulnier, PhD

Prodromal Detection and Early Intervention Research

Holly Tabor, PhD

Finding a “Cause”: ASD Genetic Research and Translation

Martine Lappé, PhD

The Emerging Ethics of Autism Environmental Risk Research

12:45 p.m.

Concluding comments and adjourn