Videos of presentations, as well as PowerPoint slides, will be posted by late August.

All presenter bios are PDFs.

Friday, July 22, 2016

8 a.m.

and continental breakfast

8:30 a.m.

Welcome: Benjamin Wilfond, MD

Introduction: Holly Tabor, PhD

8:45 a.m.

The Hidden History of Autism: Steve Silberman

9:45 a.m.


10 a.m.

Disparities and Access to Diagnosis and Care

Katharine Zuckerman, MD, MPH

Disparities in Early Identification and Treatment of Autism Spectrum Disorder (ASD)

Maureen Kelley, PhD

Falling Through the Cracks: Delayed Diagnosis and Intervention for Children Living as Wards of the State

Patricia Scott, MD

The Frontline of ASD Disparities: Experience at HopeCentral in Seattle

12 p.m.


1 p.m.

Ethical Issues in Healthcare for Children and Adolescents

Alison Golombek, MD

Interacting and Supporting Children With ASD in the Healthcare Setting

Katharine Zuckerman, MD, MPH

Parent-Reported Healthcare Quality Among Children With ASD

Eileen Klein, MD

Navigating Complexity in a Challenging Environment: ASD in the Emergency Department

Laura Holmes, MS

Parents and Providers United: Barriers to Providing Sexual Health Care for Youth With ASD

Katrina Davis
Rebecca Klein
Ben Moore
Ivanova Smith
Lynn Vigo

Parent/Adult/Teen Panel Discussion

3 p.m.


3:45 p.m.

Transition to Adulthood

Paul Shattuck, PhD

Ethical Dimensions of Transition Research

Neil Barnett, PhD
Meredith Ringel Morris, PhD
Therese Vafaeezadeh, MSN, ARNP

Stories of Transition, Employment and Support: The Microsoft Experience and the Tavon Center

5:30 p.m.

Closing comments and adjourn


Saturday, July 23, 2016

7:45 a.m.

and continental breakfast

8:15 a.m.

Welcome and Introduction: Holly Tabor, PhD

8:20 a.m.

Clinical Ethics and Autism: Submitted Presentations and Discussion

9:35 a.m.

Autism Research Ethics

Liz Pellicano, PhD, MPsych

Towards a New Science of Autism: Building a Participatory Framework

Michael Yudell, PhD, MPH

Historical and Contemporary Lessons About Risk, Ethics and Autism

10:50 a.m.


11 a.m.

Autism Research Ethics (continued)

Celine Saulnier, PhD

Prodromal Detection and Early Intervention Research

Holly Tabor, PhD

Finding a “Cause”: ASD Genetic Research and Translation

Martine Lappé, PhD

The Emerging Ethics of Autism Environmental Risk Research

12:45 p.m.

Concluding comments and adjourn