Note: The schedule is subject to change. Please check back regularly for updates.
Cases That Keep Us Awake at Night: Challenges in Pediatric Bioethics
Friday, July 19, 2013
8 a.m.
Sign-in and continental breakfast
Morning Session
8:30 a.m.
Welcome and Introduction
Benjamin Wilfond, MD
8:45 a.m.
The Hermit, the Mongol, the Swimmer, Bucky and the Dwarfs: Cases That Changed Me
Norman Fost, MD, MPH
9:30 a.m.
Siblings and Bone Marrow Donation: Can a Parent Protect the Interests of Both the Donor and the Recipient?
Douglas Opel, MD, MPH
Paula Goodman-Crews, MSW, LCSW
Lainie Friedman Ross, MD, PhD
10:30 a.m.
Break
11 a.m.
A Conversation About Challenging Cases in Clinical Ethics
Douglas Diekema, MD, MPH, Moderator
Norman Fost, MD, MPH
Kellie Lang, JD, RN
John Lantos, MD
Lainie Friedman Ross, MD, PhD
Paula Goodman-Crews, MSW, LCSW
Micah Hester, PhD
Sara Rosenthal, PhD
12 p.m.
Panel and Questions
Norman Fost, MD, MPH
Kellie Lang, JD, RN
John Lantos, MD
Lainie Friedman Ross, MD, PhD
Paula Goodman-Crews, MSW, LCSW
Micah Hester, PhD
Sara Rosenthal, PhD
12:30 p.m.
Lunch
Afternoon Session
1:30 p.m.
An Adolescent with Leukemia Refuses a Blood Transfusion
David Woodrum, MD
Micah Hester, PhD
Marlena Dietzway, BA
2:30 p.m.
Break
3 p.m.
When the Results of Genetic Screening Affect Fifty Not-So-Cooperative Individuals
Sara Rosenthal, PhD
Kellie Lang, JD, RN
Holly Tabor, PhD
4 p.m.
Reflections of an Ethics Consultant: The Outsider/Insider Dilemma
Denise Dudzinski, PhD, MTS
4:30 p.m.
Adjourn
Saturday, July 20, 2013
7:45 a.m.
Sign-in and continental breakfast
8:15 a.m.
Welcome and Introduction
Douglas Diekema, MD, MPH
8:30 a.m.
On the Tragic Nature of Ethics Consultation
Douglas Diekema, MD, MPH
9 a.m.
Should Dialysis Be Compelled for a Child with Chronic Renal Failure?
Aaron Wightman, MD
Paula Goodman-Crews, MSW, LCSW
John Lantos, MD
10 a.m.
Break
10:15 a.m.
Breakout Sessions: Presentation and Discussion of Submitted Cases
- Decision-Making in the NICU – hosted by Susan Albersheim, MD, PhD
- Roles and Boundaries of Medical Professionals in the Care of Pediatric Patients – hosted by Lainie Friedman Ross, MD, PhD
- The Limits of Parental Decision-Making in the PICU – hosted by Jonna Clark, MD, MA, and Mithya Lewis-Newby, MD
11:30 a.m.
Break
11:45 a.m.
What We Talk About When We Talk About Ethics
John Lantos, MD
12:30 p.m.
Concluding comments and adjourn