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Pediatric Bioethics Conference

Agenda

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Note: The schedule is subject to change. Please check back regularly for updates.

Registration has closed, but please join us for the live webcast on July 18 from 8:30 a.m. to 4:30 p.m. and July 19 from 8:15 a.m. to 12:30 p.m. Video clips will also be posted in August.

Friday, July 18, 2014

8 a.m.

Sign-in and continental breakfast

Morning Session

8:30 a.m.

Welcome and Introduction
Benjamin Wilfond, MD

8:45 a.m.

Research in the Developing World: Different Ethics or Different Facts?
Norman Fost, MD, MPH

9:30 a.m.

Ethical Boundaries in Research Designed to Change Public Policy
Lainie Friedman Ross, MD, PhD

10:15 a.m.

Break

10:45 a.m.

A Conversation About Ethical Challenges in Pediatric Research
Douglas Diekema, MD, MPH, moderator
Alexander Capron, LLB; Norman Fost, MD, MPH; Steven Joffe, MD, MPH; Nancy Kass, ScD; P. Pearl O’Rourke, MD; Lainie Friedman Ross, MD, PhD

11:45 a.m.

Questions from the Audience
Alexander Capron, LLB; Norman Fost, MD, MPH; Steven Joffe, MD, MPH; Nancy Kass, ScD; P. Pearl O’Rourke, MD; Lainie Friedman Ross, MD, PhD

12:15 p.m.

Lunch

Afternoon Session

1:15 p.m.

The SUPPORT Trial and Ethical Issues Raised by Comparative Effectiveness Trials
Nancy Kass, ScD

1:50 p.m.

Learning Healthcare Systems: Ethically Integrating Research into Pediatric Care
Steven Joffe, MD, MPH

2:30 p.m.

Panel and Questions from the Audience
Norman Fost, MD, MPH; Nancy Kass, ScD; Steven Joffe, MD, MPH; Lainie Friedman Ross, MD, PhD

3 p.m.

Break

3:30 p.m.

The Triumph of the Human Spirit: From Auschwitz to Forgiveness
Eva Mozes Kor

4:30 p.m.

Adjourn

Saturday, July 19, 2014

7:45 a.m.

Sign-in and continental breakfast

8:15 a.m.

Welcome and Introduction
Douglas Diekema, MD, MPH

8:30 a.m.

Beyond All or None: Return of Secondary Results from Research and Clinical Exome and Whole Genome Sequencing
Holly Tabor, PhD

9 a.m.

Biobanking: Perks, Promises and Perplexing Problems
P. Pearl O’Rourke, MD

9:45 a.m.

Panel and Questions from the Audience
P. Pearl O’Rourke, MD; Holly Tabor, PhD

10:15 a.m.

Break

10:30 a.m.

Breakout Sessions: Submitted Presentations and Discussions

11:30 a.m.

Break

11:45 a.m.

Young Patients, Age-Old Issues
Alexander Capron, LLB

12:30 p.m.

Concluding Comments and Adjourn
Douglas Diekema, MD, MPH