The Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital hosted its fifth annual international pediatric bioethics conference, "No Longer a Child, Not Yet an Adult: Ethical Issues in Adolescent Healthcare," on July 24 and 25, 2009, in Seattle. The conference featured nationally recognized speakers in bioethics and drew nearly 200 participants from across the nation and around the world.

2009 Bioethics Conference Introduction

No Longer a Child, Not Yet an Adult: Ethical Issues in Adolescent Healthcare

Adolescence represents a time of transition from childhood to adulthood, from dependence to independence and from concrete to abstract thinking. This period of transition raises important issues for healthcare providers who care for adolescents:

  • Do adolescents possess sufficient capacity to make decisions regarding their own healthcare?
  • Should adolescents be permitted to make some healthcare decisions without the involvement of a parent?
  • What are the limits of confidentiality when dealing with adolescent patients?
  • How should healthcare providers respond to parental requests that diagnostic information be withheld from an adolescent patient?
  • Do adolescents with eating disorders have a condition that affects their decision-making capacity?
  • How should a healthcare provider respond to a parent's request to test an adolescent for drugs?
  • Should adolescents be allowed to participate in research without the permission of their parents?
  • Should parental permission be required for administration of the HPV vaccine?

Leaders in the field of pediatric bioethics will discuss these and other issues July 24 and 25, 2009, on the shores of Puget Sound. Come join us and add your perspective as we explore these ethical questions through presentations, panel discussions, abstract presentations and breakout sessions.

Below you will find the archived webcast presentations and more, so you can join in the ongoing exploration of these ethical questions.

    2009 Pediatric Bioethics Conference Presentations

    Watch the UWTV program series

    Day 1

    Welcome and introduction
    Moderator: Benjamin Wilfond, MD
    Tom Hansen

    Asking the Right Questions: Implications for Adolescent Autonomy in Healthcare Decision-Making
    Presented by Douglas Diekema, MD, MPH
    Watch the video

    The Adolescent's Role in End-of-Life Decision-Making: Ethics Versus Policy
    Presented by Lainie Friedman Ross, MD, PhD
    View presentation (PPT)

    Adolescent Decision-Making: Should Minors Be Allowed to Refuse Life-Saving Medical Treatment?
    Presented by Ellen Clayton, MD, JD
    View presentation (PPT)

    Staying Close While Standing Back: The Art and Science of Caring for and Respecting Adolescents
    Presented by Julie Giesy Metzger, RN, MN
    Watch the video

    Adolescents and Performance-Enhancing Drugs for Athletes and Appearance
    Presented by Norman Fost, MD, MPH
    View presentation (PPT)
    Watch the video

    Panel and questions: Norman Fost, Mark Mercurio, Lainie Friedman Ross, Ellen Clayton
    Watch the video

    Day 2

    Welcome and introduction
    Moderator: Holly Tabor, PhD

    When the Parent Is an Adolescent: Implications for Decision Making in the Clinical and Research Contexts
    Presented by Mark Mercurio, MD, MA
    View presentation (PPT)

    Secrets, Lies and Testing Dilemmas: Parents' Requests for Adolescent Drug Testing, Sexual Behavior Information Sharing and Ownership of Diagnostic Results
    Presented by Leslie Walker, MD
    View presentation (PPT)

    Adolescent Consent and Confidentiality: A Legal Overview
    Presented by Jessica Berg, JD
    View presentation (PPT)

    Confidentiality in Adolescent Health Care
    Presented by Abigail English, JD
    View presentation (PPT)

    Panel and questions: Mark Mercurio, Leslie Walker, Abigail English, Jessica Berg, Maureen Kelley
    Watch the video

    Platform presentations of selected abstracts
    Moderator: Douglas J. Opel, MD

    Aiming Higher: An Ethical Framework for Delivery of Care to Homeless and Orphaned Adolescents
    Presented by Maureen Kelley, PhD
    Watch the video

    Concluding comments and adjourn

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