Treuman Katz Center for Pediatric Bioethics

The first of its kind in the nation, the Treuman Katz Center improves the lives of children and their families by addressing ethical questions that arise in pediatric care and research.

Programs and Resources

The Treuman Katz Center serves as a national resource, helping physicians, researchers and policymakers advance their knowledge of bioethics and navigate complex moral dilemmas.

Center Highlights

Key Partnerships

Partnerships are an essential part of the Treuman Katz Center’s mission. Our researchers collaborate with colleagues across the nation and around the world in pursuit of answers to complex bioethics questions.

Our partners include the Center for Clinical and Translational Research at Seattle Children’s Research Institute and the Department of Bioethics and Humanities and the Institute of Translational Health Sciences at the University of Washington.

Bioethics Consultations

Our bioethicists provide practical guidance to families, providers, researchers and policymakers about patient care, public health and research issues. Our consultation service is available to colleagues throughout Seattle Children’s and the University of Washington, and we offer informal advice to people at outside institutions. Learn more about our services.

Publications

Krick J, Chabra S. On "end-of-life decision making for parents of extremely preterm infants."Journal of Obstetric, Gynecologic, and Neonatal Nursing. 2018 May;47(3):415-416.

Wilfond BS, Kauffman TL, Jarvik GP, Reiss JA, Richards CS, McMullen C, Gilmore M, Himes P, Kraft S, Porter KM, Schneider JL, Punj S, Leo MC, Dickerson JF, Lynch FL, Clarke E, Rope AF, Lutz K, Goddard KAB. Lessons learned from a study of genomics-based carrier screening for reproductive decision making. Health Affairs. 2018 May;37(5):809-816.

Richards CA, Starks H, O'Connor MR, Bourget E, Hays RM, Doorenbos AZ. Physicians perceptions of shared decision-making in neonatal and pediatric critical care. American Journal of Hospice & Palliative Care. 2018 Apr;35(4):669-676.

Salehi P, Divall SA, Crouch JM, Hopkinson RA, Kroon L, Lawrence J, Wilfond BS, Inwards-Breland DJ. Review of current care models for transgender youth and application to the development of a multidisciplinary clinic - The Seattle Children's hospital experience. Pediatric Endocrinology Reviews. 2018 Apr;15(4):280-290.

Weiss EM, Fiester A. Response to open peer commentaries on "from 'longshot' to 'fantasy': Obligations to pediatric patients and families when last-ditch medical efforts fail". American Journal of Bioethics. 2018 Apr;18(4):W8-W9.

Bardill J, Bader AC, Garrison NA, Bolnick DA, Raff JA, Walker A, Malhi RS, the Summer internship for INdigenous peoples in Genomics (SING) Consortium. Advancing the ethics of paleogenomics. Science. 2018 Apr; 360(6387):384-385.

Sabatello M, Callier S, Garrison NA, Cohn EG. Trust, precision medicine research, and equitable participation of underserved populations. American Journal of Bioethics. 2018 Apr;18(4):34-36.

Gentry KR. Review of Ronald W. Dworkin, medical catastrophe: Confessions of an anesthesiologist. American Journal of Bioethics. 2018 Apr;18(4):W1-W3.

Kraft SA, Cho MK, Gillespie K, Halley M, Varsava N, Ormond KE, Luft HS, Wilfond BS, Soo-Jin Lee S. Beyond consent: building trusting relationships with diverse populations in precision medicine research. American Journal of Bioethics. 2018 Apr;18(4):3-20.

Jecker NS, Wightman AG, Rosenberg AR, Diekema DS. Ethical guidance for selecting clinical trials to receive limited space in an immunotherapy production facility. American Journal of Bioethics. 2018 Apr;18(4):58-67.

Stone AL, Karlson CW, Heathcote LC, Rosenberg AR, Palermo TM. Topical review: Pain in survivors of pediatric cancer: Applying a prevention framework. Journal of Pediatric Psychology. 2018 Apr 1;43(3):237-242.

Weaver MS, Rosenberg AR, Tager J, Wichman CS, Wiener L. A summary of pediatric palliative care team structure and services as reported by centers caring for children with cancer.Journal of Palliative Medicine. 2018 Apr;21(4):452-462.

Shah SK, Porter K. Conflicts between regulations and ethical principles: Resolving ambiguity in favor of the ethically preferable outcome. American Journal of Bioethics. 2018 Apr;18(4):93-94.

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Our Experts in the Media

  • Can we respectfully disagree? Navigating cultural differences in healthcare – 6.20.18 – On the Pulse
    Providers often must negotiate with patients and families, but how should disagreements be addressed when the discrepancy is rooted in the patient’s culture or beliefs? Bioethics consultant Dr. Doug Diekema, director of education in the Treuman Katz Center, discussed how we should navigate ethical disagreements related to diversity in a Q&A.
  • Low vaccination rates in King County cause for concern – 6.15.18 – KING5.com
    King County had the third-highest number of parents claiming exemptions from vaccine requirements for their children last year, according to a new study. Experts warn that this may leave residents of Washington’s most populous county vulnerable to outbreaks of deadly disease. While doctors can’t say with certainty what causes any given outbreak, “there is good data to suggest that unvaccinated children are at risk for serious infections and can promote the spread of vaccine-preventable diseases in their community,” said Dr. Doug Opel, general pediatrician at Seattle Children’s and associate professor of pediatrics at the UW School of Medicine.
  • Vaccines work, whether or not you believe in them – 6.3.18 – TWiV (This Week in Virology)
    Dr. Douglas Diekema is one of the experts interviewed about vaccine facts and fiction at the Vaccines in the 21st Century meeting at the University of California, Irvine.
  • Build resilience in kids to prevent suicide – 5.25.18 – KING5.com
    Suicide is the number one cause of death for children in Washington state between 10–14 years old. Building resilience is one way parents or caregivers can help their kids better navigate difficult times. Dr. Abby Rosenberg is a pediatric oncologist at Seattle Children's Hospital who studies resilience among young cancer patients, and she shared three findings on how we can build resilience in all children.
  • Deep Dive: Building resilience – 5.24.18 – KING5.com
    The number-one cause of death in children in Washington state between ages 10–14 is suicide. One of the major ways to prevent suicide is resilience, a person’s ability to adapt to stress and change. Dr. Abby Rosenberg at Seattle Children’s has studied resilience in kids who are facing cancer. Rosenberg said resilience can be developed and used for any type of adversity, and you can get it by developing resources. The three types of resources for building resilience are: individual, community and beliefs.
  • New ethics encourage engagement with indigenous community – 5.9.18 – Kansas Ag Connection
    A collaborative group of indigenous and nonindigenous scholars encourages scientists to meaningfully engage with indigenous communities on paleogenomics research in a new series of ethical guidelines published in the journal Science. Dr. Nanibaa’ Garrison, a bioethics professor at Seattle Children's Research Institute and the University of Washington School of Medicine and a co-author of the report, said engaging communities at the outset is critical for understanding their concerns or questions about research involving ancient relatives.
  • Considering indigenous communities when researching ancient human remains – 5.3.18 – BBC News
    BBC Radio 4 spoke with Dr. Nanibaa’ Garrison, a bioethicist at Seattle Children’s Research Institute and the UW School of Medicine, about an article in the journal Science that she co-authored on the ethical guidelines in paleogenomic research involving ancient human remains.
  • Respect Indigenous ancestors: Scholars urge community engagement before research – 4.26.18 –Phys.org
    A new article in the journal Science provides guidance for those intending to study ancient human remains in the Americas. The paper offers a clear directive: First, do no harm. "Engaging communities at the outset is critical for understanding their concerns or questions about research involving ancient relatives. Without feedback from the community, scientific interpretations remain one-sided and inherently biased," said Dr. Nanibaa Garrison, a bioethics professor at Seattle Children's Research Institute and the UW School of Medicine, and a co-author of the article.
  • Commentary: Trying to learn the lesson of Kennewick Man – 4.26.18 – UW Medicine Newsroom
  • New ethical guidelines encourage scientists to engage with indigenous communities before studying ancient remains – 4.24.18 – KU News Service