Treuman Katz Center for Pediatric Bioethics

The first of its kind in the nation, the Treuman Katz Center improves the lives of children and their families by addressing ethical questions that arise in pediatric care and research. Learn more.

Programs and Resources

The Treuman Katz Center serves as a national resource, helping physicians, researchers and policymakers advance their knowledge of bioethics and navigate complex moral dilemmas.

Center Highlights

Key Partnerships

Partnerships are an essential part of the Treuman Katz Center’s mission. Our researchers collaborate with colleagues across the nation and around the world in pursuit of answers to complex bioethics questions.

Our partners include the Center for Clinical and Translational Research at Seattle Children’s Research Institute and the Department of Bioethics and Humanities and the Institute of Translational Health Sciences at the University of Washington.

Bioethics Consultations

Our bioethicists provide practical guidance to families, providers, researchers and policymakers about patient care, public health and research issues. Our consultation service is available to colleagues throughout Seattle Children’s and the University of Washington, and we offer informal advice to people at outside institutions. Learn more about our services.

Publications

Kauffman TL, Wilfond BS, Jarvik GP, Leo MC, Lynch FL, Reiss JA, Richards CS, McMullen C, Nickerson D, Dorschner MO, Goddard KA. Design of a randomized controlled trial for genomic carrier screening in healthy patients seeking preconception genetic testing. Contemporary Clinical Trials. 2017 Feb;53:100-105.

Tan N, Amendola LM, O'Daniel JM, Burt A, Horike-Pyne MJ, Boshe L, Henderson GE, Rini C, Roche MI, Hisama FM, Burke W, Wilfond B, Jarvik GP. Is “incidental finding” the best term?: A study of patients’ preferences. Genetics in Medicine. 2017 Feb;19(2): 176-181.

Shah SK. When to start paediatric testing of the adult HIV cure research agenda? Journal of Medical Ethics. 2017 Feb;43(2):82-86.

Rid A, Shah SK. Substantiating the social value requirement for research: An introduction. Bioethics. 2017 Feb;31(2):72-76.

Nayak R, Shah SK. Should social value obligations be local or global? Bioethics. 2017 Feb;31(2):116-127.

Porter KM, Cho MK, Kraft SA, Korngiebel DM, Constantine M, Lee SS, Kelley M, James C, Kuwana E, Meyer A, Diekema D, Capron AM, Magnus D, Wilfond BS. Research on medical practices (ROMP): Attitudes of IRB personnel about randomization and informed consent. IRB: Ethics & Human Research. 2017 Jan-Feb; 39(1): 10-16.

Katz AL, Webb SA, … Diekema, D, … Opel, D, … Committee on Bioethics, American Academy of Pediatrics. Technical report: Informed consent in decision-making in pediatric practice. Pediatrics. 2016; 138(2): e20161485.

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