Kauffman TL, Wilfond BS, Jarvik GP, Leo MC, Lynch FL, Reiss JA, Richards CS, McMullen C, Nickerson D, Dorschner MO, Goddard KA. Design of a randomized controlled trial for genomic carrier screening in healthy patients seeking preconception genetic testing. Contemporary Clinical Trials. 2017 Feb;53:100-105.
Tan N, Amendola LM, O'Daniel JM, Burt A, Horike-Pyne MJ, Boshe L, Henderson GE, Rini C, Roche MI, Hisama FM, Burke W, Wilfond B, Jarvik GP. Is “incidental finding” the best term?: A study of patients’ preferences. Genetics in Medicine. 2017 Feb;19(2): 176-181.
Shah SK. When to start paediatric testing of the adult HIV cure research agenda? Journal of Medical Ethics. 2017 Feb;43(2):82-86.
Rid A, Shah SK. Substantiating the social value requirement for research: An introduction. Bioethics. 2017 Feb;31(2):72-76.
Nayak R, Shah SK. Should social value obligations be local or global? Bioethics. 2017 Feb;31(2):116-127.
Porter KM, Cho MK, Kraft SA, Korngiebel DM, Constantine M, Lee SS, Kelley M, James C, Kuwana E, Meyer A, Diekema D, Capron AM, Magnus D, Wilfond BS. Research on medical practices (ROMP): Attitudes of IRB personnel about randomization and informed consent. IRB: Ethics & Human Research. 2017 Jen-Feb; 39(1): 10-16.
Katz AL, Webb SA, … Diekema, D, … Opel, D, … Committee on Bioethics, American Academy of Pediatrics. Technical report: Informed consent in decision-making in pediatric practice. Pediatrics. 2016; 138(2): e20161485.
Wightman A. Is it permissible for a child with neurodevelopmental disabilities to be a living donor transplant candidate, but not a deceased donor candidate? Should donor source influence transplant center deliberations? Pediatric Transplantation. 2016 Dec; 00:1-3.