Researchers at Seattle Children's and the University of Washington are gathering responses to a survey on head and neck lymphatic malformations. We are testing a set of questions that we hope can be used to help children with lymphatic malformations. To do that, we need volunteers to complete a survey. 

Would the study be a good fit for me?

This study might be a good fit for you if:

  • You have a child of any age with a head and neck lymphatic malformation

Or if:

  • You are between 11 and 21 years old and have a head and neck lymphatic malformation 

What would happen if I took part in the study?

If you decide to take part in the study, you would:

  • Answer multiple-choice questions on paper or online
  • Two weeks later, you would take the survey again
  • One year later, you may be asked to take the same survey again

The survey will take 10-15 minutes to complete each time.

You may receive an Amazon gift card for completing the survey. You can receive up to $30 for your participation: $10 for answering the questions the first time, and $20 for answering them again. No payment is offered for filling out the survey 1 year later.

The study will not benefit you directly, but will help us better understand lymphatic malformation treatment and may benefit other children across the country with lymphatic malformations.

What kinds of questions will I have to answer?

 

For more information, send us an email or call 206-987-1927.  

 The principal researcher for this study is Dr. Jonathan Perkins at Seattle Children’s Vascular Anomalies Program.