Researchers at Seattle Children's and the University of Washington are gathering responses to a new survey on head and neck lymphatic malformations. We are testing a set of questions that we hope can be used to help lymphatic malformation patients in the future. To do that, we need people from all over the country to complete the survey.

You can complete the survey if:

  • You have a child of any age with a lymphatic malformation in the head or neck.
  • Your child has never been a patient at Seattle Children's Hospital.

Or if:

  • You are at least 11 years old and have a lymphatic malformation in the head or neck.
  • You have never been a patient at Seattle Children's Hospital.

If you decide to take part, you and your child (if they are age 11 or older) can complete the survey(s) online. The survey will take 15-30 minutes to complete. You can participate anonymously by not providing your name or any contact information. If you provide an email address, you will receive a reminder to complete the survey again two weeks later.

You will not be paid to participate. The study will not benefit you directly, but it will help us better understand lymphatic malformations and may benefit other patients across the country. Survey data will be banked (stored indefinitely) for future research.

If you have questions or if you are a past or current Seattle Children's patient and would like to participate, please contact the research team at 206-987-1927 or by email.

The principal researcher for this study is Dr. Jonathan Perkins of Seattle Children's Vascular Anomalies Program.

Help us answer questions about childhood health and illness, and help other children in the future. Learn more.