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Rebecca H. Johnson, MD

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Rebecca H. Johnson, MD

Hematology-Oncology

On staff since October 2007

Academic Title: Assistant Professor, Hematology-Oncology Division, Department of Pediatrics, UW

Research Center: Center for Clinical and Translational Research

"My goal is to facilitate quantifiable improvement in the lives of adolescents and young adults with cancer. I was treated for cancer in my twenties, and so I now represent adolescents and young adults from the perspectives of both a healthcare provider and a former patient. I love the job, and I am working to develop new and innovative programs at Seattle Childrens that will improve the lives of adolescent and young adult cancer patients."

Recommendations

BethMount Vernon, WA10.22.13
"Dr. J" as we like to call her has become part of our family. Although she won't take credit for saving my son's life - I give her all the credit - she works tirelessly for our kids - for those who currently have cancer, and for those who have yet to hear the bad news. She's very humble, kind, honest and forthright and although our journey through cancer has been an easy one compared to some other kiddo's, she's treated us with no less importance, passion or drive for a cure. Many times as we reflect back through this journey, it almost seems worth it as the relationship we have developed with Dr. J is unmatched. We just love her and are so grateful for her!!
TammyTwisp,WA07.04.12
We thank Dr. Johnson for saving our son's life. She has a very caring manner which I feel is very important in Health Care. I know that when we come to see her she is going to be very upfront and honest to us regarding our son's future. We feel very comfortable with her and trust her. Our son never looks forward to coming for follow-up visits for scans and blood work, but he always looks forward to seeing Dr. Johnson. We have already given her name to a family in Haiti who has a young son just diagnosed with Hodgkin's Lymphoma.
Recommend Dr. Rebecca Johnson

Overview

Board Certification(s)
Pediatrics
Pediatric Hematology-Oncology
Clinical Genetics (MD)
Medical/Professional School
Jefferson Medical College of Thomas Jefferson University, Philadelphia
Residency
Internal Medicine, Penn State University Hospital - Milton S Hershey College of Medicine, Hershey
Fellowship
Clinical Genetics, Baylor College of Medicine, Houston
Pediatric Hematology-Oncology, Baylor College of Medicine, Houston
Research Description

My research interests include quality of life and clinical outcomes in adolescents and young adults with cancer.

Research Focus Area

Cancer

Awards and Honors

Award NameAward DescriptionAwarded ByAward Date
Fellows Day Award for Outstanding Poster PresentationBaylor College of Medicine 2003
Ralph and Judy Feigin Fellow in Pediatric Hematology and OncologyBaylor College of Medicine 2002
Individual National Research Service Award (F32)NIH 2000
National Merit Finalist 1985

Publications

Gene expression in "young adult type" breast cancer: a retrospective analysis.
Submitted to Cancer , Jan. 16, 2014
AYA in the USA. International Perspectives on AYAO, Part 5
J Adolesc Young Adult Oncol. , Dec. 1, 2013: 2(4)167-174
AYA in the USA. International Perspectives on AYAO, Part 5.
J Adolesc Young Adult Oncol. , Dec. 1, 2013: 2(4)167-174
Fertility after breast cancer treatment
Eur J Obstet Gynecol Reprod Biol , Nov. 17, 2013
The Paradox of Favorable Outcomes and Inferior Survival Improvement AYA Cancer Survival in the United States
Critical Mass: Young Adult Cancer Alliance Annual Meeting, Cleveland, OH. , Nov. 7, 2013 - Nov. 8, 2013
Recruitment and Retention of Adolescents and Young Adults (AYA) on a Prospective Longitudinal Cohort Study: Results from the AYA Treatment and Survivorship Cohort Study
Critical Mass: Young Adult Cancer Alliance Annual Meeting, Cleveland, OH , Nov. 7, 2013 - Nov. 8, 2013
Opening an AYA Unit: The Steep Learning Curve
Critical Mass: Young Adult Cancer Alliance Annual Meeting, Cleveland, OH , Nov. 7, 2013 - Nov. 8, 2013
Increase in Testicular Germ Cell Tumor Incidence among Hispanic Adolescents and Young Adults in the United States.
Submitted to Cancer , Oct. 16, 2013
Spiritual/religious struggle in hematopoietic cell transplant survivors.
Submitted February 4, 2013 to American Society of Clinical Oncology for Annual Meeting Chicago, IL. , May 31, 2013 - June 4, 2013
Increase in Testicular Germ Cell Tumor Incidence Among Hispanic Adolescents and Young Adults in the United States
SCH Center for Clinical and Translational Research. Seattle, WA. , April 11, 2013
Defining adolescent and young adult (AYA) exercise and nutrition needs: Concerns communicated in an online cancer support community.
Journal of Patient Educ Couns. , March 9, 2013: 92130-133
Incidence of Breast Cancer with Distant Involvement Among Women in the United States
JAMA , Feb. 27, 2013: 309(8)800-805
Incidence of Breast Cancer with Distant Involvement Among Women in the United States, 1976-2009
JAMA , Feb. 27, 2013: 309(8)800-805
"Re-thinking adherence: a proposal for a new approach to risk assessment."
Journal of Adolescent and Young Adult Oncology , Jan. 23, 2013: 2(2)83-86
Primary Care Physician Referral Decisions for Adolescents and Young Adults with Cancer:
Submitted to Journal of Adolescent and Young Adult Oncology , Jan. 2, 2013
Optimizing fertility preservation practices for adolescent and young adult cancer patients,
J Natl Compr Canc Netw , Jan. 1, 2013: 11(1)71-7
Optimizing fertility preservation practices for adolescent and young adult cancer patients.
J Natl Compr Canc Netw , Jan. 1, 2013: 11(1)71-7
Incidence Rate of Breast Cancer in Young Women Reply.
JAMA , 2013: 309(23)2433
Reviewers for "NCCN Guidelines for Patients: Caring for Adolescents and Young Adults with Cancer."
National Comprehensive Care Network, Inc. , 2013
Harnessing Information Technology to Optimize Care for Adolescents and Young Adults with Cancer.
Critical Mass: Young Adult Cancer Alliance Annual Meeting, Atlanta, GA. , Nov. 8, 2012 - Nov. 9, 2012
Defining adolescent and young adult (AYA) exercise and nutrition needs: concerns communicated in a digital cancer support community
Critical Mass: Young Adult Cancer Alliance Annual Meeting, Atlanta, GA. , Nov. 8, 2012 - Nov. 9, 2012
Harnessing Information Technology to Optimize Care for Adolescents and Young Adults with Cancer.
Critical Mass: Young Adult Cancer Alliance Annual Meeting, Atlanta, GA. , Nov. 8, 2012 - Nov. 9, 2012
Defining adolescent and young adult (AYA) exercise and nutrition needs: concerns communicated in a digital cancer support community
Critical Mass: Young Adult Cancer Alliance Annual Meeting, Atlanta, GA , Nov. 8, 2012 - Nov. 9, 2012
Creating a Standardized Process to Offer the Standard of Care: Continuous Process Improvement Methodology is Associated With Increased Rates of Sperm Cryopreservation Among Adolescent and Young Adult Males With Cancer
J Pediatr Hematol Oncol , Nov. 2012: 34(8)e315-9
Creating a Standardized Process to Offer the Standard of Care: Continuous Process Improvement Methodology is Associated With Increased Rates of Sperm Cryopreservation Among Adolescent and Young Adult Males With Cancer.
J Pediatr Hematol Oncol , Nov. 2012: 34(8)e315-9
The USA Adolescent and Young Adult Cancer Medical Community: an update on progress and models of care delivery."
Teenage Cancer Trust Conference. London, England , June 25, 2012 - June 26, 2012
"Optimizing Psychosocial Care for Adolescents and Young Adults with Cancer: An Online Video Series Addresses Topics of Interest for This Population."
Second International AYA workshop. Toronto, Canada. , March 29, 2012 - March 30, 2012
"Gene expression as a predictor of "young adult type" breast cancer: a retrospective analysis."
Second International AYA workshop. Toronto, Canada. , March 29, 2012 - March 30, 2012
"Optimizing Psychosocial Care for Adolescents and Young Adults with Cancer: An Online Video Series Addresses Topics of Interest for This Population."
Second Annual Texas Adolescent and Young Adult Oncology Conference. San Antonio, TX. , March 1, 2012 - March 2, 2012
"Gene expression as a predictor of "young adult type" breast cancer: a retrospective analysis."
Second Annual Texas Adolescent and Young Adult Oncology Conference. San Antonio, TX. , March 1, 2012 - March 2, 2012
National Comprehensive Cancer Network Clinical Practice Guidelines in Oncology (NCCN Guidelines) version1.2012.
Adolescent and Young Adult (AYA) Oncology , Feb. 21, 2012
"Fertility Preservation in Male Adolescent and Young Adult Cancer Patients."
video , 2012
"Gene expression as a predictor of "young adult type" breast cancer: a retrospective analysis."
LIVESTRONG Young Adult Alliance Annual Meeting, Austin, TX. , Nov. 9, 2011 - Nov. 11, 2011
"Optimizing Psychosocial Care for Adolescents and Young Adults with Cancer: An Online Video Series Addresses Topics of Interest for This Population."
LIVESTRONG Young Adult Alliance Annual Meeting, Austin, TX , Nov. 9, 2011 - Nov. 11, 2011
Electronic Self-report Symptom and Quality of Life for Adolescent Patients With Cancer: A Feasibility Study
Cancer Nurs , Nov. 2011 - Dec. 2011: 34(6)479-486
"Optimizing Psychosocial Care for Adolescents and Young Adults with Cancer: An Online Video Series Addresses Topics of Interest for This Population."
Childrens Oncology Group Young Investigators Poster Session, Atlanta, GA. , Sept. 15, 2011
Responding to adolescents with cancer who refuse sperm banking: When"NO" should not be the last word.
Journal of Adolescent and Young Adult Oncology. , Sept. 2011: 1(3)114-117
Responding to adolescents with cancer who refuse sperm banking: When"NO" should not be the last word.
Journal of Adolescent and Young Adult Oncology. , Sept. 2011: 1(3)114-117
"Good Times and Bald Times" video series on Adolescent and Young Adult Cancer patients.
, Sept. 2011: Posted on YouTube(http://www.youtube.com/watch?v=jMMnWKjafV4&list=PLF0EBE7A44B2A27BC&index=1&feature=plpp_video)
"Primary Care Referral Patterns of Adolescent and Young Adult Cancer Patients: a Multi-State Study."
American Society of Clinical Oncology Annual Meeting, Chicago, Illinois. , June 3, 2011 - June 7, 2011
The History and Accomplishments of the LIVESTRONG Young Adult Alliance.
Journal of Adolescent and Young Adult Oncology. , March 2011: 1(1)43-47
The History and Accomplishments of the LIVESTRONG Young Adult Alliance
Journal of Adolescent and Young Adult Oncology. , March 2011: 1(1)43-47
"Primary Care Referral Patterns of Adolescent and Young Adult Cancer Patients."
LIVESTRONG Young Adult Alliance Annual Meeting, Austin, TX , Nov. 4, 2010 - Nov. 5, 2010
"Fertility Preservation in Adolescent and Young Adult Females with Cancer."
LIVESTRONG Young Adult Alliance Annual Meeting, Austin, TX. , Nov. 4, 2010 - Nov. 5, 2010
A Multidisciplinary Approach to Creating Specific Adolescent and Young Adult Patient Education Materials
LIVESTRONG Young Adult Alliance Annual Meeting, Austin, TX , Nov. 4, 2010 - Nov. 5, 2010
"Fertility Preservation in Female Adolescent and Young Adult Cancer patients."
Oncofertility Consortium Annual Meeting , Oct. 2010
"Primary Care Referral Patterns of Adolescent and Young Adult Cancer Patients."
Childrens Oncology Group Young Investigators Poster Session, Dallas, TX. , Sept. 2010
ALK-Related Neuroblastoma Susceptibility - updated Sept 2012
GeneReviews at GeneTests: Medical Genetics Information Resource , 2010
Diagnosing Childhood Non-Hodgkin Lymphoma. In Understanding Childhood Non-Hodgkin Lymphoma: a Guide for Patients, Survivors and Loved Ones
New York, USA: Lymphoma Research Foundation. , 2010
"Fertility Preservation in Female Adolescent and Young Adult Cancer patients."
, 2010: video
Continuous Process Improvement methodologies to improve rates of sperm cryopreservation among adolescent males with cancer.
LIVESTRONG Young Adult Alliance Annual Meeting, Austin, TX , Nov. 11, 2009 - Nov. 13, 2009
Continuous Process Improvement methodologies to improve rates of sperm cryopreservation among adolescent males with cancer
Oncofertility Consortium Annual Meeting, Chicago, IL , Sept. 11, 2009 - Sept. 12, 2009
Ethical Issues in Adolescent Health Care Fertility Preservation In Adolescent And Young Adult Male Cancer Patients. No Longer a Child, Not Yet an Adult
Seattle Children's Research Institute. Seattle, WA , July 24, 2009 - July 25, 2009
"Breast Cancer before 40 years."
Seminars in Oncology , June 15, 2009: 36(3)237-249
"Cowden Syndrome in a Patient with Choroid Plexus Carcinoma."
Pediatric Clinical Cancer Genetics Workshop, Houston, TX , Feb. 23, 2009
"Correction of cross-linker sensitivity of Fanconi anemia group F cells by CD33-mediated protein transfer."
Blood , Dec. 15, 2001: 98(13)3817-22
"Zeta Crystallin, a novel protein from the guinea pig lens is related to alcohol dehydrogenases."
Gene. , May 30, 1989: 78(2)215-24
TOUCH of the Healer: Defining Core Behaviors of Oncologists that Affect the Mental Health of Cancer Patients.
Cancer (in press) ,
TOUCH of the Healer: Defining Core Behaviors of Oncologists that Affect the Mental Health of Cancer Patients.
Cancer (in press). ,

Presentations

Presentations TitleEventLocationDate
Fertility and Cancer TreatmentHematology/Oncology Monthly Conference - Mary Bridge HospitalTacoma, WADec. 10, 2009
Cancer Predisposition in Young AdultsLance Armstong Young Adult Alliance Annual MeetingAustin, TXNov. 12, 2009
The Unique Biology of Breast Cancer in Young WomenLance Armstong Young Adult Alliance Annual MeetingAustin, TXNov. 11, 2009
Optimizing Cancer Care for Adolescents and Young AdultsLance Armstrong Foundation Regional Symposium Fred Hutchinson Cancer Research Center - Seattle, WAJuly 25, 2009

Research Funding

Grant TitleGrantorAmountAward Date
R03 PORPOISE Pediatric Oncology Research on Pets in Outpatient and Inpatient SettingsNIH $$8,519 total direct to Rebecca Johnson; PI Jessica ChubackApril 1, 2013 - March 31, 1915
R03 PORPOISE: Pediatric Oncology Research on Pets in Outpatient and Inpatient SettingsNIH $$8519 total direct to Rebecca JohnsonApril 1, 2013 - March 31, 2015
"Adolescent and Young Adult Treatment and Survivorship Cohort Study." LIVESTRONG Young Adult Alliance Research Grant $$40,000 in 2011, 2011 - 2012
Gene expression signature as a predictor of “young adult type” breast cancer: a retrospective analysis of AYA data• Lance Armstrong Foundation $45,000.00Jan. 1, 2009
CHRMC Teen Cancer Program• Children’s Hospital Guild Association $1,500,000.00Jan. 1, 2009

Primary Office

Seattle Children's
MB.8.501 - Hematology-Oncology
4800 Sand Point Way NE
Seattle, WA 98105
206-987-2106

Additional Offices

Seattle Children's
OC.9.850 - Medical Genetics
4800 Sand Point Way NE
Seattle, WA 98105
206-987-2056

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