What is endocarditis?
Endocarditis (pronounced en-doh-car-DIE-tis) is an infection of the lining inside the heart. This lining is called the endocardium.
Bacterial infection is the most common source of endocarditis. Infection happens when bacteria enter the bloodstream, attach to the inside of the heart and multiply. This can damage or even destroy the heart valves.
A normal heart has a smooth lining that is difficult for bacteria to stick to. Congenital heart disease sometimes causes rough areas on the heart lining or other changes that make it easier for bacteria to stick to the heart lining or valves. If bacteria stick, they can survive and multiply, which can cause endocarditis.
Bacterial endocarditis is always a serious infection.
The symptoms of endocarditis can vary depending on the germ that caused the infection and how severe it is. Your child’s symptoms may also depend on whether they already had a heart problem before getting the infection.
Many symptoms of endocarditis resemble other illnesses, such as the flu, but usually last longer than the flu.
Endocarditis in children may cause 1 or more of these symptoms:
- Prolonged or recurrent fevers (for more than 5 days, or even weeks)
- Extreme tiredness
- Decreased appetite
- Muscle aches
- Achy joints
- Small, dark spots on their hands or feet (either small painful bumps or small painless flat spots), purple-red pinpoints under their skin or dark lines under their nails
Endocarditis can lead to other problems in the body. It can damage heart valves and cause heart failure.
Clumps of bacteria and other cells can break off from an infected area in the heart and travel through the bloodstream. This can lead to infection in another part of the body, such as the lungs, brain or kidneys. Or a clump can clog a blood vessel, blocking blood flow. These complications can cause symptoms of their own and can be serious.
To diagnose this condition, your doctor will examine your child to see if there are signs of cardiac injury from infection or evidence that clumps of bacteria are being ejected from the heart.
The doctor will ask for details about any symptoms your child has, their health history and your family health history.
Two critical tests are almost always used together to diagnose endocarditis. One is called blood cultures, and the other is called an echocardiogram.
Blood cultures are tests used to find the bacteria causing endocarditis. Finding the exact type of bacteria causing the infection allows us to design the best treatment plan. To get this blood for culture, your child will need a needle poke into a vein. Sometimes, we will need to insert a catheter (small tube) into a vein to collect the blood. Heelstick and fingerstick blood can’t be used because bacteria living on the skin will contaminate the sample.
Echocardiography (“echo”) is the test that cardiologists use to examine the inside of the heart for signs of bacteria growing. One important echo sign is a “vegetation.” A “vegetation” is a visible clump of bacteria and cells attached to the lining of the heart or valves. Echos can also show when a cardiac valve has been injured.
This infection is usually treated with strong antibiotics — medicines that fight germs like bacteria.
Your child might need to stay in the hospital for a while and get antibiotics through a vein (intravenously, or by IV). Antibiotic treatment usually lasts 4 or 6 weeks. If your child is responding well to the IV antibiotics, your child may be able to finish IV antibiotic treatment at home. If the infection does not respond well enough to antibiotics, or if valve damage is severe, surgery may be necessary.
Certain people are at risk for endocarditis. These include:
- Children who were born with heart defects
- People who have mechanical heart valves or cyanosis
- People who have had heart surgery within the past 6 months
- People who have had endocarditis before
Talk with your doctor about whether your child needs to take any special steps for prevention.
The mouth is one of the most common sources of bacteria that cause endocarditis. Taking good care of the teeth and gums is the most important step everyone can take to prevent endocarditis. Children at the highest risk of endocarditis are also advised to take antibiotics before having dental work.