Once your baby is breathing comfortably, feeding is usually much easier.
Starting soon after birth, we regularly check your child’s weight and growth.
The tongue position and breathing problems caused by Robin sequence can make it hard for your child to suck, swallow and breathe. Your baby may need to be held in a certain way while feeding. We can show you helpful feeding techniques.
If your baby has a cleft palate, they will not get enough suction to suck milk out of the breast or regular bottle. When they suck, the roof of their mouth will not close off the mouth from the nose. Babies with cleft palate usually need special bottles and nipples. We can help you understand the different types of bottles.
Options for babies who need more than special bottles
If your baby is not able to get enough nutrition by mouth, they may need a tube through their nose to their stomach for the first few months of life. This is called a nasogastric feeding tube or NG tube.
If the feeding tube is needed for many months, your doctor may recommend using a tube through their abdominal wall into their stomach. This is called a gastrostomy tube.
Many babies with Robin sequence also have problems with:
- Backup of stomach acid into the throat. Medicine and changes to your child’s diet can help.
- Sucking liquid into the windpipe. We treat this with special feeding techniques, thickening milk and using a feeding tube. The feeding tube might go from the nose to the stomach (NG tube) or to the beginning of the small intestine (nasoduodenal or ND tube).
In children with Robin sequence that is not part of a syndrome (isolated), feeding is usually not a problem after your child is 1 year. As your child grows, they get stronger and their airway gets bigger. If Robin sequence is related to a syndrome, feeding may continue to be a challenge because of other problems.