Each child with Duchenne is unique. One thing they all have in common is their muscle weakness gets worse over time.
The age when symptoms start and the speed of the change are different for each child.
- Usually, children slowly lose their ability to walk, sit up on their own and move their arms.
- Most begin using a wheelchair by about age 12.
- Later, typically in their teen years, they may start having heart problems (cardiomyopathy) or breathing problems because of weak muscles.
About 1 in 3 children with Duchenne has learning disabilities.
There is no cure yet for Duchenne, but treatment can support your child’s function and comfort so they have a rich, active life at home, at school and in the community.
Over the last 10 years a number of clinical trials have tested new medicines that might help boys with Duchenne. There are now medicines approved by the U.S. Food and Drug Administration to treat some boys with the condition.
People with Duchenne are living longer and more independently than ever before. Most live into their 20s or 30s. Many young adults with Duchenne go to college, work and get married, and some have children of their own.