Rare Disorder Cost Her Half Her Brain, but That Doesn't Stop Kelley Fox From Enjoying Life

Rare Disorder Cost Her Half Her Brain, but That Doesn't Stop Kelley Fox From Enjoying Life

Kelley Fox was born with a rare genetic disorder called tuberous sclerosis. She’s had two brain surgeries, including a full hemispherectomy, so she only has half a brain. Although developmentally delayed, Kelley has made significant progress since she first enrolled at the Seattle Children’s Alyssa Burnett Adult Life Center (ABC) two years ago. This progress shined when she attended ABC’s Spring Fling dance in May. “When she does those things that are normal, or typical developing, it’s just, it’s so special,” said Kelley’s mother Leslie. She hopes with the progress Kelley’s made in the last few years that she may be able to live independently in a group setting someday.

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Seattle Children’s mission is to provide hope, care and cures to help every child live the healthiest and most fulfilling life possible. Together, Seattle Children’s Hospital, Research Institute and Foundation deliver superior patient care, identify new discoveries and treatments through pediatric research, and raise funds to create better futures for patients.

Ranked as one of the top children’s hospitals in the country by U.S. News & World Report, Seattle Children’s serves as the pediatric and adolescent academic medical center for Washington, Alaska, Montana and Idaho – the largest region of any children’s hospital in the country. As one of the nation’s top five pediatric research centers, Seattle Children’s Research Institute is internationally recognized for its work in neurosciences, immunology, cancer, infectious disease, injury prevention and much more. Seattle Children’s Hospital and Research Foundation works with the Seattle Children’s Guild Association, the largest all-volunteer fundraising network for any hospital in the country, to gather community support and raise funds for uncompensated care and research. Join Seattle Children’s bold initiative – It Starts With Yes: The Campaign for Seattle Children’s – to transform children’s health for generations to come.

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