Parents, docs may clash on quality of kids' lives
About one in four parents of children with a serious and often fatal genetic condition say they feel judged by doctors when they want life-sustaining treatment for their newborns. Dr. Benjamin Wilfond, the study’s senior author, said, “There is a broader range of survival and experiences than providers know. The parents may be getting this information online and clinicians may need to rethink what they say to parents.”
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