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Rare Disorder Cost Her Half Her Brain, but That Doesn't Stop Kelley Fox From Enjoying Life

Rare Disorder Cost Her Half Her Brain, but That Doesn't Stop Kelley Fox From Enjoying Life

Kelley Fox was born with a rare genetic disorder called tuberous sclerosis. She’s had two brain surgeries, including a full hemispherectomy, so she only has half a brain. Although developmentally delayed, Kelley has made significant progress since she first enrolled at the Seattle Children’s Alyssa Burnett Adult Life Center (ABC) two years ago. This progress shined when she attended ABC’s Spring Fling dance in May. “When she does those things that are normal, or typical developing, it’s just, it’s so special,” said Kelley’s mother Leslie. She hopes with the progress Kelley’s made in the last few years that she may be able to live independently in a group setting someday.

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