Here's a pop quiz: What kinds of food can kids with
cystic fibrosis
(say:
sis
-tik fy-
bro
-sus) eat?
- mac 'n cheese
- hot dogs
- broccoli
- caramel apples
- all of the above
If you picked "5," you're right! Kids with cystic
fibrosis (CF) can eat all of these foods - and they usually need to
eat more of them than most kids do. We'll explain why in a
minute, but first let's look at what CF is.
CF Basics
CF is a disease that affects
epithelial cells
(say: eh-puh-
thee
-lee-ul sells), which are found in lots of places in the body, like
the
lungs
and the
digestive system
. Problems in these cells can upset the balance of salt and water
in the body. This causes the body to make abnormally thick mucus
(like the kind in your nose when you have a really bad cold), which
can clog up the lungs and make if hard for kids with CF to
breathe.
This problem can also affect the digestive system and block the
body from getting the good stuff from food it needs, like fats and
vitamins
. This means kids with CF may be short for their age and not weigh
enough. Kids with CF may get sick a lot more often than other kids
because of these lung and digestive problems.
CF is a
genetic
(say: juh-
neh
-tik) disease. This means that you can't catch CF. Kids with CF
are born with it because a gene for the disease is passed on to
them by both of their parents, who each carry a CF gene in their
bodies, but don't have CF themselves.
The good news is that when kids with CF eat well and take their
medicines
, they can keep themselves healthier.
Food Fitness
All kids need to eat well to grow up healthy and strong. But
kids with CF need to eat more than most other kids, so they and
their parents often work with a CF
dietitian
(say: dy-uh-
tih
-shun) to plan what they should eat. A dietitian is someone who
knows all about food and nutrition.
Each kid is different, but most kids with CF will eat three
meals a day plus snacks to make sure that they get all of the
calories they need. This isn't all that different from other
kids, but the meals and snacks that a kid with CF eats should have
more calories and fat in them. It's also very important that a
kid with CF not miss meals.
So what do kids with CF use these extra calories for? Like
everyone else, kids with CF need calories to grow, to gain weight,
and to have energy to play. But kids with CF need extra calories
because their bodies have a hard time absorbing fat and
nutrients
(say:
noo
-tree-entz) in food. Instead of absorbing the fat and nutrients
from food, some of these important things can go right out of the
person's body in their bowel movements. Kids with CF also may
need more calories to help their bodies fight the lung infections
they tend to get.
Let's take a closer look at some important nutrients and
where to find them.
It's All in the Nutrients
Nutrients are the things in food that help keep our bodies
running well. Kids with CF have some nutrients that they need to
make sure they eat each day. These include:
Iron
. Iron is essential for carrying oxygen to all the body's
cells. You can find iron in some cereals, meats, dried fruits, and
dark green vegetables.
Zinc
. Zinc is important for growth, healing, and staying healthy.
You'll find zinc in meats, liver, eggs, and seafood.
Calcium
. Calcium helps build strong bones. Milk, yogurt, cheese, and
calcium-fortified juices are rich in calcium.
Salt
. Kids with CF lose a lot of salt in their sweat, especially during
hot weather and when they exercise. A good way to replace this salt
is by adding salt to food and eating salty snacks. During hot
weather and when kids play sports, they may need sports drinks
during and after practice or gym class.
Yummy, Healthy, and Full of Calories
All kids need to eat a balanced diet of regular meals and snacks
that include plenty of fruits, veggies, grains, dairy products, and
protein. But kids with CF need to work with their CF dietitian and
their parents to create meal plans. Meal plans are important to
ensure that kids with CF get all the calories and nutrients they
need.
This might sound hard, but here are some simple tips. Click on
the links for some great recipes that a grown-up can help you
make:
- Drink whole
milk
and
milkshakes
.
- Add extra butter or margarine to foods like
potatoes
or pasta.
- Eat
burgers
with bacon and cheese.
- Eat pizza with extra cheese.
- Add cheese to sandwiches.
- At breakfast, eat omelets with extra cheese, ham, or
bacon.
- Top salads and sandwiches with avocados or guacamole.
- Eat ice cream,
pudding
, and
cheesecake
for dessert.
- Top hot chocolate, pudding, and other desserts with whipped
cream.
- Keep
trail mix
, nuts, packets of cheese, or peanut butter crackers handy for
snacks.
More Than Just Food
For some kids with CF, eating lots of great meals isn't
enough - they may need a little extra help.
Some kids with CF need to take vitamins, especially for vitamins
A, D, E, and K. These vitamins help kids stay healthy. But to do
their work, they have to be absorbed by the body and dissolved in
fat. Because most kids with CF have trouble absorbing fat into
their bodies, they often have low levels of these vitamins and need
to take larger amounts of them as pills.
Most kids with CF need to take pills that contain
enzymes
(say:
en
-zimes). Someone takes enzymes because his or her
pancreas
(say:
pan
-kree-us) doesn't work properly. The pancreas is a gland
that's connected to the small intestine (say: in-
tes
-tun). It makes juices containing enzymes that help the small
intestine digest fat, starch, and protein. If the pancreas
can't make these juices normally, the problem is called
pancreatic insufficiency
(say: pan-kree-
ah
-tik in-suh-
fih
-shun-see).
Most kids with CF will have pancreatic insufficiency by the time
they are 8 or 9 years old. It's important for these kids to
take enzymes before they eat most foods. The enzymes will help
these kids digest their food better.
Food Frustration
Many people want to eat less and lose weight. Kids with CF have
the opposite problem: They have to eat when they aren't hungry,
don't feel like eating, or none of their friends are eating. If
you are a kid with CF, remember that eating well and taking your
enzymes and vitamins will help you have the energy to do all the
great things you want to do with your friends, from playing soccer
to going to sleepovers.
And if you have a friend with CF, now you know why he or she
digs in every day at lunch. Maybe you can dig into a healthy lunch,
too - and help other kids understand why eating right helps someone
with CF stay healthy and strong.
Reviewed by:
Allison Brinkley, RD, LD/N, CNSD
Date reviewed: February 2007
Note: All information is for educational purposes only. For specific medical advice,
diagnoses, and treatment, consult your doctor.
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