Publications

Beskow LM, Fullerton SM, Namey EE, Nelson DK, Davis AM, Wilfond BS
Recommendations for ethical approaches to genotype-driven research recruitment.
Human genetics , 2012 Sep: 131(9)1423-31

Janvier A, Farlow B, Wilfond BS
The experience of families with children with trisomy 13 and 18 in social networks.
Pediatrics , 2012 Aug: 130(2)293-8

Wilfond B
Predicting our future: lessons from Winnie-the-Pooh.
The Hastings Center report , 2012 Jul-Aug: 42(4)3

Wilfond BS, Diekema DS
Engaging children in genomics research: decoding the meaning of assent in research.
Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr: 14(4)437-43

Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr: 14(4)361-84

Mayer-Hamblett N, Kronmal RA, Gibson RL, Rosenfeld M, Retsch-Bogart G, Treggiari MM, Burns JL, Khan U, Ramsey BW, for the EPIC Investigators
Initial Pseudomonas aeruginosa treatment failure is associated with exacerbations in cystic fibrosis.
Pediatric pulmonology , Feb. 2012: 125-134

Simon TD, Whitlock KB, Riva-Cambrin J, Kestle JR, Rosenfeld M, Dean JM, Holubkov R, Langley M, Mayer-Hamblett N
Association of intraventricular hemorrhage secondary to prematurity with cerebrospinal fluid shunt surgery in the first year following initial shunt placement.
Journal of Neurosurgery. Pediatrics , Jan. 2012: 54-63

Quon BS, Mayer-Hamblett N, Aitken ML, Goss CH
Risk of Post Lung Transplant Renal Dysfunction in Adults with Cystic Fibrosis.
Chest , Jan. 2012

Margaret Rosenfeld, MD, MPH
Association of intraventricular hemorrhage secondary to prematurity with cerebrospinal fluid shunt surgery in the first year following initial shunt placement
J Neurosurg Pediatr. , Jan. 2012: 54-63

Knowles MR, Leigh MW, Carson JL, Davis SD, Dell SD, Ferkol TW, Olivier KN, Sagel SD, Rosenfeld M, Burns KA, Minnix SL, Armstrong MC, Lori A, Hazucha MJ, Loges NT, Olbrich H, Becker-Heck A, Schmidts M, Werner C, Omran H, Zariwala MA, for the Genetic Disorders of Mucociliary Clearance Consortium
Mutations of DNAH11 in patients with primary ciliary dyskinesia with normal ciliary ultrastructure.
Thorax , 2011 Dec 18

Quon BS, Mayer-Hamblett N, Aitken ML, Smyth AR, Goss CH
Risk factors for chronic kidney disease in adults with cystic fibrosis.
American journal of respiratory and critical care medicine , Nov. 2011: 1147-52

Beskow LM, Namey EE, Cadigan RJ, Brazg T, Crouch J, Henderson GE, Michie M, Nelson DK, Tabor HK, Wilfond BS
Research participants' perspectives on genotype-driven research recruitment.
Journal of empirical research on human research ethics : JERHRE , 2011 Dec: 6(4)3-20

Tabor HK, Brazg T, Crouch J, Namey EE, Fullerton SM, Beskow LM, Wilfond BS
Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment.
Journal of empirical research on human research ethics : JERHRE , 2011 Dec: 6(4)41-52

Kerby GS, Rosenfeld M, Ren CL, Mayer OH, Brumback L, Castile R, Hart MA, Hiatt P, Kloster M, Johnson R, Jones P, Davis SD
Lung function distinguishes preschool children with CF from healthy controls in a multi-center setting.
Pediatric pulmonology , 2011 Nov 11

Ren CL, Rosenfeld M, Mayer OH, Davis SD, Kloster M, Castile RG, Hiatt PW, Hart M, Johnson R, Jones P, Brumback LC, Kerby GS
Analysis of the associations between lung function and clinical features in preschool children with cystic fibrosis.
Pediatric pulmonology , 2011 Nov 11

Tarini BA, Tercyak KP, Wilfond BS
Commentary: Children and predictive genomic testing: disease prevention, research protection, and our future.
Journal of pediatric psychology , 2011 Nov-Dec: 36(10)1113-21

Treggiari MM, Retsch-Bogart G, Mayer-Hamblett N, Khan U, Kulich M, Kronmal R, Williams J, Hiatt P, Gibson RL, Spencer T, Orenstein D, Chatfield BA, Froh DK, Burns JL, Rosenfeld M, Ramsey BW, Early Pseudomonas Infection Control (EPIC) Investigators
Comparative efficacy and safety of 4 randomized regimens to treat early Pseudomonas aeruginosa infection in children with cystic fibrosis.
Archives of pediatrics & adolescent medicine , Sept. 2011: 847-56

Tuan TJ, Thorell EA, Hamblett NM, Kestle JR, Rosenfeld M, Simon TD
Treatment and microbiology of repeated cerebrospinal fluid shunt infections in children.
The Pediatric infectious disease journal , Sept. 2011: 731-5

Tuan TJ, Thorell EA, Hamblett NM, Kestle JR, Rosenfeld M, Simon TD
Treatment and microbiology of repeated cerebrospinal fluid shunt infections in children.
The Pediatric infectious disease journal , 2011 Sep: 731-5

Treggiari MM, Retsch-Bogart G, Mayer-Hamblett N, Khan U, Kulich M, Kronmal R, Williams J, Hiatt P, Gibson RL, Spencer T, Orenstein D, Chatfield BA, Froh DK, Burns JL, Rosenfeld M, Ramsey BW, Early Pseudomonas Infection Control (EPIC) Investigators
Comparative efficacy and safety of 4 randomized regimens to treat early Pseudomonas aeruginosa infection in children with cystic fibrosis.
Archives of pediatrics & adolescent medicine , 2011 Sep: 847-56

Mayer-Hamblett N, Kronmal RA, Gibson RL, Rosenfeld M, Retsch-Bogart G, Treggiari MM, Burns JL, Khan U, Ramsey BW, for the EPIC Investigators
Initial Pseudomonas aeruginosa treatment failure is associated with exacerbations in cystic fibrosis.
Pediatric pulmonology , 2011 Aug 9

Green N, Burns JL, Mayer-Hamblett N, Kloster M, Lands LC, Anstead M, Ratjen F, Saiman L
Lack of association of small-colony-variant Staphylococcus aureus strains with long-term use of azithromycin in patients with cystic fibrosis.
Journal of clinical microbiology , July 2011: 2772-3

Renaud C, Kuypers J, Aspesberro F, Rosenfeld M, Englund JA
Emergence of oseltamivir-resistant pandemic H1N1 in an immunocompetent child with severe status asthmaticus.
The Journal of asthma : official journal of the Association for the Care of Asthma , 2011 Aug: 572-5

Rosenfeld M, Davis S, Brumback L, Daniel S, Rowbotham R, Johnson R, McNamara S, Jensen R, Barlow C, Ratjen F
Inhaled hypertonic saline in infants and toddlers with cystic fibrosis: short-term tolerability, adherence, and safety.
Pediatric pulmonology , 2011 Jul: 666-71

Loeve M, Gerbrands K, Hop WC, Rosenfeld M, Hartmann IC, Tiddens HA
Bronchiectasis and pulmonary exacerbations in children and young adults with cystic fibrosis.
Chest , 2011 Jul: 178-85

Tercyak KP, Hensley Alford S, Emmons KM, Lipkus IM, Wilfond BS, McBride CM
Parents' attitudes toward pediatric genetic testing for common disease risk.
Pediatrics , 2011 May: 127(5)e1288-95

Rogers GB, Hoffman LR, Johnson MW, Mayer-Hamblett N, Schwarze J, Carroll MP, Bruce KD
Using bacterial biomarkers to identify early indicators of cystic fibrosis pulmonary exacerbation onset.
Expert review of molecular diagnostics , March 2011: 197-206

Sanders DB, Bittner RC, Rosenfeld M, Redding GJ, Goss CH
Pulmonary exacerbations are associated with subsequent FEV1 decline in both adults and children with cystic fibrosis.
Pediatric pulmonology , 2011 Apr: 393-400

Richer J, Ghebremichael MS, Chudley AE, Robinson WM, Wilfond BS, Solomon MZ
Research use of leftover newborn bloodspots: attitudes of Canadian geneticists regarding storage and informed consent requirements.
Genetics in medicine : official journal of the American College of Medical Genetics , 2011 Apr: 13(4)305-13

Nicole Hamblett, PhD
Open-label, Follow-On Study to Assess Continued Efficacy and Safety of Azithromycin in Children and Adolescents with CF Uninfected with Pseudomonas aeruginosa.
Pediatric Pulmonology (In press) , 2011

Olin JT, Burns K, Carson JL, Metjian H, Atkinson JJ, Davis SD, Dell SD, Ferkol TW, Milla CE, Olivier KN, Rosenfeld M, Baker B, Leigh MW, Knowles MR, Sagel SD, for the Genetic Disorders of Mucociliary Clearance Consortium
Diagnostic yield of nasal scrape biopsies in primary ciliary dyskinesia: A multicenter experience.
Pediatric pulmonology , 2011 Jan 31

Myers RE, Manne SL, Wilfond B, Sifri R, Ziring B, Wolf TA, Cocroft J, Ueland A, Petrich A, Swan H, DiCarlo M, Weinberg DS
A randomized trial of genetic and environmental risk assessment (GERA) for colorectal cancer risk in primary care: trial design and baseline findings.
Contemporary clinical trials , 2011 Jan: 32(1)25-31

Accurso FJ, Rowe SM, Clancy JP, Boyle MP, Dunitz JM, Durie PR, Sagel SD, Hornick DB, Konstan MW, Donaldson SH, Moss RB, Pilewski JM, Rubenstein RC, Uluer AZ, Aitken ML, Freedman SD, Rose LM, Mayer-Hamblett N, Dong Q, Zha J, Stone AJ, Olson ER, Ordoñez CL, Campbell PW, Ashlock MA, Ramsey BW
Effect of VX-770 in persons with cystic fibrosis and the G551D-CFTR mutation.
The New England journal of medicine , Nov. 2010: 1991-2003

Davis SD, Rosenfeld M, Kerby GS, Brumback L, Kloster MH, Acton JD, Colin AA, Conrad CK, Hart MA, Hiatt PW, Mogayzel PJ, Johnson RC, Wilcox SL, Castile RG
Multicenter evaluation of infant lung function tests as cystic fibrosis clinical trial endpoints.
American journal of respiratory and critical care medicine , 2010 Dec 1: 1387-97

Solomon GM, Konstan MW, Wilschanski M, Billings J, Sermet-Gaudelus I, Accurso F, Vermeulen F, Levin E, Hathorne H, Reeves G, Sabbatini G, Hill A, Mayer-Hamblett N, Ashlock M, Clancy JP, Rowe SM
An international randomized multicenter comparison of nasal potential difference techniques.
Chest , Oct. 2010: 919-28

Wilfond BS, Miller PS, Korfiatis C, Diekema DS, Dudzinski DM, Goering S, Seattle Growth Attenuation and Ethics Working Group
Navigating growth attenuation in children with profound disabilities. Children's interests, family decision-making, and community concerns.
The Hastings Center report , 2010 Nov-Dec: 40(6)27-40

Striegl AM, Redding GJ, Diblasi R, Crotwell D, Salyer J, Carter ER
Use of a lung model to assess mechanical in-exsufflator therapy in infants with tracheostomy.
Pediatric pulmonology , 2010 Oct 20

Rosenfeld M, Emerson J, McNamara S, Joubran K, Retsch-Bogart G, Graff GR, Gutierrez HH, Kanga JF, Lahiri T, Noyes B, Ramsey B, Ren CL, Schechter M, Morgan W, Gibson RL
Baseline characteristics and factors associated with nutritional and pulmonary status at enrollment in the cystic fibrosis EPIC observational cohort.
Pediatric pulmonology , Sept. 2010: 934-44

Sanders DB, Bittner RC, Rosenfeld M, Hoffman LR, Redding GJ, Goss CH
Failure to recover to baseline pulmonary function after cystic fibrosis pulmonary exacerbation.
American journal of respiratory and critical care medicine , 2010 Sep 1: 627-32

Rosenfeld M, Emerson J, McNamara S, Joubran K, Retsch-Bogart G, Graff GR, Gutierrez HH, Kanga JF, Lahiri T, Noyes B, Ramsey B, Ren CL, Schechter M, Morgan W, Gibson RL
Baseline characteristics and factors associated with nutritional and pulmonary status at enrollment in the cystic fibrosis EPIC observational cohort.
Pediatric pulmonology , 2010 Sep: 934-44

Norris TE, Wenrich MD, Wolf FM, Carline JD, Schaad DC, Joseph MF, Marshall SG
University of Washington School of Medicine.
Academic medicine : journal of the Association of American Medical Colleges , 2010 Sep: S593-7

Ong T, McClintock DE, Kallet RH, Ware LB, Matthay MA, Liu KD
Ratio of angiopoietin-2 to angiopoietin-1 as a predictor of mortality in acute lung injury patients.
Critical care medicine , 2010 Sep: 1845-51

Sanders DB, Bittner RC, Rosenfeld M, Hoffman LR, Redding GJ, Goss CH
Failure to recover to baseline pulmonary function after cystic fibrosis pulmonary exacerbation.
American journal of respiratory and critical care medicine , 2010 Sep 1: 627-32

Diblasi RM, Zignego JC, Smith CV, Hansen TN, Richardson CP
Effective gas exchange in paralyzed juvenile rabbits using simple, inexpensive respiratory support devices.
Pediatric research , 2010 Sep 1

Bastarache JA, Ong T, Matthay MA, Ware LB
Alveolar fluid clearance is faster in women with acute lung injury compared to men.
Journal of critical care , 2010 Aug 3

Davis SD, Rosenfeld M, Kerby GS, Brumback L, Kloster MH, Acton JD, Colin AA, Conrad CK, Hart MA, Hiatt PW, Mogayzel PJ, Johnson RC, Wilcox SL, Castile RG
Multicenter Evaluation of Infant Lung Function Tests as Cystic Fibrosis Clinical Trial Endpoints.
American journal of respiratory and critical care medicine , July 2010

Debley JS, Stamey DC, Cochrane ES, Gama KL, Redding GJ
Exhaled nitric oxide, lung function, and exacerbations in wheezy infants and toddlers.
The Journal of allergy and clinical immunology , 2010 Jun: 1228-1234.e13

Saiman L, Anstead M, Mayer-Hamblett N, Lands LC, Kloster M, Hocevar-Trnka J, Goss CH, Rose LM, Burns JL, Marshall BC, Ratjen F, AZ0004 Azithromycin Study Group
Effect of azithromycin on pulmonary function in patients with cystic fibrosis uninfected with Pseudomonas aeruginosa: a randomized controlled trial.
JAMA : the journal of the American Medical Association , May 2010: 1707-15

Diblasi RM, Zignego JC, Tang DM, Hildebrandt J, Smith CV, Hansen TN, Richardson CP
Noninvasive respiratory support of juvenile rabbits by high-amplitude bubble continuous positive airway pressure.
Pediatric research , 2010 Jun: 624-9

Wade CH, Wilfond BS, McBride CM
Effects of genetic risk information on children's psychosocial wellbeing: a systematic review of the literature.
Genetics in medicine : official journal of the American College of Medical Genetics , 2010 Jun: 12(6)317-26

DiBlasi RM, Crotwell D, Geiduscheck JM, Richardson P, Smith A, Salyer JW, Rosenfeld M
Therapeutic bilateral lung lavage in a child with pulmonary alveolar proteinosis.
Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies , 2010 May: e28-31

Striegl A, Chen ML, Kifle Y, Song K, Redding G
Sleep-disordered breathing in children with thoracic insufficiency syndrome.
Pediatric pulmonology , 2010 May: 469-74

Emerson J, McNamara S, Buccat AM, Worrell K, Burns JL
Changes in cystic fibrosis sputum microbiology in the United States between 1995 and 2008.
Pediatric pulmonology , 2010 Apr: 363-70

Tiddens HA, Donaldson SH, Rosenfeld M, Paré PD
Cystic fibrosis lung disease starts in the small airways: can we treat it more effectively?
Pediatric pulmonology , Feb. 2010: 107-17

Sanders DB, Hoffman LR, Emerson J, Gibson RL, Rosenfeld M, Redding GJ, Goss CH
Return of FEV1 after pulmonary exacerbation in children with cystic fibrosis.
Pediatric pulmonology , 2010 Feb: 127-34

Redding GJ
Is pediatric pulmonary research training in dire straits.
Pediatric pulmonology , 2010 Jan: 34-5

Redding GJ, Byrnes CA
Chronic respiratory symptoms and diseases among indigenous children.
Pediatric clinics of North America , 2009 Dec: 1323-42

Borowitz D, Robinson KA, Rosenfeld M, Davis SD, Sabadosa KA, Spear SL, Michel SH, Parad RB, White TB, Farrell PM, Marshall BC, Accurso FJ
Cystic Fibrosis Foundation evidence-based guidelines for management of infants with cystic fibrosis.
The Journal of pediatrics , 2009 Dec: S73-93

Schechter MS, McColley SA, Silva S, Haselkorn T, Konstan MW, Wagener JS
Association of socioeconomic status with the use of chronic therapies and healthcare utilization in children with cystic fibrosis.
The Journal of pediatrics , 2009 Nov: 634-9.e1-4

Ashlock MA, Beall RJ, Hamblett NM, Konstan MW, Penland CM, Ramsey BW, Van Dalfsen JM, Wetmore DR, Campbell PW 3rd
A pipeline of therapies for cystic fibrosis.
Seminars in respiratory and critical care medicine , Oct. 2009: 611-26

Beskow LM, Grady C, Iltis AS, Sadler JZ, Wilfond BS
Points to consider: The research ethics consultation service and the IRB.
IRB , 2009 Nov-Dec: 31(6)1-9

Ashlock MA, Beall RJ, Hamblett NM, Konstan MW, Penland CM, Ramsey BW, Van Dalfsen JM, Wetmore DR, Campbell PW 3rd
A pipeline of therapies for cystic fibrosis.
Seminars in respiratory and critical care medicine , 2009 Oct: 611-26

Goldenberg AJ, Hull SC, Botkin JR, Wilfond BS
Pediatric biobanks: approaching informed consent for continuing research after children grow up.
The Journal of pediatrics , 2009 Oct: 155(4)578-83

Cloonan YK, Kifle Y, Davis S, Speltz ML, Werler MM, Starr JR
Sleep outcomes in children with hemifacial microsomia and controls: a follow-up study.
Pediatrics , 2009 Aug: e313-21

Wilfond B, Ross LF
From genetics to genomics: ethics, policy, and parental decision-making.
Journal of pediatric psychology , 2009 Jul: 34(6)639-47

Treggiari MM, Rosenfeld M, Mayer-Hamblett N, Retsch-Bogart G, Gibson RL, Williams J, Emerson J, Kronmal RA, Ramsey BW, EPIC Study Group
Early anti-pseudomonal acquisition in young patients with cystic fibrosis: rationale and design of the EPIC clinical trial and observational study'.
Contemporary clinical trials , May 2009: 256-68

Treggiari MM, Rosenfeld M, Mayer-Hamblett N, Retsch-Bogart G, Gibson RL, Williams J, Emerson J, Kronmal RA, Ramsey BW
Early anti-pseudomonal acquisition in young patients with cystic fibrosis: rationale and design of the EPIC clinical trial and observational study'.
Contemporary clinical trials , 2009 May: 256-68

Ong T, Stuart-Killion RB, Daniel BM, Presnell LB, Zhuo H, Matthay MA, Liu KD
Higher pulmonary dead space may predict prolonged mechanical ventilation after cardiac surgery.
Pediatric pulmonology , 2009 May: 457-63

Treggiari MM, Rosenfeld M, Mayer-Hamblett N, Retsch-Bogart G, Gibson RL, Williams J, Emerson J, Kronmal RA, Ramsey BW
Early anti-pseudomonal acquisition in young patients with cystic fibrosis: rationale and design of the EPIC clinical trial and observational study'.
Contemporary clinical trials , 2009 May: 256-68

Wilfond BS
Policy in the light: professional society guidelines begin the ethical conversations about screening.
The American journal of bioethics : AJOB , 2009 Apr: 9(4)17-9

Brannon MK, Davis JM, Mathias JR, Hall CJ, Emerson JC, Crosier PS, Huttenlocher A, Ramakrishnan L, Moskowitz SM
Pseudomonas aeruginosa Type III secretion system interacts with phagocytes to modulate systemic infection of zebrafish embryos.
Cellular microbiology , 2009 Feb 6

Redding GJ
Bronchiectasis in children.
Pediatric clinics of North America , 2009 Feb: 157-71, xi

Sagel SD, Gibson RL, Emerson J, McNamara S, Burns JL, Wagener JS, Ramsey BW
Impact of Pseudomonas and Staphylococcus infection on inflammation and clinical status in young children with cystic fibrosis.
The Journal of pediatrics , 2009 Feb: 183-8

Hoffman LR, Kulasekara HD, Emerson J, Houston LS, Burns JL, Ramsey BW, Miller SI
Pseudomonas aeruginosa lasR mutants are associated with cystic fibrosis lung disease progression.
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society , 2009 Jan: 66-70

Redding GJ, Kishioka C, Martinez P, Rubin BK
Physical and transport properties of sputum from children with idiopathic bronchiectasis.
Chest , 2008 Dec: 1129-34

Sanders DB, Rosenfeld M, Mayer-Hamblett N, Stamey D, Redding GJ
Reproducibility of spirometry during cystic fibrosis pulmonary exacerbations.
Pediatric pulmonology , Nov. 2008: 1142-6

Moskowitz SM, Chmiel JF, Sternen DL, Cheng E, Gibson RL, Marshall SG, Cutting GR
Clinical practice and genetic counseling for cystic fibrosis and CFTR-related disorders.
Genetics in medicine : official journal of the American College of Medical Genetics , 2008 Dec: 851-68

Sanders DB, Rosenfeld M, Mayer-Hamblett N, Stamey D, Redding GJ
Reproducibility of spirometry during cystic fibrosis pulmonary exacerbations.
Pediatric pulmonology , 2008 Nov: 1142-6

DiBlasi RM, Salyer JW, Zignego JC, Redding GJ, Richardson CP
The impact of imposed expiratory resistance in neonatal mechanical ventilation: a laboratory evaluation.
Respiratory care , 2008 Nov: 1450-60

Sanders DB, Rosenfeld M, Mayer-Hamblett N, Stamey D, Redding GJ
Reproducibility of spirometry during cystic fibrosis pulmonary exacerbations.
Pediatric pulmonology , 2008 Nov: 1142-6

DiBlasi RM, Salyer JW, Zignego JC, Redding GJ, Richardson CP
The impact of imposed expiratory resistance in neonatal mechanical ventilation: a laboratory evaluation.
Respiratory care , 2008 Nov: 1450-60

Denny CC, Wilfond BS, Peters JA, Giri N, Alter BP
All in the family: disclosure of "unwanted" information to an adolescent to benefit a relative.
American journal of medical genetics. Part A , 2008 Nov 1: 146A(21)2719-24

Moskowitz SM, Silva SJ, Mayer-Hamblett N, Pasta DJ, Mink DR, Mabie JA, Konstan MW, Wagener JS, Investigators and Coordinators of the Epidemiologic Study of Cystic Fibrosis (ESCF)
Shifting patterns of inhaled antibiotic use in cystic fibrosis.
Pediatric pulmonology , Sept. 2008: 874-81

Striegl AM, Chen ML
Response to Clinical Corners in Sleep Medicine: "Management of obstructive sleep apnea in patients with congenital heart disease and Fontan procedures" (Sleep Med 2007;8:537-8).
Sleep medicine , 2008 Jul: 591-2

Hsieh T, Chen M, McAfee A, Kifle Y
Sleep-related breathing disorder in children with vagal nerve stimulators.
Pediatric neurology , 2008 Feb: 99-103

Debley JS, Hallstrand TS, Monge T, Ohanian A, Redding GJ, Zimmerman J
Methods to improve measurement of cysteinyl leukotrienes in exhaled breath condensate from subjects with asthma and healthy controls.
The Journal of allergy and clinical immunology , 2007 Nov: 1216-7

Dovey M, Aitken ML, Emerson J, McNamara S, Waltz DA, Gibson RL
Oral corticosteroid therapy in cystic fibrosis patients hospitalized for pulmonary exacerbation: a pilot study.
Chest , 2007 Oct: 1212-8

Ernst RK, Moskowitz SM, Emerson JC, Kraig GM, Adams KN, Harvey MD, Ramsey B, Speert DP, Burns JL, Miller SI
Unique lipid a modifications in Pseudomonas aeruginosa isolated from the airways of patients with cystic fibrosis.
The Journal of infectious diseases , 2007 Oct 1: 1088-92

Veenstra DL, Harris J, Gibson RL, Rosenfeld M, Burke W, Watts C
Pharmacogenomic testing to prevent aminoglycoside-induced hearing loss in cystic fibrosis patients: potential impact on clinical, patient, and economic outcomes.
Genetics in medicine : official journal of the American College of Medical Genetics , 2007 Oct: 695-704

Treggiari MM, Rosenfeld M, Retsch-Bogart G, Gibson R, Ramsey B
Approach to eradication of initial Pseudomonas aeruginosa infection in children with cystic fibrosis.
Pediatric pulmonology , 2007 Sep: 751-6

Mayer-Hamblett N, Ramsey BW, Kronmal RA
Advancing outcome measures for the new era of drug development in cystic fibrosis.
Proceedings of the American Thoracic Society , Aug. 2007: 370-7

Treggiari MM, Rosenfeld M, Retsch-Bogart G, Gibson R, Ramsey B
Approach to eradication of initial Pseudomonas aeruginosa infection in children with cystic fibrosis.
Pediatric pulmonology , 2007 Sep: 751-6

Deterding RR, Lavange LM, Engels JM, Mathews DW, Coquillette SJ, Brody AS, Millard SP, Ramsey BW
Phase 2 randomized safety and efficacy trial of nebulized denufosol tetrasodium in cystic fibrosis.
American journal of respiratory and critical care medicine , 2007 Aug 15: 362-9

Gibson RL, Emerson J, Mayer-Hamblett N, Burns JL, McNamara S, Accurso FJ, Konstan MW, Chatfield BA, Retsch-Bogart G, Waltz DA, Acton J, Zeitlin P, Hiatt P, Moss R, Williams J, Ramsey BW
Duration of treatment effect after tobramycin solution for inhalation in young children with cystic fibrosis.
Pediatric pulmonology , July 2007: 610-23

Clancy JP, Rowe SM, Bebok Z, Aitken ML, Gibson R, Zeitlin P, Berclaz P, Moss R, Knowles MR, Oster RA, Mayer-Hamblett N, Ramsey B
No detectable improvements in cystic fibrosis transmembrane conductance regulator by nasal aminoglycosides in patients with cystic fibrosis with stop mutations.
American journal of respiratory cell and molecular biology , July 2007: 57-66

Ramsey BW
Use of lung imaging studies as outcome measures for development of new therapies in cystic fibrosis.
Proceedings of the American Thoracic Society , 2007 Aug 1: 359-63

Ramsey BW
Outcome measures for development of new therapies in cystic fibrosis: are we making progress and what are the next steps?
Proceedings of the American Thoracic Society , 2007 Aug 1: 367-9

Mayer-Hamblett N, Ramsey BW, Kronmal RA
Advancing outcome measures for the new era of drug development in cystic fibrosis.
Proceedings of the American Thoracic Society , 2007 Aug 1: 370-7

Rosenfeld M
An overview of endpoints for cystic fibrosis clinical trials: one size does not fit all.
Proceedings of the American Thoracic Society , 2007 Aug 1: 299-301

Davis SD, Brody AS, Emond MJ, Brumback LC, Rosenfeld M
Endpoints for clinical trials in young children with cystic fibrosis.
Proceedings of the American Thoracic Society , 2007 Aug 1: 418-30

Gibson RL, Emerson J, Mayer-Hamblett N, Burns JL, McNamara S, Accurso FJ, Konstan MW, Chatfield BA, Retsch-Bogart G, Waltz DA, Acton J, Zeitlin P, Hiatt P, Moss R, Williams J, Ramsey BW
Duration of treatment effect after tobramycin solution for inhalation in young children with cystic fibrosis.
Pediatric pulmonology , 2007 Jul: 610-23

Clancy JP, Rowe SM, Bebok Z, Aitken ML, Gibson R, Zeitlin P, Berclaz P, Moss R, Knowles MR, Oster RA, Mayer-Hamblett N, Ramsey B
No detectable improvements in cystic fibrosis transmembrane conductance regulator by nasal aminoglycosides in patients with cystic fibrosis with stop mutations.
American journal of respiratory cell and molecular biology , 2007 Jul: 57-66

Nguyen D, Emond MJ, Mayer-Hamblett N, Saiman L, Marshall BC, Burns JL
Clinical response to azithromycin in cystic fibrosis correlates with in vitro effects on Pseudomonas aeruginosa phenotypes.
Pediatric pulmonology , June 2007: 533-41

Gibson RL, Emerson J, Mayer-Hamblett N, Burns JL, McNamara S, Accurso FJ, Konstan MW, Chatfield BA, Retsch-Bogart G, Waltz DA, Acton J, Zeitlin P, Hiatt P, Moss R, Williams J, Ramsey BW
Duration of treatment effect after tobramycin solution for inhalation in young children with cystic fibrosis.
Pediatric pulmonology , 2007 Jul: 610-23

Tablizo MA, Jacinto P, Parsley D, Chen ML, Ramanathan R, Keens TG
Supine sleeping position does not cause clinical aspiration in neonates in hospital newborn nurseries.
Archives of pediatrics & adolescent medicine , 2007 May: 507-10

Goss CH, Mayer-Hamblett N, Kronmal RA, Williams J, Ramsey BW
Laboratory parameter profiles among patients with cystic fibrosis.
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society , April 2007: 117-23

Mayer-Hamblett N, Aitken ML, Accurso FJ, Kronmal RA, Konstan MW, Burns JL, Sagel SD, Ramsey BW
Association between pulmonary function and sputum biomarkers in cystic fibrosis.
American journal of respiratory and critical care medicine , April 2007: 822-8

Heike CL, Avellino AM, Mirza SK, Kifle Y, Perkins J, Sze R, Egbert M, Hing AV
Sleep disturbances in 22q11.2 deletion syndrome: a case with obstructive and central sleep apnea.
The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association , 2007 May: 340-6

Mayer-Hamblett N, Aitken ML, Accurso FJ, Kronmal RA, Konstan MW, Burns JL, Sagel SD, Ramsey BW
Association between pulmonary function and sputum biomarkers in cystic fibrosis.
American journal of respiratory and critical care medicine , 2007 Apr 15: 822-8

Goss CH, Mayer-Hamblett N, Kronmal RA, Williams J, Ramsey BW
Laboratory parameter profiles among patients with cystic fibrosis.
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society , 2007 Apr: 117-23

D'Argenio DA, Wu M, Hoffman LR, Kulasekara HD, Déziel E, Smith EE, Nguyen H, Ernst RK, Larson Freeman TJ, Spencer DH, Brittnacher M, Hayden HS, Selgrade S, Klausen M, Goodlett DR, Burns JL, Ramsey BW, Miller SI
Growth phenotypes of Pseudomonas aeruginosa lasR mutants adapted to the airways of cystic fibrosis patients.
Molecular microbiology , 2007 Apr: 512-33

Comeau AM, Accurso FJ, White TB, Campbell PW 3rd, Hoffman G, Parad RB, Wilfond BS, Rosenfeld M, Sontag MK, Massie J, Farrell PM, O'Sullivan BP
Guidelines for implementation of cystic fibrosis newborn screening programs: Cystic Fibrosis Foundation workshop report.
Pediatrics , 2007 Feb: e495-518

Waldhausen JH, Redding GJ, Song KM
Vertical expandable prosthetic titanium rib for thoracic insufficiency syndrome: a new method to treat an old problem.
Journal of pediatric surgery , 2007 Jan: 76-80

Hoffman LR, Déziel E, D'Argenio DA, Lépine F, Emerson J, McNamara S, Gibson RL, Ramsey BW, Miller SI
Selection for Staphylococcus aureus small-colony variants due to growth in the presence of Pseudomonas aeruginosa.
Proceedings of the National Academy of Sciences of the United States of America , 2006 Dec 26: 19890-5

Sucharew H, Goss CH, Millard SP, Ramsey BW
Respiratory adverse event profiles in cystic fibrosis placebo subjects in short- and long-term inhaled therapy trials.
Contemporary clinical trials , 2006 Dec: 561-70

Grosse SD, Rosenfeld M, Devine OJ, Lai HJ, Farrell PM
Potential impact of newborn screening for cystic fibrosis on child survival: a systematic review and analysis.
The Journal of pediatrics , 2006 Sep: 362-6

Redding GJ, Singleton RJ, DeMain J, Bulkow LR, Martinez P, Lewis TC, Zanis C, Butler JC
Relationship between IgE and specific aeroallergen sensitivity in Alaskan native children.
Annals of allergy, asthma & immunology : official publication of the American College of Allergy, Asthma, & Immunology , 2006 Aug: 209-15

Ramsey BW
Appropriate compensation of pediatric research participants: thoughts from an Institute of Medicine committee report.
The Journal of pediatrics , 2006 Jul: S15-9

Smith EE, Buckley DG, Wu Z, Saenphimmachak C, Hoffman LR, D'Argenio DA, Miller SI, Ramsey BW, Speert DP, Moskowitz SM, Burns JL, Kaul R, Olson MV
Genetic adaptation by Pseudomonas aeruginosa to the airways of cystic fibrosis patients.
Proceedings of the National Academy of Sciences of the United States of America , 2006 May 30: 8487-92

Debley JS, Carter ER, Redding GJ
Prevalence and impact of gastroesophageal reflux in adolescents with asthma: a population-based study.
Pediatric pulmonology , 2006 May: 475-81

Loud JT, Weissman NE, Peters JA, Giusti RM, Wilfond BS, Burke W, Greene MH
Deliberate deceit of family members: a challenge to providers of clinical genetics services.
Journal of clinical oncology : official journal of the American Society of Clinical Oncology , April 2006: 1643-6

Halbert CL, Miller AD, McNamara S, Emerson J, Gibson RL, Ramsey B, Aitken ML
Prevalence of neutralizing antibodies against adeno-associated virus (AAV) types 2, 5, and 6 in cystic fibrosis and normal populations: Implications for gene therapy using AAV vectors.
Human gene therapy , 2006 Apr: 440-7

Chen ML, Turkel SB, Jacobson JR, Keens TG
Alcohol use in congenital central hypoventilation syndrome.
Pediatric pulmonology , 2006 Mar: 283-5

Grosse SD, Boyle CA, Kenneson A, Khoury MJ, Wilfond BS
From public health emergency to public health service: the implications of evolving criteria for newborn screening panels.
Pediatrics , 2006 Mar: 923-9

Ferkol T, Rosenfeld M, Milla CE
Cystic fibrosis pulmonary exacerbations.
The Journal of pediatrics , 2006 Feb: 259-64

Mouradian WE, Reeves A, Kim S, Lewis C, Keerbs A, Slayton RL, Gupta D, Oskouian R, Schaad D, Kalet T, Marshall SG
A new oral health elective for medical students at the University of Washington.
Teaching and learning in medicine , 2006 Fall: 336-42

Goss CH, Rubenfeld GD, Ramsey BW, Aitken ML
Clinical trial participants compared with nonparticipants in cystic fibrosis.
American journal of respiratory and critical care medicine , 2006 Jan 1: 98-104

Henderson GE, Easter MM, Zimmer C, King NM, Davis AM, Rothschild BB, Churchill LR, Wilfond BS, Nelson DK
Therapeutic misconception in early phase gene transfer trials.
Social science & medicine (1982) , 2006 Jan: 239-53

Hendeles L, Marshik PL, Ahrens R, Kifle Y, Shuster J
Response to nonprescription epinephrine inhaler during nocturnal asthma.
Annals of allergy, asthma & immunology : official publication of the American College of Allergy, Asthma, & Immunology , 2005 Dec: 530-4

Moskowitz SM, Foster JM, Emerson JC, Gibson RL, Burns JL
Use of Pseudomonas biofilm susceptibilities to assign simulated antibiotic regimens for cystic fibrosis airway infection.
The Journal of antimicrobial chemotherapy , 2005 Nov: 879-86

Saiman L, Mayer-Hamblett N, Campbell P, Marshall BC, Macrolide Study Group
Heterogeneity of treatment response to azithromycin in patients with cystic fibrosis.
American journal of respiratory and critical care medicine , Oct. 2005: 1008-12

Kulich M, Rosenfeld M, Campbell J, Kronmal R, Gibson RL, Goss CH, Ramsey B
Disease-specific reference equations for lung function in patients with cystic fibrosis.
American journal of respiratory and critical care medicine , 2005 Oct 1: 885-91

Chen ML, Tablizo MA, Kun S, Keens TG
Diaphragm pacers as a treatment for congenital central hypoventilation syndrome.
Expert review of medical devices , 2005 Sep: 577-85

Rosenfeld M
Overview of published evidence on outcomes with early diagnosis from large US observational studies.
The Journal of pediatrics , 2005 Sep: S11-4

Wilfond BS, Parad RB, Fost N
Balancing benefits and risks for cystic fibrosis newborn screening: implications for policy decisions.
The Journal of pediatrics , 2005 Sep: S109-13

Debley JS, Carter ER, Gibson RL, Rosenfeld M, Redding GJ
The prevalence of ibuprofen-sensitive asthma in children: a randomized controlled bronchoprovocation challenge study.
The Journal of pediatrics , 2005 Aug: 233-8

Chen ML, Witmans MB, Tablizo MA, Jubran RF, Turkel SB, Tavaré CJ, Keens TG
Disordered respiratory control in children with partial cerebellar resections.
Pediatric pulmonology , 2005 Jul: 88-91

Carter ER, Debley JS, Redding GJ
Changes in asthma prevalence and impact on health and function in Seattle middle-school children: 1995 vs 2003.
Annals of allergy, asthma & immunology : official publication of the American College of Allergy, Asthma, & Immunology , 2005 Jun: 634-9

Mouradian WE, Reeves A, Kim S, Evans R, Schaad D, Marshall SG, Slayton R
An oral health curriculum for medical students at the University of Washington.
Academic medicine : journal of the Association of American Medical Colleges , 2005 May: 434-42

Wilfond BS, Gollust SE
Policy issues for expanding newborn screening programs: the cystic fibrosis newborn screening experience in the United States.
The Journal of pediatrics , 2005 May: 668-74

Deterding R, Retsch-Bogart G, Milgram L, Gibson R, Daines C, Zeitlin PL, Milla C, Marshall B, Lavange L, Engels J, Mathews D, Gorden J, Schaberg A, Williams J, Ramsey B
Safety and tolerability of denufosol tetrasodium inhalation solution, a novel P2Y2 receptor agonist: results of a phase 1/phase 2 multicenter study in mild to moderate cystic fibrosis.
Pediatric pulmonology , 2005 Apr: 339-48

Moss RB, Mayer-Hamblett N, Wagener J, Daines C, Hale K, Ahrens R, Gibson RL, Anderson P, Retsch-Bogart G, Nasr SZ, Noth I, Waltz D, Zeitlin P, Ramsey B, Starko K
Randomized, double-blind, placebo-controlled, dose-escalating study of aerosolized interferon gamma-1b in patients with mild to moderate cystic fibrosis lung disease.
Pediatric pulmonology , March 2005: 209-18

Mayer-Hamblett N, Kronmal RA
Improving the estimation of change from baseline in a continuous outcome measure in the clinical trial setting.
Contemporary clinical trials , Feb. 2005: 2-16

Debley JS, Smith JM, Redding GJ, Critchlow CW
Childhood asthma hospitalization risk after cesarean delivery in former term and premature infants.
Annals of allergy, asthma & immunology : official publication of the American College of Allergy, Asthma, & Immunology , 2005 Feb: 228-33

Beckmann C, Brittnacher M, Ernst R, Mayer-Hamblett N, Miller SI, Burns JL
Use of phage display to identify potential Pseudomonas aeruginosa gene products relevant to early cystic fibrosis airway infections.
Infection and immunity , Jan. 2005: 444-52

Lynn Chen M, Davidson Ward SL, Keens T, Lin Z, K Khoo M
Cardio-respiratory Uncoupling in Congenital Central Hypoventilation Syndrome.
Conference proceedings : ... Annual International Conference of the IEEE Engineering in Medicine and Biology Society. IEEE Engineering in Medicine and Biology Society. Conference , 2005: 4412-5

King NM, Henderson GE, Churchill LR, Davis AM, Hull SC, Nelson DK, Parham-Vetter PC, Rothschild BB, Easter MM, Wilfond BS
Consent forms and the therapeutic misconception: the example of gene transfer research.
IRB , 2005 Jan-Feb: 1-8

Wilfond BS, Ravitsky V
On the proliferation of bioethics sub-disciplines: do we really need "genethics" and "neuroethics"?
The American journal of bioethics : AJOB , 2005 Spring: 20-1; discussion W3-4

Debley JS, Redding GJ, Critchlow CW
Impact of adolescence and gender on asthma hospitalization: a population-based birth cohort study.
Pediatric pulmonology , 2004 Dec: 443-50

Goss CH, Mayer-Hamblett N, Aitken ML, Rubenfeld GD, Ramsey BW
Association between Stenotrophomonas maltophilia and lung function in cystic fibrosis.
Thorax , Nov. 2004: 955-9

Goss CH, Rosenfeld M
Update on cystic fibrosis epidemiology.
Current opinion in pulmonary medicine , 2004 Nov: 510-4

Grosse SD, Boyle CA, Botkin JR, Comeau AM, Kharrazi M, Rosenfeld M, Wilfond BS
Newborn screening for cystic fibrosis: evaluation of benefits and risks and recommendations for state newborn screening programs.
MMWR. Recommendations and reports : Morbidity and mortality weekly report. Recommendations and reports / Centers for Disease Control , 2004 Oct 15: 1-36

Redding GJ, Stoloff SW
Changes in recommended treatments for mild and moderate asthma.
The Journal of family practice , 2004 Sep: 692-700

Chen ML, Keens TG
Congenital central hypoventilation syndrome: not just another rare disorder.
Paediatric respiratory reviews , 2004 Sep: 182-9

Taylor HA, Wilfond BS
Ethical issues in newborn screening research: lessons from the Wisconsin cystic fibrosis trial.
The Journal of pediatrics , 2004 Sep: 292-6

Henderson GE, Davis AM, King NM, Easter MM, Zimmer CR, Rothschild BB, Wilfond BS, Nelson DK, Churchill LR
Uncertain benefit: investigators' views and communications in early phase gene transfer trials.
Molecular therapy : the journal of the American Society of Gene Therapy , 2004 Aug: 225-31

Hull SC, Glanz K, Steffen A, Wilfond BS
Recruitment approaches for family studies: attitudes of index patients and their relatives.
IRB , 2004 Jul-Aug: 12-7

Whittle A, Shah S, Wilfond B, Gensler G, Wendler D
Institutional review board practices regarding assent in pediatric research.
Pediatrics , 2004 Jun: 1747-52

Lewis TC, Stout JW, Martinez P, Morray B, White LC, Heckbert SR, Redding GJ
Prevalence of asthma and chronic respiratory symptoms among Alaska Native children.
Chest , 2004 May: 1665-73

Standaert TA, Boitano L, Emerson J, Milgram LJ, Konstan MW, Hunter J, Berclaz PY, Brass L, Zeitlin PL, Hammond K, Davies Z, Foy C, Noone PG, Knowles MR
Standardized procedure for measurement of nasal potential difference: an outcome measure in multicenter cystic fibrosis clinical trials.
Pediatric pulmonology , 2004 May: 385-92

Moskowitz SM, Foster JM, Emerson J, Burns JL
Clinically feasible biofilm susceptibility assay for isolates of Pseudomonas aeruginosa from patients with cystic fibrosis.
Journal of clinical microbiology , 2004 May: 1915-22

Hull SC, Gooding H, Klein AP, Warshauer-Baker E, Metosky S, Wilfond BS
Genetic research involving human biological materials: a need to tailor current consent forms.
IRB , 2004 May-Jun: 1-7

Moss RB, Rodman D, Spencer LT, Aitken ML, Zeitlin PL, Waltz D, Milla C, Brody AS, Clancy JP, Ramsey B, Hamblett N, Heald AE
Repeated adeno-associated virus serotype 2 aerosol-mediated cystic fibrosis transmembrane regulator gene transfer to the lungs of patients with cystic fibrosis: a multicenter, double-blind, placebo-controlled trial.
Chest , Feb. 2004: 509-21

Shah S, Whittle A, Wilfond B, Gensler G, Wendler D
How do institutional review boards apply the federal risk and benefit standards for pediatric research?
JAMA : the journal of the American Medical Association , 2004 Jan 28: 476-82

Ordoñez CL, Henig NR, Mayer-Hamblett N, Accurso FJ, Burns JL, Chmiel JF, Daines CL, Gibson RL, McNamara S, Retsch-Bogart GZ, Zeitlin PL, Aitken ML
Inflammatory and microbiologic markers in induced sputum after intravenous antibiotics in cystic fibrosis.
American journal of respiratory and critical care medicine , Dec. 2003: 1471-5

Coffey MJ, Wilfond B, Ross LF
Ethical assessment of clinical asthma trials including children subjects.
Pediatrics , 2004 Jan: 87-94

Freund CL, Clayton EW, Wilfond BS
Natural settings trials--improving the introduction of clinical genetic tests.
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics , 2004 Spring: 106-10

Ernst RK, D'Argenio DA, Ichikawa JK, Bangera MG, Selgrade S, Burns JL, Hiatt P, McCoy K, Brittnacher M, Kas A, Spencer DH, Olson MV, Ramsey BW, Lory S, Miller SI
Genome mosaicism is conserved but not unique in Pseudomonas aeruginosa isolates from the airways of young children with cystic fibrosis.
Environmental microbiology , 2003 Dec: 1341-9

Saiman L, Marshall BC, Mayer-Hamblett N, Burns JL, Quittner AL, Cibene DA, Coquillette S, Fieberg AY, Accurso FJ, Campbell PW 3rd, Macrolide Study Group
Azithromycin in patients with cystic fibrosis chronically infected with Pseudomonas aeruginosa: a randomized controlled trial.
JAMA : the journal of the American Medical Association , Oct. 2003: 1749-56

Rosenfeld M, Ramsey BW, Gibson RL
Pseudomonas acquisition in young patients with cystic fibrosis: pathophysiology, diagnosis, and management.
Current opinion in pulmonary medicine , 2003 Nov: 492-7

Gibson RL, Burns JL, Ramsey BW
Pathophysiology and management of pulmonary infections in cystic fibrosis.
American journal of respiratory and critical care medicine , 2003 Oct 15: 918-51

Qin X, Emerson J, Stapp J, Stapp L, Abe P, Burns JL
Use of real-time PCR with multiple targets to identify Pseudomonas aeruginosa and other nonfermenting gram-negative bacilli from patients with cystic fibrosis.
Journal of clinical microbiology , 2003 Sep: 4312-7

Piedra PA, Cron SG, Jewell A, Hamblett N, McBride R, Palacio MA, Ginsberg R, Oermann CM, Hiatt PW, Purified Fusion Protein Vaccine Study Group
Immunogenicity of a new purified fusion protein vaccine to respiratory syncytial virus: a multi-center trial in children with cystic fibrosis.
Vaccine , June 2003: 2448-60

Gollust SE, Wilfond BS, Hull SC
Direct-to-consumer sales of genetic services on the Internet.
Genetics in medicine : official journal of the American College of Medical Genetics , 2003 Jul-Aug: 332-7

Wendler D, Shah S, Whittle A, Wilfond BS
Nonbeneficial research with individuals who cannot consent: is it ethically better to enroll healthy or affected individuals?
IRB , 2003 Jul-Aug: 1-4

Smith AL, Fiel SB, Mayer-Hamblett N, Ramsey B, Burns JL
Susceptibility testing of Pseudomonas aeruginosa isolates and clinical response to parenteral antibiotic administration: lack of association in cystic fibrosis.
Chest , May 2003: 1495-502

Kulich M, Rosenfeld M, Goss CH, Wilmott R
Improved survival among young patients with cystic fibrosis.
The Journal of pediatrics , 2003 Jun: 631-6

Churchill LR, Nelson DK, Henderson GE, King NM, Davis AM, Leahey E, Wilfond BS
Assessing benefits in clinical research: why diversity in benefit assessment can be risky.
IRB , 2003 May-Jun: 1-8

Gibson RL, Emerson J, McNamara S, Burns JL, Rosenfeld M, Yunker A, Hamblett N, Accurso F, Dovey M, Hiatt P, Konstan MW, Moss R, Retsch-Bogart G, Wagener J, Waltz D, Wilmott R, Zeitlin PL, Ramsey B
Significant microbiological effect of inhaled tobramycin in young children with cystic fibrosis.
American journal of respiratory and critical care medicine , March 2003: 841-9

Gibson RL, Emerson J, McNamara S, Burns JL, Rosenfeld M, Yunker A, Hamblett N, Accurso F, Dovey M, Hiatt P, Konstan MW, Moss R, Retsch-Bogart G, Wagener J, Waltz D, Wilmott R, Zeitlin PL, Ramsey B
Significant microbiological effect of inhaled tobramycin in young children with cystic fibrosis.
American journal of respiratory and critical care medicine , 2003 Mar 15: 841-9

Aitken ML, Greene KE, Tonelli MR, Burns JL, Emerson JC, Goss CH, Gibson RL
Analysis of sequential aliquots of hypertonic saline solution-induced sputum from clinically stable patients with cystic fibrosis.
Chest , 2003 Mar: 792-9

Koogler TK, Wilfond BS, Ross LF
Lethal language, lethal decisions.
The Hastings Center report , 2003 Mar-Apr: 37-41

Miller FG, Wendler D, Wilfond B
When do the federal regulations allow placebo-controlled trials in children?
The Journal of pediatrics , 2003 Feb: 102-7

Goss CH, Mayer-Hamblett N, Kronmal RA, Ramsey BW
The cystic fibrosis therapeutics development network (CF TDN): a paradigm of a clinical trials network for genetic and orphan diseases.
Advanced drug delivery reviews , Dec. 2002: 1505-28

Mayer-Hamblett N, Rosenfeld M, Emerson J, Goss CH, Aitken ML
Developing cystic fibrosis lung transplant referral criteria using predictors of 2-year mortality.
American journal of respiratory and critical care medicine , Dec. 2002: 1550-5

Geller DE, Rosenfeld M, Waltz DA, Wilmott RW
Efficiency of pulmonary administration of tobramycin solution for inhalation in cystic fibrosis using an improved drug delivery system.
Chest , 2003 Jan: 28-36

Horng S, Emanuel EJ, Wilfond B, Rackoff J, Martz K, Grady C
Descriptions of benefits and risks in consent forms for phase 1 oncology trials.
The New England journal of medicine , 2002 Dec 26: 2134-40

Mayer-Hamblett N, Rosenfeld M, Emerson J, Goss CH, Aitken ML
Developing cystic fibrosis lung transplant referral criteria using predictors of 2-year mortality.
American journal of respiratory and critical care medicine , 2002 Dec 15: 1550-5

Brogan TV, Finn LS, Pyskaty DJ Jr, Redding GJ, Ricker D, Inglis A, Gibson RL
Plastic bronchitis in children: a case series and review of the medical literature.
Pediatric pulmonology , 2002 Dec: 482-7

Wendler D, Prasad K, Wilfond B
Does the current consent process minimize the risks of genetics research?
American journal of medical genetics , 2002 Dec 1: 258-62

Wilfond B, Rothenberg LS
Ethical issues in cystic fibrosis newborn screening: from data to public health policy.
Current opinion in pulmonary medicine , 2002 Nov: 529-34

Gollust SE, Hull SC, Wilfond BS
Limitations of direct-to-consumer advertising for clinical genetic testing.
JAMA : the journal of the American Medical Association , 2002 Oct 9: 1762-7

Ramsey BW
To cohort or not to cohort: how transmissible is Pseudomonas aeruginosa?
American journal of respiratory and critical care medicine , 2002 Oct 1: 906-7

Emerson J, Rosenfeld M, McNamara S, Ramsey B, Gibson RL
Pseudomonas aeruginosa and other predictors of mortality and morbidity in young children with cystic fibrosis.
Pediatric pulmonology , 2002 Aug: 91-100

Geller DE, Pitlick WH, Nardella PA, Tracewell WG, Ramsey BW
Pharmacokinetics and bioavailability of aerosolized tobramycin in cystic fibrosis.
Chest , 2002 Jul: 219-26

Callahan CW, Redding GJ
Bronchiectasis in children: orphan disease or persistent problem?
Pediatric pulmonology , 2002 Jun: 492-6

Cieri MV, Mayer-Hamblett N, Griffith A, Burns JL
Correlation between an in vitro invasion assay and a murine model of Burkholderia cepacia lung infection.
Infection and immunity , March 2002: 1081-6

Gooding HC, Wilfond B, Boehm K, Biesecker BB
Unintended messages: the ethics of teaching genetic dilemmas.
The Hastings Center report , 2002 Mar-Apr: 37-9

Freund CL, Wilfond BS
Emerging ethical issues in pharmacogenomics: from research to clinical practice.
American journal of pharmacogenomics : genomics-related research in drug development and clinical practice , 2002: 273-81

Davis AM, Hull SC, Grady C, Wilfond BS, Henderson GE
The invisible hand in clinical research: the study coordinator's critical role in human subjects protection.
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics , 2002 Fall: 411-9

Wilfond BS, Geller G, Lerman C, Audrain-McGovern J, Shields AE
Ethical issues in conducting behavioral genetics research: the case of smoking prevention trials among adolescents.
Journal of health care law & policy , 2002: 73-88

Noone PG, Hamblett N, Accurso F, Aitken ML, Boyle M, Dovey M, Gibson R, Johnson C, Kellerman D, Konstan MW, Milgram L, Mundahl J, Retsch-Bogort G, Rodman D, Williams-Warren J, Wilmott RW, Zeitlin P, Ramsey B, Cystic Fibrosis Therapeutics Development Research Group
Safety of aerosolized INS 365 in patients with mild to moderate cystic fibrosis: results of a phase I multi-center study.
Pediatric pulmonology , Aug. 2001: 122-8

Mayer-Hamblett N, Self S
A regression modeling approach for describing patterns of HIV genetic variation.
Biometrics , June 2001: 449-60

Ethical issues with genetic testing in pediatrics.
Pediatrics , 2001 Jun: 1451-5

Nicole Hamblett, PhD
Revision surgeries are associated with significant increased risk of subsequent cerebrospinal fluid shunt infection
Pediatric Disease Journal (In press) ,

Publications

In This Section...

Academic Annual Report

Sections

Information For

About Us

What’s New

About This Site