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Publications

Abby R. Rosenberg, MD
The state of the science of palliative care for adolescents and young adults with serious illness
American Academy of Hospice and Palliative Medicine annual meeting , 2014
Rosenberg AR, Baker KS, Syrjala KL, Back AL, Wolfe J
Promoting Resilience among Parents and Caregivers of Children with Cancer.
Journal of palliative medicine , May 2013
Douglas S. Diekema, MD, MPH
The Intersection of Evidence and Values in Clinical guidelines: Who Decides What Constitutes Acceptable Risk in the Care of Children?
Hospital Pediatrics , April 2013: 3(2)87-91
Rosenberg AR, Dussel V, Kang T, Geyer JR, Gerhardt CA, Feudtner C, Wolfe J
Psychological Distress in Parents of Children With Advanced Cancer.
JAMA pediatrics , April 2013: 1-7
Abby R. Rosenberg, MD
Palliative Care for Adolescents and Young Adults with Cancer
Clinical Oncology in Adolescents and Young Adults , March 25, 2013: 341-48
Douglas S. Diekema, MD, MPH
Policy Statement: Ethical and policy issues in genetic testing and screening of children.
Genetics in medicine : official journal of the American College of Medical Genetics , March 2013: 15(3)620-22
The AAP Task Force on Circumcision 2012
The AAP Task Force on Neonatal Circumcision: a call for respectful dialogue.
Journal of medical ethics , March 2013
Walter JK, Rosenberg AR, Feudtner C
Tackling Taboo Topics: How to Have Effective Advanced Care Planning Discussions With Adolescents and Young Adults With Cancer.
JAMA pediatrics , 2013 Mar 11: 1-3
Abby R. Rosenberg, MD
Psychosocial outcomes among bereaved and non-bereaved parents of children with cancer
American Society of Clinical Oncology annual meeting , 2013
Abby R. Rosenberg, MD
Early response as assessed by anatomic imaging does not predict failure-free survival among patients with group III rhabdomyosarcoma: a report from the Childrens Oncology Group
American Society of Clinical Oncology annual meeting , 2013
Abby R. Rosenberg, MD
Resilience across the cancer continuum: a diversity of perspectives
Clinical Journal of Oncology Nursing , 2013
Abby R. Rosenberg, MD
Re-thinking adherence: a proposal for a new approach to risk assessment
Journal of Adolescent and Young Adult Oncology , 2013: In press
Rosenberg AR
How they do this.
Journal of clinical oncology : official journal of the American Society of Clinical Oncology , 2013 Jan 1: 31(1)162-3
Shand J, Berg J, Bogue C, Committee for Pediatric Research, Committee on Bioethics
Human embryonic stem cell (hESC) and human embryo research.
Pediatrics , Nov. 2012: 130(5)972-7
American Academy of Pediatrics Task Force on Circumcision
Male circumcision.
Pediatrics , Sept. 2012: 130(3)e756-85
American Academy of Pediatrics Task Force on Circumcision
Circumcision policy statement.
Pediatrics , Sept. 2012: 130(3)585-6
Beskow LM, Fullerton SM, Namey EE, Nelson DK, Davis AM, Wilfond BS
Recommendations for ethical approaches to genotype-driven research recruitment.
Human genetics , 2012 Sep: 131(9)1423-31
Janvier A, Farlow B, Wilfond BS
The experience of families with children with trisomy 13 and 18 in social networks.
Pediatrics , 2012 Aug: 130(2)293-8
Douglas S. Diekema, MD, MPH
Female Genital Cutting: The Misnomer of Female Circumcision
Surgical Guide to Circumcision , July 2012: 281-90
Wilfond B
Predicting our future: lessons from Winnie-the-Pooh.
The Hastings Center report , 2012 Jul-Aug: 42(4)3
Rosenberg AR, Skapek SX, Hawkins DS
The inconvenience of convenience cohorts: rhabdomyosarcoma and the PAX-FOXO1 biomarker.
Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology , 2012 Jul: 21(7)1012-8
Wilfond BS, Diekema DS
Engaging children in genomics research: decoding the meaning of assent in research.
Genetics in medicine : official journal of the American College of Medical Genetics , April 2012: 14(4)437-43
Rosenberg AR, Baker KS, Syrjala K, Wolfe J
Systematic review of psychosocial morbidities among bereaved parents of children with cancer.
Pediatric blood & cancer , April 2012: 58(4)503-12
Wilfond BS, Diekema DS
Engaging children in genomics research: decoding the meaning of assent in research.
Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr: 14(4)437-43
Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr: 14(4)361-84
Opel DJ, Diekema DS
Finding the proper balance between freedom and justice: why we should not eliminate personal belief exemptions to vaccine mandates.
Journal of health politics, policy and law , Feb. 2012: 37(1)141-7
Diekema DS
Improving childhood vaccination rates.
The New England journal of medicine , Feb. 2012: 366(5)391-3
Paul C. Mann, MD
Genetic Influences On Preterm Birth in Argentina
, Dec. 2011
Beskow LM, Namey EE, Cadigan RJ, Brazg T, Crouch J, Henderson GE, Michie M, Nelson DK, Tabor HK, Wilfond BS
Research participants' perspectives on genotype-driven research recruitment.
Journal of empirical research on human research ethics : JERHRE , 2011 Dec: 6(4)3-20
Tabor HK, Brazg T, Crouch J, Namey EE, Fullerton SM, Beskow LM, Wilfond BS
Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment.
Journal of empirical research on human research ethics : JERHRE , 2011 Dec: 6(4)41-52
Paul C. Mann, MD
Novel NKX2.1 Mutation Associated with Hypothyoidism and Lethal Respiratory Failure in a Full-Term Neonate
, Nov. 2011
Tarini BA, Tercyak KP, Wilfond BS
Commentary: Children and predictive genomic testing: disease prevention, research protection, and our future.
Journal of pediatric psychology , 2011 Nov-Dec: 36(10)1113-21
Douglas S. Diekema, MD, MPH
Clinical Ethics in Pediatrics: A Case-based Textbook
Cambridge University Press , Oct. 2011
Douglas S. Diekema, MD, MPH
When Institutional, Professional, and Public Health Obligations Conflict: The Controversial Case of Youth Boxing in Clinical Ethics in Pediatrics: A Case-based Textbook
Cambridge University Press , Oct. 2011: 211-14
Douglas S. Diekema, MD, MPH
The Impaired, Incompetent, and Unethical Provider in Clinical Ethics in Pediatrics: A Case-based Textbook
Cambridge University Press , Oct. 2011: 231-34
Douglas S. Diekema, MD, MPH
Parental Refusals of Vaccination and School Vaccine Mandates: Balancing Parental Freedom, Child Welfare, and Public Health in Clinical Ethics in Pediatrics: A Case-based Textbook
Cambridge University Press , Oct. 2011: 205-10
Douglas S. Diekema, MD, MPH
Parental Refusals of Recommended Medical Interventions in Clinical Ethics in Pediatrics: A Case-based Textbook
Cambridge University Press , Oct. 2011: 14-7
Douglas S. Diekema, MD, MPH
Reasons to think twice before calling CPS about morbid obesity
AAP Grand Rounds , Oct. 2011: 26(4)48
Douglas S. Diekema, MD, MPH
Examining the Quest to Eliminate Discrepancies in IRB Decisions
AJOB Primary Research , Aug. 2011: 2(2)34-6
Douglas S. Diekema, MD, MPH
Clinical Report: Maternal-Fetal Intervention and Fetal Care Centers
Pediatrics , Aug. 2011: 128e473-78
Committee on Pediatric Emergency Medicine and Committee on Bioethics
Policy Statement: Consent for emergency medical services for children and adolescents.
Pediatrics , Aug. 2011: 128(2)427-33
Diekema DS
Adolescent refusal of lifesaving treatment: are we asking the right questions?
Adolescent medicine: state of the art reviews , Aug. 2011: 22(2)213-28
Nishisaki A, Diekema DS
Mind the gap and narrowing it: family presence during pediatric resuscitation and invasive procedures.
Resuscitation , June 2011: 82(6)655-6
Diekema DS
Revisiting the best interest standard: uses and misuses.
The Journal of clinical ethics , June 2011: 22(2)128-33
Douglas S. Diekema, MD, MPH
Waitress in The Picture of Health: Medical Ethics and the Movies
Oxford University Press , May 2011: 186-91
Tercyak KP, Hensley Alford S, Emmons KM, Lipkus IM, Wilfond BS, McBride CM
Parents' attitudes toward pediatric genetic testing for common disease risk.
Pediatrics , 2011 May: 127(5)e1288-95
Richer J, Ghebremichael MS, Chudley AE, Robinson WM, Wilfond BS, Solomon MZ
Research use of leftover newborn bloodspots: attitudes of Canadian geneticists regarding storage and informed consent requirements.
Genetics in medicine : official journal of the American College of Medical Genetics , 2011 Apr: 13(4)305-13
Rosenthal MS, Diekema DS
Pediatric ethics guidelines for hereditary medullary thyroid cancer.
International journal of pediatric endocrinology , March 2011: 847603
Douglas S. Diekema, MD, MPH
Bone Marrow Donation Between Siblings Living in Different Families
Pediatrics , Jan. 2011: 127(1)158-62
Opel DJ, Diekema DS, Marcuse EK
Assuring research integrity in the wake of Wakefield.
BMJ (Clinical research ed.) , Jan. 2011: 342179-80
Myers RE, Manne SL, Wilfond B, Sifri R, Ziring B, Wolf TA, Cocroft J, Ueland A, Petrich A, Swan H, DiCarlo M, Weinberg DS
A randomized trial of genetic and environmental risk assessment (GERA) for colorectal cancer risk in primary care: trial design and baseline findings.
Contemporary clinical trials , 2011 Jan: 32(1)25-31
Wilfond BS, Miller PS, Korfiatis C, Diekema DS, Dudzinski DM, Goering S, Seattle Growth Attenuation and Ethics Working Group
Navigating growth attenuation in children with profound disabilities. Children's interests, family decision-making, and community concerns.
The Hastings Center report , 2010 Nov-Dec: 40(6)27-40
Kelley M
Case study. Denial. Commentary.
The Hastings Center report , 2010 Nov-Dec: 12
Cross E, Goodacre S
Patient satisfaction with chest pain unit care: findings from the Effectiveness and Safety of Chest Pain Assessment to Prevent Emergency Admissions (ESCAPE) cluster randomised trial.
Emergency medicine journal : EMJ , 2010 Oct: 774-8
Ng SB, Bigham AW, Buckingham KJ, Hannibal MC, McMillin MJ, Gildersleeve HI, Beck AE, Tabor HK, Cooper GM, Mefford HC, Lee C, Turner EH, Smith JD, Rieder MJ, Yoshiura K, Matsumoto N, Ohta T, Niikawa N, Nickerson DA, Bamshad MJ, Shendure J
Exome sequencing identifies MLL2 mutations as a cause of Kabuki syndrome.
Nature genetics , 2010 Sep: 790-3
Kelley M
Should international adoption be part of humanitarian aid efforts? Lessons from Haiti.
Bioethics , 2010 Sep: 373-80
Wade CH, Wilfond BS, McBride CM
Effects of genetic risk information on children's psychosocial wellbeing: a systematic review of the literature.
Genetics in medicine : official journal of the American College of Medical Genetics , 2010 Jun: 12(6)317-26
Kelley M, Rubens CE
Global report on preterm birth and stillbirth (6 of 7): ethical considerations.
BMC pregnancy and childbirth , 2010 Feb 23: S6
Eyal S, Kim JD, Anderson GD, Buchanan ML, Brateng DA, Carr D, Woodrum DE, Easterling TR, Hebert MF
Atenolol Pharmacokinetics and Excretion in Breast Milk During the First 6 to 8 Months Postpartum.
Journal of clinical pharmacology , 2010 Feb 9
Ng SB, Buckingham KJ, Lee C, Bigham AW, Tabor HK, Dent KM, Huff CD, Shannon PT, Jabs EW, Nickerson DA, Shendure J, Bamshad MJ
Exome sequencing identifies the cause of a mendelian disorder.
Nature genetics , 2010 Jan: 30-5
Schwartz GG, Olsson AG, Ballantyne CM, Barter PJ, Holme IM, Kallend D, Leiter LA, Leitersdorf E, McMurray JJ, Shah PK, Tardif JC, Chaitman BR, Duttlinger-Maddux R, Mathieson J
Rationale and design of the dal-OUTCOMES trial: efficacy and safety of dalcetrapib in patients with recent acute coronary syndrome.
American heart journal , 2009 Dec: 896-901.e3
Webb SA, Pettilä V, Seppelt I, Bellomo R, Bailey M, Cooper DJ, Cretikos M, Davies AR, Finfer S, Harrigan PW, Hart GK, Howe B, Iredell JR, McArthur C, Mitchell I, Morrison S, Nichol AD, Paterson DL, Peake S, Richards B, Stephens D, Turner A, Yung M
Critical care services and 2009 H1N1 influenza in Australia and New Zealand.
The New England journal of medicine , 2009 Nov 12: 1925-34
Beskow LM, Grady C, Iltis AS, Sadler JZ, Wilfond BS
Points to consider: The research ethics consultation service and the IRB.
IRB , 2009 Nov-Dec: 31(6)1-9
Bellomo R, Cass A, Cole L, Finfer S, Gallagher M, Lo S, McArthur C, McGuinness S, Myburgh J, Norton R, Scheinkestel C, Su S
Intensity of continuous renal-replacement therapy in critically ill patients.
The New England journal of medicine , 2009 Oct 22: 1627-38
Goldenberg AJ, Hull SC, Botkin JR, Wilfond BS
Pediatric biobanks: approaching informed consent for continuing research after children grow up.
The Journal of pediatrics , 2009 Oct: 155(4)578-83
Wallentin L, Becker RC, Budaj A, Cannon CP, Emanuelsson H, Held C, Horrow J, Husted S, James S, Katus H, Mahaffey KW, Scirica BM, Skene A, Steg PG, Storey RF, Harrington RA, Freij A, Thorsén M
Ticagrelor versus clopidogrel in patients with acute coronary syndromes.
The New England journal of medicine , 2009 Sep 10: 1045-57
Wilfond B, Ross LF
From genetics to genomics: ethics, policy, and parental decision-making.
Journal of pediatric psychology , 2009 Jul: 34(6)639-47
Giugliano RP, White JA, Bode C, Armstrong PW, Montalescot G, Lewis BS, van 't Hof A, Berdan LG, Lee KL, Strony JT, Hildemann S, Veltri E, Van de Werf F, Braunwald E, Harrington RA, Califf RM, Newby LK
Early versus delayed, provisional eptifibatide in acute coronary syndromes.
The New England journal of medicine , 2009 May 21: 2176-90
Opel DJ, Diekema DS, Lee NR, Marcuse EK
Social marketing as a strategy to increase immunization rates.
Archives of pediatrics & adolescent medicine , 2009 May: 432-7
Wilfond BS
Policy in the light: professional society guidelines begin the ethical conversations about screening.
The American journal of bioethics : AJOB , 2009 Apr: 9(4)17-9
Doug Opel
Characterisation of Organisational Issues in Pediatric Clinical Ethics Consultation: A Qualitative Study
Journal of Medical Ethics , Jan. 1, 2009: 35: 477-482
Abby R. Rosenberg, MD
Sub-Morphologic Evidence of Disease Prior to Stem Cell Transplantation Correlates with Inferior Post Transplant Outcome in Childhood Acute Myeloid Leukemia
American Society of Hematology annual meeting , 2009
Opel DJ, Brownstein D, Diekema DS, Wilfond BS, Pearlman RA
Integrating ethics and patient safety: the role of clinical ethics consultants in quality improvement.
The Journal of clinical ethics , 2009 Fall: 220-6
Robertson B, Schumacher L, Gosman G, Kanfer R, Kelley M, DeVita M
Simulation-based crisis team training for multidisciplinary obstetric providers.
Simulation in healthcare : journal of the Society for Simulation in Healthcare , 2009 Summer: 77-83
Tabor HK, Kelley M
Challenges in the use of direct-to-consumer personal genome testing in children.
The American journal of bioethics : AJOB , 2009: 32-4
Bellomo R, Cass A, Cole L, Finfer S, Gallagher M, Goldsmith D, Myburgh J, Norton R, Scheinkestel C
Screening and study enrolment in the Randomized Evaluation of Normal vs. Augmented Level (RENAL) Replacement Therapy Trial.
Blood purification , 2009: 199-205
Denny CC, Wilfond BS, Peters JA, Giri N, Alter BP
All in the family: disclosure of "unwanted" information to an adolescent to benefit a relative.
American journal of medical genetics. Part A , 2008 Nov 1: 146A(21)2719-24
Oluboyede Y, Goodacre S, Wailoo A
Cost effectiveness of chest pain unit care in the NHS.
BMC health services research , 2008 Aug 13: 174
Opel DJ, Diekema DS, Marcuse EK
A critique of criteria for evaluating vaccines for inclusion in mandatory school immunization programs.
Pediatrics , 2008 Aug: e504-10
McGowan KA, Li JZ, Park CY, Beaudry V, Tabor HK, Sabnis AJ, Zhang W, Fuchs H, de Angelis MH, Myers RM, Attardi LD, Barsh GS
Ribosomal mutations cause p53-mediated dark skin and pleiotropic effects.
Nature genetics , 2008 Aug: 963-70
Assimes TL, Knowles JW, Priest JR, Basu A, Borchert A, Volcik KA, Grove ML, Tabor HK, Southwick A, Tabibiazar R, Sidney S, Boerwinkle E, Go AS, Iribarren C, Hlatky MA, Fortmann SP, Myers RM, Kuhn H, Risch N, Quertermous T
A near null variant of 12/15-LOX encoded by a novel SNP in ALOX15 and the risk of coronary artery disease.
Atherosclerosis , 2008 May: 136-44
Assimes TL, Knowles JW, Priest JR, Basu A, Volcik KA, Southwick A, Tabor HK, Hartiala J, Allayee H, Grove ML, Tabibiazar R, Sidney S, Fortmann SP, Go A, Hlatky M, Iribarren C, Boerwinkle E, Myers R, Risch N, Quertermous T
Common polymorphisms of ALOX5 and ALOX5AP and risk of coronary artery disease.
Human genetics , 2008 May: 399-408
Kelley M, Fryer-Edwards K, Fullerton SM, Gallagher TH, Wilfond B
Sharing data and experience: using the Clinical and Translational Science Award (CTSA) "moral community" to improve research ethics consultation.
The American journal of bioethics : AJOB , 2008 Mar: 37-9; discussion W4-6
Abby R. Rosenberg, MD
Retrospective Evaluation of Variables Affecting Survival Among Infants with Acute Lymphoblastic Leukemia: A single institution experience
American Society of Clinical Oncology annual meeting , 2008
Paul C. Mann, MD
Predicting Survival in Congenital Diaphragmatic Hernia.
Pediatric Research , 2008: 64(4)454
Kelley MA, Connor A, Kun KE, Salmon ME
Social responsibility: conceptualization and embodiment in a school of nursing.
International journal of nursing education scholarship , 2008: Article28
Fletcher FE, Ndebele P, Kelley MC
Infant feeding and HIV in Sub-Saharan Africa: what lies beneath the dilemma?
Theoretical medicine and bioethics , 2008: 307-30
Hlatky MA, Quertermous T, Boothroyd DB, Priest JR, Glassford AJ, Myers RM, Fortmann SP, Iribarren C, Tabor HK, Assimes TL, Tibshirani RJ, Go AS
Polymorphisms in hypoxia inducible factor 1 and the initial clinical presentation of coronary disease.
American heart journal , 2007 Dec: 1035-42
Doug Opel, Richard P Shugerman, Heather A McPhillips, Wendy Sue L Swanson, Sarah E Archibald, Douglas S Diekema
Professionalism and the match: a pediatric residency program's postinterview no-call policy and its impact on applicants
Pediatrics , Oct. 1, 2007: e826-31
Burton PR, Clayton DG, Cardon LR, Craddock N, Deloukas P, Duncanson A, Kwiatkowski DP, McCarthy MI, Ouwehand WH, Samani NJ, Todd JA, Donnelly P, Barrett JC, Davison D, Easton D, Evans DM, Leung HT, Marchini JL, Morris AP, Spencer CC, Tobin MD, Attwood AP, Boorman JP, Cant B, Everson U, Hussey JM, Jolley JD, Knight AS, Koch K, Meech E, Nutland S, Prowse CV, Stevens HE, Taylor NC, Walters GR, Walker NM, Watkins NA, Winzer T, Jones RW, McArdle WL, Ring SM, Strachan DP, Pembrey M, Breen G, St Clair D, Caesar S, Gordon-Smith K, Jones L, Fraser C, Green EK, Grozeva D, Hamshere ML, Holmans PA, Jones IR, Kirov G, Moskivina V, Nikolov I, O'Donovan MC, Owen MJ, Collier DA, Elkin A, Farmer A, Williamson R, McGuffin P, Young AH, Ferrier IN, Ball SG, Balmforth AJ, Barrett JH, Bishop TD, Iles MM, Maqbool A, Yuldasheva N, Hall AS, Braund PS, Dixon RJ, Mangino M, Stevens S, Thompson JR, Bredin F, Tremelling M, Parkes M, Drummond H, Lees CW, Nimmo ER, Satsangi J, Fisher SA, Forbes A, Lewis CM, Onnie CM, Prescott NJ, Sanderson J, Matthew CG, Barbour J, Mohiuddin MK, Todhunter CE, Mansfield JC, Ahmad T, Cummings FR, Jewell DP, Webster J, Brown MJ, Lathrop MG, Connell J, Dominiczak A, Marcano CA, Burke B, Dobson R, Gungadoo J, Lee KL, Munroe PB, Newhouse SJ, Onipinla A, Wallace C, Xue M, Caulfield M, Farrall M, Barton A, Bruce IN, Donovan H, Eyre S, Gilbert PD, Hilder SL, Hinks AM, John SL, Potter C, Silman AJ, Symmons DP, Thomson W, Worthington J, Dunger DB, Widmer B, Frayling TM, Freathy RM, Lango H, Perry JR, Shields BM, Weedon MN, Hattersley AT, Hitman GA, Walker M, Elliott KS, Groves CJ, Lindgren CM, Rayner NW, Timpson NJ, Zeggini E, Newport M, Sirugo G, Lyons E, Vannberg F, Hill AV, Bradbury LA, Farrar C, Pointon JJ, Wordsworth P, Brown MA, Franklyn JA, Heward JM, Simmonds MJ, Gough SC, Seal S, Stratton MR, Rahman N, Ban M, Goris A, Sawcer SJ, Compston A, Conway D, Jallow M, Newport M, Sirugo G, Rockett KA, Bumpstead SJ, Chaney A, Downes K, Ghori MJ, Gwilliam R, Hunt SE, Inouye M, Keniry A, King E, McGinnis R, Potter S, Ravindrarajah R, Whittaker P, Widden C, Withers D, Cardin NJ, Davison D, Ferreira T, Pereira-Gale J, Hallgrimsdo'ttir IB, Howie BN, Su Z, Teo YY, Vukcevic D, Bentley D, Brown MA, Compston A, Farrall M, Hall AS, Hattersley AT, Hill AV, Parkes M, Pembrey M, Stratton MR, Mitchell SL, Newby PR, Brand OJ, Carr-Smith J, Pearce SH, McGinnis R, Keniry A, Deloukas P, Reveille JD, Zhou X, Sims AM, Dowling A, Taylor J, Doan T, Davis JC, Savage L, Ward MM, Learch TL, Weisman MH, Brown M
Association scan of 14,500 nonsynonymous SNPs in four diseases identifies autoimmunity variants.
Nature genetics , 2007 Nov: 1329-37
Tabor HK, Cho MK
Ethical implications of array comparative genomic hybridization in complex phenotypes: points to consider in research.
Genetics in medicine : official journal of the American College of Medical Genetics , 2007 Sep: 626-31
Riley PL, Vindigni SM, Arudo J, Waudo AN, Kamenju A, Ngoya J, Oywer EO, Rakuom CP, Salmon ME, Kelley M, Rogers M, St Louis ME, Marum LH
Developing a nursing database system in Kenya.
Health services research , 2007 Jun: 1389-405
Sectish TC, Rosenberg AR, Pageler NM, Chamberlain LJ, Burgos A, Stuart E
Making pediatrics residency programs family friendly: Views along the professional educational continuum.
The Journal of pediatrics , 2006 Jul: 149(1)1-2
Hays RM, Valentine J, Haynes G, Geyer JR, Villareale N, McKinstry B, Varni JW, Churchill SS
The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life.
Journal of palliative medicine , 2006 Jun: 716-28
Loud JT, Weissman NE, Peters JA, Giusti RM, Wilfond BS, Burke W, Greene MH
Deliberate deceit of family members: a challenge to providers of clinical genetics services.
Journal of clinical oncology : official journal of the American Society of Clinical Oncology , April 2006: 1643-6
Grosse SD, Boyle CA, Kenneson A, Khoury MJ, Wilfond BS
From public health emergency to public health service: the implications of evolving criteria for newborn screening panels.
Pediatrics , 2006 Mar: 923-9
Rosenberg A, Knox S
Radiation sensitization with redox modulators: a promising approach.
International journal of radiation oncology, biology, physics , 2006 Feb 1: 64(2)343-54
Henderson GE, Easter MM, Zimmer C, King NM, Davis AM, Rothschild BB, Churchill LR, Wilfond BS, Nelson DK
Therapeutic misconception in early phase gene transfer trials.
Social science & medicine (1982) , 2006 Jan: 239-53
Opel DJ, Diekema DS
The case of A.R.: the ethics of sibling donor bone marrow transplantation revisited.
The Journal of clinical ethics , 2006 Fall: 207-19
Wilfond BS, Parad RB, Fost N
Balancing benefits and risks for cystic fibrosis newborn screening: implications for policy decisions.
The Journal of pediatrics , 2005 Sep: S109-13
Cook-Deegan RM, Berkelman R, Davidson EM, Finder S, Heitman E, Kelley MC, King NM, Moseley R, Thomas JC, Tilden SJ, Vangsnes NM
Issues in biosecurity and biosafety.
Science (New York, N.Y.) , 2005 Jun 24: 1867-8
Feudtner C, Villareale NL, Morray B, Sharp V, Hays RM, Neff JM
Technology-dependency among patients discharged from a children's hospital: a retrospective cohort study.
BMC pediatrics , 2005 May 9: 8
Wilfond BS, Gollust SE
Policy issues for expanding newborn screening programs: the cystic fibrosis newborn screening experience in the United States.
The Journal of pediatrics , 2005 May: 668-74
Kelley M
Limits on patient responsibility.
The Journal of medicine and philosophy , 2005 Apr: 189-206
King NM, Henderson GE, Churchill LR, Davis AM, Hull SC, Nelson DK, Parham-Vetter PC, Rothschild BB, Easter MM, Wilfond BS
Consent forms and the therapeutic misconception: the example of gene transfer research.
IRB , 2005 Jan-Feb: 1-8
Wilfond BS, Ravitsky V
On the proliferation of bioethics sub-disciplines: do we really need "genethics" and "neuroethics"?
The American journal of bioethics : AJOB , 2005 Spring: 20-1; discussion W3-4
McLaughlin JF, Felix SD, Nowbar S, Ferrel A, Bjornson K, Hays RM
Lower extremity sensory function in children with cerebral palsy.
Pediatric rehabilitation , 2005 Jan-Mar: 45-52
Taylor HA, Wilfond BS
Ethical issues in newborn screening research: lessons from the Wisconsin cystic fibrosis trial.
The Journal of pediatrics , 2004 Sep: 292-6
Henderson GE, Davis AM, King NM, Easter MM, Zimmer CR, Rothschild BB, Wilfond BS, Nelson DK, Churchill LR
Uncertain benefit: investigators' views and communications in early phase gene transfer trials.
Molecular therapy : the journal of the American Society of Gene Therapy , 2004 Aug: 225-31
Hull SC, Glanz K, Steffen A, Wilfond BS
Recruitment approaches for family studies: attitudes of index patients and their relatives.
IRB , 2004 Jul-Aug: 12-7
Opel DJ, Lundin DA, Stevenson KL, Klein EJ
Glass foreign body in the spinal canal of a child: case report and review of the literature.
Pediatric emergency care , 2004 Jul: 468-72
Whittle A, Shah S, Wilfond B, Gensler G, Wendler D
Institutional review board practices regarding assent in pediatric research.
Pediatrics , 2004 Jun: 1747-52
Hull SC, Gooding H, Klein AP, Warshauer-Baker E, Metosky S, Wilfond BS
Genetic research involving human biological materials: a need to tailor current consent forms.
IRB , 2004 May-Jun: 1-7
Abby R. Rosenberg, MD
Immunoglobulin G Fc Receptor Polymorphisms and Clinical course in Follicular Lymphoma Patients
American Society of Hematology annual Meeting , 2004
Shah S, Whittle A, Wilfond B, Gensler G, Wendler D
How do institutional review boards apply the federal risk and benefit standards for pediatric research?
JAMA : the journal of the American Medical Association , 2004 Jan 28: 476-82
Coffey MJ, Wilfond B, Ross LF
Ethical assessment of clinical asthma trials including children subjects.
Pediatrics , 2004 Jan: 87-94
Freund CL, Clayton EW, Wilfond BS
Natural settings trials--improving the introduction of clinical genetic tests.
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics , 2004 Spring: 106-10
Gollust SE, Wilfond BS, Hull SC
Direct-to-consumer sales of genetic services on the Internet.
Genetics in medicine : official journal of the American College of Medical Genetics , 2003 Jul-Aug: 332-7
Wendler D, Shah S, Whittle A, Wilfond BS
Nonbeneficial research with individuals who cannot consent: is it ethically better to enroll healthy or affected individuals?
IRB , 2003 Jul-Aug: 1-4
Churchill LR, Nelson DK, Henderson GE, King NM, Davis AM, Leahey E, Wilfond BS
Assessing benefits in clinical research: why diversity in benefit assessment can be risky.
IRB , 2003 May-Jun: 1-8
Koogler TK, Wilfond BS, Ross LF
Lethal language, lethal decisions.
The Hastings Center report , 2003 Mar-Apr: 37-41
Juul SE, Zerzan JC, Strandjord TP, Woodrum DE
Zinc protoporphyrin/heme as an indicator of iron status in NICU patients.
The Journal of pediatrics , 2003 Mar: 273-8
Miller FG, Wendler D, Wilfond B
When do the federal regulations allow placebo-controlled trials in children?
The Journal of pediatrics , 2003 Feb: 102-7
Horng S, Emanuel EJ, Wilfond B, Rackoff J, Martz K, Grady C
Descriptions of benefits and risks in consent forms for phase 1 oncology trials.
The New England journal of medicine , 2002 Dec 26: 2134-40
Wendler D, Prasad K, Wilfond B
Does the current consent process minimize the risks of genetics research?
American journal of medical genetics , 2002 Dec 1: 258-62
Wilfond B, Rothenberg LS
Ethical issues in cystic fibrosis newborn screening: from data to public health policy.
Current opinion in pulmonary medicine , 2002 Nov: 529-34
Gollust SE, Hull SC, Wilfond BS
Limitations of direct-to-consumer advertising for clinical genetic testing.
JAMA : the journal of the American Medical Association , 2002 Oct 9: 1762-7
O'Connor TP, Liesen DA, Mann PC, Rolando L, Banz WJ
A high isoflavone soy protein diet and intravenous genistein delay rejection of rat cardiac allografts.
The Journal of Nutrition , Aug. 2002: 132(8)2283-7
Kelley M
The meanings of professional life: teaching across the health professions.
The Journal of medicine and philosophy , 2002 Aug: 475-91
Tabor HK, Risch NJ, Myers RM
Candidate-gene approaches for studying complex genetic traits: practical considerations.
Nature reviews. Genetics , 2002 May: 391-7
Gooding HC, Wilfond B, Boehm K, Biesecker BB
Unintended messages: the ethics of teaching genetic dilemmas.
The Hastings Center report , 2002 Mar-Apr: 37-9
Li J, Tabor HK, Nguyen L, Gleason C, Lotspeich LJ, Spiker D, Risch N, Myers RM
Lack of association between HoxA1 and HoxB1 gene variants and autism in 110 multiplex families.
American journal of medical genetics , 2002 Jan 8: 24-30
Freund CL, Wilfond BS
Emerging ethical issues in pharmacogenomics: from research to clinical practice.
American journal of pharmacogenomics : genomics-related research in drug development and clinical practice , 2002: 273-81
Davis AM, Hull SC, Grady C, Wilfond BS, Henderson GE
The invisible hand in clinical research: the study coordinator's critical role in human subjects protection.
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics , 2002 Fall: 411-9
Wilfond BS, Geller G, Lerman C, Audrain-McGovern J, Shields AE
Ethical issues in conducting behavioral genetics research: the case of smoking prevention trials among adolescents.
Journal of health care law & policy , 2002: 73-88
Woodrum DE, McCormick TR
Misguided good intentions.
Journal of perinatology : official journal of the California Perinatal Association , 2002 Jan: 72-4

Ethical issues with genetic testing in pediatrics.
Pediatrics , 2001 Jun: 1451-5
Abby R. Rosenberg, MD
Bexxar (Iodine I-131 Tositumomab and Tositumomab) can be Administered Safely in Sequential Combination with Chemotherapy in Initial Treatment of Non-Hodgkins Lymphoma (NHL)
American Society of Clinical Oncology annual meeting , 2001
Abby R. Rosenberg, MD
A Phase II Study of Bexxar (Tositumomab and I-131 Tositumomab) for Patients at 1st or 2nd Recurrence of B-Cell Non-Hodgkins Lymphoma
American Society of Clinical Oncology annual meeting , 2001
Groves PH, Banning AP, Penny WJ, Lewis MJ, Cheadle HA, Newby AC
Kinetics of smooth muscle cell proliferation and intimal thickening in a pig carotid model of balloon injury.
Atherosclerosis , 1995 Sep: 83-96
Groves PH, Banning AP, Penny WJ, Newby AC, Cheadle HA, Lewis MJ
The effects of exogenous nitric oxide on smooth muscle cell proliferation following porcine carotid angioplasty.
Cardiovascular research , 1995 Jul: 87-96
Griffith TM, Lewis MJ, Newby AC, Henderson AH
Endothelium-derived relaxing factor.
Journal of the American College of Cardiology , 1988 Sep: 797-806
Griffith TM, Edwards DH, Lewis MJ, Newby AC, Henderson AH
The nature of endothelium-derived vascular relaxant factor.
Nature , 1984 Apr 12-18: 645-7
Young MR, Newby M, Wepsic HT
Hematopoiesis and suppressor bone marrow cells in mice bearing large metastatic Lewis lung carcinoma tumors.
Cancer research , 1987 Jan 1: 100-5
Young MR, Duffie GP, Newby M
Adhesiveness and morphology of Lewis lung carcinoma variants influence their sensitivity to natural killer cytolysis and their metastatic capacity.
Invasion & metastasis , 1987: 96-108
Young MR, Newby M
Differential induction of suppressor macrophages by cloned Lewis lung carcinoma variants in mice.
Journal of the National Cancer Institute , 1986 Dec: 1255-60
Young MR, Wheeler E, Newby M
Macrophage-mediated suppression of natural killer cell activity in mice bearing Lewis lung carcinoma.
Journal of the National Cancer Institute , 1986 Apr: 745-50
Griffith TM, Edwards DH, Newby AC, Lewis MJ, Henderson AH
Production of endothelium derived relaxant factor is dependent on oxidative phosphorylation and extracellular calcium.
Cardiovascular research , 1986 Jan: 7-12
Young MR, Newby M
Enhancement of Lewis lung carcinoma cell migration by prostaglandin E2 produced by macrophages.
Cancer research , 1986 Jan: 160-4
Young MR, Newby M, Meunier J
Relationships between morphology, dissemination, migration, and prostaglandin E2 secretion by cloned variants of Lewis lung carcinoma.
Cancer research , 1985 Aug: 3918-23
Paul C. Mann, MD
Genetic Admixture and Parental Affects on Preterm Birth in Argentina.
Pediatric Academic Societies Annual Meeting; Vancouver, BC; May 2010. ,
Paul C. Mann, MD
Candidate genes affecting premature birth in Argentina.
Candidate genes affecting premature birth in Argentina." Pediatric Academic Societies Annual Meeting; Baltimore, MD; May 2009. ,
Paul C. Mann, MD
Genetic Factors Influencing Preterm Delivery in Argentina
." Pediatric Academic Societies Annual Meeting; Honolulu, HI; May 2008. ,
Paul C. Mann, MD
Stomach Position and Timing of Surgery Impact Congenital Diaphragmatic Hernia Survival.
Pediatric Academic Societies Annual Meeting; Honolulu, HI; May 2008. ,
Paul C. Mann, MD
Fuzzy Images: Ethical implications of neuropredictive technologies in neonatology
,
Paul C. Mann, MD
Prediction of Survival in Infants with Congenital Diaphragmatic Hernia Based on Stomach Position, Surgical Timing, and Oxygenation Index
American Journal of Perinatology ,
Academic Annual Report