Bioethics

Publications

Publications

  • 11. Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA, eMERGE ROR Committee & CERC Committee, CSER Act-ROR Working Group, Burke, W.
    Return of Genomic Results to Research Participants: the floor, the ceiling, and choices in-between.
    24814192 The American Journal of Human Genetics , 2016 Jan. : 94(6)818-826
  • Rosenberg AR, Bona K, Wharton CM, Bradford M, Shaffer ML, Wolfe J, Baker KS
    Adolescent and Young Adult Patient Engagement and Participation in Survey-Based Research: A Report From the "Resilience in Adolescents and Young Adults With Cancer" Study.
    26681427 Pediatric blood and cancer , 2015 Dec. 18 - 2015 Dec. 18
  • Wightman A, Diekema D
    Should an Undocumented Immigrant Receive a Heart Transplant?
    26496053 AMA journal of ethics , 2015 Oct. 1 - 2015 Oct. 1 : 17(10)909-13
  • Stokke J | Sung L | Gupta A | Lindberg A | Rosenberg AR
    Systematic review and meta-analysis of objective and subjective quality of life among pediatric, adolescent, and young adult bone tumor survivors.
    PMC4515170 Pediatric blood and cancer , 2015 Sept. - 2015 Sept. : 62(9)1616-29
  • Rosenberg AR | Syrjala KL | Martin PJ | Flowers ME | Carpenter PA | Salit RB | Baker KS | Lee SJ
    Resilience, health, and quality of life among long-term survivors of hematopoietic cell transplantation.
    Cancer , 2015 Aug. 19 - 2015 Aug. 19
  • Rosenberg AR, Syrjala KL, Martin PJ, Flowers ME, Carpenter PA, Salit RB, Baker KS, Lee SJ
    Resilience, health, and quality of life among long-term survivors of hematopoietic cell transplantation.
    26288023 Cancer , 2015 Aug. 19 - 2015 Aug. 19
  • Wightman A, Kett J
    Has neonatal dialysis become morally obligatory? Lessons from Baby Doe.
    25982939 Acta paediatrica (Oslo, Norway : 1992) , 2015 Aug. - 2015 Aug. : 104(8)748-50
  • Wolfe J | Orellana L | Ullrich C | Cook EF | Kang TI | Rosenberg A | Geyer R | Feudtner C | Dussel V
    Symptoms and Distress in Children With Advanced Cancer: Prospective Patient-Reported Outcomes From the PediQUEST Study.
    PMC4451175 Journal of clinical oncology : official journal of the American Society of Clinical Oncology , 2015 June 10 - 2015 June 10 : 33(17)1928-35
  • Cho MK, Magnus D, Constantine M, Lee SS, Kelley M, Alessi S, Korngiebel D, James C, Kuwana E, Gallagher TH, Diekema D, Capron AM, Joffe S, Wilfond BS
    Attitudes Toward Risk and Informed Consent for Research on Medical Practices: A Cross-sectional Survey.
    25868119 Annals of internal medicine , 2015 Apr, 14
  • Rosenberg AR
    Close to home.
    JAMA pediatrics , 2015 Mar. - 2015 Mar. : 169(3)206
  • Rosenberg AR
    Close to home.
    25621786 JAMA pediatrics , 2015 Mar. - 2015 Mar. : 169(3)206
  • Magnus D, Wilfond BS
    Research on medical practices and the ethics of disclosure.
    25583909 Pediatrics , 2015 Feb. : 135(2)208-10
  • Lewis-Newby M, Wicclair M, Pope T, Rushton C, Curlin F, Diekema D, Durrer D, Ehlenbach W, Gibson-Scipio W, Glavan B, Langer RL, Manthous C, Rose C, Scardella A, Shanawani H, Siegel MD, Halpern SD, Truog RD, White DB, ATS Ethics and Conflict of Interest Committee
    An official American Thoracic Society policy statement: managing conscientious objections in intensive care medicine.
    25590155 American journal of respiratory and critical care medicine , 2015 Jan. 15 : 191(2)219-27
  • Kunz SN, McAdams RM, Diekema DS, Opel DJ
    A quality of life quandary: a framework for navigating parental refusal of treatment for co-morbidities in infants with underlying medical conditions.
    25794289 The Journal of clinical ethics , 2015 : 26(1)16-23
  • Douglas S. Diekema
    Public Health Issues in Pediatrics
    Bioethics, 4th Edition , 2015 : 2366-2369
  • Lewis-Newby, M
    Managing Conscientious Objections in Intensive Care Medicine: An Official Policy Statement of the American Thoracic Society
    Am J Respir Crit Care Med , 2015 : 191(2)219-27
  • Lewis-Newby, M
    Pediatric Disposition Classification (Reverse-Triage) System to Create Surge Capacity
    Disaster Med Public Health Prep , 2015
  • Wightman A, Smith J, Diekema D
    Neurodevelopmental status as a criterion for solid organ transplant eligibility
    Pediatric Transplantation Ethics , 2015
  • Garrison NA, Sathe NA, Antommaria AH, Holm IA, Sanderson SC, Smith ME, McPheeters M, Clayton EW.
    A Systematic Literature Review of Individuals’ Perspectives on Broad Consent and Data Sharing in the United States.
    26583683 Genetics in Medicine , 2015
  • Garrison NA.
    Considerations for returning research results to culturally diverse participants and families of decedents.
    26479567 Journal of Law, Medicine and Ethics. , 2015 : 43(4)569-575
  • Milner LC, Garrison NA, Cho MK, Altman RB, Hudgins L, Galli SJ, Lowe HJ, Schrijver I, Magnus DC.
    Genomics in the Clinic: ethical and policy challenges in clinical next-generation sequencing programs at early adopter institutions.
    Personalized Medicine. , 2015 : 12(3)269-282
  • Milner LC, Garrison NA, Cho MK, Altman RB, Hudgins L, Galli SJ, Lowe HJ, Schrijver I, Magnus DC.
    Genomics in the Clinic: Ethical and policy challenges in clinical next-generation sequencing programs at early adopter institutions.
    Personalized Medicine. , 2015 : 12(3)269-282.
  • Fanning JB, Garrison NA, Churchill LR.
    Beyond the Recommendation: Discerning Achievable Goals in Clinical Ethics Consultation.
    American Journal of Bioethics. , 2015 : 15(1)42-44
  • Bardill JD, Garrison NA.
    Naming Indigenous Concerns, Framing Considerations for Stored Biospecimens.
    American Journal of Bioethics , 2015 : 15(9)73-75
  • Burns JP, Sellers DE, Meyer EC, Lewis-Newby M, Truog RD
    Epidemiology of death in the PICU at five U.S. teaching hospitals*.
    24979486 Critical care medicine , 2014 Sept. : 42(9)2101-8 PMCID: PMC4134743
  • Douglas J. Opel, MD, MPH
    Impact of a Pertussis Epidemic on Infant Vaccination in Washington State
    Pediatrics , 2014 Aug. 18 : 456-64
  • Rosenberg AR | Dussel V | Orellana L | Kang T | Geyer JR | Feudtner C | Wolfe J
    What's missing in missing data? Omissions in survey responses among parents of children with advanced cancer.
    PMC4118710 Journal of palliative medicine , 2014 Aug. - 2014 Aug. : 17(8)953-6
  • Ross M. Hays, MD
    Integrating Palliative Care Into the PICU: A Report From the Improving Palliative Care in the ICU Advisory Board
    Pediatr Crit Care Med , 2014 July 30
  • Benjamin S. Wilfond, MD
    Phenylketonuria Scientific Review Conference: State of the Science and Future Research Needs
    Molecular Genetics and Metabolism , 2014 June : 112(2)87-122
  • Benjamin S. Wilfond, MD
    Assent in Research: the Voices of Adolescents
    J Adolescent Medicine , 2014 May : 54(5)515-20
  • Grady C, Wiener L, Abdoler E, Trauernicht E, Zadeh S, Diekema DS, Wilfond BS, Wendler D
    Assent in research: the voices of adolescents.
    24630932 The Journal of adolescent health : official publication of the Society for Adolescent Medicine , 2014 May : 54(5)515-20 PMCID: PMC4047975
  • Douglas J. Opel, MD, MPH
    How You Start the Conversation Matters
    Minn Med. , 2014 May : 97(5)50-1
  • Benjamin S. Wilfond, MD
    Accepting Brain Death
    N Engl J Med , 2014 Mar. 6 : 370891-94
  • Clayton EW, McCullough LB, Biesecker LG, Joffe S, Ross LF, Wolf SM, Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group
    Addressing the ethical challenges in genetic testing and sequencing of children.
    24592828 The American journal of bioethics : AJOB , 2014 Mar. : 14(3)3-9 PMCID: PMC3950962
  • Douglas J. Opel, MD, MPH
    A 6-Month-Old With Vaccine-Hesitant Parents
    Pediatrics , 2014 Mar. : 133(3)526-30
  • Benjamin S. Wilfond, MD
    Tracheostomies and Assisted Ventilation in Children with Profound Disabilities: Navigating Family and Professional Values
    Pediatrics , 2014 Feb. : 133(Supplement)S44-S49
  • Benjamin S. Wilfond, MD
    Parental permission for pilot newborn screening research: guidelines from the NBSTRN
    Pediatrics , 2014 Feb. : 133(2)e410-7
  • Benjamin S. Wilfond, MD
    Our Children Are Not a Diagnosis: The Experience of Parents Who Continue Their Pregnancy After a Prenatal Diagnosis of Trisomy 13 or 18
    Am J Med Genet A , 2014 Feb. : 164(2)308-18
  • Molina Y, Yi JC, Martinez-Gutierrez J, Reding KW, Yi-Frazier JP, Rosenberg AR
    Resilience among patients across the cancer continuum: diverse perspectives.
    24476731 Clinical journal of oncology nursing , 2014 Feb. - 2014 Feb. : 18(1)93-101 PMCID: PMC4002224
  • Diekema DS
    Religious Objections to Medical Care
    Bioethics , 2014 : 2713-2717
  • Lewis-Newby
    Epidemiology of Death in the Pediatric Intensive Care Unit at Five U.S. Teaching Hospitals
    Crit Care Med , 2014 : 42(9)2101-08
  • Lewis-Newby, M
    Pediatric Triage and Allocation of Critical Care Resources During Disaster: Northwest Provider Opinion
    Prehosp Disaster Med , 2014 : 29(5)455-60
  • Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA, eMERGE ROR Committee and CERC Committee, CSER Act-ROR Working Group, Burke, W.
    Return of Genomic Results to Research Participants: the floor, the ceiling, and choices in-between.
    24814192 The American Journal of Human Genetics. , 2014 : 94(6)818-826
  • Garrison NA, Non AL.
    Direct-To-Consumer Genomics Companies Should Provide Guidance to Their Customers on (Not) Sharing Personal Genomic Information. American Journal of Bioethics.
    American Journal of Bioethics. , 2014 : 14(11)55-57
  • Garrison NA, Non AL
    Direct-To-Consumer Genomics Companies Should Provide Guidance to Their Customers on (Not) Sharing Personal Genomic Information.
    American Journal of Bioethics. , 2014 : 14(11)55-57
  • Garrison, NA
    1. "A Systematic Review of Individuals' Perspectives on Broad Consent and Data Sharing in the United States."
    American Society of Human Genetics , 2014
  • Benjamin S. Wilfond, MD
    Quality Improvement Ethics: Lessons From the SUPPORT Study
    Am J Bioeth , 2013 Dec. : 13(12)14-19
  • Douglas J. Opel, MD, MPH
    The Architecture of Provider-Parent Vaccine Discussions at Health Supervision Visits
    Pediatrics , 2013 Dec. : 132(6)1037-46
  • Douglas J. Opel, MD, MPH
    Rethinking Vaccine Policy Making in an Era of Vaccine Hesitancy: Time to Rebuild, Not Remodel?
    Hum Vaccin Immunother , 2013 Dec. : 9(12)2672-3
  • Wilfond
    Oxygen and Estrogen
    Hastings Center Report , 2013 Nov. : 43(6)
  • Douglas J. Opel, MD, MPH
    The Relationship Between Parent Attitudes About Childhood Vaccines Survey Scores and Future Child Immunization Status: a Validation Study
    JAMA Pediatr , 2013 Nov. : 167(11)1065-71
  • Benjamin S. Wilfond, MD
    Challenging Cases in Research Ethics
    Am J Bioeth , 2013 Oct. : 13(10)60
  • Benjamin S. Wilfond, MD
    The ethics of contacting family members of a subject in a genetic research study to return results for an autosomal dominant syndrome
    Am J Bioeth , 2013 Oct. : 13(10)61
  • Benjamin S. Wilfond, MD
    Managing disclosure of research misconduct by a graduate student to a university mental health professional during a clinical counseling session
    Am J Bioeth , 2013 Oct. : 13(10)68
  • Douglas J. Opel, MD, MPH
    Use of Alternative Childhood Immunization Schedules in King County, Washington, USA
    Vaccine , 2013 Oct. 1 : 31(42)4699-701
  • Ross M. Hays, MD, Crit Care Med.
    Choosing and Using Screening Criteria for Palliative Care Consultation in the ICU: a Report from the Improving Palliative Care in the ICU (IPAL-ICU) Advisory Board
    Crit Care Med , 2013 Oct. : 41(10)2318-27
  • Mann PC, Woodrum DE, Wilfond BS
    Fuzzy images: Ethical implications of using routine neuroimaging in premature neonates to predict neurologic outcomes.
    23623529 The Journal of pediatrics , 2013 Aug. : 163(2)587-92
  • Wilfond
    Recommendations for returning genomic incidental findings? We need to talk!
    Genet Med , 2013 Aug. : 15(11)85459
  • Wilfond
    Growing Up in the Genomic Era: Implications of Whole-Genome Sequencing for Children, Families and Pediatric Practice
    Annu Rev Genomics Hum Genet , 2013 Aug. : 14535-55
  • Mann PC, Woodrum DE, Wilfond BS
    Fuzzy Images: Ethical Implications of Using Routine Neuroimaging in Premature Neonates to Predict Neurologic Outcomes
    J Pediatr , 2013 Aug. : 163(2)587-592
  • Mann PC and Wilfond BS
    Fuzzy Images: Ethical Implications of Using Routine Neuroimaging in Premature Neonates to Predict Neurologic Outcomes
    Journal of Pediatrics , 2013 Aug. : 163(2)587-592
  • Wilfond
    Enhancing Children Against Unhealthy Behaviors An Ethical and Policy Assessment of Using a Nicotine Vaccine
    Public Health Ethics , 2013 July : 6(2)197-206
  • Douglas J. Opel, MD, MPH
    Missed Opportunities for Adolescent Vaccination, 2006-2011
    J Adolesc Health , 2013 July 1 : 53(4)492-7
  • Wilfond, et all
    The OHRP and SUPPORT
    The New England journal of medicine , 2013 June 5
  • Diekema, et all
    The OHRP and SUPPORT
    The New England journal of medicine , 2013 June 5
  • Woodrum, et all
    The OHRP and SUPPORT
    The New England journal of medicine , 2013 June 5
  • Rosenberg AR | Dussel V | Kang T | Geyer JR | Gerhardt CA | Feudtner C | Wolfe J
    Psychological distress in parents of children with advanced cancer.
    PMC4263253 JAMA pediatrics , 2013 June - 2013 June : 167(6)537-43
  • Rosenberg AR, Dussel V, Kang T, Geyer JR, Gerhardt CA, Feudtner C, Wolfe J
    Psychological distress in parents of children with advanced cancer.
    23545569 JAMA pediatrics , 2013 June - 2013 June : 167(6)537-43 PMCID: PMC4263253
  • Moreno MA, Goniu N, Moreno PS, Diekema DS
    Ethics of Social Media Research: Common Concerns and Practical Considerations
    Cyberpsychology, Behavior, and Social Networking , 2013 May 16 : 16(5)
  • Doorenbos AZ, Starks H, Bourget E, McMullan DM, Lewis-Newby M, Rue TC, Lindhorst T, Aisenberg E, Oman N, Curtis JR, Hays And The Seattle Ethics In Ecls See Consortium Jonna D Clark Md Ma Harris P Baden Md Thomas V Brogan Md Jane L Di Gennaro Md Robert Mazor Md Joan S Roberts Md Jessica Turnbull Md And Benjamin S Wilfond Md
    Examining Palliative Care Team Involvement in Automatic Consultations for Children on Extracorporeal Life Support in the Pediatric Intensive Care Unit
    J Palliat Med , 2013 May 13 : 16(5)492-95
  • Doorenbos, A.Z., Starks, H., Bourget, E., McMullen, D.M., Lewis-Newby, M., Rue, T.C., Lindhorst, T., Aisenberg, E., Oman, N., Curtis, J.R., Hays, R.
    Examining Palliative Care Team Involvement in Automatic Consultations for Children on Extracorporeal Life Support in the Pediatric Intensive Care Unit
    J Palliat Med , 2013 May 13 : 16(5)492-95
  • Committee on Bioethics, American Academy of Pediatrics
    Policy Statement: Ethical Controversies in Organ Donation after Circulatory Death
    Pediatrics , 2013 Apr, 29 : 131(5)1021-26
  • David E. Woodrum, MD
    Fuzzy Images: Ethical Implications of Using Routine Neuroimaging in Premature Neonates to Predict Neurologic Outcomes
    J Pediatr , 2013 Apr, 26
  • Opel DJ, Marcuse EK
    Window or Mirror: Social Networks' Role in Immunization Decisions
    Pediatrics , 2013 Apr, 15 : 131(5)1619-20
  • Douglas S. Diekema, MD, MPH
    The Intersection of Evidence and Values in Clinical guidelines: Who Decides What Constitutes Acceptable Risk in the Care of Children?
    Hospital Pediatrics , 2013 Apr, 1 : 3(2)87-91
  • Opel DJ, Taylor JA, Phillipi CA, Diekema DS
    The Intersection of Evidence and Values in Clinical guidelines: Who Decides What Constitutes Acceptable Risk in the Care of Children?
    Hospital Pediatrics , 2013 Apr, 1 : 3(2)87-91
  • AAP Task Force on Circumcision (Diekema primary author)
    Cultural Bias and Circumcision: The AAP Task Force on Circumcision Responds
    Pediatrics , 2013 Mar. 18 : 131(4)801-4
  • The AAP Task Force on Circumcision 2012
    The AAP Task Force on Neonatal Circumcision: a call for respectful dialogue.
    23508207 Journal of medical ethics , 2013 Mar. 18
  • Ross LF, Saal HM, Anderson R, David K, American Academy of Pediatrics Committee on Bioethics, American Academy of Pediatrics Committee on Genetics, and American College of Medical Genetics and Genomics Social, Ethical, and Legal Issues Committee
    Ethical and Policy Issues in Genetic Testing and Screening of Children: Technical Report
    Genetics in Medicine , 2013 Feb. 21 : 15(3)234-245
  • Douglas S. Diekema, MD, MPH
    Policy Statement: Ethical and policy issues in genetic testing and screening of children.
    Genetics in medicine : official journal of the American College of Medical Genetics , 2013 Feb. 21 : 15(3)620-22
  • Rosen D, Wilfond B, Lantos JD
    Obstructive Sleep Apnea in a 17-Year-Old With Profound Cognitive Impairment
    Pediatrics , 2013 Feb. : 131(3)581-5
  • Melvin AJ, Edwards K, Malone J, Hassell L, Wilfond BS
    Role for CTSAs in Leveraging a Distributed Research Infrastructure to Engage Diverse Stakeholders in Emergent Research Policy Development
    Clin Transl Sci , 2013 Feb. : 6(1)57-9
  • 85. McCormick JB, Sharp RR, Ottenberg AL, Reider CR, Taylor HA, Wilfond BS
    The Establishment of Research Ethics Consultation Services (RECS): An Emerging Research Resource
    Clin Transl Sci , 2013 Feb. : 6(1)40-4
  • McCormick JB, Sharp RR, Ottenberg AL, Reider CR, Taylor HA, Wilfond BS
    The establishment of research ethics consultation services (RECS): an emerging research resource.
    23399088 Clinical and translational science , 2013 Feb. : 6(1)40-4 PMCID: PMC3573851
  • Opel DJ, Marcuse EK
    The Enigma of Alternative Childhood Immunization Schedules: What Are the Questions?
    JAMA Pediatrics , 2013 Jan. 21 : 167(3)304-5
  • Mann PC, Cooper ME, Ryckman KK, Comas B, Gili J, Crumley S, Bream EN, Byers HM, Piester T, Schaefer A, Christine PJ, Lawrence A, Schaa KL, Kelsey KJP, Berends SK, Momany AM, Gadow E, Cosentino V, Castilla EE, Lopez Camelo J, Saleme C, Day LJ, England SK, Marazita ML, Dagle JM, Murray JC
    Polymorphism in the fetal progesterone receptor and a calcium-activated potassium channel isoform are associated with preterm birth in an Argentinian population
    Journal of Perinatology , 2013 : 33336-340
  • Gillett ES, Deutsch GH, Bamshad MJ, McAdams RM, Mann PC
    Novel NKX2.1 Mutation Associated with Hypothyoidism and Lethal Respiratory Failure in a Full-Term Neonate
    Journal of Perinatology , 2013 : 33157-60
  • Mithya Lewis-Newby, MD, MPH
    Family Centered Care at the End of a Child's Life: We Must Get This Right
    Minerva Anestesiol , 2013 : 79(12)1321-3
  • Mithya Lewis-Newby, MD, MPH
    Examining Palliative Care Team Involvement in Automatic Consults for Children on Extracorporeal Life Support (ECLS) in the Pediatric Intensive Care Unit
    J Palliat Med , 2013 : 16(5)492-95
  • Garrison NA.
    Genomic Justice for Indigenous Americans: Impact of the Havasupai Case on Genetic Research.
    Science, Technology & Human Values. , 2013 : 38(2)201-223
  • Garrison NA, Rohlfs RV, Fullerton SM.
    Forensic familial searching: scientific and social implications.
    Nature Reviews Genetics. , 2013 : 14(7)445
  • Milner LC, Liu EY, Garrison NA.
    Relationships Matter: Ethical considerations for returning results to family members of deceased subjects.
    American Journal of Bioethics. , 2013 : 13(10)66-67
  • Doorenbos, A. Z., Lindhorst, T., Starks, H., Aisenberg, E., Curtis, J. R., & Hays, R.
    Palliative Care in the Pediatric ICU: Challenges and Opportunities For Family Centered Practice
    Journal of Social Work in End-of-Life and Palliative Care , 2012 Nov. 29 : 8(4)297-315
  • Shand J, Berg J, Bogue C, Committee for Pediatric Research, Committee on Bioethics
    Human embryonic stem cell (hESC) and human embryo research.
    23109685 Pediatrics , 2012 Nov. : 130(5)972-7
  • Opel DJ
    Physician, Parent, Patient: Where Exactly Is the Line?
    Hastings Center Report , 2012 Oct. 15 : 42(6)14-18
  • Mai PL, Malkin D, Garber JE, Schiffman JD, Weitzel JN, Strong LC, Wyss O, Locke L, Means V, Achatz MI, Hainaut P, Frebourg T, Evans DG, Bleiker E, Patenaude A, Schneider K, Wilfond B, Peters JA, Hwang PM, Ford J, Tabori U, Ognjanovic S, Dennis PA, Wentzensen IM, Greene MH, Fraumeni JF Jr, Savage SA.
    Li-Fraumeni Syndrome: Report of a Clinical Research Workshop and Creation of a Research Consortium
    Cancer Genet , 2012 Oct. : 205(10)479-87
  • Opel DJ, Banerjee A, King P, Paul C, Glassy D, Yasuda K
    Washington State Licensed Child Care Facility Directors' Perspectives on Childhood Immunization
    Journal of the Pediatric Infectious Disease Society , 2012 Sept. 19 : 2(1)40-9
  • Beskow LM, Fullerton SM, Namey EE, Nelson DK, Davis AM, Wilfond BS
    Recommendations for ethical approaches to genotype-driven research recruitment.
    22622788 Human genetics , 2012 Sept. : 131(9)1423-31
  • American Academy of Pediatrics Task Force on Circumcision
    Male circumcision.
    22926175 Pediatrics , 2012 Sept. : 130(3)e756-85
  • American Academy of Pediatrics Task Force on Circumcision
    Circumcision policy statement.
    22926180 Pediatrics , 2012 Sept. : 130(3)585-6
  • Janvier A, Farlow B, Wilfond BS
    The experience of families with children with trisomy 13 and 18 in social networks.
    22826570 Pediatrics , 2012 Aug. : 130(2)293-8
  • Opel DJ, Olson ME
    Ethics for the Pediatrician: Bioethics Education and Resources
    Pediatrics in Review , 2012 Aug. 1 : 33(8)370-73
  • Taylor JA, Opel DJ
    Choriophobia: A One-Act Play
    Pediatrics , 2012 July 9 : 130(2)342-6
  • Wilfond B
    Predicting our future: lessons from Winnie-the-Pooh.
    22777968 The Hastings Center report , 2012 July : 42(4)3
  • Douglas S. Diekema, MD, MPH
    Female Genital Cutting: The Misnomer of Female Circumcision
    Surgical Guide to Circumcision , 2012 July : 281-90
  • Jonna Derbenwick Clark, MD
    Balancing the Tension: Parental Authority and the Perception of Physician Paternalism in End of Life Care
    Arch Pediatr Adolesc Med , 2012 July : 166(7)594
  • Mann PC, Morriss FH, Klein JM
    Prediction of Survival in Infants with Congenital Diaphragmatic Hernia Based on Stomach Position, Surgical Timing, and Oxygenation Index
    American Journal of Perinatology , 2012 May : 29(5)383-90
  • Wilfond BS, Diekema DS
    Engaging children in genomics research: decoding the meaning of assent in research.
    22323071 Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr, : 14(4)437-43
  • Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA
    Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
    22436882 Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr, : 14(4)361-84
  • Wilfond BS, Diekema DS
    Engaging children in genomics research: decoding the meaning of assent in research.
    22323071 Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr, : 14(4)437-43
  • Mosenthal AC, Weissman DE, Curtis JR, Hays RM, Lustbader DR, Mulkerin C, Puntillo KA, Ray DE, Bassett R, Boss RD, Brasel KJ, Campbell M, Nelson JE
    Integrating Palliative Care in the Surgical and Trauma Intensive Care Unit: A Report From the Improving Palliative Care in the Intensive Care Unit (IPAL-ICU) Project Advisory Board and the Center to Advance Palliative Care
    Crit Care Med , 2012 Apr, 1 : 40(4)1199 - 1206
  • Lustbader DR, Nelson JE, Weissman DE, Hays RM, Mosenthal AC, Mulkerin C, Puntillo KA, Ray DE, Bassett R, Boss RD, Brasel KJ, Campbell ML, Cortez TB, Curtis JR
    Physician Reimbursement For Critical Care Services Integrating Palliative Care For Critically Ill Patients
    Chest , 2012 Mar. 1 : 141(3)787-92
  • Opel DJ, Robinson JD, Heritage J, Korfiatis C, Taylor JA, Mangione-Smith R
    Characterizing Providers Immunization Communication Behaviors during Health Supervision Visits with Vaccine-Hesitant Parents: A Pilot Study
    Vaccine , 2012 Feb. 8 : 30(7)1269-75
  • Diekema DS
    Improving childhood vaccination rates.
    22296072 The New England journal of medicine , 2012 Feb. : 366(5)391-3
  • Mithya Lewis-Newby, MD, MPH
    The Simulation Team Assessment Tool (STAT): Development, Reliability and Validation
    Resuscitation , 2012 : 83(7)879-86
  • Garrison NA, Magnus D.
    The instrumental role of hospital ethics committees in policy work.
    American Journal of Bioethics. , 2012 : 12(11)1-2
  • Garrison, NA.
    Cases of How Tribes are Relating to Genetics Research.
    In P. Sahota (Ed.). American Indian and Alaska Native Genetics Resource Center: Web-Based Resource Guide. , 2012
  • Beskow LM, Namey EE, Cadigan RJ, Brazg T, Crouch J, Henderson GE, Michie M, Nelson DK, Tabor HK, Wilfond BS
    Research participants' perspectives on genotype-driven research recruitment.
    22228056 Journal of empirical research on human research ethics : JERHRE , 2011 Dec. : 6(4)3-20 PMCID: PMC3395316
  • Tabor HK, Brazg T, Crouch J, Namey EE, Fullerton SM, Beskow LM, Wilfond BS
    Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment.
    22228059 Journal of empirical research on human research ethics : JERHRE , 2011 Dec. : 6(4)41-52 PMCID: PMC3426316
  • Wightman A, Opel DJ, Marcuse EK, Taylor JA
    Washington State pediatricians' attitudes toward alternative childhood immunization schedules.
    22123877 Pediatrics , 2011 Dec. - 2011 Dec. : 128(6)1094-9 PMCID: PMC3387893
  • Wightman A, Opel DJ, Marcuse E, Taylor J
    Washington State Pediatricians Attitudes Towards Alternative Childhood Immunization Schedules
    Pediatrics , 2011 Nov. 28 : 128(6)1094-9
  • Tarini BA, Tercyak KP, Wilfond BS
    Commentary: Children and predictive genomic testing: disease prevention, research protection, and our future.
    21816897 Journal of pediatric psychology , 2011 Nov. : 36(10)1113-21 PMCID: PMC3199444
  • Jonna Derbenwick Clark, MD
    The False Dichotomy: Do Everything or Give Up
    Amer J Bioethics , 2011 Nov. : 11(11)26-7
  • Opel DJ, Diekema DS
    Finding the proper balance between freedom and justice: why we should not eliminate personal belief exemptions to vaccine mandates.
    Journal of health politics, policy and law , 2011 Oct. 14 : 37(1)141-7
  • Opel DJ, Diekema DS
    Finding the proper balance between freedom and justice: why we should not eliminate personal belief exemptions to vaccine mandates
    Journal of health politics, policy and law , 2011 Oct. 14 : 37(1)141-7
  • Wilfond BS, Carey JC
    Parental Requests for Interventions in Children With Lethal Conditions in Clinical Ethics in Pediatrics: A Case Based Textbook
    Cambridge University Press , 2011 Oct. : 174-180
  • Douglas S. Diekema, MD, MPH
    Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct.
  • Douglas S. Diekema, MD, MPH
    When Institutional, Professional, and Public Health Obligations Conflict: The Controversial Case of Youth Boxing in Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct. : 211-14
  • Douglas S. Diekema, MD, MPH
    The Impaired, Incompetent, and Unethical Provider in Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct. : 231-34
  • Douglas S. Diekema, MD, MPH
    Parental Refusals of Vaccination and School Vaccine Mandates: Balancing Parental Freedom, Child Welfare, and Public Health in Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct. : 205-10
  • Douglas S. Diekema, MD, MPH
    Parental Refusals of Recommended Medical Interventions in Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct. : 14-7
  • Douglas S. Diekema, MD, MPH
    Reasons to think twice before calling CPS about morbid obesity
    AAP Grand Rounds , 2011 Oct. : 26(4)48
  • Opel D
    Parental Refusals of Vaccination and School Vaccine Mandates: Balancing Parental Freedom, Child Welfare, and Public Health In Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct. : 205-10
  • Payne DC, Humiston S, Opel DJ, Klein E, Kennedy A, Wikswo M, Downing K, Kobayashi A, Albertin C, Chesley C, Staat M
    A Multi-Center, Qualitative Assessment of Pediatrician and Parental Perspectives in Addressing the Detection of Porcine Circovirus in Rotavirus Vaccines
    BMC Pediatrics , 2011 Sept. 26 : 11:83
  • Beth A. Tarini, MD, MS, Kenneth P. Tercyak, PHD, and Benjamin S. Wilfond, MD
    Response to the Commentary: Children and Predictive Genomic Testing
    J Pediatr Psychol , 2011 Sept. 9 : 36(10)1128-9
  • Press N, Wilfond BS, Murray M, Burke W
    The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing in Achieving Justice in Genome Translation: Rethinking the Pathway to Benefit
    Oxford University Press , 2011 Sept.
  • Douglas S. Diekema, MD, MPH
    Examining the Quest to Eliminate Discrepancies in IRB Decisions
    AJOB Primary Research , 2011 Aug. : 2(2)34-6
  • Douglas S. Diekema, MD, MPH
    Clinical Report: Maternal-Fetal Intervention and Fetal Care Centers
    Pediatrics , 2011 Aug. : 128e473-78
  • Committee on Pediatric Emergency Medicine and Committee on Bioethics
    Policy Statement: Consent for emergency medical services for children and adolescents.
    21788221 Pediatrics , 2011 Aug. : 128(2)427-33
  • Diekema DS
    Adolescent refusal of lifesaving treatment: are we asking the right questions?
    22106736 Adolescent medicine: state of the art reviews , 2011 Aug. : 22(2)213-28
  • Opel DJ, Taylor J, Mangione-Smith R, Solomon C, Catz S, and Martin D
    Construct Validity of a Survey to Identify Vaccine-Hesitant Parents
    Vaccine , 2011 July 16 : 29(38)
  • Alison D Archibald, Benjamin S Wilfond
    Population Carrier Screening: Psychological Impact
    Wiley and Sons , 2011 July 15 : eLS
  • Nishisaki A, Diekema DS
    Mind the gap and narrowing it: family presence during pediatric resuscitation and invasive procedures.
    21514713 Resuscitation , 2011 June : 82(6)655-6
  • Diekema DS
    Revisiting the best interest standard: uses and misuses.
    21837884 The Journal of clinical ethics , 2011 June : 22(2)128-33
  • Feudtner J, Kang T, Hexem K, Friebert S, Friedrichdorf S, Osenga K, Siden H, Hays R, Dussel V, Wolfe J
    Pediatric Palliative Care Patients: A Prospective Multicenter Cohort Study
    Pediatrics , 2011 June 1 : 127(6)1094 - 1101
  • Tercyak KP, Hensley Alford S, Emmons KM, Lipkus IM, Wilfond BS, McBride CM
    Parents' attitudes toward pediatric genetic testing for common disease risk.
    21502235 Pediatrics , 2011 May : 127(5)e1288-95 PMCID: PMC3081191
  • Douglas S. Diekema, MD, MPH
    Waitress in The Picture of Health: Medical Ethics and the Movies
    Oxford University Press , 2011 May : 186-91
  • Richer J, Ghebremichael MS, Chudley AE, Robinson WM, Wilfond BS, Solomon MZ
    Research use of leftover newborn bloodspots: attitudes of Canadian geneticists regarding storage and informed consent requirements.
    20921895 Genetics in medicine : official journal of the American College of Medical Genetics , 2011 Apr, : 13(4)305-13
  • Opel DJ, Korfiatis C, Wiese C, Catz S, Mangione-Smith R, Taylor JA, and Martin
    Development of a Survey to Identify Vaccine Hesitant Parents: The Parental Attitudes about Childhood Vaccines Survey
    Human Vaccines , 2011 Apr, 1 : 7(4)419-25
  • Rosenthal MS, Diekema DS
    Pediatric ethics guidelines for hereditary medullary thyroid cancer.
    21436957 International journal of pediatric endocrinology , 2011 Mar. : 847603 PMCID: PMC3198744
  • Hays R, Adams L, Frost M
    Introducing Home-Based Palliative Care and Hospice in the Textbook of Interdisciplinary Pediatric Palliative Care
    Elsevier, Philadelphia , 2011 Feb. 9 : 195-199
  • Opel DJ, Diekema DS, Marcuse EK
    Not Just a Bad Apple, but a Bad Barrel: The Biomedical Research System in the Wake of Wakefield
    BMJ , 2011 Jan. 22 : 342179 - 80
  • Opel DJ, Diekema DS, Marcuse EM
    Not Just a Bad Apple, but a Bad Barrel: The Biomedical Research System in the Wake of Wakefield
    BMJ , 2011 Jan. 22 : 342.179-80
  • Benjamin S. Wilfond.
    Growth Attenuation: Health Outcomes and Social Services
    Hastings Center Report , 2011 : 41(5)7-8
  • Goldenberg AJ, Hull SC, Wilfond BS, Sharp RR.
    Patient Perspectives on Group Benefits and Harms in Genetic Research
    Public Health Genomics , 2011 : 14(3)135-42
  • Myers RE, Manne SL, Wilfond B, Sifri R, Ziring B, Wolf TA, Cocroft J, Ueland A, Petrich A, Swan H, DiCarlo M, Weinberg DS
    A randomized trial of genetic and environmental risk assessment (GERA) for colorectal cancer risk in primary care: trial design and baseline findings.
    20828635 Contemporary clinical trials , 2011 Jan. : 32(1)25-31 PMCID: PMC3006063
  • Douglas S. Diekema, MD, MPH
    Bone Marrow Donation Between Siblings Living in Different Families
    Pediatrics , 2011 Jan. : 127(1)158-62
  • Mithya Lewis-Newby, MD, MPH
    Measuring Family Satisfaction with Care and Quality of Dying in the Intensive Care Unit: Does Patient Age Matter?
    J Palliat Med , 2011 : 14(12)1284-90
  • Lewis-Newby, M
    Family Centered Care
    Pediatric Critical Care, 4th Edition , 2010
  • Rosenberg A | Knox S
    Radiation sensitization with redox modulators: a promising approach.
    International journal of radiation oncology, biology, physics , 2006 Feb. 1 - 2006 Feb. 1 : 64(2)343-54
  • Rosenberg A, Knox S
    Radiation sensitization with redox modulators: a promising approach.
    16414370 International journal of radiation oncology, biology, physics , 2006 Feb. 1 - 2006 Feb. 1 : 64(2)343-54
  • Douglas S. Diekema
    Male Circumcision [Addenedum]
    Bioethics : 586-588