Bioethics

Publications

Publications

  • Cho MK, Magnus D, Constantine M, Lee SS, Kelley M, Alessi S, Korngiebel D, James C, Kuwana E, Gallagher TH, Diekema D, Capron AM, Joffe S, Wilfond BS
    Attitudes Toward Risk and Informed Consent for Research on Medical Practices: A Cross-sectional Survey.
    Annals of internal medicine , 2015 Apr, 14
  • Chong JX, McMillin MJ, Shively KM, Beck AE, Marvin CT, Armenteros JR, Buckingham KJ, Nkinsi NT, Boyle EA, Berry MN, Bocian M, Foulds N, Uzielli ML, Haldeman-Englert C, Hennekam RC, Kaplan P, Kline AD, Mercer CL, Nowaczyk MJ, Klein Wassink-Ruiter JS, McPherson EW, Moreno RA, Scheuerle AE, Shashi V, Stevens CA, Carey JC, Monteil A, Lory P, Tabor HK, Smith JD, Shendure J, Nickerson DA, University of Washington Center for Mendelian Genomics, Bamshad MJ
    De Novo Mutations in NALCN Cause a Syndrome Characterized by Congenital Contractures of the Limbs and Face, Hypotonia, and Developmental Delay.
    American Journal of Human Genetics , 2015 Mar. 5 : 96(3)462-73
  • Amendola LM, Dorschner MO, Robertson PD, Salama JS, Hart R, Shirts BH, Murray ML, Tokita MJ, Gallego CJ, Kim DS, Bennett JT, Crosslin DR, Ranchalis J, Jones KL, Rosenthal EA, Jarvik ER, Itsara A, Turner EH, Herman DS, Schleit J, Burt A, Jamal SM, Abrudan JL, Johnson AD, Conlin LK, Dulik MC, Santani A, Metterville DR, Kelly M, Foreman AK, Lee K, Taylor KD, Guo X, Crooks K, Kiedrowski LA, Raffel LJ, Gordon O, Machini K, Desnick RJ, Biesecker LG, Lubitz SA, Mulchandani S, Cooper GM, Joffe S, Richards CS, Yang Y, Rotter JI, Rich SS, O'Donnell CJ, Berg JS, Spinner NB, Evans JP, Fullerton SM, Leppig KA, Bennett RL, Bird T, Sybert VP, Grady WM, Tabor HK, Kim JH, Bamshad MJ, Wilfond B, Motulsky AG, Scott CR, Pritchard CC, Walsh TD, Burke W, Raskind WH, Byers P, Hisama FM, Rehm H, Nickerson DA, Jarvik GP
    Actionable exomic incidental findings in 6503 participants: challenges of variant classification.
    Genome Research , 2015 Mar. : 25(3)305-15
  • Magnus D, Wilfond BS
    Research on medical practices and the ethics of disclosure.
    Pediatrics , 2015 Feb. : 135(2)208-10
  • Lewis-Newby M, Wicclair M, Pope T, Rushton C, Curlin F, Diekema D, Durrer D, Ehlenbach W, Gibson-Scipio W, Glavan B, Langer RL, Manthous C, Rose C, Scardella A, Shanawani H, Siegel MD, Halpern SD, Truog RD, White DB, ATS Ethics and Conflict of Interest Committee
    An official American Thoracic Society policy statement: managing conscientious objections in intensive care medicine.
    American journal of respiratory and critical care medicine , 2015 Jan. 15 : 191(2)219-27
  • Kunz SN, McAdams RM, Diekema DS, Opel DJ
    A quality of life quandary: a framework for navigating parental refusal of treatment for co-morbidities in infants with underlying medical conditions.
    The Journal of clinical ethics , 2015 : 26(1)16-23
  • Douglas S. Diekema, MD, MPH Douglas S. Diekema
    Public Health Issues in Pediatrics
    Bioethics, 4th Edition , 2015 : 2366-2369
  • Managing Conscientious Objections in Intensive Care Medicine: An Official Policy Statement of the American Thoracic Society
    Am J Respir Crit Care Med , 2015 : 191(2)219-27
  • Pediatric Disposition Classification (Reverse-Triage) System to Create Surge Capacity
    Disaster Med Public Health Prep , 2015
  • Delgado F, Tabor HK, Chow PM, Conta JH, Feldman KW, Tsuchiya KD, Beck AE
    Single-nucleotide polymorphism arrays and unexpected consanguinity: considerations for clinicians when returning results to families.
    Genetics in Medicine , 2014 Sept. 18
  • Burns JP, Sellers DE, Meyer EC, Lewis-Newby M, Truog RD
    Epidemiology of death in the PICU at five U.S. teaching hospitals*.
    Critical care medicine , 2014 Sept. : 42(9)2101-8
  • Impact of a Pertussis Epidemic on Infant Vaccination in Washington State
    Pediatrics , 2014 Aug. 18 : 456-64
  • Tabor HK, Auer PL, Jamal SM, Chong JX, Yu JH, Gordon AS, Graubert TA, O'Donnell CJ, Rich SS, Nickerson DA, NHLBI Exome Sequencing Project, Bamshad MJ
    Pathogenic variants for Mendelian and complex traits in exomes of 6,517 European and African Americans: implications for the return of incidental results.
    American Journal of Human Genetics , 2014 Aug. 7 : 95(2)183-93
  • Integrating Palliative Care Into the PICU: A Report From the Improving Palliative Care in the ICU Advisory Board
    Pediatr Crit Care Med , 2014 July 30
  • Phenylketonuria Scientific Review Conference: State of the Science and Future Research Needs
    Molecular Genetics and Metabolism , 2014 June : 112(2)87-122
  • Assent in Research: the Voices of Adolescents
    J Adolescent Medicine , 2014 May : 54(5)515-20
  • Grady C, Wiener L, Abdoler E, Trauernicht E, Zadeh S, Diekema DS, Wilfond BS, Wendler D
    Assent in research: the voices of adolescents.
    The Journal of adolescent health : official publication of the Society for Adolescent Medicine , 2014 May : 54(5)515-20
  • How You Start the Conversation Matters
    Minn Med. , 2014 May : 97(5)50-1
  • McMillin MJ, Beck AE, Chong JX, Shively KM, Buckingham KJ, Gildersleeve HI, Aracena MI, Aylsworth AS, Bitoun P, Carey JC, Clericuzio CL, Crow YJ, Curry CJ, Devriendt K, Everman DB, Fryer A, Gibson K, Giovannucci Uzielli ML, Graham JM Jr, Hall JG, Hecht JT, Heidenreich RA, Hurst JA, Irani S, Krapels IP, Leroy JG, Mowat D, Plant GT, Robertson SP, Schorry EK, Scott RH, Seaver LH, Sherr E, Splitt M, Stewart H, Stumpel C, Temel SG, Weaver DD, Whiteford M, Williams MS, Tabor HK, Smith JD, Shendure J, Nickerson DA, University of Washington Center for Mendelian Genomics, Bamshad MJ
    Mutations in PIEZO2 cause Gordon syndrome, Marden-Walker syndrome, and distal arthrogryposis type 5.
    American Journal of Human Genetics , 2014 May 1 : 94(5)734-44
  • Gordon AS, Tabor HK, Johnson AD, Snively BM, Assimes TL, Auer PL, Ioannidis JP, Peters U, Robinson JG, Sucheston LE, Wang D, Sotoodehnia N, Rotter JI, Psaty BM, Jackson RD, Herrington DM, O'Donnell CJ, Reiner AP, Rich SS, Rieder MJ, Bamshad MJ, Nickerson DA, NHLBI GO Exome Sequencing Project
    Quantifying rare, deleterious variation in 12 human cytochrome P450 drug-metabolism genes in a large-scale exome dataset.
    Human Molecular Genetics , 2014 Apr, 15 : 23(8)1957-63
  • Accepting Brain Death
    N Engl J Med , 2014 Mar. 6 : 370891-94
  • Clayton EW, McCullough LB, Biesecker LG, Joffe S, Ross LF, Wolf SM, Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group
    Addressing the ethical challenges in genetic testing and sequencing of children.
    The American journal of bioethics : AJOB , 2014 Mar. : 14(3)3-9
  • A 6-Month-Old With Vaccine-Hesitant Parents
    Pediatrics , 2014 Mar. : 133(3)526-30
  • Tracheostomies and Assisted Ventilation in Children with Profound Disabilities: Navigating Family and Professional Values
    Pediatrics , 2014 Feb. : 133(Supplement)S44-S49
  • Parental permission for pilot newborn screening research: guidelines from the NBSTRN
    Pediatrics , 2014 Feb. : 133(2)e410-7
  • Our Children Are Not a Diagnosis: The Experience of Parents Who Continue Their Pregnancy After a Prenatal Diagnosis of Trisomy 13 or 18
    Am J Med Genet A , 2014 Feb. : 164(2)308-18
  • Religious Objections to Medical Care
    Bioethics , 2014 : 2713-2717
  • Epidemiology of Death in the Pediatric Intensive Care Unit at Five U.S. Teaching Hospitals
    Crit Care Med , 2014 : 42(9)2101-08
  • Pediatric Triage and Allocation of Critical Care Resources During Disaster: Northwest Provider Opinion
    Prehosp Disaster Med , 2014 : 29(5)455-60
  • Quality Improvement Ethics: Lessons From the SUPPORT Study
    Am J Bioeth , 2013 Dec. : 13(12)14-19
  • The Architecture of Provider-Parent Vaccine Discussions at Health Supervision Visits
    Pediatrics , 2013 Dec. : 132(6)1037-46
  • Rethinking Vaccine Policy Making in an Era of Vaccine Hesitancy: Time to Rebuild, Not Remodel?
    Hum Vaccin Immunother , 2013 Dec. : 9(12)2672-3
  • Oxygen and Estrogen
    Hastings Center Report , 2013 Nov. : 43(6)
  • The Relationship Between Parent Attitudes About Childhood Vaccines Survey Scores and Future Child Immunization Status: a Validation Study
    JAMA Pediatr , 2013 Nov. : 167(11)1065-71
  • Yudell M, Tabor HK, Dawson G, Rossi J, Newschaffer C, Working Group in Autism Risk Communication and Ethics
    Priorities for autism spectrum disorder risk communication and ethics.
    Autism : the international journal of research and practice , 2013 Nov. : 17(6)701-22
  • Dorschner MO, Amendola LM, Turner EH, Robertson PD, Shirts BH, Gallego CJ, Bennett RL, Jones KL, Tokita MJ, Bennett JT, Kim JH, Rosenthal EA, Kim DS, National Heart, Lung, and Blood Institute Grand Opportunity Exome Sequencing Project, Tabor HK, Bamshad MJ, Motulsky AG, Scott CR, Pritchard CC, Walsh T, Burke W, Raskind WH, Byers P, Hisama FM, Nickerson DA, Jarvik GP
    Actionable, pathogenic incidental findings in 1,000 participants' exomes.
    American Journal of Human Genetics , 2013 Oct. 3 : 93(4)631-40
  • Challenging Cases in Research Ethics
    Am J Bioeth , 2013 Oct. : 13(10)60
  • The ethics of contacting family members of a subject in a genetic research study to return results for an autosomal dominant syndrome
    Am J Bioeth , 2013 Oct. : 13(10)61
  • Managing disclosure of research misconduct by a graduate student to a university mental health professional during a clinical counseling session
    Am J Bioeth , 2013 Oct. : 13(10)68
  • Use of Alternative Childhood Immunization Schedules in King County, Washington, USA
    Vaccine , 2013 Oct. 1 : 31(42)4699-701
  • Ross M. Hays, MD Crit Care Med.
    Choosing and Using Screening Criteria for Palliative Care Consultation in the ICU: a Report from the Improving Palliative Care in the ICU (IPAL-ICU) Advisory Board
    Crit Care Med , 2013 Oct. : 41(10)2318-27
  • Holly K. Tabor, PhD Genetics in Medicine
    Self-guided management of exome and whole-genome sequencing results: changing the results return model
    Genetics in Medicine , 2013 Sept. : 15(9)684-90
  • Mann PC, Woodrum DE, Wilfond BS
    Fuzzy images: Ethical implications of using routine neuroimaging in premature neonates to predict neurologic outcomes.
    The Journal of pediatrics , 2013 Aug. : 163(2)587-92
  • Recommendations for returning genomic incidental findings? We need to talk!
    Genet Med , 2013 Aug. : 15(11)85459
  • Growing Up in the Genomic Era: Implications of Whole-Genome Sequencing for Children, Families and Pediatric Practice
    Annu Rev Genomics Hum Genet , 2013 Aug. : 14535-55
  • Benjamin S. Wilfond, MD Mann PC, Woodrum DE, Wilfond BS
    Fuzzy Images: Ethical Implications of Using Routine Neuroimaging in Premature Neonates to Predict Neurologic Outcomes
    J Pediatr , 2013 Aug. : 163(2)587-592
  • Paul C. Mann, MD Mann PC and Wilfond BS
    Fuzzy Images: Ethical Implications of Using Routine Neuroimaging in Premature Neonates to Predict Neurologic Outcomes
    Journal of Pediatrics , 2013 Aug. : 163(2)587-592
  • Enhancing Children Against Unhealthy Behaviors An Ethical and Policy Assessment of Using a Nicotine Vaccine
    Public Health Ethics , 2013 July : 6(2)197-206
  • Missed Opportunities for Adolescent Vaccination, 2006-2011
    J Adolesc Health , 2013 July 1 : 53(4)492-7
  • Benjamin S. Wilfond, MD Wilfond, et all
    The OHRP and SUPPORT
    The New England journal of medicine , 2013 June 5
  • Douglas S. Diekema, MD, MPH Diekema, et all
    The OHRP and SUPPORT
    The New England journal of medicine , 2013 June 5
  • David E. Woodrum, MD Woodrum, et all
    The OHRP and SUPPORT
    The New England journal of medicine , 2013 June 5
  • Douglas S. Diekema, MD, MPH Moreno MA, Goniu N, Moreno PS, Diekema DS
    Ethics of Social Media Research: Common Concerns and Practical Considerations
    Cyberpsychology, Behavior, and Social Networking , 2013 May 16 : 16(5)
  • Benjamin S. Wilfond, MD Doorenbos AZ, Starks H, Bourget E, McMullan DM, Lewis-Newby M, Rue TC, Lindhorst T, Aisenberg E, Oman N, Curtis JR, Hays And The Seattle Ethics In Ecls See Consortium Jonna D Clark Md Ma Harris P Baden Md Thomas V Brogan Md Jane L Di Gennaro Md Robert Mazor Md Joan S Roberts Md Jessica Turnbull Md And Benjamin S Wilfond Md
    Examining Palliative Care Team Involvement in Automatic Consultations for Children on Extracorporeal Life Support in the Pediatric Intensive Care Unit
    J Palliat Med , 2013 May 13 : 16(5)492-95
  • Ross M. Hays, MD Doorenbos, A.Z., Starks, H., Bourget, E., McMullen, D.M., Lewis-Newby, M., Rue, T.C., Lindhorst, T., Aisenberg, E., Oman, N., Curtis, J.R., Hays, R.
    Examining Palliative Care Team Involvement in Automatic Consultations for Children on Extracorporeal Life Support in the Pediatric Intensive Care Unit
    J Palliat Med , 2013 May 13 : 16(5)492-95
  • Attitudes of African Americans Toward Return of Results From Exome and Whole Genome Sequencing
    American Journal of Medical Genetics Part A , 2013 May : 161(5)1064-72
  • Douglas S. Diekema, MD, MPH Committee on Bioethics, American Academy of Pediatrics
    Policy Statement: Ethical Controversies in Organ Donation after Circulatory Death
    Pediatrics , 2013 Apr, 29 : 131(5)1021-26
  • Fuzzy Images: Ethical Implications of Using Routine Neuroimaging in Premature Neonates to Predict Neurologic Outcomes
    J Pediatr , 2013 Apr, 26
  • Practices and Policies of Clinical Exome Sequencing Providers: Analysis and Implications
    American Journal of Medical Genetics Part A , 2013 Apr, 22 : 161(5)935-50
  • Doug Opel, MD,MPH Opel DJ, Marcuse EK
    Window or Mirror: Social Networks' Role in Immunization Decisions
    Pediatrics , 2013 Apr, 15 : 131(5)1619-20
  • Mutations in KCTD1 cause scalp-ear-nipple syndrome
    American Journal of Human Genetics , 2013 Apr, 4 : 92(4)621-26
  • The Intersection of Evidence and Values in Clinical guidelines: Who Decides What Constitutes Acceptable Risk in the Care of Children?
    Hospital Pediatrics , 2013 Apr, 1 : 3(2)87-91
  • Doug Opel, MD,MPH Opel DJ, Taylor JA, Phillipi CA, Diekema DS
    The Intersection of Evidence and Values in Clinical guidelines: Who Decides What Constitutes Acceptable Risk in the Care of Children?
    Hospital Pediatrics , 2013 Apr, 1 : 3(2)87-91
  • Douglas S. Diekema, MD, MPH AAP Task Force on Circumcision (Diekema primary author)
    Cultural Bias and Circumcision: The AAP Task Force on Circumcision Responds
    Pediatrics , 2013 Mar. 18 : 131(4)801-4
  • The AAP Task Force on Circumcision 2012
    The AAP Task Force on Neonatal Circumcision: a call for respectful dialogue.
    Journal of medical ethics , 2013 Mar. 18
  • Douglas S. Diekema, MD, MPH Ross LF, Saal HM, Anderson R, David K, American Academy of Pediatrics Committee on Bioethics, American Academy of Pediatrics Committee on Genetics, and American College of Medical Genetics and Genomics Social, Ethical, and Legal Issues Committee
    Ethical and Policy Issues in Genetic Testing and Screening of Children: Technical Report
    Genetics in Medicine , 2013 Feb. 21 : 15(3)234-245
  • Policy Statement: Ethical and policy issues in genetic testing and screening of children.
    Genetics in medicine : official journal of the American College of Medical Genetics , 2013 Feb. 21 : 15(3)620-22
  • Benjamin S. Wilfond, MD Rosen D, Wilfond B, Lantos JD
    Obstructive Sleep Apnea in a 17-Year-Old With Profound Cognitive Impairment
    Pediatrics , 2013 Feb. : 131(3)581-5
  • Benjamin S. Wilfond, MD Melvin AJ, Edwards K, Malone J, Hassell L, Wilfond BS
    Role for CTSAs in Leveraging a Distributed Research Infrastructure to Engage Diverse Stakeholders in Emergent Research Policy Development
    Clin Transl Sci , 2013 Feb. : 6(1)57-9
  • Benjamin S. Wilfond, MD 85. McCormick JB, Sharp RR, Ottenberg AL, Reider CR, Taylor HA, Wilfond BS
    The Establishment of Research Ethics Consultation Services (RECS): An Emerging Research Resource
    Clin Transl Sci , 2013 Feb. : 6(1)40-4
  • McCormick JB, Sharp RR, Ottenberg AL, Reider CR, Taylor HA, Wilfond BS
    The establishment of research ethics consultation services (RECS): an emerging research resource.
    Clinical and translational science , 2013 Feb. : 6(1)40-4
  • Doug Opel, MD,MPH Opel DJ, Marcuse EK
    The Enigma of Alternative Childhood Immunization Schedules: What Are the Questions?
    JAMA Pediatrics , 2013 Jan. 21 : 167(3)304-5
  • Paul C. Mann, MD Mann PC, Cooper ME, Ryckman KK, Comas B, Gili J, Crumley S, Bream EN, Byers HM, Piester T, Schaefer A, Christine PJ, Lawrence A, Schaa KL, Kelsey KJP, Berends SK, Momany AM, Gadow E, Cosentino V, Castilla EE, Lopez Camelo J, Saleme C, Day LJ, England SK, Marazita ML, Dagle JM, Murray JC
    Polymorphism in the fetal progesterone receptor and a calcium-activated potassium channel isoform are associated with preterm birth in an Argentinian population
    Journal of Perinatology , 2013 : 33336-340
  • Paul C. Mann, MD Gillett ES, Deutsch GH, Bamshad MJ, McAdams RM, Mann PC
    Novel NKX2.1 Mutation Associated with Hypothyoidism and Lethal Respiratory Failure in a Full-Term Neonate
    Journal of Perinatology , 2013 : 33157-60
  • Family Centered Care at the End of a Child's Life: We Must Get This Right
    Minerva Anestesiol , 2013 : 79(12)1321-3
  • Examining Palliative Care Team Involvement in Automatic Consults for Children on Extracorporeal Life Support (ECLS) in the Pediatric Intensive Care Unit
    J Palliat Med , 2013 : 16(5)492-95
  • Ross M. Hays, MD Doorenbos, A. Z., Lindhorst, T., Starks, H., Aisenberg, E., Curtis, J. R., & Hays, R.
    Palliative Care in the Pediatric ICU: Challenges and Opportunities For Family Centered Practice
    Journal of Social Work in End-of-Life and Palliative Care , 2012 Nov. 29 : 8(4)297-315
  • Shand J, Berg J, Bogue C, Committee for Pediatric Research, Committee on Bioethics
    Human embryonic stem cell (hESC) and human embryo research.
    Pediatrics , 2012 Nov. : 130(5)972-7
  • Physician, Parent, Patient: Where Exactly Is the Line?
    Hastings Center Report , 2012 Oct. 15 : 42(6)14-18
  • Benjamin S. Wilfond, MD Mai PL, Malkin D, Garber JE, Schiffman JD, Weitzel JN, Strong LC, Wyss O, Locke L, Means V, Achatz MI, Hainaut P, Frebourg T, Evans DG, Bleiker E, Patenaude A, Schneider K, Wilfond B, Peters JA, Hwang PM, Ford J, Tabori U, Ognjanovic S, Dennis PA, Wentzensen IM, Greene MH, Fraumeni JF Jr, Savage SA.
    Li-Fraumeni Syndrome: Report of a Clinical Research Workshop and Creation of a Research Consortium
    Cancer Genet , 2012 Oct. : 205(10)479-87
  • Doug Opel, MD,MPH Opel DJ, Banerjee A, King P, Paul C, Glassy D, Yasuda K
    Washington State Licensed Child Care Facility Directors' Perspectives on Childhood Immunization
    Journal of the Pediatric Infectious Disease Society , 2012 Sept. 19 : 2(1)40-9
  • Beskow LM, Fullerton SM, Namey EE, Nelson DK, Davis AM, Wilfond BS
    Recommendations for ethical approaches to genotype-driven research recruitment.
    Human genetics , 2012 Sept. : 131(9)1423-31
  • American Academy of Pediatrics Task Force on Circumcision
    Male circumcision.
    Pediatrics , 2012 Sept. : 130(3)e756-85
  • American Academy of Pediatrics Task Force on Circumcision
    Circumcision policy statement.
    Pediatrics , 2012 Sept. : 130(3)585-6
  • Janvier A, Farlow B, Wilfond BS
    The experience of families with children with trisomy 13 and 18 in social networks.
    Pediatrics , 2012 Aug. : 130(2)293-8
  • Doug Opel, MD,MPH Opel DJ, Olson ME
    Ethics for the Pediatrician: Bioethics Education and Resources
    Pediatrics in Review , 2012 Aug. 1 : 33(8)370-73
  • Non-invasive Fetal Genome Sequencing: Opportunities and Challenges
    American Journal of Medical Genetics Part A , 2012 Aug. : 158A(10)2382-84
  • Doug Opel, MD,MPH Taylor JA, Opel DJ
    Choriophobia: A One-Act Play
    Pediatrics , 2012 July 9 : 130(2)342-6
  • Exome Sequencing of Extreme Phenotypes Identified DCTN4 as a Modifier of Chronic Pseudomonas Aeruginosa Infection in Cystic Fibrosis
    Nature Genetics , 2012 July 8 : 44(8)886-89
  • Predicting our future: lessons from Winnie-the-Pooh.
    The Hastings Center report , 2012 July : 42(4)3
  • Female Genital Cutting: The Misnomer of Female Circumcision
    Surgical Guide to Circumcision , 2012 July : 281-90
  • Balancing the Tension: Parental Authority and the Perception of Physician Paternalism in End of Life Care
    Arch Pediatr Adolesc Med , 2012 July : 166(7)594
  • Non-invasive whole-genome sequencing of a human fetus
    Science Translational Medicine , 2012 June 6 : 4(137)137ra76
  • Informed Consent for Whole Genome Sequencing: A Qualitative Analysis of Participant Expectations and Perceptions of Risks, Benefits, and Harms
    American Journal of Medical Genetics Part A , 2012 June : 158A(6)1310-19
  • Paul C. Mann, MD Mann PC, Morriss FH, Klein JM
    Prediction of Survival in Infants with Congenital Diaphragmatic Hernia Based on Stomach Position, Surgical Timing, and Oxygenation Index
    American Journal of Perinatology , 2012 May : 29(5)383-90
  • Wilfond BS, Diekema DS
    Engaging children in genomics research: decoding the meaning of assent in research.
    Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr, : 14(4)437-43
  • Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA
    Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
    Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr, : 14(4)361-84
  • Wilfond BS, Diekema DS
    Engaging children in genomics research: decoding the meaning of assent in research.
    Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr, : 14(4)437-43
  • Ross M. Hays, MD Mosenthal AC, Weissman DE, Curtis JR, Hays RM, Lustbader DR, Mulkerin C, Puntillo KA, Ray DE, Bassett R, Boss RD, Brasel KJ, Campbell M, Nelson JE
    Integrating Palliative Care in the Surgical and Trauma Intensive Care Unit: A Report From the Improving Palliative Care in the Intensive Care Unit (IPAL-ICU) Project Advisory Board and the Center to Advance Palliative Care
    Crit Care Med , 2012 Apr, 1 : 40(4)1199 - 1206
  • Ross M. Hays, MD Lustbader DR, Nelson JE, Weissman DE, Hays RM, Mosenthal AC, Mulkerin C, Puntillo KA, Ray DE, Bassett R, Boss RD, Brasel KJ, Campbell ML, Cortez TB, Curtis JR
    Physician Reimbursement For Critical Care Services Integrating Palliative Care For Critically Ill Patients
    Chest , 2012 Mar. 1 : 141(3)787-92
  • Doug Opel, MD,MPH Opel DJ, Robinson JD, Heritage J, Korfiatis C, Taylor JA, Mangione-Smith R
    Characterizing Providers Immunization Communication Behaviors during Health Supervision Visits with Vaccine-Hesitant Parents: A Pilot Study
    Vaccine , 2012 Feb. 8 : 30(7)1269-75
  • Improving childhood vaccination rates.
    The New England journal of medicine , 2012 Feb. : 366(5)391-3
  • The Simulation Team Assessment Tool (STAT): Development, Reliability and Validation
    Resuscitation , 2012 : 83(7)879-86
  • Beskow LM, Namey EE, Cadigan RJ, Brazg T, Crouch J, Henderson GE, Michie M, Nelson DK, Tabor HK, Wilfond BS
    Research participants' perspectives on genotype-driven research recruitment.
    Journal of empirical research on human research ethics : JERHRE , 2011 Dec. : 6(4)3-20
  • Tabor HK, Brazg T, Crouch J, Namey EE, Fullerton SM, Beskow LM, Wilfond BS
    Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment.
    Journal of empirical research on human research ethics : JERHRE , 2011 Dec. : 6(4)41-52
  • Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment
    Journal of empirical research on human research ethics : JERHRE , 2011 Dec. : 6(4)41-52
  • Genomics Really Gets Personal: How Exome and Whole Genome Sequencing Challenge the Ethical Framework of Human Genetics Research
    American Journal of Medical Genetics Part A , 2011 Dec. : 155A(12)2916-24
  • Research Participants Perspectives on Genotype-driven Research Recruitment
    Journal of empirical research on human research ethics : JERHRE , 2011 Dec. : 6(4)3-20
  • Doug Opel, MD,MPH Wightman A, Opel DJ, Marcuse E, Taylor J
    Washington State Pediatricians Attitudes Towards Alternative Childhood Immunization Schedules
    Pediatrics , 2011 Nov. 28 : 128(6)1094-9
  • Tarini BA, Tercyak KP, Wilfond BS
    Commentary: Children and predictive genomic testing: disease prevention, research protection, and our future.
    Journal of pediatric psychology , 2011 Nov. : 36(10)1113-21
  • The False Dichotomy: Do Everything or Give Up
    Amer J Bioethics , 2011 Nov. : 11(11)26-7
  • Opel DJ, Diekema DS
    Finding the proper balance between freedom and justice: why we should not eliminate personal belief exemptions to vaccine mandates.
    Journal of health politics, policy and law , 2011 Oct. 14 : 37(1)141-7
  • Doug Opel, MD,MPH Opel DJ, Diekema DS
    Finding the proper balance between freedom and justice: why we should not eliminate personal belief exemptions to vaccine mandates
    Journal of health politics, policy and law , 2011 Oct. 14 : 37(1)141-7
  • Benjamin S. Wilfond, MD Wilfond BS, Carey JC
    Parental Requests for Interventions in Children With Lethal Conditions in Clinical Ethics in Pediatrics: A Case Based Textbook
    Cambridge University Press , 2011 Oct. : 174-180
  • Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct.
  • When Institutional, Professional, and Public Health Obligations Conflict: The Controversial Case of Youth Boxing in Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct. : 211-14
  • The Impaired, Incompetent, and Unethical Provider in Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct. : 231-34
  • Parental Refusals of Vaccination and School Vaccine Mandates: Balancing Parental Freedom, Child Welfare, and Public Health in Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct. : 205-10
  • Parental Refusals of Recommended Medical Interventions in Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct. : 14-7
  • Reasons to think twice before calling CPS about morbid obesity
    AAP Grand Rounds , 2011 Oct. : 26(4)48
  • Parental Refusals of Vaccination and School Vaccine Mandates: Balancing Parental Freedom, Child Welfare, and Public Health In Clinical Ethics in Pediatrics: A Case-based Textbook
    Cambridge University Press , 2011 Oct. : 205-10
  • Exome sequencing as a tool for Mendelian disease gene discovery
    Nature Reviews Genetics , 2011 Sept. 27 : 12(11)745-55
  • Doug Opel, MD,MPH Payne DC, Humiston S, Opel DJ, Klein E, Kennedy A, Wikswo M, Downing K, Kobayashi A, Albertin C, Chesley C, Staat M
    A Multi-Center, Qualitative Assessment of Pediatrician and Parental Perspectives in Addressing the Detection of Porcine Circovirus in Rotavirus Vaccines
    BMC Pediatrics , 2011 Sept. 26 : 11:83
  • Benjamin S. Wilfond, MD Beth A. Tarini, MD, MS, Kenneth P. Tercyak, PHD, and Benjamin S. Wilfond, MD
    Response to the Commentary: Children and Predictive Genomic Testing
    J Pediatr Psychol , 2011 Sept. 9 : 36(10)1128-9
  • Benjamin S. Wilfond, MD Press N, Wilfond BS, Murray M, Burke W
    The Power of Knowledge: How Carrier and Prenatal Screening Altered the Clinical Goals of Genetic Testing in Achieving Justice in Genome Translation: Rethinking the Pathway to Benefit
    Oxford University Press , 2011 Sept.
  • The Autism Genetic Resource Exchange: Changing Pace, Priorities and Role in Discovery Science in Achieving Justice in Genome Translation: Rethinking the Pathway to Benefit
    Oxford University Press , 2011 Sept. : 56-71
  • Examining the Quest to Eliminate Discrepancies in IRB Decisions
    AJOB Primary Research , 2011 Aug. : 2(2)34-6
  • Clinical Report: Maternal-Fetal Intervention and Fetal Care Centers
    Pediatrics , 2011 Aug. : 128e473-78
  • Committee on Pediatric Emergency Medicine and Committee on Bioethics
    Policy Statement: Consent for emergency medical services for children and adolescents.
    Pediatrics , 2011 Aug. : 128(2)427-33
  • Adolescent refusal of lifesaving treatment: are we asking the right questions?
    Adolescent medicine: state of the art reviews , 2011 Aug. : 22(2)213-28
  • Doug Opel, MD,MPH Opel DJ, Taylor J, Mangione-Smith R, Solomon C, Catz S, and Martin D
    Construct Validity of a Survey to Identify Vaccine-Hesitant Parents
    Vaccine , 2011 July 16 : 29(38)
  • Benjamin S. Wilfond, MD Alison D Archibald, Benjamin S Wilfond
    Population Carrier Screening: Psychological Impact
    Wiley & Sons , 2011 July 15 : eLS
  • Spectrum of MLL2 (ALR) mutations in 110 cases of Kabuki syndrome
    American Journal of Medical Genetics Part A , 2011 July : 155A(7)1511-16
  • Nishisaki A, Diekema DS
    Mind the gap and narrowing it: family presence during pediatric resuscitation and invasive procedures.
    Resuscitation , 2011 June : 82(6)655-6
  • Revisiting the best interest standard: uses and misuses.
    The Journal of clinical ethics , 2011 June : 22(2)128-33
  • Bioethical Considerations in Autism Research and Translation: Present and Future in Autism Spectrum Disorders
    Oxford University Press , 2011 June : 1337-44
  • Ross M. Hays, MD Feudtner J, Kang T, Hexem K, Friebert S, Friedrichdorf S, Osenga K, Siden H, Hays R, Dussel V, Wolfe J
    Pediatric Palliative Care Patients: A Prospective Multicenter Cohort Study
    Pediatrics , 2011 June 1 : 127(6)1094 - 1101
  • Tercyak KP, Hensley Alford S, Emmons KM, Lipkus IM, Wilfond BS, McBride CM
    Parents' attitudes toward pediatric genetic testing for common disease risk.
    Pediatrics , 2011 May : 127(5)e1288-95
  • Waitress in The Picture of Health: Medical Ethics and the Movies
    Oxford University Press , 2011 May : 186-91
  • Richer J, Ghebremichael MS, Chudley AE, Robinson WM, Wilfond BS, Solomon MZ
    Research use of leftover newborn bloodspots: attitudes of Canadian geneticists regarding storage and informed consent requirements.
    Genetics in medicine : official journal of the American College of Medical Genetics , 2011 Apr, : 13(4)305-13
  • Doug Opel, MD,MPH Opel DJ, Korfiatis C, Wiese C, Catz S, Mangione-Smith R, Taylor JA, and Martin
    Development of a Survey to Identify Vaccine Hesitant Parents: The Parental Attitudes about Childhood Vaccines Survey
    Human Vaccines , 2011 Apr, 1 : 7(4)419-25
  • Rosenthal MS, Diekema DS
    Pediatric ethics guidelines for hereditary medullary thyroid cancer.
    International journal of pediatric endocrinology , 2011 Mar. : 847603
  • Ross M. Hays, MD Hays R, Adams L, Frost M
    Introducing Home-Based Palliative Care and Hospice in the Textbook of Interdisciplinary Pediatric Palliative Care
    Elsevier, Philadelphia , 2011 Feb. 9 : 195-199
  • Opel DJ, Diekema DS, Marcuse EK
    Not Just a Bad Apple, but a Bad Barrel: The Biomedical Research System in the Wake of Wakefield
    BMJ , 2011 Jan. 22 : 342179 - 80
  • Doug Opel, MD,MPH Opel DJ, Diekema DS, Marcuse EM
    Not Just a Bad Apple, but a Bad Barrel: The Biomedical Research System in the Wake of Wakefield
    BMJ , 2011 Jan. 22 : 342.179-80
  • Benjamin S. Wilfond, MD Benjamin S. Wilfond.
    Growth Attenuation: Health Outcomes and Social Services
    Hastings Center Report , 2011 : 41(5)7-8
  • Benjamin S. Wilfond, MD Goldenberg AJ, Hull SC, Wilfond BS, Sharp RR.
    Patient Perspectives on Group Benefits and Harms in Genetic Research
    Public Health Genomics , 2011 : 14(3)135-42
  • Myers RE, Manne SL, Wilfond B, Sifri R, Ziring B, Wolf TA, Cocroft J, Ueland A, Petrich A, Swan H, DiCarlo M, Weinberg DS
    A randomized trial of genetic and environmental risk assessment (GERA) for colorectal cancer risk in primary care: trial design and baseline findings.
    Contemporary clinical trials , 2011 Jan. : 32(1)25-31
  • Bone Marrow Donation Between Siblings Living in Different Families
    Pediatrics , 2011 Jan. : 127(1)158-62
  • Measuring Family Satisfaction with Care and Quality of Dying in the Intensive Care Unit: Does Patient Age Matter?
    J Palliat Med , 2011 : 14(12)1284-90
  • Family Centered Care
    Pediatric Critical Care, 4th Edition , 2010
  • Tabor HK, Kelley M
    Challenges in the use of direct-to-consumer personal genome testing in children.
    The American journal of bioethics : AJOB , 2009 : 32-4
  • Douglas S. Diekema, MD, MPH Douglas S. Diekema
    Male Circumcision [Addenedum]
    Bioethics : 586-588
  • Ethics in Extracorporeal Life Support: A Research Agenda