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Publications

Beskow LM, Fullerton SM, Namey EE, Nelson DK, Davis AM, Wilfond BS
Recommendations for ethical approaches to genotype-driven research recruitment.
Human genetics , 2012 Sep: 131(9)1423-31
Janvier A, Farlow B, Wilfond BS
The experience of families with children with trisomy 13 and 18 in social networks.
Pediatrics , 2012 Aug: 130(2)293-8
Wilfond B
Predicting our future: lessons from Winnie-the-Pooh.
The Hastings Center report , 2012 Jul-Aug: 42(4)3
Rosenberg AR, Skapek SX, Hawkins DS
The Inconvenience of Convenience Cohorts: Rhabdomyosarcoma and the PAX-FOXO1 Biomarker.
Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology , 2012 Jul: 21(7)1012-8
Wilfond BS, Diekema DS
Engaging children in genomics research: decoding the meaning of assent in research.
Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr: 14(4)437-43
Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Genetics in medicine : official journal of the American College of Medical Genetics , 2012 Apr: 14(4)361-84
Rosenberg AR, Baker KS, Syrjala K, Wolfe J
Systematic review of psychosocial morbidities among bereaved parents of children with cancer.
Pediatric blood & cancer , 2012 Apr: 58(4)503-12
Abby R. Rosenberg, MD
How they do this
Journal of Clinical Oncology , 2012: (In press)
Abby R. Rosenberg, MD
Psychological distress in parents of children with advanced cancer
Archives of Pediatrics and Adolescent Medicine , 2012: In press
Paul C. Mann, MD
Genetic Influences On Preterm Birth in Argentina
, Dec. 2011
Beskow LM, Namey EE, Cadigan RJ, Brazg T, Crouch J, Henderson GE, Michie M, Nelson DK, Tabor HK, Wilfond BS
Research participants' perspectives on genotype-driven research recruitment.
Journal of empirical research on human research ethics : JERHRE , 2011 Dec: 6(4)3-20
Tabor HK, Brazg T, Crouch J, Namey EE, Fullerton SM, Beskow LM, Wilfond BS
Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment.
Journal of empirical research on human research ethics : JERHRE , 2011 Dec: 6(4)41-52
Paul C. Mann, MD
Novel NKX2.1 Mutation Associated with Hypothyoidism and Lethal Respiratory Failure in a Full-Term Neonate
, Nov. 2011
Tarini BA, Tercyak KP, Wilfond BS
Commentary: Children and predictive genomic testing: disease prevention, research protection, and our future.
Journal of pediatric psychology , 2011 Nov-Dec: 36(10)1113-21
Tercyak KP, Hensley Alford S, Emmons KM, Lipkus IM, Wilfond BS, McBride CM
Parents' attitudes toward pediatric genetic testing for common disease risk.
Pediatrics , 2011 May: 127(5)e1288-95
Richer J, Ghebremichael MS, Chudley AE, Robinson WM, Wilfond BS, Solomon MZ
Research use of leftover newborn bloodspots: attitudes of Canadian geneticists regarding storage and informed consent requirements.
Genetics in medicine : official journal of the American College of Medical Genetics , 2011 Apr: 13(4)305-13
Myers RE, Manne SL, Wilfond B, Sifri R, Ziring B, Wolf TA, Cocroft J, Ueland A, Petrich A, Swan H, DiCarlo M, Weinberg DS
A randomized trial of genetic and environmental risk assessment (GERA) for colorectal cancer risk in primary care: trial design and baseline findings.
Contemporary clinical trials , 2011 Jan: 32(1)25-31
Wilfond BS, Miller PS, Korfiatis C, Diekema DS, Dudzinski DM, Goering S, Seattle Growth Attenuation and Ethics Working Group
Navigating growth attenuation in children with profound disabilities. Children's interests, family decision-making, and community concerns.
The Hastings Center report , 2010 Nov-Dec: 40(6)27-40
Kelley M
Case study. Denial. Commentary.
The Hastings Center report , 2010 Nov-Dec: 12
Cross E, Goodacre S
Patient satisfaction with chest pain unit care: findings from the Effectiveness and Safety of Chest Pain Assessment to Prevent Emergency Admissions (ESCAPE) cluster randomised trial.
Emergency medicine journal : EMJ , 2010 Oct: 774-8
Ng SB, Bigham AW, Buckingham KJ, Hannibal MC, McMillin MJ, Gildersleeve HI, Beck AE, Tabor HK, Cooper GM, Mefford HC, Lee C, Turner EH, Smith JD, Rieder MJ, Yoshiura K, Matsumoto N, Ohta T, Niikawa N, Nickerson DA, Bamshad MJ, Shendure J
Exome sequencing identifies MLL2 mutations as a cause of Kabuki syndrome.
Nature genetics , 2010 Sep: 790-3
Kelley M
Should international adoption be part of humanitarian aid efforts? Lessons from Haiti.
Bioethics , 2010 Sep: 373-80
Wade CH, Wilfond BS, McBride CM
Effects of genetic risk information on children's psychosocial wellbeing: a systematic review of the literature.
Genetics in medicine : official journal of the American College of Medical Genetics , 2010 Jun: 12(6)317-26
Kelley M, Rubens CE
Global report on preterm birth and stillbirth (6 of 7): ethical considerations.
BMC pregnancy and childbirth , 2010 Feb 23: S6
Eyal S, Kim JD, Anderson GD, Buchanan ML, Brateng DA, Carr D, Woodrum DE, Easterling TR, Hebert MF
Atenolol Pharmacokinetics and Excretion in Breast Milk During the First 6 to 8 Months Postpartum.
Journal of clinical pharmacology , 2010 Feb 9
Diekema DS, Fost N
Ashley revisited: a response to the peer commentaries.
The American journal of bioethics : AJOB , 2010 Jan: W4-6
Diekema DS, Fost N
Ashley revisited: a response to the critics.
The American journal of bioethics : AJOB , 2010 Jan: 30-44
Ng SB, Buckingham KJ, Lee C, Bigham AW, Tabor HK, Dent KM, Huff CD, Shannon PT, Jabs EW, Nickerson DA, Shendure J, Bamshad MJ
Exome sequencing identifies the cause of a mendelian disorder.
Nature genetics , 2010 Jan: 30-5
Diekema DS
Ethical issues in research involving infants.
Seminars in perinatology , 2009 Dec: 364-71

Policy statement--Pediatrician-family-patient relationships: managing the boundaries.
Pediatrics , 2009 Dec: 1685-8

Policy statement--Physician refusal to provide information or treatment on the basis of claims of conscience.
Pediatrics , 2009 Dec: 1689-93
Schwartz GG, Olsson AG, Ballantyne CM, Barter PJ, Holme IM, Kallend D, Leiter LA, Leitersdorf E, McMurray JJ, Shah PK, Tardif JC, Chaitman BR, Duttlinger-Maddux R, Mathieson J
Rationale and design of the dal-OUTCOMES trial: efficacy and safety of dalcetrapib in patients with recent acute coronary syndrome.
American heart journal , 2009 Dec: 896-901.e3
Webb SA, Pettilä V, Seppelt I, Bellomo R, Bailey M, Cooper DJ, Cretikos M, Davies AR, Finfer S, Harrigan PW, Hart GK, Howe B, Iredell JR, McArthur C, Mitchell I, Morrison S, Nichol AD, Paterson DL, Peake S, Richards B, Stephens D, Turner A, Yung M
Critical care services and 2009 H1N1 influenza in Australia and New Zealand.
The New England journal of medicine , 2009 Nov 12: 1925-34
Beskow LM, Grady C, Iltis AS, Sadler JZ, Wilfond BS
Points to consider: The research ethics consultation service and the IRB.
IRB , 2009 Nov-Dec: 31(6)1-9
Bellomo R, Cass A, Cole L, Finfer S, Gallagher M, Lo S, McArthur C, McGuinness S, Myburgh J, Norton R, Scheinkestel C, Su S
Intensity of continuous renal-replacement therapy in critically ill patients.
The New England journal of medicine , 2009 Oct 22: 1627-38
Goldenberg AJ, Hull SC, Botkin JR, Wilfond BS
Pediatric biobanks: approaching informed consent for continuing research after children grow up.
The Journal of pediatrics , 2009 Oct: 155(4)578-83
Wallentin L, Becker RC, Budaj A, Cannon CP, Emanuelsson H, Held C, Horrow J, Husted S, James S, Katus H, Mahaffey KW, Scirica BM, Skene A, Steg PG, Storey RF, Harrington RA, Freij A, Thorsén M
Ticagrelor versus clopidogrel in patients with acute coronary syndromes.
The New England journal of medicine , 2009 Sep 10: 1045-57
Diekema DS, Botkin JR
Clinical report--Forgoing medically provided nutrition and hydration in children.
Pediatrics , 2009 Aug: 813-22
Wilfond B, Ross LF
From genetics to genomics: ethics, policy, and parental decision-making.
Journal of pediatric psychology , 2009 Jul: 34(6)639-47
Allen DB, Kappy M, Diekema D, Fost N
Growth-attenuation therapy: principles for practice.
Pediatrics , 2009 Jun: 1556-61
Giugliano RP, White JA, Bode C, Armstrong PW, Montalescot G, Lewis BS, van 't Hof A, Berdan LG, Lee KL, Strony JT, Hildemann S, Veltri E, Van de Werf F, Braunwald E, Harrington RA, Califf RM, Newby LK
Early versus delayed, provisional eptifibatide in acute coronary syndromes.
The New England journal of medicine , 2009 May 21: 2176-90
Opel DJ, Diekema DS, Lee NR, Marcuse EK
Social marketing as a strategy to increase immunization rates.
Archives of pediatrics & adolescent medicine , 2009 May: 432-7
Wilfond BS
Policy in the light: professional society guidelines begin the ethical conversations about screening.
The American journal of bioethics : AJOB , 2009 Apr: 9(4)17-9
Doug Opel
Characterisation of Organisational Issues in Pediatric Clinical Ethics Consultation: A Qualitative Study
Journal of Medical Ethics , Jan. 1, 2009: 35: 477-482
Diekema DS
Boldt v. Boldt: A pediatric ethics perspective.
The Journal of clinical ethics , 2009 Fall: 251-7
Foglia MB, Salas HS, Diekema DS
A quality improvement approach to improving informed consent practices in pediatric research.
The Journal of clinical ethics , 2009 Winter: 343-52
Opel DJ, Brownstein D, Diekema DS, Wilfond BS, Pearlman RA
Integrating ethics and patient safety: the role of clinical ethics consultants in quality improvement.
The Journal of clinical ethics , 2009 Fall: 220-6
Robertson B, Schumacher L, Gosman G, Kanfer R, Kelley M, DeVita M
Simulation-based crisis team training for multidisciplinary obstetric providers.
Simulation in healthcare : journal of the Society for Simulation in Healthcare , 2009 Summer: 77-83
Tabor HK, Kelley M
Challenges in the use of direct-to-consumer personal genome testing in children.
The American journal of bioethics : AJOB , 2009: 32-4
Bellomo R, Cass A, Cole L, Finfer S, Gallagher M, Goldsmith D, Myburgh J, Norton R, Scheinkestel C
Screening and study enrolment in the Randomized Evaluation of Normal vs. Augmented Level (RENAL) Replacement Therapy Trial.
Blood purification , 2009: 199-205
Denny CC, Wilfond BS, Peters JA, Giri N, Alter BP
All in the family: disclosure of "unwanted" information to an adolescent to benefit a relative.
American journal of medical genetics. Part A , 2008 Nov 1: 146A(21)2719-24
Oluboyede Y, Goodacre S, Wailoo A
Cost effectiveness of chest pain unit care in the NHS.
BMC health services research , 2008 Aug 13: 174
Opel DJ, Diekema DS, Marcuse EK
A critique of criteria for evaluating vaccines for inclusion in mandatory school immunization programs.
Pediatrics , 2008 Aug: e504-10
McGowan KA, Li JZ, Park CY, Beaudry V, Tabor HK, Sabnis AJ, Zhang W, Fuchs H, de Angelis MH, Myers RM, Attardi LD, Barsh GS
Ribosomal mutations cause p53-mediated dark skin and pleiotropic effects.
Nature genetics , 2008 Aug: 963-70
Diekema DS
Public health, ethics, and state compulsion.
Journal of public health management and practice : JPHMP , 2008 Jul-Aug: 332-4
Salas HS, Aziz Z, Villareale N, Diekema DS
The research and family liaison: enhancing informed consent.
IRB , 2008 Jul-Aug: 1-8
Levetown M
Communicating with children and families: from everyday interactions to skill in conveying distressing information.
Pediatrics , 2008 May: e1441-60
Assimes TL, Knowles JW, Priest JR, Basu A, Borchert A, Volcik KA, Grove ML, Tabor HK, Southwick A, Tabibiazar R, Sidney S, Boerwinkle E, Go AS, Iribarren C, Hlatky MA, Fortmann SP, Myers RM, Kuhn H, Risch N, Quertermous T
A near null variant of 12/15-LOX encoded by a novel SNP in ALOX15 and the risk of coronary artery disease.
Atherosclerosis , 2008 May: 136-44
Assimes TL, Knowles JW, Priest JR, Basu A, Volcik KA, Southwick A, Tabor HK, Hartiala J, Allayee H, Grove ML, Tabibiazar R, Sidney S, Fortmann SP, Go A, Hlatky M, Iribarren C, Boerwinkle E, Myers R, Risch N, Quertermous T
Common polymorphisms of ALOX5 and ALOX5AP and risk of coronary artery disease.
Human genetics , 2008 May: 399-408
Salas HS, Aziz Z, Diekema DS
The role of family liaisons in research ethics consultations.
The American journal of bioethics : AJOB , 2008 Mar: 27-8; discussion W4-6
Kelley M, Fryer-Edwards K, Fullerton SM, Gallagher TH, Wilfond B
Sharing data and experience: using the Clinical and Translational Science Award (CTSA) "moral community" to improve research ethics consultation.
The American journal of bioethics : AJOB , 2008 Mar: 37-9; discussion W4-6
Paul C. Mann, MD
Predicting Survival in Congenital Diaphragmatic Hernia.
Pediatric Research , 2008: 64(4)454
Kelley MA, Connor A, Kun KE, Salmon ME
Social responsibility: conceptualization and embodiment in a school of nursing.
International journal of nursing education scholarship , 2008: Article28
Fletcher FE, Ndebele P, Kelley MC
Infant feeding and HIV in Sub-Saharan Africa: what lies beneath the dilemma?
Theoretical medicine and bioethics , 2008: 307-30
Hlatky MA, Quertermous T, Boothroyd DB, Priest JR, Glassford AJ, Myers RM, Fortmann SP, Iribarren C, Tabor HK, Assimes TL, Tibshirani RJ, Go AS
Polymorphisms in hypoxia inducible factor 1 and the initial clinical presentation of coronary disease.
American heart journal , 2007 Dec: 1035-42
Doug Opel, Richard P Shugerman, Heather A McPhillips, Wendy Sue L Swanson, Sarah E Archibald, Douglas S Diekema
Professionalism and the match: a pediatric residency program's postinterview no-call policy and its impact on applicants
Pediatrics , Oct. 1, 2007: e826-31
Burton PR, Clayton DG, Cardon LR, Craddock N, Deloukas P, Duncanson A, Kwiatkowski DP, McCarthy MI, Ouwehand WH, Samani NJ, Todd JA, Donnelly P, Barrett JC, Davison D, Easton D, Evans DM, Leung HT, Marchini JL, Morris AP, Spencer CC, Tobin MD, Attwood AP, Boorman JP, Cant B, Everson U, Hussey JM, Jolley JD, Knight AS, Koch K, Meech E, Nutland S, Prowse CV, Stevens HE, Taylor NC, Walters GR, Walker NM, Watkins NA, Winzer T, Jones RW, McArdle WL, Ring SM, Strachan DP, Pembrey M, Breen G, St Clair D, Caesar S, Gordon-Smith K, Jones L, Fraser C, Green EK, Grozeva D, Hamshere ML, Holmans PA, Jones IR, Kirov G, Moskivina V, Nikolov I, O'Donovan MC, Owen MJ, Collier DA, Elkin A, Farmer A, Williamson R, McGuffin P, Young AH, Ferrier IN, Ball SG, Balmforth AJ, Barrett JH, Bishop TD, Iles MM, Maqbool A, Yuldasheva N, Hall AS, Braund PS, Dixon RJ, Mangino M, Stevens S, Thompson JR, Bredin F, Tremelling M, Parkes M, Drummond H, Lees CW, Nimmo ER, Satsangi J, Fisher SA, Forbes A, Lewis CM, Onnie CM, Prescott NJ, Sanderson J, Matthew CG, Barbour J, Mohiuddin MK, Todhunter CE, Mansfield JC, Ahmad T, Cummings FR, Jewell DP, Webster J, Brown MJ, Lathrop MG, Connell J, Dominiczak A, Marcano CA, Burke B, Dobson R, Gungadoo J, Lee KL, Munroe PB, Newhouse SJ, Onipinla A, Wallace C, Xue M, Caulfield M, Farrall M, Barton A, Bruce IN, Donovan H, Eyre S, Gilbert PD, Hilder SL, Hinks AM, John SL, Potter C, Silman AJ, Symmons DP, Thomson W, Worthington J, Dunger DB, Widmer B, Frayling TM, Freathy RM, Lango H, Perry JR, Shields BM, Weedon MN, Hattersley AT, Hitman GA, Walker M, Elliott KS, Groves CJ, Lindgren CM, Rayner NW, Timpson NJ, Zeggini E, Newport M, Sirugo G, Lyons E, Vannberg F, Hill AV, Bradbury LA, Farrar C, Pointon JJ, Wordsworth P, Brown MA, Franklyn JA, Heward JM, Simmonds MJ, Gough SC, Seal S, Stratton MR, Rahman N, Ban M, Goris A, Sawcer SJ, Compston A, Conway D, Jallow M, Newport M, Sirugo G, Rockett KA, Bumpstead SJ, Chaney A, Downes K, Ghori MJ, Gwilliam R, Hunt SE, Inouye M, Keniry A, King E, McGinnis R, Potter S, Ravindrarajah R, Whittaker P, Widden C, Withers D, Cardin NJ, Davison D, Ferreira T, Pereira-Gale J, Hallgrimsdo'ttir IB, Howie BN, Su Z, Teo YY, Vukcevic D, Bentley D, Brown MA, Compston A, Farrall M, Hall AS, Hattersley AT, Hill AV, Parkes M, Pembrey M, Stratton MR, Mitchell SL, Newby PR, Brand OJ, Carr-Smith J, Pearce SH, McGinnis R, Keniry A, Deloukas P, Reveille JD, Zhou X, Sims AM, Dowling A, Taylor J, Doan T, Davis JC, Savage L, Ward MM, Learch TL, Weisman MH, Brown M
Association scan of 14,500 nonsynonymous SNPs in four diseases identifies autoimmunity variants.
Nature genetics , 2007 Nov: 1329-37
Opel D, Shugerman R, McPhillips H, Swanson WS, Archibald S, Diekema D
Professionalism and the match: a pediatric residency program's postinterview no-call policy and its impact on applicants.
Pediatrics , 2007 Oct: e826-31
Tabor HK, Cho MK
Ethical implications of array comparative genomic hybridization in complex phenotypes: points to consider in research.
Genetics in medicine : official journal of the American College of Medical Genetics , 2007 Sep: 626-31
Riley PL, Vindigni SM, Arudo J, Waudo AN, Kamenju A, Ngoya J, Oywer EO, Rakuom CP, Salmon ME, Kelley M, Rogers M, St Louis ME, Marum LH
Developing a nursing database system in Kenya.
Health services research , 2007 Jun: 1389-405
Diekema DS
The armchair ethicist: it's all about location.
The Journal of clinical ethics , 2007 Fall: 227-32, discussion 233-4
Diekema DS
Conducting ethical research in pediatrics: a brief historical overview and review of pediatric regulations.
The Journal of pediatrics , 2006 Jul: S3-11
Burke W, Diekema DS
Ethical issues arising from the participation of children in genetic research.
The Journal of pediatrics , 2006 Jul: S34-8
Sectish TC, Rosenberg AR, Pageler NM, Chamberlain LJ, Burgos A, Stuart E
Making pediatrics residency programs family friendly: Views along the professional educational continuum.
The Journal of pediatrics , 2006 Jul: 149(1)1-2
Hays RM, Valentine J, Haynes G, Geyer JR, Villareale N, McKinstry B, Varni JW, Churchill SS
The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life.
Journal of palliative medicine , 2006 Jun: 716-28
Loud JT, Weissman NE, Peters JA, Giusti RM, Wilfond BS, Burke W, Greene MH
Deliberate deceit of family members: a challenge to providers of clinical genetics services.
Journal of clinical oncology : official journal of the American Society of Clinical Oncology , April 2006: 1643-6
Grosse SD, Boyle CA, Kenneson A, Khoury MJ, Wilfond BS
From public health emergency to public health service: the implications of evolving criteria for newborn screening panels.
Pediatrics , 2006 Mar: 923-9
Rosenberg A, Knox S
Radiation sensitization with redox modulators: a promising approach.
International journal of radiation oncology, biology, physics , 2006 Feb 1: 64(2)343-54
Henderson GE, Easter MM, Zimmer C, King NM, Davis AM, Rothschild BB, Churchill LR, Wilfond BS, Nelson DK
Therapeutic misconception in early phase gene transfer trials.
Social science & medicine (1982) , 2006 Jan: 239-53
Opel DJ, Diekema DS
The case of A.R.: the ethics of sibling donor bone marrow transplantation revisited.
The Journal of clinical ethics , 2006 Fall: 207-19
Wilfond BS, Parad RB, Fost N
Balancing benefits and risks for cystic fibrosis newborn screening: implications for policy decisions.
The Journal of pediatrics , 2005 Sep: S109-13
Cook-Deegan RM, Berkelman R, Davidson EM, Finder S, Heitman E, Kelley MC, King NM, Moseley R, Thomas JC, Tilden SJ, Vangsnes NM
Issues in biosecurity and biosafety.
Science (New York, N.Y.) , 2005 Jun 24: 1867-8
Feudtner C, Villareale NL, Morray B, Sharp V, Hays RM, Neff JM
Technology-dependency among patients discharged from a children's hospital: a retrospective cohort study.
BMC pediatrics , 2005 May 9: 8
Wilfond BS, Gollust SE
Policy issues for expanding newborn screening programs: the cystic fibrosis newborn screening experience in the United States.
The Journal of pediatrics , 2005 May: 668-74
Diekema DS
Responding to parental refusals of immunization of children.
Pediatrics , 2005 May: 1428-31
Kelley M
Limits on patient responsibility.
The Journal of medicine and philosophy , 2005 Apr: 189-206
King NM, Henderson GE, Churchill LR, Davis AM, Hull SC, Nelson DK, Parham-Vetter PC, Rothschild BB, Easter MM, Wilfond BS
Consent forms and the therapeutic misconception: the example of gene transfer research.
IRB , 2005 Jan-Feb: 1-8
Wilfond BS, Ravitsky V
On the proliferation of bioethics sub-disciplines: do we really need "genethics" and "neuroethics"?
The American journal of bioethics : AJOB , 2005 Spring: 20-1; discussion W3-4
Diekema DS
DNAR in the schools: watch your language!
The American journal of bioethics : AJOB , 2005 Winter: 76-8; author reply W19-21
Stephens BD, Diekema DS, Klein EJ
Recreational injuries in Washington state national parks.
Wilderness & environmental medicine , 2005 Winter: 192-7
McLaughlin JF, Felix SD, Nowbar S, Ferrel A, Bjornson K, Hays RM
Lower extremity sensory function in children with cerebral palsy.
Pediatric rehabilitation , 2005 Jan-Mar: 45-52
Taylor HA, Wilfond BS
Ethical issues in newborn screening research: lessons from the Wisconsin cystic fibrosis trial.
The Journal of pediatrics , 2004 Sep: 292-6
Henderson GE, Davis AM, King NM, Easter MM, Zimmer CR, Rothschild BB, Wilfond BS, Nelson DK, Churchill LR
Uncertain benefit: investigators' views and communications in early phase gene transfer trials.
Molecular therapy : the journal of the American Society of Gene Therapy , 2004 Aug: 225-31
Hull SC, Glanz K, Steffen A, Wilfond BS
Recruitment approaches for family studies: attitudes of index patients and their relatives.
IRB , 2004 Jul-Aug: 12-7
Opel DJ, Lundin DA, Stevenson KL, Klein EJ
Glass foreign body in the spinal canal of a child: case report and review of the literature.
Pediatric emergency care , 2004 Jul: 468-72
Whittle A, Shah S, Wilfond B, Gensler G, Wendler D
Institutional review board practices regarding assent in pediatric research.
Pediatrics , 2004 Jun: 1747-52
Hull SC, Gooding H, Klein AP, Warshauer-Baker E, Metosky S, Wilfond BS
Genetic research involving human biological materials: a need to tailor current consent forms.
IRB , 2004 May-Jun: 1-7
Smith S, Fryer-Edwards K, Diekema DS, Braddock CH 3rd
Finding effective strategies for teaching ethics: a comparison trial of two interventions.
Academic medicine : journal of the Association of American Medical Colleges , 2004 Mar: 265-71
Shah S, Whittle A, Wilfond B, Gensler G, Wendler D
How do institutional review boards apply the federal risk and benefit standards for pediatric research?
JAMA : the journal of the American Medical Association , 2004 Jan 28: 476-82
Coffey MJ, Wilfond B, Ross LF
Ethical assessment of clinical asthma trials including children subjects.
Pediatrics , 2004 Jan: 87-94
Freund CL, Clayton EW, Wilfond BS
Natural settings trials--improving the introduction of clinical genetic tests.
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics , 2004 Spring: 106-10
Diekema DS
Parental refusals of medical treatment: the harm principle as threshold for state intervention.
Theoretical medicine and bioethics , 2004: 243-64
Gollust SE, Wilfond BS, Hull SC
Direct-to-consumer sales of genetic services on the Internet.
Genetics in medicine : official journal of the American College of Medical Genetics , 2003 Jul-Aug: 332-7
Wendler D, Shah S, Whittle A, Wilfond BS
Nonbeneficial research with individuals who cannot consent: is it ethically better to enroll healthy or affected individuals?
IRB , 2003 Jul-Aug: 1-4
Churchill LR, Nelson DK, Henderson GE, King NM, Davis AM, Leahey E, Wilfond BS
Assessing benefits in clinical research: why diversity in benefit assessment can be risky.
IRB , 2003 May-Jun: 1-8
Koogler TK, Wilfond BS, Ross LF
Lethal language, lethal decisions.
The Hastings Center report , 2003 Mar-Apr: 37-41
Juul SE, Zerzan JC, Strandjord TP, Woodrum DE
Zinc protoporphyrin/heme as an indicator of iron status in NICU patients.
The Journal of pediatrics , 2003 Mar: 273-8
Miller FG, Wendler D, Wilfond B
When do the federal regulations allow placebo-controlled trials in children?
The Journal of pediatrics , 2003 Feb: 102-7
Diekema DS
Involuntary sterilization of persons with mental retardation: an ethical analysis.
Mental retardation and developmental disabilities research reviews , 2003: 21-6
Diekema DS
Taking children seriously: what's so important about assent?
The American journal of bioethics : AJOB , 2003 Autumn: 25-6
Horng S, Emanuel EJ, Wilfond B, Rackoff J, Martz K, Grady C
Descriptions of benefits and risks in consent forms for phase 1 oncology trials.
The New England journal of medicine , 2002 Dec 26: 2134-40
Wendler D, Prasad K, Wilfond B
Does the current consent process minimize the risks of genetics research?
American journal of medical genetics , 2002 Dec 1: 258-62
Wilfond B, Rothenberg LS
Ethical issues in cystic fibrosis newborn screening: from data to public health policy.
Current opinion in pulmonary medicine , 2002 Nov: 529-34
Gollust SE, Hull SC, Wilfond BS
Limitations of direct-to-consumer advertising for clinical genetic testing.
JAMA : the journal of the American Medical Association , 2002 Oct 9: 1762-7
O'Connor TP, Liesen DA, Mann PC, Rolando L, Banz WJ
A high isoflavone soy protein diet and intravenous genistein delay rejection of rat cardiac allografts.
The Journal of Nutrition , Aug. 2002: 132(8)2283-7
Kelley M
The meanings of professional life: teaching across the health professions.
The Journal of medicine and philosophy , 2002 Aug: 475-91
Klein EJ, Diekema DS, Paris CA, Quan L, Cohen M, Seidel KD
A randomized, clinical trial of oral midazolam plus placebo versus oral midazolam plus oral transmucosal fentanyl for sedation during laceration repair.
Pediatrics , 2002 May: 894-7
Tabor HK, Risch NJ, Myers RM
Candidate-gene approaches for studying complex genetic traits: practical considerations.
Nature reviews. Genetics , 2002 May: 391-7
Gooding HC, Wilfond B, Boehm K, Biesecker BB
Unintended messages: the ethics of teaching genetic dilemmas.
The Hastings Center report , 2002 Mar-Apr: 37-9
Li J, Tabor HK, Nguyen L, Gleason C, Lotspeich LJ, Spiker D, Risch N, Myers RM
Lack of association between HoxA1 and HoxB1 gene variants and autism in 110 multiplex families.
American journal of medical genetics , 2002 Jan 8: 24-30
Freund CL, Wilfond BS
Emerging ethical issues in pharmacogenomics: from research to clinical practice.
American journal of pharmacogenomics : genomics-related research in drug development and clinical practice , 2002: 273-81
Davis AM, Hull SC, Grady C, Wilfond BS, Henderson GE
The invisible hand in clinical research: the study coordinator's critical role in human subjects protection.
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics , 2002 Fall: 411-9
Wilfond BS, Geller G, Lerman C, Audrain-McGovern J, Shields AE
Ethical issues in conducting behavioral genetics research: the case of smoking prevention trials among adolescents.
Journal of health care law & policy , 2002: 73-88
Woodrum DE, McCormick TR
Misguided good intentions.
Journal of perinatology : official journal of the California Perinatal Association , 2002 Jan: 72-4

Ethical issues with genetic testing in pediatrics.
Pediatrics , 2001 Jun: 1451-5
Groves PH, Banning AP, Penny WJ, Lewis MJ, Cheadle HA, Newby AC
Kinetics of smooth muscle cell proliferation and intimal thickening in a pig carotid model of balloon injury.
Atherosclerosis , 1995 Sep: 83-96
Groves PH, Banning AP, Penny WJ, Newby AC, Cheadle HA, Lewis MJ
The effects of exogenous nitric oxide on smooth muscle cell proliferation following porcine carotid angioplasty.
Cardiovascular research , 1995 Jul: 87-96
Griffith TM, Lewis MJ, Newby AC, Henderson AH
Endothelium-derived relaxing factor.
Journal of the American College of Cardiology , 1988 Sep: 797-806
Griffith TM, Edwards DH, Lewis MJ, Newby AC, Henderson AH
The nature of endothelium-derived vascular relaxant factor.
Nature , 1984 Apr 12-18: 645-7
Young MR, Newby M, Wepsic HT
Hematopoiesis and suppressor bone marrow cells in mice bearing large metastatic Lewis lung carcinoma tumors.
Cancer research , 1987 Jan 1: 100-5
Young MR, Duffie GP, Newby M
Adhesiveness and morphology of Lewis lung carcinoma variants influence their sensitivity to natural killer cytolysis and their metastatic capacity.
Invasion & metastasis , 1987: 96-108
Young MR, Newby M
Differential induction of suppressor macrophages by cloned Lewis lung carcinoma variants in mice.
Journal of the National Cancer Institute , 1986 Dec: 1255-60
Young MR, Wheeler E, Newby M
Macrophage-mediated suppression of natural killer cell activity in mice bearing Lewis lung carcinoma.
Journal of the National Cancer Institute , 1986 Apr: 745-50
Griffith TM, Edwards DH, Newby AC, Lewis MJ, Henderson AH
Production of endothelium derived relaxant factor is dependent on oxidative phosphorylation and extracellular calcium.
Cardiovascular research , 1986 Jan: 7-12
Young MR, Newby M
Enhancement of Lewis lung carcinoma cell migration by prostaglandin E2 produced by macrophages.
Cancer research , 1986 Jan: 160-4
Young MR, Newby M, Meunier J
Relationships between morphology, dissemination, migration, and prostaglandin E2 secretion by cloned variants of Lewis lung carcinoma.
Cancer research , 1985 Aug: 3918-23
Paul C. Mann, MD
Genetic Admixture and Parental Affects on Preterm Birth in Argentina.
Pediatric Academic Societies Annual Meeting; Vancouver, BC; May 2010. ,
Paul C. Mann, MD
Candidate genes affecting premature birth in Argentina.
Candidate genes affecting premature birth in Argentina." Pediatric Academic Societies Annual Meeting; Baltimore, MD; May 2009. ,
Paul C. Mann, MD
Genetic Factors Influencing Preterm Delivery in Argentina
." Pediatric Academic Societies Annual Meeting; Honolulu, HI; May 2008. ,
Paul C. Mann, MD
Stomach Position and Timing of Surgery Impact Congenital Diaphragmatic Hernia Survival.
Pediatric Academic Societies Annual Meeting; Honolulu, HI; May 2008. ,
Paul C. Mann, MD
Fuzzy Images: Ethical implications of neuropredictive technologies in neonatology
,
Paul C. Mann, MD
Prediction of Survival in Infants with Congenital Diaphragmatic Hernia Based on Stomach Position, Surgical Timing, and Oxygenation Index
American Journal of Perinatology ,