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Presentations

Presentations TitleEventLocationDate
Paul C. Mann, MDJohn Dill Robertson and the Emergence of the Black StorkPAS Annual Meeting - Poster SymposiumVancouver BCMay 2014
Paul C. Mann, MDEthical Impacts of Neuroimaging Advancements on Extremely Premature Infants: Whats Missing from the Picture?" ASBH 15th Annual MeetingAtlanta, GAOct. 2013
Ross M. Hays, MDPreparing Families for Chronic Care: The Palliative Care Model33rd Annual Dialysis ConferenceSeattle, WAMarch 11, 2013
Douglas Diekema, MDChild Brain Development: Implications for Consent, Assent, and Refusal of Life-Saving InterventionsPediatric Grand Rounds, Montreal Childrens Hospital/McGill UniversityMontreal, CanadaDec. 5, 2012
Holly K. Tabor, PhDMy46: An Innovative Web-based Approach to Managing ResultsHudsonAlpha Seminar Series, HudsonAlpha Institute for BiotechnologyHuntsville, ALNov. 28, 2012
Maureen K. Kelley, PhDOpportunities and Challenges: New Diagnostics in Resource-Constrained SettingsAfrican Diagnostic Forum 2012Johannesburg, South AfricaNov. 16, 2012
Douglas Diekema, MDVaccine Hesitancy8th Annual New Jersey Vaccines for Children ConferenceEast Windsor, NJNov. 11, 2012
Holly K. Tabor, PhDAnalysis of ESP 6500 Exomes for Results of Clinical UtilityAmerican Society of Human Genetics Annual MeetingSan Francisco, CANov. 9, 2012
Holly K. Tabor, PhDAfrican American Attitudes Toward Exome and Whole Genome SequencingAmerican Society of Human Genetics Annual MeetingSan Francisco, CANov. 8, 2012
Holly K. Tabor, PhDMy46: An Innovative Web-based Approach to Managing ES/WGS ResultsAmerican Society of Human Genetics Annual MeetingSan Francisco, CANov. 7, 2012
Paul C. Mann, MDPredictive Peril: Ethical Challenges in Neonatal NeuroimagingASBH 14th Annual Meeting - Poster PresentationWashington, DCOct. 2012
Paul C. Mann, MDA Tale of Two Babies: Inconsistencies in End-of-Life Neonatal Neurological ConsultationsASBH 14th Annual Meeting - Platform PresentationWashington, DCOct. 2012
Douglas Diekema, MDEyes Wide Open: Physicians and Industry RelationshipsPediatric Grand Rounds, Yale UniversityNew Haven, CTOct. 31, 2012
Doug Opel, MD,MPHRising to the Occasion: Strategies for Communicating with Vaccine Hesitant ParentsAmerican Academy of Pediatrics National Conference and ExhibitionNew Orleans, LAOct. 22, 2012
Douglas Diekema, MDIn Case You Missed It: Interesting Articles from AAP Grand RoundsAmerican Academy of Pediatrics National Conference and ExhibitionNew Orleans, LAOct. 21, 2012
Benjamin S. Wilfond, MDResearch Ethics Consultation: Common Challenges and Tailored ApproachesAmerican Society of Bioethics and Humanities Annual MeetingWashington, DCOct. 19, 2012
Benjamin S. Wilfond, MDSocial work and Bioethics: A Call For CollaborationAmerican Society of Bioethics and Humanities Annual MeetingWashington, DCOct. 19, 2012
Paul C. Mann, MDA Tale of Two Babies: Inconsistencies in End-of-Life Neonatal Neurological ConsultationsAmerican Society for Bioethics and Humanities, 13th Annual MeetingWashington, DCOct. 19, 2012
Douglas Diekema, MDMaking Assent Meaningful in Research Involving ChildrenAnnual Ethics and Compliance in Oncology Research ConferenceHouston, TXOct. 7, 2012
Douglas S. Diekema, MD, MPHThe Adolescent Brain: OMG, What R They Thinking?Clinical Pediatric ConferenceVancouver, CanadaOct. 5, 2012
Douglas S. Diekema, MD, MPHBreathing Sense into Croup and AsthmaClinical Pediatric ConferenceVancouver, CanadaOct. 5, 2012
Holly K. Tabor, PhDThe Genome as a Resource: Self-directed Results Management in Genome Sequencing StudiesNHGRI Sequencing Network MeetingHouston, TXOct. 2, 2012
Benjamin S. Wilfond, MDResearch with Children: Complex Cases, Questions, and ConundrumsAchieving Excellence in Clinical Research: Scientific, Ethical and Operational Considerations, Advocate HealthChicago, ILSept. 28, 2012
Douglas S. Diekema, MD, MPHEthical Issues when Parents Refuse VaccinesAmerican Academy of Pediatrics, Nevada Chapter, Fifth Annual MeetingLas Vegas, NVAug. 11, 2012
Benjamin S. Wilfond, MDReturning Incidental Findings to ParentsDisclosing Genomic Incidental Findings in Cancer Biobank, Working GroupMinneapolis, MNJune 1, 2012
Douglas S. Diekema, MD, MPHWhen our Patients Wander off the Trail: Lessons from Wilderness MishapsPediatric Grand Rounds, University of North CarolinaChapel Hill, NCMay 17, 2012
Douglas S. Diekema, MD, MPHEthical Issues in the Management of Puberty and Fertility in Mentally Challenged ChildrenBioethics Grand Rounds, University of KentuckyLexington, KYMay 15, 2012
Ross M. Hays, MDPediatric Palliative Care: Lessons from the First GenerationHutton Memorial Endowed Lectureship, Johns Hopkins University School of MedicineBaltimore, MDMay 15, 2012
Douglas S. Diekema, MD, MPHAdolescent Patients Refusal of Recommended Medical TherapyAmerican Society of Pediatric Hematology-Oncology Annual MeetingNew Orleans, LAMay 10, 2012
Douglas S. Diekema, MD, MPHUnderstanding Disagreement and Resolving ConflictIdaho Society for Respiratory Care Annual State ConferenceBoise, IDApril 24, 2012
Douglas S. Diekema, MD, MPHPediatric Respiratory EmergenciesIdaho Society for Respiratory Care Annual State ConferenceBooise, IDApril 24, 2012
Doug Opel, MD,MPHTaking Talk to the Next Level: In Search of Communication Practices that Increase Parental Immunization AcceptanceNational Immunization Conference, Hosted by the CDC On LineAtlanta, GAMarch 27, 2012
Benjamin S. Wilfond, MDTechnological Interventions in Children with Profound Disabilities: Balancing Childrens Interests, Parental Preference, and Resource ConstraintProgram for Medical Ethics, Yale School of MedicineNew Haven, CTMarch 26, 2012
Doug Opel, MD,MPHFindings on Alternative Immunization Schedule PracticesInstitute of Medicine Committee on the Safety of the Childhood Immunization ScheduleSeattle, WAMarch 8, 2012
Ross M. Hays, MDPediatric Palliative CarePediatric Palliative Care Research NetworkDenver, COMarch 8, 2012
Ross M. Hays, MDPalliative Care for Neuromuscular DiseaseMuscular Dystrophy Association, National Clinical AssemblyLas Vegas, NVMarch 6, 2012
Holly K. Tabor, PhDA Feasibility Study of Human Whole Genome Sequencing in the National Childrens Study: Return of ResultsNational Childrens Study (NCS) Expanded Steering Committee MeetingBethesda, MDFeb. 13, 2012
Benjamin S. Wilfond, MDWhat Are the Psychosocial and Ethical Implications Associated with Sapropterin Response or non-response?Phenylketonuria Scientific Review Conference: State of the Science and Future Research NeedsBethesda, MDFeb. 2, 2012
Benjamin S. Wilfond, MDTechnological Interventions in Children with Profound Disabilities::Balancing Childrens Interests, Parental Preferences and Resource ConstraintGrand Rounds, Rady Childrens HospitalSan Diego, CAJan. 6, 2012
Holly K. Tabor, PhDInnovative Approaches to Informed Consent and Return of Results from Exome and Whole Genome SequencingGenomics and Randomized Trials Network (GARNET) Study Steering Committee meetingWashington, DCDec. 14, 2011
Doug Opel, MD,MPHIncreasing Childhood Immunization Through Improved Provider-Parent CommunicationPediatric Grand Rounds, University of OklahomaOklahoma City, OKNov. 11, 2011
Benjamin S. Wilfond, MDWisconsin Cystic Fibrosis Study and Undisclosed Findings: Unanticipated Findings in Newborn ScreeningNBSTRN Bioethics and Legal Issues Workgroup, American College of Medical GeneticsBethesda, MDNov. 3, 2011
Douglas S. Diekema, MD, MPHWhen Parents and Providers Disagree: Understanding and Responding to Conflicts in the Care of ChildrenPediatric Grand Rounds/Visiting Professor, University of North CarolinaChapel Hill, NCNov. 2, 2011 - Nov. 4, 2011
Maureen K. Kelley, PhDWhat About this Pregnancy? Ethical Considerations in Pregnancy Related BiobankingAmerican Public Health Association Annual MeetingWashington, DCNov. 1, 2011
Holly K. Tabor, PhDInnovative Approaches to Informed Consent and Return of Results for Exome and Whole Genome Sequencing.University of California San Diego Institute for Genomic Medicine 2011 SymposiumSan Diego, CAOct. 24, 2011
Douglas S. Diekema, MD, MPHConsent, Confidentiality, and the Clap: Ethical Controversies in Pediatric Emergency MedicineAmerican Academy of Pediatrics National Conference and ExhibitionBoston, MAOct. 15, 2011 - Oct. 17, 2011
Douglas S. Diekema, MD, MPHDifficult Parents/Difficult PatientsAmerican Academy of Pediatrics National Conference and ExhibitionBoston, MAOct. 15, 2011 - Oct. 17, 2011
Doug Opel, MD,MPHBlurring the Boundaries of Research and Clinical Care: A Constructive Ambiguity?12th Annual American Society for Bioethics and Humanities MeetingMinneapolis, MNOct. 14, 2011
Maureen K. Kelley, PhDEthical Dilemmas in Research with Orphans and Vulnerable Children: Investigators Report from the FieldAmerican Society for Bioethics and Humanities Annual MeetingMinneapolis, MNOct. 14, 2011
Benjamin S. Wilfond, MDTransforming Clinical, Parental, and Society Discord About Disability: the Example of Trisomy 18 and 13American Society of Bioethics and Humanities Annual MeetingMinneapolis, MNOct. 13, 2011
Holly K. Tabor, PhDConsent and Return of Results from Whole Genome and Exome SequencingPersonal Genomes MeetingCold Spring Harbor, NYOct. 1, 2011
Holly K. Tabor, PhDUnderstanding Ethical Implications of Genetic Testing and ResearchNIH Workshop: Ethical Legal and Social Implications of Autism Research, Interagency Autism Coordinating CommitteeBethesda, MDSept. 26, 2011
Benjamin S. Wilfond, MDGene Discovery and EthicsBrain Development Conference, NeuroDevNetVancouver, BCJune 7, 2011
Douglas S. Diekema, MD, MPHEthical Issues in the Management of Puberty and Fertility in Children with Chronic Disabilities93rd Annual Meeting and Expo of The Endocrine SocietyBoston, MAJune 7, 2011
Maureen K. Kelley, PhDResearch Beyond Borders, Responsibilities Beyond Research: Researcher's Ethical Obligations in Resource Poor SettingsPediatric Academic Societies MeetingDenver, COMay 30, 2011 - June 3, 2011
Benjamin S. Wilfond, MDPolicy Approaches to RecruitmentWorkshop on Ethical Approaches to Genotype Driven Research Recruitment, Duke UniversityRaleigh, NCMay 23, 2011
Maureen K. Kelley, PhDThe Role of Advocacy in Healthcare for Wards of the StateInternational Conference on Clinical Ethics ConsultationAmsterdam, NetherlandsMay 20, 2011
Benjamin S. Wilfond, MDAssent in Genomic Research: Should We Return Individual Research Results and Incidental Findings from Genomic Biobanks and Archives?University of MinnesotaBethesda, MDMay 11, 2011
Douglas S. Diekema, MD, MPHWhen Parents and Providers Disagree: Understanding and Responding to Conflicts in the Medical Care of ChildrenChildrens Hospital at Dartmouth Pediatric Grand RoundsLebanon, NHMay 11, 2011
Benjamin S. Wilfond, MDWhat Does it mean to Get Assent From Children in Pediatric Biobank Genomic ResearchPediatric Academic Society MeetingDenver, COMay 3, 2011
Doug Opel, MD,MPHRising to the Occasion: Strategies for Communicating with Vaccine Hesitant ParentsPediatric Academic Societies Annual MeetingDenver, COMay 3, 2011
Douglas S. Diekema, MD, MPHStopping Growth Hormone Therapy: How Tall is Tall Enough?Pediatric Academic Societies MeetingDenver, COMay 1, 2011 - May 3, 2011
Douglas S. Diekema, MD, MPHAre IRBs Seriously Outmoded? A DebatePediatric Academic Societies MeetingDenver, COMay 1, 2011 - May 3, 2011
Douglas S. Diekema, MD, MPHRising to the Occasion: Strategies for Communicating with Vaccine Hesitant ParentsPediatric Academic Societies MeetingDenver, COMay 1, 2011 - May 3, 2011
Douglas S. Diekema, MD, MPHEthics in Pediatrics: When can a Parent Decline Treatment for a Child?National Kidney Foundation Spring Clinical MeetingLas Vegas, NVApril 28, 2011
Ross M. Hays, MDVisions of Hope ProjectBerman Institute of Bioethics, Johns Hopkins UniversityWarrenton, VAApril 27, 2011
Douglas S. Diekema, MD, MPHWho Decides? Understanding Autonomy and Ethical Decision-making for Children and Adults with Developmental DisabilitiesThe California Endowment Center for Healthy CommunitiesLos Angeles, CAApril 15, 2011
Holly K. Tabor, PhDEthical Challenges and Sociocultural Dimensions of Emerging Genomic Analyses: Data from Recent Studies of Exome/WGSELSI 2011 Congress: Exploring the ELSI UniverseChapel Hill, NCApril 14, 2011
Benjamin S. Wilfond, MDAssent for Children Enrolling in Biobanks: Not "Consent" for Little AdultsExploring the ELSI Universe, NHGRIChapel Hill, NCApril 13, 2011
Holly K. Tabor, PhDEthical Implications of Return of Results in Pediatric Exome and Whole Genome Sequencing Studies;ELSI 2011 Congress: Exploring the ELSI UniverseChapel Hill, NCApril 13, 2011
Holly K. Tabor, PhDInformed Consent and Return of Results from a Whole Genome Sequencing StudyELSI 2011 Congress: Exploring the ELSI UniverseChapel Hill, NCApril 13, 2011
Douglas S. Diekema, MD, MPHEyes Wide Open: Physicians and IndustrySinai Hospital Internal Medicine Grand RoundsBaltimore, MDMarch 24, 2011
Maureen K. Kelley, PhDShould International Adoption Be Part of Humanitarian Aid Efforts? Lessons from HaitiAmerican Anthropological Association MeetingCharleston, SCFeb. 19, 2011
Holly K. Tabor, PhDA Feasibility Study of Human Whole Genome Sequencing in the National Childrens Study: Return of ResultsNational Childrens Study (NCS) Expanded Steering Committee MeetingBethesda, MDFeb. 13, 2011
Douglas S. Diekema, MD, MPHKeynote: Adolescent Patients: Assent and ConfidentialitySt. Lukes Childrens Hospital Pediatric Bioethics ConferenceBoise, IDJan. 28, 2011 - Jan. 29, 2011
Douglas S. Diekema, MD, MPHWhat is Futility?St. Lukes Childrens Hospital Pediatric Bioethics ConferenceBoise, IDJan. 28, 2011 - Jan. 29, 2011
Douglas S. Diekema, MD, MPHWhats "Hot: in Pediatric BioethicsSt. Lukes Childrens Hospital Pediatric Bioethics ConferenceBoise, IDJan. 28, 2011 - Jan. 29, 2011
Paul C. Mann, MDCandidate genes affecting premature birthArgentina Hospital Universitario SaavedraBuenos Aires, ArgentinaFeb. 23, 2009
Paul C. Mann, MDFactores geneticos de prematurez en ArgentinaSeora de las Mercedes, Instituto de Maternidad Y GinecologaSan Miguel de Tucumn, ArgentinaFeb. 19, 2009
Academic Annual Report