Bioethics

Presentations

Presentations

Presentations Title Event Location Date
Paul C. Mann, MD John Dill Robertson and the Emergence of the Black Stork PAS Annual Meeting - Poster Symposium Vancouver BC May 2014
Paul C. Mann, MD Ethical Impacts of Neuroimaging Advancements on Extremely Premature Infants: Whats Missing from the Picture?" ASBH 15th Annual Meeting Atlanta, GA Oct. 2013
Ross M. Hays, MD Preparing Families for Chronic Care: The Palliative Care Model 33rd Annual Dialysis Conference Seattle, WA March 11, 2013
Douglas Diekema, MD Child Brain Development: Implications for Consent, Assent, and Refusal of Life-Saving Interventions Pediatric Grand Rounds, Montreal Childrens Hospital/McGill University Montreal, Canada Dec. 5, 2012
Holly K. Tabor, PhD My46: An Innovative Web-based Approach to Managing Results HudsonAlpha Seminar Series, HudsonAlpha Institute for Biotechnology Huntsville, AL Nov. 28, 2012
Maureen K. Kelley, PhD Opportunities and Challenges: New Diagnostics in Resource-Constrained Settings African Diagnostic Forum 2012 Johannesburg, South Africa Nov. 16, 2012
Douglas Diekema, MD Vaccine Hesitancy 8th Annual New Jersey Vaccines for Children Conference East Windsor, NJ Nov. 11, 2012
Holly K. Tabor, PhD Analysis of ESP 6500 Exomes for Results of Clinical Utility American Society of Human Genetics Annual Meeting San Francisco, CA Nov. 9, 2012
Holly K. Tabor, PhD African American Attitudes Toward Exome and Whole Genome Sequencing American Society of Human Genetics Annual Meeting San Francisco, CA Nov. 8, 2012
Holly K. Tabor, PhD My46: An Innovative Web-based Approach to Managing ES/WGS Results American Society of Human Genetics Annual Meeting San Francisco, CA Nov. 7, 2012
Douglas Diekema, MD Eyes Wide Open: Physicians and Industry Relationships Pediatric Grand Rounds, Yale University New Haven, CT Oct. 31, 2012
Doug Opel, MD,MPH Rising to the Occasion: Strategies for Communicating with Vaccine Hesitant Parents American Academy of Pediatrics National Conference and Exhibition New Orleans, LA Oct. 22, 2012
Douglas Diekema, MD In Case You Missed It: Interesting Articles from AAP Grand Rounds American Academy of Pediatrics National Conference and Exhibition New Orleans, LA Oct. 21, 2012
Benjamin S. Wilfond, MD Social work and Bioethics: A Call For Collaboration American Society of Bioethics and Humanities Annual Meeting Washington, DC Oct. 19, 2012
Benjamin S. Wilfond, MD Research Ethics Consultation: Common Challenges and Tailored Approaches American Society of Bioethics and Humanities Annual Meeting Washington, DC Oct. 19, 2012
Paul C. Mann, MD A Tale of Two Babies: Inconsistencies in End-of-Life Neonatal Neurological Consultations American Society for Bioethics and Humanities, 13th Annual Meeting Washington, DC Oct. 19, 2012
Douglas Diekema, MD Making Assent Meaningful in Research Involving Children Annual Ethics and Compliance in Oncology Research Conference Houston, TX Oct. 7, 2012
Douglas S. Diekema, MD, MPH Breathing Sense into Croup and Asthma Clinical Pediatric Conference Vancouver, Canada Oct. 5, 2012
Douglas S. Diekema, MD, MPH The Adolescent Brain: OMG, What R They Thinking? Clinical Pediatric Conference Vancouver, Canada Oct. 5, 2012
Holly K. Tabor, PhD The Genome as a Resource: Self-directed Results Management in Genome Sequencing Studies NHGRI Sequencing Network Meeting Houston, TX Oct. 2, 2012
Paul C. Mann, MD A Tale of Two Babies: Inconsistencies in End-of-Life Neonatal Neurological Consultations ASBH 14th Annual Meeting - Platform Presentation Washington, DC Oct. 2012
Paul C. Mann, MD Predictive Peril: Ethical Challenges in Neonatal Neuroimaging ASBH 14th Annual Meeting - Poster Presentation Washington, DC Oct. 2012
Benjamin S. Wilfond, MD Research with Children: Complex Cases, Questions, and Conundrums Achieving Excellence in Clinical Research: Scientific, Ethical and Operational Considerations, Advocate Health Chicago, IL Sept. 28, 2012
Douglas S. Diekema, MD, MPH Ethical Issues when Parents Refuse Vaccines American Academy of Pediatrics, Nevada Chapter, Fifth Annual Meeting Las Vegas, NV Aug. 11, 2012
Benjamin S. Wilfond, MD Returning Incidental Findings to Parents Disclosing Genomic Incidental Findings in Cancer Biobank, Working Group Minneapolis, MN June 1, 2012
Douglas S. Diekema, MD, MPH When our Patients Wander off the Trail: Lessons from Wilderness Mishaps Pediatric Grand Rounds, University of North Carolina Chapel Hill, NC May 17, 2012
Douglas S. Diekema, MD, MPH Ethical Issues in the Management of Puberty and Fertility in Mentally Challenged Children Bioethics Grand Rounds, University of Kentucky Lexington, KY May 15, 2012
Ross M. Hays, MD Pediatric Palliative Care: Lessons from the First Generation Hutton Memorial Endowed Lectureship, Johns Hopkins University School of Medicine Baltimore, MD May 15, 2012
Douglas S. Diekema, MD, MPH Adolescent Patients Refusal of Recommended Medical Therapy American Society of Pediatric Hematology-Oncology Annual Meeting New Orleans, LA May 10, 2012
Douglas S. Diekema, MD, MPH Pediatric Respiratory Emergencies Idaho Society for Respiratory Care Annual State Conference Booise, ID April 24, 2012
Douglas S. Diekema, MD, MPH Understanding Disagreement and Resolving Conflict Idaho Society for Respiratory Care Annual State Conference Boise, ID April 24, 2012
Doug Opel, MD,MPH Taking Talk to the Next Level: In Search of Communication Practices that Increase Parental Immunization Acceptance National Immunization Conference, Hosted by the CDC On Line Atlanta, GA March 27, 2012
Benjamin S. Wilfond, MD Technological Interventions in Children with Profound Disabilities: Balancing Childrens Interests, Parental Preference, and Resource Constraint Program for Medical Ethics, Yale School of Medicine New Haven, CT March 26, 2012
Doug Opel, MD,MPH Findings on Alternative Immunization Schedule Practices Institute of Medicine Committee on the Safety of the Childhood Immunization Schedule Seattle, WA March 8, 2012
Ross M. Hays, MD Pediatric Palliative Care Pediatric Palliative Care Research Network Denver, CO March 8, 2012
Ross M. Hays, MD Palliative Care for Neuromuscular Disease Muscular Dystrophy Association, National Clinical Assembly Las Vegas, NV March 6, 2012
Holly K. Tabor, PhD A Feasibility Study of Human Whole Genome Sequencing in the National Childrens Study: Return of Results National Childrens Study (NCS) Expanded Steering Committee Meeting Bethesda, MD Feb. 13, 2012
Benjamin S. Wilfond, MD What Are the Psychosocial and Ethical Implications Associated with Sapropterin Response or non-response? Phenylketonuria Scientific Review Conference: State of the Science and Future Research Needs Bethesda, MD Feb. 2, 2012
Benjamin S. Wilfond, MD Technological Interventions in Children with Profound Disabilities::Balancing Childrens Interests, Parental Preferences and Resource Constraint Grand Rounds, Rady Childrens Hospital San Diego, CA Jan. 6, 2012
Holly K. Tabor, PhD Innovative Approaches to Informed Consent and Return of Results from Exome and Whole Genome Sequencing Genomics and Randomized Trials Network (GARNET) Study Steering Committee meeting Washington, DC Dec. 14, 2011
Doug Opel, MD,MPH Increasing Childhood Immunization Through Improved Provider-Parent Communication Pediatric Grand Rounds, University of Oklahoma Oklahoma City, OK Nov. 11, 2011
Benjamin S. Wilfond, MD Wisconsin Cystic Fibrosis Study and Undisclosed Findings: Unanticipated Findings in Newborn Screening NBSTRN Bioethics and Legal Issues Workgroup, American College of Medical Genetics Bethesda, MD Nov. 3, 2011
Douglas S. Diekema, MD, MPH When Parents and Providers Disagree: Understanding and Responding to Conflicts in the Care of Children Pediatric Grand Rounds/Visiting Professor, University of North Carolina Chapel Hill, NC Nov. 2, 2011 - Nov. 4, 2011
Maureen K. Kelley, PhD What About this Pregnancy? Ethical Considerations in Pregnancy Related Biobanking American Public Health Association Annual Meeting Washington, DC Nov. 1, 2011
Holly K. Tabor, PhD Innovative Approaches to Informed Consent and Return of Results for Exome and Whole Genome Sequencing. University of California San Diego Institute for Genomic Medicine 2011 Symposium San Diego, CA Oct. 24, 2011
Douglas S. Diekema, MD, MPH Difficult Parents/Difficult Patients American Academy of Pediatrics National Conference and Exhibition Boston, MA Oct. 15, 2011 - Oct. 17, 2011
Douglas S. Diekema, MD, MPH Consent, Confidentiality, and the Clap: Ethical Controversies in Pediatric Emergency Medicine American Academy of Pediatrics National Conference and Exhibition Boston, MA Oct. 15, 2011 - Oct. 17, 2011
Doug Opel, MD,MPH Blurring the Boundaries of Research and Clinical Care: A Constructive Ambiguity? 12th Annual American Society for Bioethics and Humanities Meeting Minneapolis, MN Oct. 14, 2011
Maureen K. Kelley, PhD Ethical Dilemmas in Research with Orphans and Vulnerable Children: Investigators Report from the Field American Society for Bioethics and Humanities Annual Meeting Minneapolis, MN Oct. 14, 2011
Benjamin S. Wilfond, MD Transforming Clinical, Parental, and Society Discord About Disability: the Example of Trisomy 18 and 13 American Society of Bioethics and Humanities Annual Meeting Minneapolis, MN Oct. 13, 2011
Holly K. Tabor, PhD Consent and Return of Results from Whole Genome and Exome Sequencing Personal Genomes Meeting Cold Spring Harbor, NY Oct. 1, 2011
Holly K. Tabor, PhD Understanding Ethical Implications of Genetic Testing and Research NIH Workshop: Ethical Legal and Social Implications of Autism Research, Interagency Autism Coordinating Committee Bethesda, MD Sept. 26, 2011
Benjamin S. Wilfond, MD Gene Discovery and Ethics Brain Development Conference, NeuroDevNet Vancouver, BC June 7, 2011
Douglas S. Diekema, MD, MPH Ethical Issues in the Management of Puberty and Fertility in Children with Chronic Disabilities 93rd Annual Meeting and Expo of The Endocrine Society Boston, MA June 7, 2011
Maureen K. Kelley, PhD Research Beyond Borders, Responsibilities Beyond Research: Researcher's Ethical Obligations in Resource Poor Settings Pediatric Academic Societies Meeting Denver, CO May 30, 2011 - June 3, 2011
Benjamin S. Wilfond, MD Policy Approaches to Recruitment Workshop on Ethical Approaches to Genotype Driven Research Recruitment, Duke University Raleigh, NC May 23, 2011
Maureen K. Kelley, PhD The Role of Advocacy in Healthcare for Wards of the State International Conference on Clinical Ethics Consultation Amsterdam, Netherlands May 20, 2011
Benjamin S. Wilfond, MD Assent in Genomic Research: Should We Return Individual Research Results and Incidental Findings from Genomic Biobanks and Archives? University of Minnesota Bethesda, MD May 11, 2011
Douglas S. Diekema, MD, MPH When Parents and Providers Disagree: Understanding and Responding to Conflicts in the Medical Care of Children Childrens Hospital at Dartmouth Pediatric Grand Rounds Lebanon, NH May 11, 2011
Benjamin S. Wilfond, MD What Does it mean to Get Assent From Children in Pediatric Biobank Genomic Research Pediatric Academic Society Meeting Denver, CO May 3, 2011
Doug Opel, MD,MPH Rising to the Occasion: Strategies for Communicating with Vaccine Hesitant Parents Pediatric Academic Societies Annual Meeting Denver, CO May 3, 2011
Douglas S. Diekema, MD, MPH Rising to the Occasion: Strategies for Communicating with Vaccine Hesitant Parents Pediatric Academic Societies Meeting Denver, CO May 1, 2011 - May 3, 2011
Douglas S. Diekema, MD, MPH Are IRBs Seriously Outmoded? A Debate Pediatric Academic Societies Meeting Denver, CO May 1, 2011 - May 3, 2011
Douglas S. Diekema, MD, MPH Stopping Growth Hormone Therapy: How Tall is Tall Enough? Pediatric Academic Societies Meeting Denver, CO May 1, 2011 - May 3, 2011
Douglas S. Diekema, MD, MPH Ethics in Pediatrics: When can a Parent Decline Treatment for a Child? National Kidney Foundation Spring Clinical Meeting Las Vegas, NV April 28, 2011
Ross M. Hays, MD Visions of Hope Project Berman Institute of Bioethics, Johns Hopkins University Warrenton, VA April 27, 2011
Douglas S. Diekema, MD, MPH Who Decides? Understanding Autonomy and Ethical Decision-making for Children and Adults with Developmental Disabilities The California Endowment Center for Healthy Communities Los Angeles, CA April 15, 2011
Holly K. Tabor, PhD Ethical Challenges and Sociocultural Dimensions of Emerging Genomic Analyses: Data from Recent Studies of Exome/WGS ELSI 2011 Congress: Exploring the ELSI Universe Chapel Hill, NC April 14, 2011
Benjamin S. Wilfond, MD Assent for Children Enrolling in Biobanks: Not "Consent" for Little Adults Exploring the ELSI Universe, NHGRI Chapel Hill, NC April 13, 2011
Holly K. Tabor, PhD Informed Consent and Return of Results from a Whole Genome Sequencing Study ELSI 2011 Congress: Exploring the ELSI Universe Chapel Hill, NC April 13, 2011
Holly K. Tabor, PhD Ethical Implications of Return of Results in Pediatric Exome and Whole Genome Sequencing Studies; ELSI 2011 Congress: Exploring the ELSI Universe Chapel Hill, NC April 13, 2011
Douglas S. Diekema, MD, MPH Eyes Wide Open: Physicians and Industry Sinai Hospital Internal Medicine Grand Rounds Baltimore, MD March 24, 2011
Maureen K. Kelley, PhD Should International Adoption Be Part of Humanitarian Aid Efforts? Lessons from Haiti American Anthropological Association Meeting Charleston, SC Feb. 19, 2011
Holly K. Tabor, PhD A Feasibility Study of Human Whole Genome Sequencing in the National Childrens Study: Return of Results National Childrens Study (NCS) Expanded Steering Committee Meeting Bethesda, MD Feb. 13, 2011
Douglas S. Diekema, MD, MPH Whats "Hot: in Pediatric Bioethics St. Lukes Childrens Hospital Pediatric Bioethics Conference Boise, ID Jan. 28, 2011 - Jan. 29, 2011
Douglas S. Diekema, MD, MPH What is Futility? St. Lukes Childrens Hospital Pediatric Bioethics Conference Boise, ID Jan. 28, 2011 - Jan. 29, 2011
Douglas S. Diekema, MD, MPH Keynote: Adolescent Patients: Assent and Confidentiality St. Lukes Childrens Hospital Pediatric Bioethics Conference Boise, ID Jan. 28, 2011 - Jan. 29, 2011
Paul C. Mann, MD Candidate genes affecting premature birth Argentina Hospital Universitario Saavedra Buenos Aires, Argentina Feb. 23, 2009
Paul C. Mann, MD Factores geneticos de prematurez en Argentina Seora de las Mercedes, Instituto de Maternidad Y Ginecologa San Miguel de Tucumn, Argentina Feb. 19, 2009