Publications

  • Ross M. Hays, MD
    Integrating Palliative Care Into the PICU: A Report From the Improving Palliative Care in the ICU Advisory Board
    Pediatr Crit Care Med , 2014 July 30
  • Ross M. Hays, MD, Crit Care Med.
    Choosing and Using Screening Criteria for Palliative Care Consultation in the ICU: a Report from the Improving Palliative Care in the ICU (IPAL-ICU) Advisory Board
    Crit Care Med , 2013 Oct. : 41(10)2318-27
  • Pettygrove S, Lu Z, Andrews JG, Meaney FJ, Sheehan DW, Price ET, Fox DJ, Pandya S, Ouyang L, Apkon SD, Powis Z, Cunniff C
    Sibling concordance for clinical features of Duchenne and Becker muscular dystrophies.
    24030636 Muscle & nerve , 2013 Sept. 13
  • McDonald CM, Henricson EK, Abresch RT, Florence J, Eagle M, Gappmaier E, Glanzman AM, PTC124-GD-007-DMD Study Group, Spiegel R, Barth J, Elfring G, Reha A, Peltz SW
    The 6-minute walk test and other clinical endpoints in duchenne muscular dystrophy: reliability, concurrent validity, and minimal clinically important differences from a multicenter study.
    23674289 Muscle & nerve , 2013 Sept. : 48(3)357-68 PMCID: PMC3826053
  • McDonald CM, Henricson EK, Abresch RT, Florence JM, Eagle M, Gappmaier E, Glanzman AM, PTC124-GD-007-DMD Study Group, Spiegel R, Barth J, Elfring G, Reha A, Peltz S
    The 6-minute walk test and other endpoints in Duchenne muscular dystrophy: longitudinal natural history observations over 48 weeks from a multicenter study.
    23681930 Muscle & nerve , 2013 Sept. : 48(3)343-56 PMCID: PMC3824082
  • Doorenbos, A.Z., Starks, H., Bourget, E., McMullen, D.M., Lewis-Newby, M., Rue, T.C., Lindhorst, T., Aisenberg, E., Oman, N., Curtis, J.R., Hays, R.
    Examining Palliative Care Team Involvement in Automatic Consultations for Children on Extracorporeal Life Support in the Pediatric Intensive Care Unit
    J Palliat Med , 2013 May 13 : 16(5)492-95
  • Apkon S
    Bone mineral density in children with congenital spinal dysfunction: updated technology for an old issue.
    23163816 Developmental medicine and child neurology , 2012 Dec. : 54(12)1077
  • Doorenbos, A. Z., Lindhorst, T., Starks, H., Aisenberg, E., Curtis, J. R., & Hays, R.
    Palliative Care in the Pediatric ICU: Challenges and Opportunities For Family Centered Practice
    Journal of Social Work in End-of-Life and Palliative Care , 2012 Nov. 29 : 8(4)297-315
  • Apkon SD
    Moving forward: exercise as an intervention to improve bone health in children with disabilities.
    22428964 Developmental medicine and child neurology , 2012 June : 54(6)490-1
  • Mosenthal AC, Weissman DE, Curtis JR, Hays RM, Lustbader DR, Mulkerin C, Puntillo KA, Ray DE, Bassett R, Boss RD, Brasel KJ, Campbell M, Nelson JE
    Integrating Palliative Care in the Surgical and Trauma Intensive Care Unit: A Report From the Improving Palliative Care in the Intensive Care Unit (IPAL-ICU) Project Advisory Board and the Center to Advance Palliative Care
    Crit Care Med , 2012 Apr, 1 : 40(4)1199 - 1206
  • Wang CH, Dowling JJ, North K, Schroth MK, Sejersen T, Shapiro F, Bellini J, Weiss H, Guillet M, Amburgey K, Apkon S, Bertini E, Bonnemann C, Clarke N, Connolly AM, Estournet-Mathiaud B, Fitzgerald D, Florence JM, Gee R, Gurgel-Giannetti J, Glanzman AM, Hofmeister B, Jungbluth H, Koumbourlis AC, Laing NG, Main M, Morrison LA, Munns C, Rose K, Schuler PM, Sewry C, Storhaug K, Vainzof M, Yuan N
    Consensus statement on standard of care for congenital myopathies.
    22431881 Journal of child neurology , 2012 Mar. : 27(3)363-82
  • Rivara FP, Ennis SK, Mangione-Smith R, MacKenzie EJ, Jaffe KM, National Expert Panel for the Development of Pediatric Rehabilitation Quality Care Indicators
    Quality of care indicators for the rehabilitation of children with traumatic brain injury.
    22280892 Archives of physical medicine and rehabilitation , 2012 Mar. : 93(3)381-5.e9 PMCID: PMC3290736
  • Zumsteg JM, Ennis SK, Jaffe KM, Mangione-Smith R, MacKenzie EJ, Rivara FP, National Expert Panel for the Development of Pediatric Rehabilitation Quality of Care Indicators
    Quality of care indicators for the structure and organization of inpatient rehabilitation care of children with traumatic brain injury.
    22280893 Archives of physical medicine and rehabilitation , 2012 Mar. : 93(3)386-93.e1 PMCID: PMC3290746
  • Lustbader DR, Nelson JE, Weissman DE, Hays RM, Mosenthal AC, Mulkerin C, Puntillo KA, Ray DE, Bassett R, Boss RD, Brasel KJ, Campbell ML, Cortez TB, Curtis JR
    Physician Reimbursement For Critical Care Services Integrating Palliative Care For Critically Ill Patients
    Chest , 2012 Mar. 1 : 141(3)787-92
  • Seth Warschausky, Jacqueline Kaufman, and Lindsey Felix
    Cerebral Palsy
    Lifespan Neuropsychology , 2012
  • Arias R, Andrews J, Pandya S, Pettit K, Trout C, Apkon S, Karwoski J, Cunniff C, Matthews D, Miller T, Davis MF, Meaney FJ
    Palliative care services in families of males with Duchenne muscular dystrophy.
    21674523 Muscle & nerve , 2011 July : 44(1)93-101
  • Feudtner J, Kang T, Hexem K, Friebert S, Friedrichdorf S, Osenga K, Siden H, Hays R, Dussel V, Wolfe J
    Pediatric Palliative Care Patients: A Prospective Multicenter Cohort Study
    Pediatrics , 2011 June 1 : 127(6)1094 - 1101
  • Hays R, Adams L, Frost M
    Introducing Home-Based Palliative Care and Hospice in the Textbook of Interdisciplinary Pediatric Palliative Care
    Elsevier, Philadelphia , 2011 Feb. 9 : 195-199
  • Apkon SD, Cassidy D
    Safety considerations in the use of botulinum toxins in children with cerebral palsy.
    20430330 PM & R : the journal of injury, function, and rehabilitation , 2010 Apr, : 2(4)282-4
  • Bernard TJ, Fenton LZ, Apkon SD, Boada R, Wilkening GN, Wilkinson CC, Soep JB, Miyamoto SD, Tripputi M, Armstrong-Wells J, Benke TA, Manco-Johnson MJ, Goldenberg NA
    Biomarkers of hypercoagulability and inflammation in childhood-onset arterial ischemic stroke.
    20022340 The Journal of pediatrics , 2010 Apr, : 156(4)651-6
  • Bernard TJ, Fenton LZ, Apkon SD, Boada R, Wilkening GN, Wilkinson CC, Soep JB, Miyamoto SD, Tripputi M, Armstrong-Wells J, Benke TA, Manco-Johnson MJ, Goldenberg NA
    Biomarkers of hypercoagulability and inflammation in childhood-onset arterial ischemic stroke.
    20022340 The Journal of pediatrics , 2010 Apr, : 651-6
  • Apkon SD, Cassidy D
    Safety considerations in the use of botulinum toxins in children with cerebral palsy.
    20430330 PM & R : the journal of injury, function, and rehabilitation , 2010 Apr, : 282-4
  • Musick DW, Bockenek WL, Massagli TL, Miknevich MA, Poduri KR, Sliwa JA, Steiner M
    Reliability of the physical medicine and rehabilitation resident observation and competency assessment tool: a multi-institution study.
    20173427 American journal of physical medicine & rehabilitation / Association of Academic Physiatrists , 2010 Mar. : 235-44
  • Massagli TL
    From novice to expert: obstacles and opportunities for residency programs.
    20193934 PM & R : the journal of injury, function, and rehabilitation , 2010 Feb. : 87-90
  • Lindsey Felix and Scott Hunter
    Pediatric Aspects of Epilepsy
    Principles and Practice of Lifespan Developmental Neuropsychology , 2010
  • Apkon SD, Fenton L, Coll JR
    Bone mineral density in children with myelomeningocele.
    18811711 Developmental medicine and child neurology , 2009 Jan. : 51(1)63-7
  • Apkon SD, Fenton L, Coll JR
    Bone mineral density in children with myelomeningocele.
    18811711 Developmental medicine and child neurology , 2009 Jan. : 63-7
  • Apkon S, Coll J
    Use of weekly alendronate to treat osteoporosis in boys with muscular dystrophy.
    17912140 American journal of physical medicine & rehabilitation / Association of Academic Physiatrists , 2008 Feb. : 87(2)139-43
  • Apkon SD, Kecskemethy HH
    Bone health in children with cerebral palsy.
    21791754 Journal of pediatric rehabilitation medicine , 2008 : 1(2)115-21
  • Ashman SB, Dawson G, Panagiotides H
    Trajectories of maternal depression over 7 years: relations with child psychophysiology and behavior and role of contextual risks.
    18211728 Development and psychopathology , 2008 : 55-77
  • Massagli TL, Carline JD
    Reliability of a 360-degree evaluation to assess resident competence.
    17885319 American journal of physical medicine & rehabilitation / Association of Academic Physiatrists , 2007 Oct. : 845-52
  • Fuentes M, Hart-Johnson T, Green CR
    The association among neighborhood socioeconomic status, race and chronic pain in black and white older adults
    17987920 Journal of the National Medical Association , 2007 Oct. : 99(10)1160-9 PMCID: PMC2574394
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2574394/
  • Oddson BE, Clancy CA, McGrath PJ
    The role of pain in reduced quality of life and depressive symptomology in children with spina bifida.
    17057560 The Clinical journal of pain , 2006 Nov. : 784-9
  • Oleszek JL, Chang N, Apkon SD, Wilson PE
    Botulinum toxin type a in the treatment of children with congenital muscular torticollis.
    16205437 American journal of physical medicine & rehabilitation / Association of Academic Physiatrists , 2005 Oct. : 84(10)813-6
  • Oleszek JL, Chang N, Apkon SD, Wilson PE
    Botulinum toxin type a in the treatment of children with congenital muscular torticollis.
    16205437 American journal of physical medicine & rehabilitation / Association of Academic Physiatrists , 2005 Oct. : 813-6
  • Hakimi KN, Massagli TL
    Anterior spinal artery syndrome in two children with genetic thrombotic disorders.
    15832907 The journal of spinal cord medicine , 2005 : 69-73
  • Clancy CA, McGrath PJ, Oddson BE
    Pain in children and adolescents with spina bifida.
    15686286 Developmental medicine and child neurology , 2005 Jan. : 27-34
  • Massagli TL, Fann JR, Burington BE, Jaffe KM, Katon WJ, Thompson RS
    Psychiatric illness after mild traumatic brain injury in children.
    15375812 Archives of physical medicine and rehabilitation , 2004 Sept. : 1428-34
  • Han JJ, Massagli TL, Jaffe KM
    Fibrocartilaginous embolism--an uncommon cause of spinal cord infarction: a case report and review of the literature.
    14970983 Archives of physical medicine and rehabilitation , 2004 Jan. : 153-7
  • Dawson G, Ashman SB, Panagiotides H, Hessl D, Self J, Yamada E, Embry L
    Preschool outcomes of children of depressed mothers: role of maternal behavior, contextual risk, and children's brain activity.
    12938711 Child development , 2003 July : 1158-75
  • Apkon SD
    Osteoporosis in children who have disabilities.
    12465563 Physical medicine and rehabilitation clinics of North America , 2002 Nov. : 13(4)839-55
  • Apkon SD
    Osteoporosis in children who have disabilities.
    12465563 Physical medicine and rehabilitation clinics of North America , 2002 Nov. : 839-55
  • Ashman SB, Dawson G, Panagiotides H, Yamada E, Wilkinson CW
    Stress hormone levels of children of depressed mothers.
    12030695 Development and psychopathology , 2002 : 333-49
  • Fuentes MM, Bjornson K, Christensen A, Apkon SD
    Disparities in Functional Outcomes for American Indian/Alaska Native Children During Inpatient Rehabilitation
  • Fuentes MM, Jimenez N, Apkon SD, Rivara FP
    Disparities in Functional Outcomes During Inpatient Rehabilitation For American Indian/Alaska Native Children with Traumatic Brain Injury