Vascular Anomalies Resources

Conditions

• Arteriovenous Malformation
• Birthmarks
• Blue Rubber Bleb Nevus Syndrome (BRBNS)
• Cobb Syndrome
• Hemangiomas
• Hereditary Hemorrhagic Telangiectasia
• Klippel-Trénaunay Syndrome
• Lymphatic Malformations 
• Maffucci's Syndrome
• Port Wine Stains
• Proteus Syndrome
• Sturge-Weber Syndrome
• Venous Malformations
• Cutis Marmorata Telangiectatica Congenita
• Kasabach-Merritt Phenomenon

Tests and Procedures

• Laser Treatment for Skin Conditions (PDF)

Recommended Reading

• For Kids: A Boy and A Birthmark: Evan's Story 
• For Kids: What's a Birthmark? 
• Hemangiomas: Suzanne's Story 

Medical Publications

• Vascular Anomalies Newsletter - Winter 2009 (PDF)
• Bloom DC, Perkins JA, Manning SC. Management of lymphatic malformations. Curr Opin Otolaryngol Head Neck Surg. 2004; 12(6):500-4.
• Harsha WJ, Perkins JA, Lewis CW, Manning SC. Pediatric admissions and procedures for lymphatic malformations in the United States: 1997 and 2000. Lymphat Res Biol. 2005; 3(2):58-65.
• Perkins JA, Sidhu M, Manning SC, Ghioni V, Sze R. Three-dimensional CT angiography imaging of vascular tumors of the head and neck. Int J Pediatr Otorhinolaryngol. 2005; 69(3):319-25.
• Thomas RF, Hornung RL, Manning SC, Perkins JA. Hemangiomas of infancy: treatment of ulceration in the head and neck. Arch Facial Plast Surg. 2005; 7(5):312-5.
• Bittles MA, Sidhu MK, Sze RW, Finn LS, Ghioni V, Perkins JA. Multidetector CT angiography of pediatric vascular malformations and hemangiomas: utility of 3-D reformatting in differential diagnosis. Pediatr Radiol. 2005; 35(11):1100-6.
• Tempero RM, Hannibal M, Finn LS, Manning SC, Cunningham ML, Perkins JA. Lymphocytopenia in children with lymphatic malformation. Arch Otolaryngol Head Neck Surg. 2006; 132(1):93-7.
• Metry D. A newborn girl with a large red plaque on her face. Pediatric Annals. 2006; 35(6):1-4.
• Drolet BA, Esterly NB, Frieden IJ. Hemangiomas in children. New England Journal of Medicine. 1999; 341:173-81.
• North PE, Waner M, Mizeracki A, Mrak RE, Nicholas R, Kincannon J, Suen JY, Mihm MC. A unique microvascular phenotype shared by juvenile hemangiomas and human placenta. Archives of Dermatology. 2001; 137:559-70.
• Waner M, Suen JY. Management of congenital vascular lesions of the head and neck. Oncology. 1995; 9:989-1004.

Support Groups

• Klippel-Trénaunay Support Group

Useful Links

• The American Academy of Dermatology 
• Birthmarks.com 
• The Hereditary Hemorrhagic Telangiectasia Foundation 
• KTS Foundation 
• Lymphatic Research Foundation 
• National Organization for Rare Disorders (NORD) 
• PHACES National Organization of Vascular Anomalies (NOVA) 
• Proteus Syndrome Foundation 
• Sturge-Weber Syndrome Community 
• Vascular Birthmarks Foundation