What is the Prader-Willi Syndrome Clinic?

The Prader-Willi Syndrome (PWS) Clinic at Seattle Children’s brings together experts in many specialties to care for children and teens with PWS. This genetic disorder affects many parts of the body. One of the main symptoms is overeating because the part of the brain that controls feelings of hunger does not work right.

There is no cure for PWS, but we treat the many health problems that often affect young people with it. These may include uncontrolled appetite, obesity, hormone imbalances that can affect growth or sexual development, type 2 diabetes, difficulty controlling emotions, intellectual disability and breathing issues during sleep.

How will the Prader-Willi Syndrome Clinic help my child?

Because of the wide range of health problems associated with PWS, the standard of care is treatment by a team of doctors trained in many different specialties. This is called multidisciplinary treatment.

At the PWS Clinic at Seattle Children’s, your child can access multiple providers in one place. This makes it easier for your child to get all of the medical care and other services they need.

Although PWS cannot be cured, we provide a variety of treatments to improve your child’s symptoms and quality of life. Each child is different. We work with you to provide complete care for your child. Depending on your child’s needs, treatments might include hormone replacement, dietary advice, behavioral therapy, sleep studies and physical therapy.

What services do you offer?

To meet the varied needs of children and teens with PWS, our team has specialized training in areas such as:

We will identify your child’s medical needs and make referrals as needed to providers with special training in other departments such as orthopedics, ophthalmology and neurology.

How can I get an appointment?

If you would like a referral to the Prader-Willi Syndrome Clinic, talk to your primary care provider. If you have a referral, you can learn more about the clinic by calling us at 206-987-2640 or emailing us.

Once you have scheduled an appointment, we’ll send you information about how to prepare for your first clinic visit.

Who’s on the team?

At Seattle Children’s Prader-Willi Syndrome Clinic, we work together as a team and with you to give your child the best treatment. Our team has expertise in the wide range of specialties your child may need.

Endocrinology and Diabetes

Neurodevelopmental Program

Pulmonary and Sleep Medicine

Genetics

Psychiatry and Behavioral Medicine

Nutrition and diabetes education

  • Christine Avgeris, MS, RD*, CDE**

Nursing and diabetes education

  • Gwen Haw, RN, CDE**

* Registered dietitian
** Certified diabetes educator

Resources

You can find more information and resources on these links to other websites: