Recommended Reading for Patients and Families

Many of these books can be checked out from the Family Resource Center at Children’s or found at your local library or bookstore. Here, we’ve provided you with links to Amazon.com, or to the association that distributes it.

About Brain Tumors: A Primer for Patients and Caregivers (PDF) by the American Brain Tumor Association

Childhood Brain and Spinal Cord Tumors, A Guide for Families, Friends and Caregivers by Tania Shimiinski-Maher, Patsy Cullen, Maria Sansalone
This book examines a multitude of issues related to childhood brain and spinal cord tumors. It covers types of tumors, procedures and surgeries, aspects of hospitalization and advocating for your child.

Children with Traumatic Brain Injury, A Parent’s Guide by Lisa Schoenbrodt, editor
Doctors, therapists, a legal expert and learning, speech and behavior specialists wrote this collection of helpful chapters. They cover a variety of topics, including descriptions of brain injury, medical concerns, rehabilitation, adjusting to a brain injury, managing your child’s behavior and legal issues.

Hydrocephalus: A Guide for Patients, Families and Friends by Chuck Toporek, Kellie Robinson
This book includes a thorough explanation of hydrocephalus, including diagrams, information on the brain and treatment options. It covers how the condition affects both a child with hydrocephalus and her family.