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Clinics and Programs
American Heart Association
Provides parents with extensive, up-to-date information regarding heart disease and treatment.
Congenital Heart Information Network
Provides information, resources and support covering all kinds of heart disease. Includes stories written by kids who have undergone treatment, chat rooms and links to additional websites.
The Children's Heart Foundation
Funds the most promising research to advance the diagnosis, treatment and prevention of congenital (present at birth) heart defects. Includes news, statistics, grant information and an online version of its book for families, "It's My Heart."
"It's My Heart" Online Book
An in-depth guide for families, covering how the heart works, various heart diseases, treatment and other resources.
Cardiac Arrhythmias Research and Education Foundation
Provides funding for research and to increase professional and public awareness of unexpected sudden cardiac death due to acquired heart disease and inherited rhythm disorders.
National Organization for Rare Disorders
Helps people with rare diseases and the organizations that serve them. Includes a wide array of information, including a database of rare diseases, a list of organizations that help, news, research and a listing of programs and services.
Sudden Arrhythmia Death Syndromes Foundation
Helps prevent sudden and unexpected cardiac death in children and young adults. The site includes news, services and other resources.
Adult Congenital Heart Association
Seeks to improve the quality of life of adults with congenital (present at birth) heart defects. The site offers information, support, message boards and other resources.
Pediatric Heart Transplant: A Guide for Patients and Families (PHTS Foundation)
This manual is designed to provide information about heart transplantation in children for parents and family members.
A project of the United Network of Organ Sharing. Contains extensive information for patients, including news and a description of what happens during a transplant.
The United Network for Organ Sharing
A nonprofit scientific and educational organization that matches organs with recipients and collects and manages data about every transplant occurring in the United States. Offers extensive data on transplants, including information from each hospital that performs a transplant.
A patient education site from the American College of Cardiology. CardioSmart's mission is to engage, inform and empower patients to better prepare them for participation in their own care.
Congenital Heart Information Network
A national organization that provides reliable information, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects and the professionals who work with them.
Mended Little Hearts
A national support program for parents of children with heart defects and heart disease.
National Association for Down Syndrome
Offering information, support and advocacy for individuals with Down syndrome and their families.
National Marfan Foundation
Dedicated to saving lives and improving the quality of life for individuals and families affected by Marfan syndrome and related disorders.
In This Section...
Recommended Reading for Patients and Families
Find a Doctor or Researcher
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Doctor or Researcher Name:
Adolescent Behavioral Health
Cystic Fibrosis Research
Disorders of Sex Development
Foot and Ankle Deformities
Gastroenterology and Hepatology Research
Hand and Upper Extremity
Infectious Disease Research
Inflammatory Bowel Disease
Lower Limb Differences
Oral and Maxillofacial Surgery
Pediatric and Adolescent Gynecology
Prenatal Diagnosis and Treatment
Psychiatry and Behavioral Health
Pulmonary and Sleep Medicine
Reconstructive Pelvic Medicine
Respiratory Support Technologies
Surgery Pulmonary Follow-Up
Vascular Anomalies Research
Eastside - King County
North Puget Sound
South Puget Sound
Olympic Peninsula and Islands
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Research Areas of Focus:
Aggressive Treatment of Juvenile Idiopathic Arthritis
Autism Spectrum Disorders
Behavioral / Mental Health
Chronic Conditions / Special Health Care Needs
Congenital Cardiac Surgery Outcomes
Continuous process improvement (CPI) and quality
Developmental Cognitive Neuroscience
Endocrinology / Metabolism
Environmental Exposures and Childhood Health Outcomes
Genetic Cardiovascular Disease
Genetics and Developmental Biology
Health Promotion and Disease Prevention
Host: Pathogen Interaction
Neuroscience / Neurodevelopment
Research Liver Regeneration
Science Education Outreach
Solid Organ Transplantation
Stem Cell Biology
Stem Cell Transplantation
Tissue Response to Injury
Ben Towne Center for Childhood Cancer Research
Center for Child Health, Behavior and Development
Center for Childhood Infections and Prematurity Research
Center for Clinical and Translational Research
Center for Developmental Biology and Regenerative Medicine
Center for Developmental Therapeutics
Center for Genetics and Development
Center for Global Infectious Disease Research
Center for Immunity and Immunotherapies
Center for Integrative Brain Research
Center for Tissue and Cell Sciences
Treuman Katz Center for Pediatric Bioethics
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Children's Heart Video Playlist
Guide to Children's
Heart Center Team