Many of these books can be checked out from the Family Resource Center at Seattle Children’s or found at your local library or bookstore. Here, we've provided you with links to Amazon.com when available.
Books for Children
Cardio What? by the Children’s Cardiomyopathy Foundation
Explains inherited forms of cardiomyopathy with text, illustrations, and activities. Written for children ages 8-13 years.
It's My Heart by the Children’s Heart Foundation
One of the most popular primers for families facing pediatric heart problems. Offers easy-to-understand descriptions of how the heart works, different conditions, various treatments, medications, hospitalization and living with a heart condition.
Riley’s Heart Machine by Lori Jones
A book about a little girl who has a heart defect and a pacemaker. Written for children ages 3 to 8.
Sillwee Wobbert: The Happy Heart Kid by G. Robert
A story for children that reinforces the celebration of who you are. Robert was born with a heart condition, but that does not stop him from meeting friends, eating well, playing outdoors and being silly. His whimsical antics allow him to help his friend, Vivian, with a problem and ultimately inspire his new name. A touching message filled with simple, fun art.
Books for Parents
Heart Defects in Children: What Every Parent Should Know by Cheryl J. Wild
A reassuring guide for parents that explains a complex topic in simple, easy-to-understand terms. Includes information on infection of the heart and its valves, common tests a child may need, questions to ask your doctor, commonly used medications and future risk factors.
Heart Warriors by Amanda Adams
A personal story of a family that faces congenital heart disease.
The Heart of a Child: What Families Need to Know About Heart Disorders in Children by Catherine A. Neill, MD; Edward B. Clark, MD; and Carleen Clark, RN
A comprehensive guide written for parents of a child with heart problems. Includes new and updated information on the genetics of heart defects, new approaches to treatment, prenatal care and a list of information resources.
The Heart of a Mother, edited by Anna Marie Jaworski
A collection of heartwarming stories from mothers of children with congenital heart defects.
The Heart of a Father, edited by Anna Marie Jaworski
A collection of heartwarming stories from fathers of children with congenital heart defects.
The Parent's Guide to Children's Congenital Heart Defects: What They Are, How to Treat Them, How to Cope with Them, by Gerri Freid Kramer and Shari Maurer
Written by two parents of children with congenital heart defects. A simple question-and-answer format includes responses from more than 30 experts in pediatric cardiology.