Recommended Reading for Patients and Families
Many of these books can be checked out from the Family Resource Center at Seattle Children's or found at your local library or bookstore.
Family Faces: A Newsletter for Families of the Craniofacial Center
This newsletter provides information on current events, changes at the hospital, upcoming opportunities for training, support and issues that affect patients and families of the Craniofacial clinic.
Understanding Cleft Lip and Palate: A Guide for New Parents (free video)
Candid conversations with parents are interwoven with insightful information from some of the world's leading craniofacial experts in this film about cleft lip and palate. Request a free video available in English and Spanish.
Children with Facial Difference: A Parent's Guide by Hope Charkins
The mother of a child with Treacher Collins syndrome, Charkins is also a clinical social worker. Her book is an excellent resource, dealing with concrete needs such as insurance while also offering guidance about psychological and coping concerns.
Autobiography of a Face by Lucy Grealy
This book details the personal experience of Grealy, who was treated for bony facial cancer in childhood and went on to have reconstructive facial surgery. Provides detailed descriptions of the experience of facial difference as well as a child's perspective on medical care.
Changing Faces: The Challenge of Facial Disfigurement by James Partridge
James Partridge is the director of a counseling and advocacy organization in England known as Changing Faces. His writings are directly influenced by his own personal experience. At age 19, he was in a car accident and sustained significant burn injuries to his entire body, including his face. His personal experience and professional work since the establishment of his organization are detailed in this very helpful volume.
Babyface: A Story of Heart and Bones by Jeanne McDermott
This book presents a very moving story of a mother's experience after the birth of her child who was diagnosed with Apert syndrome. An excellent description of the joy and the agony experienced by families who must deal with medical complexity while falling in love with their child.
A Different Life: Growing Up Learning Disabled and Other Adventures by Quinn Bradlee
When he was 14, Bradlee was diagnosed with velo-cardio-facial syndrome (VCFS), a disorder that can cause a wide range of physical ailments and learning disabilities. Bradlee describes the challenges and joys of living “a different life” with disarming candor and humor.
Bully, directed by Lee Hirsch (DVD)
This film gives an intimate, sometimes hard to watch, look at how bullying has touched five kids and their families. Filmed over the course of a school year, Bully opens a window into the pained and often endangered lives of bullied kids, the responses of teachers and administrators and the growing movement among parents and youths to change how bullying is handled.
About Your Dental Bill (PDF)
This handout answers common questions about bills from Seattle Children's for dental services. It details the billing process for patients who receive care as part of their treatment through the Craniofacial Center.
Early Sound Development in Children with a Cleft Palate (PDF)
Explains how speech develops in children who have a cleft palate. Describes how sounds develop and provides tips for supporting a child’s sound development both pre– and post–cleft palate repair.