What is the Bone Tumor and Sarcoma Clinic?
Seattle Children’s Bone Tumor and Sarcoma Clinic provides care for children, adolescents and young adults with bone tumors and soft tissue tumors.
- We treat all types of malignant bone and soft tissue tumors at our weekly clinic.
- The Bone Tumor and Sarcoma Clinic brings together healthcare providers from many other specialties so we can combine our expertise to address all areas of your child’s health.
- We care for children, adolescents and young adults from the time of diagnosis through all phases of treatment and follow-up care.
- Our doctors are involved in national and international research efforts to find new and better treatment options for bone cancers and other bone and soft tissue tumors.
- Our providers also evaluate and treat a variety of benign tumors outside of the Bone Tumor and Sarcoma Clinic.
What’s special about the Bone Tumor and Sarcoma Clinic at Seattle Children’s?
- Our program in pediatric bone and soft tissue tumors is the largest and most experienced in the Northwest and one of the most in-depth programs in the western United States.
- Each year we see about 20 new patients with malignant tumors in the Bone Tumor and Sarcoma Clinic.
- Doctors throughout North America refer children, adolescents and young adults to us for diagnosis, treatment and second opinions.
- Our clinic is one of the first in the country where doctors who specialize in bones, joints and muscles (orthopedic surgeons) and doctors who specialize in cancer (oncologists) work together in the same program.
- The team includes a pediatric oncologist who is a leader in sarcoma treatment and research, surgeons who are trained in both pediatric orthopedic surgery and musculoskeletal oncologic surgery and nurse practitioners who focus on bone and soft tissue tumors in children.
- Because bone and soft tissue tumors can occur in many places in the body, treatment is very different from one patient to another. We tailor your child’s treatment to their needs.
- We are experts at treating bone and soft tissue tumors in children, whose bodies are still growing.
- We will see your child promptly after we receive your referral or your request for an appointment. We will also help arrange any tests your child needs.
- At our weekly Bone Tumor and Sarcoma Clinic, team members come together in one place to check your child’s health and progress..
Team Approach: We Provide One-Stop Care
Treatment for bone and soft tissue tumors can be complex and involve many types of caregivers. We tailor care to your child’s exact condition.
As needed, your child’s team will include oncologists, orthopedic surgeons, nurse practitioners, pathologists, musculoskeletal radiologists, radiation oncologists, pediatric anesthesiologists, social workers, registered dietitians, child life specialists, physical therapists and specialists in orthotics and prosthetics.
The Bone Tumor and Sarcoma Clinic team meets weekly to discuss each child’s care in detail as a group. Your child’s team:
- Reviews your child’s medical progress
- Reviews imaging studies and results of tissue tests
- Discusses treatment options and decides what treatment to recommend
This way all our specialists can provide input on the safest, most effective care for your child and stay in close contact about how your child is doing.
Research: We’re Developing Better Treatments
Doctors and researchers at Seattle Children’s are working to improve treatments and outcomes for children with bone and soft tissue tumors. One goal of our Bone Tumor and Sarcoma Clinic is to offer research study opportunities, giving patients access to the latest options under investigation for their diagnosis.
A phase 1 clinical trial at Seattle Children’s is testing CAR T-cell immunotherapy in children and young adults with relapsed or refractory solid tumors. The trial is called STRIvE-01. In this trial, the patient’s own T cells are reprogrammed to recognize and target the protein EGFR, which is expressed by many childhood solid tumors, including sarcomas.
At Seattle Children’s, we can conduct studies that some other hospitals around the country do not do because of the large number of patients we see.
Seattle Children’s is part of:
- Children’s Oncology Group (COG), an international group of childhood cancer researchers
- COG Phase I Consortium, which focuses on finding and developing new treatments for children and teens with cancer
- Sarcoma Alliance for Research through Collaboration (SARC), which develops and supports research to prevent, treat and cure bone and soft tissue sarcomas
Being part of these groups means we can offer patients new medicines that are just being developed and tested. Only a small number of hospitals have access to some of the studies we do. Many of our patients are able to take part in national and international studies.
Read more about orthopedics research and cancer clinical trials at Seattle Children’s and Seattle Children’s Research Institute.
Make an appointment or request a consultation or second opinion
To make an appointment with a Seattle Children’s provider, you can be referred by your child’s primary care provider (or another specialist), or you can call us directly at 206-987-2106.
Our cancer team will connect you with any experts your child may need from the Bone Tumor and Sarcoma Clinic or other areas of Seattle Children’s.
Providers, see how to refer a patient.