Through our partnership in the SCCA, our patients who need stem cell transplants have access to promising new therapies offered only in research studies. These studies are called clinical or therapeutic trials. They may involve gene therapy, new conditioning treatments or options for children who do not have good donor choices for stem cell transplants.
We belong to national and international research groups that work to improve care and find cures for blood disorders. One such group is the North American Pediatric Aplastic Anemia Consortium (NAPAAC). It supports patients and families with bone marrow failure.
Our partner, UW Medicine, is home to the Severe Chronic Neutropenia International Registry (SCNIR). It helps track people who have a shortage of white blood cells, which can be caused by bone marrow failure. Registries like this collect data to help experts learn more about diseases and improve treatments.
At Seattle Children’s our doctors and researchers work to:
- Better understand how the body makes and balances blood cells and how this may contribute to blood disorders
- Improve treatments for children with blood conditions
- Find the causes of these conditions
- Reduce complications and side effects for children who need stem cell transplants
Learn more about blood condition research at Seattle Children’s.