Tell us your story.
My daughter, Brenna, was born very sick. I immediately
noticed that something was wrong when I brought her home from
the hospital. It was very scary for me. I was not only a
single mother, but I was only 18 at the time as well. Brenna
was in constant pain. Over the course of ten months, I took
her to many different doctors, clinics and hospitals. Every
single doctor, clinic and hospital that examined my child
told me that all she had was a viral infection and that it
would go away. . . but it never did. It only seemed to get
worse each week.
I continued to take her in every single week. These
doctors began to think that I was an overprotective mother.
No one would listen to me or take me seriously. I begged for
a referal to Children's Hospital, yet still, they
refused. It wasn't "medically neccesary"
and with our insurance, they had to make sure they exhausted
all other options first. Time seemed to be "of the
essence" and I grew frustrated. I knew that something
was very wrong. I thought my daughter was going to die before
they could figure out what was wrong with her. The doctors
ran so many different tests. Yet, I still could not get
Finally, when my daughter reached ten months, she could
hardly breath anymore and I broke down and spoke to a nurse
at a clinic and cried to her about my situation. She made an
appointment for Brenna to see one of their doctors. We went
and she gave me the referral that I needed. I made the
appointment to Children's and there, they tested her
for a fatal genetic disease called "Cystic
Fibrosis". Sure enough, by the time I made it home from
the hospital, I received a phone call that would change our
lives forever. . . Brenna tested positive for Cystic
CF primarily attacks the digestive system and the
respiratory system. They got her on the proper medication
right away. We finally got our answer thanks to
Children's Hospital. I don't think my
daughter would be alive today if it wasn't for
What does Children's mean to you, your child and your family?
The doctors explained everything to us and we immediately
got her on the appropriate medications. I noticed a change in
my daughter almost instantly. I was so releaved to get an
answer to my prayers. I could never thank them enough. Brenna
is now a thriving four year old girl who participates in
gymnastics and school. She is still a patient at
Children's Hospital. I absolutely LOVE all the
doctors in the Cystic Fibrosis clinic. They have been so
helpful and they guide us through the information to
understand everything we need to know about the disease. All
of the staff at Children's Hospital is terrific.
They have made such a huge difference and impact in our
lives. If it wasn't for Children's
Hospital, I don't think my little girl would be
alive and well, with us today. I thank my lucky stars and God
every day that she's here with us. I would not have
my daughter today if Children's Hospital
didn't help us. They are great!!